Re: Flutter Valve

[Guest guest]

Hi Guy,

Are you new here? Welcome to you in Canada. My pulmonary doctor wrote a prescription and I gave it to my oxygen provider. They got it for me and insurance paid all of it. It is considered durable home medical equipment so probably Medicare would pay also. You can buy them at medical supply stores or online. Just type Flutter Valve into your Google engine and there will be many sites to go to. It is a great tool. Make sure you get the video that shows you how to use it. I use it all the time. I would really like to get the Acapella Choice. I have read that it takes less energy to use. Also pay attention to cleaning instructions. Let me know if you need an address to order one.

Joyce PF 1997>> Hi all, my name is Guy Legault. I was wondering if you could tell me > where I might find the flutter valve to help me get the gunk out of my > lungs. I live in Ottawa, Canada. I am only currently taking the NAC > supplement.> > Thank-you for your help...Guy>

[Guest guest]

Thanks Joyce! I am going back to the lung rehab center tomorrow. I

will ask my doctor if he can prescribe me the Acapella Choice

flutter valve. I'm not new to this site but I don't write that

often. I read most of the posted e-mails. Your sign off included

PF 1997, does that mean you were diagnosed in 1997? Mine was 2003.

Thanks again and take care all you beautiful people.

Guy

> >

> > Hi all, my name is Guy Legault. I was wondering if you could

tell me

> > where I might find the flutter valve to help me get the gunk out

of my

> > lungs. I live in Ottawa, Canada. I am only currently taking the

NAC

> > supplement.

> >

> > Thank-you for your help...Guy

> >

>

[Guest guest]

Guy,

Yes, my biopsy was in 1997. I was very very sick. The docs determined that the fibrosis was caused by Lupus or 'connective tissue disease'. They have been agressive in the treatment of that and have stalled the fibrosis. I have been very blessed and my pulmonary doc seems stunned at times. I developed Bronchiectasis a couple of years ago and things turned ugly. It is really hard to keep the mucus out of my lungs now. I have moved into end stage.

Let me know what they say about the flutter valve. I talk to people online which have switched to the Acapella and say that it takes a lot less effort.

Hope you can get what you need! The respiratory dept at the hospital said the cost was over $400. Online it runs about $80. Probably has a manufacture cost of $3.00! Unbelievable. The one I have has a small steel marble in it and not long after I got it, while I was cleaning it, the steel ball dissapeared. One of my grandkids had taken it thinking it was a grand wonderful marble to play with!!! Aaaargh!

Take care. *p.s. Leanne asked that we all place our date of diagnosis by our name.

Joyce PF 1997> > >> > > Hi all, my name is Guy Legault. I was wondering if you could > tell me> > > where I might find the flutter valve to help me get the gunk out > of my> > > lungs. I live in Ottawa, Canada. I am only currently taking the > NAC> > > supplement.> > >> > > Thank-you for your help...Guy> > >> >>

[Guest guest]

Hi joyce, good story about the marble and your gandkids.LOL. You

were asking if I was a new member to the group. Look at message

number 83, and yes I will let you know tomorrow about the flutter

valve after I come back from the rehab centre.

Take Care,

Guy

- In Breathe-Support , " janne5303 "

wrote:

>

>

> Guy,

>

> Yes, my biopsy was in 1997. I was very very sick. The docs

determined

> that the fibrosis was caused by Lupus or 'connective tissue

disease'.

> They have been agressive in the treatment of that and have stalled

the

> fibrosis. I have been very blessed and my pulmonary doc seems

stunned

> at times. I developed Bronchiectasis a couple of years ago and

things

> turned ugly. It is really hard to keep the mucus out of my lungs

now.

> I have moved into end stage.

>

> Let me know what they say about the flutter valve. I talk to

people

> online which have switched to the Acapella and say that it takes a

lot

> less effort.

>

> Hope you can get what you need! The respiratory dept at the

hospital

> said the cost was over $400. Online it runs about $80. Probably

has a

> manufacture cost of $3.00! Unbelievable. The one I have has a

small

> steel marble in it and not long after I got it, while I was

cleaning it,

> the steel ball dissapeared. One of my grandkids had taken it

thinking

> it was a grand wonderful marble to play with!!! Aaaargh!

>

> Take care. *p.s. Leanne asked that we all place our date of

diagnosis

> by our name.

>

> Joyce PF 1997

>

> > > >

> > > > Hi all, my name is Guy Legault. I was wondering if you could

> > tell me

> > > > where I might find the flutter valve to help me get the gunk

out

> > of my

> > > > lungs. I live in Ottawa, Canada. I am only currently taking

the

> > NAC

> > > > supplement.

> > > >

> > > > Thank-you for your help...Guy

> > > >

> > >

> >

>

[Guest guest]

Hi Joyce, I was at the rehab today, I ask about the flutter valve, I

was told that if I bring up mucus like I do I don't need the flutter

valve. It's for people that can't bring it up, so much for that. My

02 is at 96 wich is very good. I lost 10 pounds since last October

that is not so good, she also told me that I was half the man she

saw last October as far as my physical and spirit was concerned. She

also told me that I look depresse and should seek help, I felt like

crying, and told her that I was not raise to feel or talk about my

emotion . Sorry for venting like this, it's not natural for me and I

should be a man and take it.

Take care. Guy

> > > > >

> > > > > Hi all, my name is Guy Legault. I was wondering if you

could

> > > tell me

> > > > > where I might find the flutter valve to help me get the

gunk

> out

> > > of my

> > > > > lungs. I live in Ottawa, Canada. I am only currently

taking

> the

> > > NAC

> > > > > supplement.

