Re: Last post for awhile

May 7, 2006

I think your idea is a great one! My diagnosis (IPF) was confirmed on Thurs. and I had/have so many questions. It would be so helpful if there could be ANYTHING in writing to refer to over and over.

I immediately went to the computer and there I read "fatal". I nearly fell out of my chair. I am already in a support group at the local hospital, not far from me.

I cannot imagine how I got this. I haven't smoked in 30 years and I do not live in an air-polluted area. There were smokers in the house when I was a kid, and I did smoke as a teen and for about 20 years. I'm 67 now and still reeling from this news.

My faith is such a comfort however. I am an avid reader and study early church history and contemplative prayer.

I'm in pretty good shape for the shape I'm in. IPF for me is mild...do we all start out "mild"?

Last post for awhile

This is my last post for awhile since I will be in the hospitalstarting tomorrow. I have been brainstorming ways to make money sincereading Grey's post last week. I think we should put our headstogether and write "Dying for Dummies" (lol). Each of us could writea chapter. 1. Finding the right doctor. 2. Insurance! Insurance!Insurance!. 3. Telling your family. 4. Accessing info on the internet('s chapter) and 5. The Power of Prayer ( I vote for Ginger onthis one). I admit it is a horrible title but I truthfully think it'sneeded. Getting diagnosed with a terminal illness is bad enough andthen there is soooo much to do and how to do it is sooooo confusing. If we do a good job I bet we would get on Oprah! God Bless YouAll1-

May 7, 2006

,

What a great idea!! I am in!

You can do a rough draft while you are 'laid up'.

I am going to be praying for you...but I know that you will do fine. I will be so anxious to hear from you.

Hugs,

Joyce >> This is my last post for awhile since I will be in the hospital> starting tomorrow. I have been brainstorming ways to make money since> reading Grey's post last week. I think we should put our heads> together and write "Dying for Dummies" (lol). Each of us could write> a chapter. 1. Finding the right doctor. 2. Insurance! Insurance!> Insurance!. 3. Telling your family. 4. Accessing info on the internet> ('s chapter) and 5. The Power of Prayer ( I vote for Ginger on> this one). I admit it is a horrible title but I truthfully think it's> needed. Getting diagnosed with a terminal illness is bad enough and> then there is soooo much to do and how to do it is sooooo confusing. > If we do a good job I bet we would get on Oprah! God Bless You> All1->

May 7, 2006

Hello Group, Are any of you living by themselves? I have a friend or several friends that are alone. With all the sickness I have been thru, I would likely be in a nursing home if I had not had my wife by my side. I am so grateful that she has stuck by me thru thick and thin. One of my friends keeps reminding me that he does not need anyone. I feel sorry for him in that he does not realize what he is missing. My mother looked after my father for 20 years, while he was in a wheel chair and paralized for that time. He died in 90. She died this march a year ago. People in church would kid her about interested men. Her response was. All they are after is a purse and a nurse. I do my kidney deal wednesday. It should be a breese. One day, as an outpatient. Enough of my ramblings. Anybody out there on neprinol? Grey

Last post for awhile

This is my last post for awhile since I will be in the hospitalstarting tomorrow. I have been brainstorming ways to make money sincereading Grey's post last week. I think we should put our headstogether and write "Dying for Dummies" (lol). Each of us could writea chapter. 1. Finding the right doctor. 2. Insurance! Insurance!Insurance!. 3. Telling your family. 4. Accessing info on the internet('s chapter) and 5. The Power of Prayer ( I vote for Ginger onthis one). I admit it is a horrible title but I truthfully think it'sneeded. Getting diagnosed with a terminal illness is bad enough andthen there is soooo much to do and how to do it is sooooo confusing. If we do a good job I bet we would get on Oprah! God Bless YouAll1-

May 7, 2006

Hi Gray, I do understand your gratefulness for your wife's dedication to you. My hubby is the same.

