re: asap need special psychiatrist

[Guest guest]

I know someone like this in The Woodlands. Let me know if that is a good area and I'll email you off list. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of J. RuedeSent: Monday, August 06, 2012 10:59 AMTo: Texas-Autism-Advocacy Subject: asap need special psychiatrist Hi – I need help right away finding a psychiatrist for a young adult (21) – I'm looking for someone who is very careful about medications, preferably someone who understands PANDAS / autoimmune type illnesses as well as the general ASD biomedical picture. An out-of-the-box thinker, hopefully.The kicker, though, is they either need to work with us financially or take Medicaid in addition to our regular insurance, as it doesn't cover enough. Anyone know such a paragon? Thanks - Ruedel.ruede@...

[Guest guest]

Sorry, folks - I'm in Fort Worth - north central texas.

asap need special psychiatrist

Posted by: " J. Ruede " l.ruede@... lruede2

Date: Mon Aug 6, 2012 8:59 am ((PDT))

Hi –

I need help right away finding a psychiatrist for a young adult (21) – I'm

looking for someone who is very careful about medications, preferably someone

who understands PANDAS / autoimmune type illnesses as well as the general ASD

biomedical picture. An out-of-the-box thinker, hopefully.

The kicker, though, is they either need to work with us financially or take

Medicaid in addition to our regular insurance, as it doesn't cover enough.

Anyone know such a paragon? Thanks -

Ruede

l.ruede@...

________________________________________________________________________

Re: asap need special psychiatrist

Posted by: " Hilda Bowen " hildabowen@... hildabowen

Date: Mon Aug 6, 2012 9:59 am ((PDT))

I know someone like this in The Woodlands. Let me know if that is a good

area and I'll email you off list.

Hilda

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of J. Ruede

Sent: Monday, August 06, 2012 10:59 AM

To: Texas-Autism-Advocacy

Subject: asap need special psychiatrist

Hi -

I need help right away finding a psychiatrist for a young adult (21) - I'm

looking for someone who is very careful about medications, preferably

someone who understands PANDAS / autoimmune type illnesses as well as the

general ASD biomedical picture. An out-of-the-box thinker, hopefully.

The kicker, though, is they either need to work with us financially or take

Medicaid in addition to our regular insurance, as it doesn't cover enough.

Anyone know such a paragon? Thanks -

Ruede

l.ruede@... <mailto:l.ruede%40tcu.edu>

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3. Re: ATTENTION! ACT NOW!! TALAC Pre-Legislation Conference

Posted by: " Irma Canfield " itcanfield@... mum592001

Date: Mon Aug 6, 2012 4:25 pm ((PDT))

Forwarding as is-

RE:

Howdy! ** ****

>

> ** **

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> * Discover which organizations and agencies support the issues most

> important to them, and how to work with those agencies and organizations**

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> * Have an opportunity to personally visit their Representatives

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4. Empowerment as a way of life

Posted by: " moyer " mmoyer@... y2kheins

Date: Mon Aug 6, 2012 4:46 pm ((PDT))

Power-up! Empowerment as a way of life

by Mazzoni on August 6, 2012

What does empowerment mean to you?

The 800 youth, parents, and professionals at our state-wide transition

conference were asked this question.

The challenge – for us – and for our kids, is to live empowered lives –

not just at a conference – or some day in the future – but right now –

today – every day.

Obstacles abound. The behavior of others may sometimes be unhelpful, and even

downright disrespectful.

But we – and our kids – can still say YES to our own lives.

Here are some questions we can ask – and practical things we can do – to

make empowerment a way of life.

Let’s power-up!

What skills are needed?

Some people think there is a “minimum skill requirement†– some

intellectual, behavioral or communication capacity that is required for a person

to live an empowered life.

Not true.

When supports and opportunities tailored to a person’s needs are provided –

any person can exercise some degree of choice, control and contribution.

Conversely, as people exercise self determination, they can, with support,

develop skills that enable them to be more fully empowered.

The time to empower our child is now. Not “someday†when certain skills have

been mastered.

Some challenging questions

We humans tend to think about what others should do differently.

We say, “I will do x when “they†do yâ€.

But, does this empower us? Does this empower our kids?

Let’s have the courage today to ask hard questions about how we ourselves can

more fully empower our kids.

Do we:

a.. speak about our child to others as if she weren’t there?

b.. answer questions for our child?

c.. make assumptions about what’s most important to our child?

d.. make plans for our child’s life without his active involvement?

e.. allow our child to voice opinions that differ from our own?

f.. let our child test-drive her interests through experiences?

g.. allow our child to work toward his own goals his own way?

These are difficult questions. Chances are, our honest answers will not be

“yes†or “noâ€, but, rather – “sometimesâ€. So then, let’s

consider what next steps we can take to more frequently and more fully empower

our kids.

It’s my life!

It’s your child’s life – your child’s future.

Like every adolescent, your child is doing the work of defining self.

Who am I? What are my talents and my needs? How do I want to contribute to the

world? How do I want to spend my days? Who do I want to be with? What matters

most to me?

Here are a few ways kids can engage questions about self and future:

1.. A simple ongoing project can be a “Me Book†– with sections like My

Talents, My Favorite Places, My Favorite Things to Do, What Matters Most to Me,

Accommodations that Work for Me, My Dreams for the Future. You can encourage or

support your child to add pictures, notes, and memorabilia to the different

sections over time.

2.. If communication and/or reading are challenges for your child, check out

this post - with links to preference profiles.

