Re: Hi. I'm new here.../Nora

[Guest guest]

<Can you have fibro from birth? Is it

possible? I have experienced the " fog " but I don't go through it on

a regular basis yet. The thing I hate most about this, is that no

one understands how bad the pain is. And I hate taking pain pills,

because it makes me feel weak, like I am letting the fibro beat me...Norah>

snip

Nora,

Welcome to the group. I am so glad that you found us. This group is so

supportive. I don't know what I would have done without it. I know you

will find comfort, humor, information etc here.

As far as having fibro from birth, I don't know about that. I do know that

some young children have been diagnosed with it. I've heard that they think

we are genetically predisposed to it and something triggers the gene that

causes the onset of the disease. There is quite a bit of information in the

files section I think of the group for you to look through that may help.

I know what you mean about " giving in " to the fibro. I've felt that way

myself before and sometimes still do. I do take prescription pain

medication. The fibro initially got real bad after a work-related accident.

I was given Darvocet N-100 for pain. That did it for a while, but now it

just doesn't do anything. I finally had to succumb and start taking

Vicodin-ES last week. There is an immediate difference. When you aren't

hurting so badly you can function better. Mind you when my pain was poorly

controlled, I was almost bedridden. I spent at least 95% of my time in bed

and still couldn't get pain relief. To exert any made pain worse. I'm not

out of the woods yet, but I'm feel like I have a little more control. I am

in physical therapy now and they are also working on getting me a TENS unit.

gentle hugs,

Sundra

[Guest guest]

Hi Nora...

Welcome to the group, I hope you find it as wonderful as I have.

I understand your frustration with all the medications, I have weaned

myself off so many over the past 16 years that the docs put me on...I

cannot even begin to tell you all of them. I just feel like, if they

do not make a huge change and aggravate other symptoms, why put the

stuff in my already struggling system? And, as far as not wanting to

let the fibro beat you, that is the best attitude you can have, I have

found at least. I refuse to let this thing destroy every ounce of my

life and I have found my outlook has been so much better since I made

that decision. So, keep it up! Just don't be afraid to try something

that may make you feel a bit better as long as the side effects are

not too nasty... whether it be a med or a therapy of some sort... some

of us have found different things that help somewhat and can get us

through some tough days.

I hope to talk more with you, and just jump in to our conversations

anytime...we are here to share, support...etc.

Many hugs-

Sheli

> Hello everyone. I just signed up for this group a couple of days

> ago. The new member welcome said to tell some things about me, so

> here goes. I am 38, mother of 2; daughter and son, grandmother of a

> wonderful little girl. I have gone through a divorce and have gotten

> remarried. I was diagnosed with fibro about 4 years ago. I had been

> going from specialist to specialist. My legs have hurt me since I

> was an infant, but I think that is not necessarily part of my fibro,

> although it certainly affects every thing it seems. I am not

> currently taking any pain medication for the fibro on a regular

> basis, but only because I am trying to fight it and not give into

> it. Before I was diagnosed, I had been seeing doctors on and off for

> about 15 years. It was a BIG relief to finally have a word, any

> word, of what was wrong with me. It would be even better to find out

> why my legs are hurting. Can you have fibro from birth? Is it

> possible? I have experienced the " fog " but I don't go through it on

> a regular basis yet. The thing I hate most about this, is that no

> one understands how bad the pain is. And I hate taking pain pills,

> because it makes me feel weak, like I am letting the fibro beat me.

> Pretty silly huh? Well, thanks for listening to my intro. I am

> looking forward to being part of this group. Nora.

[Guest guest]

> <>

> Nora,

>

> Welcome to the group. I am so glad that you found us. >

>

[Guest guest]

> Nora...

>

> Welcome to the group,

Sheli,

Thank you for the welcome, and the understanding.I am looking

forward to finding out things that will help on the bad days. It is

so awesome to read all the letters, and know that there are people

out there who really understand how I feel. I am really looking

forward to being in this group. Nora