" For Better or worse, sickness or health " I really think we are God Blessed.

on 5/7/06 10:29 PM, jg singletary at jsingletary@... wrote:

Hello Group, Are any of you living by themselves? I have a friend or several friends that are alone. With all the sickness I have been thru, I would likely be in a nursing home if I had not had my wife by my side. I am so grateful that she has stuck by me thru thick and thin. One of my friends keeps reminding me that he does not need anyone. I feel sorry for him in that he does not realize what he is missing. My mother looked after my father for 20 years, while he was in a wheel chair and paralized for that time. He died in 90. She died this march a year ago. People in church would kid her about interested men. Her response was. All they are after is a purse and a nurse. I do my kidney deal wednesday. It should be a breese. One day, as an outpatient. Enough of my ramblings. Anybody out there on neprinol? Grey

Last post for awhile

This is my last post for awhile since I will be in the hospital

starting tomorrow. I have been brainstorming ways to make money since

reading Grey's post last week. I think we should put our heads

together and write " Dying for Dummies " (lol). Each of us could write

a chapter. 1. Finding the right doctor. 2. Insurance! Insurance!

Insurance!. 3. Telling your family. 4. Accessing info on the internet

('s chapter) and 5. The Power of Prayer ( I vote for Ginger on

this one). I admit it is a horrible title but I truthfully think it's

needed. Getting diagnosed with a terminal illness is bad enough and

then there is soooo much to do and how to do it is sooooo confusing.

If we do a good job I bet we would get on Oprah! God Bless You

All1-

May 7, 2006

AMEN!!Peggy wrote: Hi Gray, I do understand your gratefulness for your wife's dedication to you. My hubby is the same."For Better or worse, sickness or health" I really think we are God Blessed.on 5/7/06 10:29 PM, jg singletary at jsingletary@... wrote: Hello Group, Are any of you living by themselves? I have a friend or several friends that are alone. With all the sickness I have been thru, I would likely be in a nursing home if I had not had my wife by my side. I am so grateful that she has stuck by me thru thick and thin. One of my friends keeps reminding me that he does not need anyone. I feel sorry for him in that he does not realize what he is missing. My mother looked after my father for 20

years, while he was in a wheel chair and paralized for that time. He died in 90. She died this march a year ago. People in church would kid her about interested men. Her response was. All they are after is a purse and a nurse. I do my kidney deal wednesday. It should be a breese. One day, as an outpatient. Enough of my ramblings. Anybody out there on neprinol? Grey Last post for awhileThis is my last post for awhile since I will be in the hospitalstarting tomorrow. I have been

brainstorming ways to make money sincereading Grey's post last week. I think we should put our headstogether and write "Dying for Dummies" (lol). Each of us could writea chapter. 1. Finding the right doctor. 2. Insurance! Insurance!Insurance!. 3. Telling your family. 4. Accessing info on the internet('s chapter) and 5. The Power of Prayer ( I vote for Ginger onthis one). I admit it is a horrible title but I truthfully think it'sneeded. Getting diagnosed with a terminal illness is bad enough andthen there is soooo much to do and how to do it is sooooo confusing. If we do a good job I bet we would get on Oprah! God Bless YouAll1-

May 8, 2006

.... one more chapter there, for all us vets anyway, " How To Get The

VA To Compensate " . I'm going thru the DAV.

Fred

---- Original Message ----

From: dnsrndl@...

To: Breathe-Support

Subject: RE: Last post for awhile

Date: Mon, 08 May 2006 00:38:56 -0000

>

><html><body>

>

>This is my last post for awhile since I will be in the hospital

>starting tomorrow. & nbsp; I have been brainstorming ways to make money

>since

>reading Grey's post last week. & nbsp; I think we should put our

>heads

>together and write & quot;Dying for Dummies & quot; (lol). & nbsp; Each of

>us could write

>a chapter. & nbsp; 1. & nbsp; Finding the right doctor. 2. Insurance!

>Insurance!