3.. Check out the By Youth for Youth Toolkit developed by the PA Youth

Leadership Network.

4.. Look around in the Whole Person section of the Free Transition Tool

Workshop on this site to explore other tools.

(These are just a few ways kids can engage important questions about themselves

and their future. The links take you to posts that explain ways to use each

tool).

Real-life experience

No one can make informed choices without real experiences.

It is only by getting out in the world and observing and trying different

activities and environments that our kids will develop their own passions and

fine-tune their goals for the future.

Our kids can test-drive their interests by trying out recreational activities,

job shadowing, volunteering, internships, travel training, and work experiences.

Sometimes parents want to protect kids from disappointment. We really do our

kids no favors by preventing them from exploring their interests through direct

experience. You just never know what will unfold.

For example – a young woman who uses a power wheelchair is passionate about

soccer. Most adults in her life dismissed this interest as irrelevant to her

future. But not her stepfather. With his support, she attended hundreds of

games, immersed herself in the rules and nuances of the sport, and volunteered

with a youth league. Now she’s a respected youth soccer referee.

Sometimes experiences help kids understand they don’t really want to continue

pursuing an interest. (That’s what happened to me when I volunteered at a

hospital as a teen). Sometimes experiences don’t turn out the way kids had

hoped. And sometimes – experiences help our kids pursue their interests in

unexpected ways.

Support your child to plan experiences that test-drive his interests in the real

world. Then support him to reflect on those experiences and plan next steps.

Help your child tap into your extended network of friends and associates to

develop opportunities.

A mom recently told me that her daughter – who loves baseball – now has a

customized job at the local minor league ballpark through the intervention of a

friend of a friend of a friend. Indeed, active networking is how most people

land jobs and learn about opportunities.

Networking

That whole “it takes a village†thing? It’s true!

Our kids are empowered in all sorts of ways by being part of a network of

relationships. In fact – this is the topic of an entire section of this

website. Check out Growing Personal Networks for a growing collection of stories

and resources.

Speaking up for myself

Here are just a few tools to support your child to speak for herself in various

situations.

Before the start of the school year, or meeting a new teacher

Well before the school year begins, or your child starts work with a new teacher

or therapist, ask your child what she wants that professional to know about her

upfront. Help her decide how she wants to communicate that information. It can

be done in all sorts of ways – in writing, with pictures, using video or

audio.

Planning ahead what and how she wants to communicate to a new professional in

her life is very empowering.

For ideas – check out the One pager at IMDetermined.org. You’ll find videos

of kids and a sample “One-Pager†template.

At the IEP meeting

Well before the IEP meeting, support your child to decide what he wants to

communicate to the team – and how.

Support your child to make prior arrangements with the teacher so that his time

for input occurs at the very beginning of the IEP meeting.

To promote positive collaboration – your child should share what he plans to

communicate at the IEP meeting with his teacher at least a week before the

meeting – so the teacher knows what to expect and can support your child.

Your child can express his input at an IEP meeting in all sorts of ways –

video, writing, pictures, powerpoint, and/or verbally.

With medical professionals

Well before a medical appointment, ask your child what questions she has for the

doctor and what she wants the doctor to know. Support her to put her questions

and statements in writing. Your child will be empowered by giving this written

information to the doctor at the beginning of the appointment.

Making my goals happen

Kids often feel that their life is at the mercy of luck or the whims of adults

in their lives. They rarely have opportunities to learn effective ways to make

what matters most to them happen in their life.

Your turn

If you’re still reading – you clearly have a commitment to empowerment as a

way of life for your child.

But where to start?

How about setting a time to come back to this post and explore the links

(there’s too much here for one sitting.)

Then, with your child – choose one idea from this post. Together – make a

plan for how to make it happen.

Notice how empowerment in one area impacts your child’s whole outlook – and

yours. Talk with your child and decide on empowering steps to take in other

areas of his life. Watch his confidence grow – and see the change in his

interaction with others. Step by step – empowerment will become a way of life.

Please share your experiences with the rest of us here in the comments. By

sharing our stories – we can help ourselves – and our kids – power up!

Did you find this post helpful? Please share it!. Thanks!

Photo credit: Power Button by LivingOS at Flickr, Be Brave Book by Let’s Be

Positive on Facebook

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5. : Your Invitation to the 3rd Annual Back-to-School Bash!

Posted by: " moyer " mmoyer@... y2kheins

Date: Mon Aug 6, 2012 6:37 pm ((PDT))

From: The Center for Child Health and Development

Sent: Monday, August 06, 2012 5:46 PM

To: mmoyer@...

Subject: Your Invitation to the 3rd Annual Back-to-School Bash!

Having trouble viewing this email? Click here

You're Invited!

Event is free, but

RSVP is required

August, 25th from 11:00am-1:00pm

Click here to email

or call

{ IN THIS ISSUE }

Will your child be a Super Hero to a child with autism

this summer?

Summer is a great time for your child to participate in

one of our research studies. We are currently enrolling boys and girls, ages 18

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Also, if you refer a friend to participate your name

will be entered into a monthly drawing for great prizes, including an iPad2!

Click here to read more about research studies at The

Center. Email info@... to learn more.

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6. Fwd: San : Reminder: Upcoming Eva's Heroes Special Presentati

Posted by: " Irma Canfield " itcanfield@... mum592001

Date: Mon Aug 6, 2012 7:08 pm ((PDT))

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*Join us for this special showing of Hollywood's latest family friendly

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