Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 I'm Tasha, from Chicago, diagnosed originally about three years ago and then re- diagnosed last year. Severely undertreated; there's a fibro specialist in Chicago but he's not a choice on my HMO (but on the PPO, which is expensive). Anyway, what I'm trying to say is I'm at a loss as to how to go about managing it. I'm tired all the damn time, I hardly leave the house - not even to go to the grocery store. I did a lot of laundry today and will probably pay for it tomorrow. I'm on Atenolol, Wellbutrin, Synthroid, niacin, fish oil, vitamin C and a partridge in a pear tree. I play bass, learning guitar, in college and have three kitties, Meowth, Small Cat and Mrs. Gabby Jangles. Hopefully I can learn how to manage this mite, because I just got exhausted reading what I just typed. :-) Tasha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 welcome to the group. i'm newly diagnosed myself and dealing w/stuff. i still can't really help anybody else. but i can welcome you. this group is really great. feel free to let it out and tell them what is going on. nancy in reno > I'm Tasha, from Chicago, diagnosed originally about three years ago and then re- > diagnosed last year. Severely undertreated; there's a fibro specialist in Chicago but he's > not a choice on my HMO (but on the PPO, which is expensive). Anyway, what I'm trying to > say is I'm at a loss as to how to go about managing it. I'm tired all the damn time, I hardly > leave the house - not even to go to the grocery store. I did a lot of laundry today and will > probably pay for it tomorrow. I'm on Atenolol, Wellbutrin, Synthroid, niacin, fish oil, > vitamin C and a partridge in a pear tree. I play bass, learning guitar, in college and have > three kitties, Meowth, Small Cat and Mrs. Gabby Jangles. > > Hopefully I can learn how to manage this mite, because I just got exhausted reading what I > just typed. :-) > > Tasha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Hi Tasha, My name is Decnie, the c sounds like an s, and I live in Schaumburg. I also have FMS and I.C., a disease of the bladder. I think I'm near your age, I'm 22. You said you were in college, but people of all ages are in college. So, if you don't mind me asking, how old are you? What is the name of the fibro. specialist you were thinking about seeing that is in Chicago? I'm just curious. Sometimes people that are specialists in a disease will have a website or will be listed on a website that has great tips for dealing with that particular illness. I may be able to find his or her website. Also, you may be able to call the office and see if the doctor has or recommends a particular website. The basics to dealing effectively with fibro. are diet and exercise. What you put in your body directly affects how you feel. You might want to examine what you are eating right now. Make a list of all the foods you currently eat. Then, take a look at them. How many of them have food dyes such as yellow 5 or red 5? How many of them have msg? Do any of them have artificial preservatives or chemicals? Most people with fibro. are particularly sensitive to these things. Also, do you tend to eat more carbohydrates than any other food group? People with fibro. tend to eat a lot of grains and carbs. This actually can make many people nauscious, even though they may not know where the nausea comes from. It is important to try to balance your diet and put food in your body that is as fresh and raw (as close to natural as possible) into your body. Sometimes this can get expensive, so start slow. But, I guarentee you will notice a difference if you stick to this plan. If you try this and really stick to it, in one week you'll feel different. Also, exercise. People with fibro. are greatly helped by non-impact exercise programs such as Pilates, Yoga, Meditation, etc. Anything that is non-impact and is more toward physical therapy in nature. If you live in Chicago, I can send you some resources about where to find this information. If you live in a particular suburb let me know, then I can send you the information on this in your suburb. I've had these issues for a long time and have done a lot of research, so I have a lot of information. I'll leave it at this for now, because diet and exercise are the two most important factors in your recovery. Also, too much information is overwhelming. I hope this helps!! Decnie > >Reply-To: Fibromyalgia_Support_Group >To: Fibromyalgia_Support_Group >Subject: Hi - newbie! >Date: Sun, 15 Aug 2004 23:58:49 -0000 > >I'm Tasha, from Chicago, diagnosed originally about three years ago and >then re- >diagnosed last year. Severely undertreated; there's a fibro specialist in >Chicago but he's >not a choice on my HMO (but on the PPO, which is expensive). Anyway, what >I'm trying to >say is I'm at a loss as to how to go about managing it. I'm tired all the >damn time, I hardly >leave the house - not even to go to the grocery store. I did a lot of >laundry today and will >probably pay for it tomorrow. I'm on Atenolol, Wellbutrin, Synthroid, >niacin, fish oil, >vitamin C and a partridge in a pear tree. I play bass, learning guitar, in >college and have >three kitties, Meowth, Small Cat and Mrs. Gabby Jangles. > >Hopefully I can learn how to manage this mite, because I just got exhausted >reading what I >just typed. :-) > >Tasha > _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Decie, You left out one of the other most important things in dealing with fibro, keeping a positive attitude!!!! I know that is extremely hard to do when you are in pain 24/7 but I personally believe that it is essential to helping deal with this disease. Whenever I start to feel down because of the pain, lack of sleep etc... I get out my prayer list from our church and look at the list of people needing prayer for surgery, cancer, loss of a relative, etc and say a thank you that some pain is all I am having to deal with that day. I also look around at the friends I have on here and in real life (although the number is few they are TRUE friends) who would be there for me in any situation, I look at my two children, straight A students, one in his second year of college and in the University of Arkansas Band and say a thank you that even though I may have to take a pain pill to go see them perform, I can SEE them, I can HEAR them and I can give them a hug. Just a few thoughts > Hi Tasha, > > The basics to dealing effectively with fibro. are diet and exercise. What > you put in your body directly affects how you feel. Quote Link to comment Share on other sites More sharing options...
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