>Insurance!. 3. Telling your family. 4. Accessing info on the

>internet

>('s chapter) and 5. & nbsp; The Power of Prayer ( I vote for Ginger

>on

>this one). & nbsp; I admit it is a horrible title but I truthfully

>think it's

>needed. & nbsp; Getting diagnosed with a terminal illness is bad enough

>and

>then there is soooo much to do and how to do it is sooooo confusing.

>

>If we do a good job I bet we would get on Oprah! & nbsp; God Bless

>You

>All1-

>

>

>

>

>

> <div style= " width:500px; text-align:right; margin-bottom:1px;

>color:#909090; " >

> <tt>

May 8, 2006

Sher, I am sorry to hear you had to read " fatal " on the computer.

Unfortunatley from the stories in this group this is fairly common

practice by doctors. " you have IPF see you in 3 months " My dr. was up

front from the very beggining which didn't make it better news but at

least I got to ask him questions and I never feel like he's hiding

something from me. Anyway, from what I understand everyone starts

somewhere but usually it seems it takes a while to diagnose or for

the patient to complain of a symptom so some people are further alonf

with the disease before they are diagnosed. I consider my case early

because I am not on O2 yet but they say it will progress. Tom

>

> I think your idea is a great one! My diagnosis (IPF) was confirmed

on Thurs. and I had/have so many questions. It would be so helpful if

there could be ANYTHING in writing to refer to over and over.

> I immediately went to the computer and there I read " fatal " . I

nearly fell out of my chair. I am already in a support group at the

local hospital, not far from me.

> I cannot imagine how I got this. I haven't smoked in 30 years and I

do not live in an air-polluted area. There were smokers in the house

when I was a kid, and I did smoke as a teen and for about 20 years.

I'm 67 now and still reeling from this news.

> My faith is such a comfort however. I am an avid reader and study

early church history and contemplative prayer.

> I'm in pretty good shape for the shape I'm in. IPF for me is

mild...do we all start out " mild " ?

>

> Last post for awhile

>

> This is my last post for awhile since I will be in the hospital

> starting tomorrow. I have been brainstorming ways to make money

since

> reading Grey's post last week. I think we should put our heads

> together and write " Dying for Dummies " (lol). Each of us could

write

> a chapter. 1. Finding the right doctor. 2. Insurance! Insurance!

> Insurance!. 3. Telling your family. 4. Accessing info on the

internet

> ('s chapter) and 5. The Power of Prayer ( I vote for Ginger

on

> this one). I admit it is a horrible title but I truthfully think

it's

> needed. Getting diagnosed with a terminal illness is bad enough

and

> then there is soooo much to do and how to do it is sooooo

confusing.

> If we do a good job I bet we would get on Oprah! God Bless You

> All1-

>

May 9, 2006

Peggy,

I have thought of and prayed for all day. I hope that she is o.k. tonight. I hope we will hear from her this week. I miss all the people who were posting when I came here. Would love to hear from some of them.

Barb where are you? You are worrying me! Can't just drop out...we like you too much.

Hugs,

Joyce > >> > This is my last post for awhile since I will be in the hospital> > starting tomorrow. I have been brainstorming ways to make money since> > reading Grey's post last week. I think we should put our heads> > together and write "Dying for Dummies" (lol). Each of us could write> > a chapter. 1. Finding the right doctor. 2. Insurance! Insurance!> > Insurance!. 3. Telling your family. 4. Accessing info on the internet> > ('s chapter) and 5. The Power of Prayer ( I vote for Ginger on> > this one). I admit it is a horrible title but I truthfully think it's> > needed. Getting diagnosed with a terminal illness is bad enough and> > then there is soooo much to do and how to do it is sooooo confusing.> > If we do a good job I bet we would get on Oprah! God Bless You> > All1-> >> > > > > > Yahoo! Messenger with Voice. Make PC-to-Phone Calls> <http://us.rd.yahoo.com/mail_us/taglines/postman1/*http://us.rd.yahoo.com/ev> t=39663/*http://voice.yahoo.com> to the US (and 30+ countries) for 2¢/min> or less. > >

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