OMG!!!!! VENT!!!

[Guest guest]

Well the Hospice nurse was just here and I am so upset! She told me I am not

caring properly for Gram because I should have her up and moving around more.

How do you get someone up and move them around when they can't walk... plus I

have been weaker and my pain is just increasing by the days so it is impossible

for me to do anytype of transfers by myself. Even just cleaning her diaper is a

very hard task for me to complete so they put a catheter in Gram which will help

me so I don't have to worry about cleaning her so much and so the rolling and

pushing and tugging won't wear me out...... but then the nurse left and I came

out to make lunch and I came back to Gram and she had already pulled the

catheter bag apart and it was an awful mess to clean. Gram was yelling at me and

was extremely aggitated that this catheter was there. I am just trembling I am

so exhausted. I had to put a strap on her up under her arms so she can't get to

the cath again but I don't know if it's going to work or not. I am so sorry to

just jump in here and gripe but I just want to die right now right at this

moment. The pain, exhaustion, and the thought that I am not taking proper care

of Gram when I am doing the best I can is just too over whelming! Plus I have to

run Kaitlyn up to her doctor again because her antibiotic isn't working, she has

a temp of 104 (she was at the doc's Tuesday and has yet another UTI) and I don't

know if I have the strength to even drive 30 miles, god I don't have the

strength to finish typing....... I'm sorry I have got to go.... I will try to

update and be in a better mood later!

Thanks for listening!

(¨`·.·´¨)

`·.(¨`·.·´¨) ~*~~*~

`·.¸.·´

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[Guest guest]

Poor you! We are here for one another to vent to so its great that you let us

know. I so sympathize with you... I couldn't manage to look after someone else

now.. nearly need looking after myself. Is there no way you could get more

help? I take it you are in the US.. here in the UK I am certain that more help

would be available.. I hope some one else here can give you advice on that.

In the meantime love and hugs

Penny UK

On 16/07/2004 18:26:19, fibromyalgia_support_group wrote:

> Well the Hospice nurse was just here and I am so upset! She told me I am

> not caring properly for Gram

[Guest guest]

Oh my goodness ,

I don't know how you can expect so much from yourself. I know that I

would not be able to do what you're trying to do. Fibro takes so much

out of us. You definitely need more help and that nurse had no right to

talk to you that way. For gosh sakes, you need a helper just for

yourself, never mind your grandmother. Don't be so hard on yourself.

You're expecting more from yourself than anyone suffering with Fibro

could do. Please complain about that nurse and explain your medical

situation to the officials at the hospice. At least they could find

someone a little more helpful to aid you than some uncaring bit*h just

in it for the sake of having a job. Sheesh. some people just lose my

respect completely. Where do they find these types of uncaring people?

sympathetic hugs,

Norah

Norah Bleazard - Burlington, Ontario Canada

www.bleazard.net ~ www.janorlites.com

E-MAIL=

norah.fibroyahoo@...

CHAT=

MSN = black_dak_98@...

Yahoo = drazaelbn

AIM = black98dak

ICQ = 105346330

Fibromites_Fighting_Weight:

http://groups.yahoo.com/group/Fibromites_Fighting_Weight

http://fibromites.ath.cx

*~* & *~* wrote:

> Well the Hospice nurse was just here and I am so upset! She told me I am not

caring properly for Gram because I should have her up and moving around more.

How do you get someone up and move them around when they can't walk... plus I

have been weaker and my pain is just increasing by the days so it is impossible

for me to do anytype of

>

[Guest guest]

I wasn't going to say anything until I saw this post and then I decided to add

my 2 cents to this thred about Hospice. A hospice nurse is there to help, not

criticize. We have had experience with hospice twice within 4 months. They

were very pleasant to work with. Sounds like you got a real bi*ch! Call the

head office. Complain. And you have the right to get that nurse off the case

and get a new one (I know that one because my dh is a nurse!) You have the

power and the upper hand.

Margaret,

Mom to the monsters

Re: OMG!!!!! VENT!!!

You have a right to vent , so do it all you want!

I just wanted you to know that I have exprience with HOSPICE!

My Mother died 1 year and 9 months ago. hospice cared for her until the end.

I had a husband and 2 young children, and a father with a very bad heart

condition to take care of and still be there to lift and tug, change and

bathe. She could'nt eat, could'nt speak and forgot who everyone was. I'm an

only child so I did'nt have any help at all. So Hospice was called in and I was

told that that If I could'nt do the lifting or changing, all I had to do was

ask. Also If she needed anything that I or my family could'nt do they had to

provide it for her! It was in their guidelines!

I think sometimes people think if your doing it all anyway, just go ahead and

let you. they take advantage of the situation.

So please, be good to your self and call the head office and ask them about

it. Tell them what was said and let them do all they can. You owe it to your

self and all those who love you.

With All my Love And Prayers!

Paige in East Tennessee