> > > > >

> > > > > Thank-you for your help...Guy

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Guy,

I get teary at the stupidest times. When I got to the ENT visit today ,they asked me to fill out one of those 2 hour forms. I had filled one out and submitted to them online and of course they didn't have it. I got so upset and had to bite my lip to keep from crying. I think our bodies are just worn out from trying to fight this THING. It takes it's toll on our emotional self, too. For me, I feel like my dignity has been ripped away. I want to be strong, like I always was. I know it is even harder on guys. My husband always gets so hateful when he is sick. I think we just feel 'out of control'.

The Flutter Valve only makes it easier to get the gunk out. It keeps me from struggling until I am so exhausted. Is your 02 96 without oxygen???

What are you doing in rehab? Walking?

Take care of you!

Joyce PF 1997> > > > > >> > > > > > Hi all, my name is Guy Legault. I was wondering if you > could> > > > tell me> > > > > > where I might find the flutter valve to help me get the > gunk > > out> > > > of my> > > > > > lungs. I live in Ottawa, Canada. I am only currently > taking > > the> > > > NAC> > > > > > supplement.> > > > > >> > > > > > Thank-you for your help...Guy> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

Guy,

Here is the site where you can buy the Flutter Valve. It comes with an instructional video. http://www.careexpress.com/products.asp?CATEGORY_ID=154 & PARENT_ID=22 & COMBINE=SCA-910

Hugs, Joyce PF 1997> > > > > >> > > > > > Hi all, my name is Guy Legault. I was wondering if you > could> > > > tell me> > > > > > where I might find the flutter valve to help me get the > gunk > > out> > > > of my> > > > > > lungs. I live in Ottawa, Canada. I am only currently > taking > > the> > > > NAC> > > > > > supplement.> > > > > >> > > > > > Thank-you for your help...Guy> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

Guy, My husband is 6'6 " 310 lbs. looks at me at times and cries like a baby.. Please know this monster we have puts us in an exclusive club..not a good one but we can all cry, scream, holler, kick, and come here to this site to vent.. Please remember your not alone and we are all praying for you.. Huge hugs to you. God Bless you...Now GO FIGHT THIS MONSTER. When you go to rehab next time show them what an incredible man you are.. God Bless... Peggy 9/94 ipf

Guy LegaultPeggy 09/04 ipf

Hi Joyce, I was at the rehab today, I ask about the flutter valve, I

was told that if I bring up mucus like I do I don't need the flutter

valve. It's for people that can't bring it up, so much for that. My

02 is at 96 wich is very good. I lost 10 pounds since last October

that is not so good, she also told me that I was half the man she

saw last October as far as my physical and spirit was concerned. She

also told me that I look depresse and should seek help, I felt like

crying, and told her that I was not raise to feel or talk about my

emotion . Sorry for venting like this, it's not natural for me and I

should be a man and take it.

Take care. Guy

> > > > >

> > > > > Hi all, my name is Guy Legault. I was wondering if you

could

> > > tell me

> > > > > where I might find the flutter valve to help me get the

gunk

> out

> > > of my

> > > > > lungs. I live in Ottawa, Canada. I am only currently

taking

> the

> > > NAC

> > > > > supplement.

> > > > >

> > > > > Thank-you for your help...Guy

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Joyce, I do understand completely. When I went to a new Dr. The girl went to take my BP and when she pumped that thing up. I cried like a baby, scared her to death. Bless my sweet hubby he explained that my body was extra sensitive at the time. The Dr cane in sat down ask the questions and filled out the 3 pages.. Loved that.

You are the strongest person I know on this site. God has blessed each and every one of us with your life and words of wisdom. I told you, you are my hero. Get a big bell, dry erase board (red pen) and take all the hugs and support we can give.. GOD BLESS YOU MY FRIEND... Peggy

JoycePeggy 09/04 ipf

Guy,

I get teary at the stupidest times. When I got to the ENT visit today ,they asked me to fill out one of those 2 hour forms. I had filled one out and submitted to them online and of course they didn't have it. I got so upset and had to bite my lip to keep from crying. I think our bodies are just worn out from trying to fight this THING. It takes it's toll on our emotional self, too. For me, I feel like my dignity has been ripped away. I want to be strong, like I always was. I know it is even harder on guys. My husband always gets so hateful when he is sick. I think we just feel 'out of control'.

The Flutter Valve only makes it easier to get the gunk out. It keeps me from struggling until I am so exhausted. Is your 02 96 without oxygen???

What are you doing in rehab? Walking?

Take care of you!

Joyce PF 1997

>

> Hi Joyce, I was at the rehab today, I ask about the flutter valve, I

> was told that if I bring up mucus like I do I don't need the flutter

> valve. It's for people that can't bring it up, so much for that. My

> 02 is at 96 wich is very good. I lost 10 pounds since last October

> that is not so good, she also told me that I was half the man she

> saw last October as far as my physical and spirit was concerned. She

> also told me that I look depresse and should seek help, I felt like

> crying, and told her that I was not raise to feel or talk about my

> emotion . Sorry for venting like this, it's not natural for me and I

> should be a man and take it.

>

> Take care. Guy

>

>

> --- In Breathe-Support , " Guy

[Guest guest]

Thanks Peggy,

I needed that. Hugs right back to you. Joyce.> >> > Hi Joyce, I was at the rehab today, I ask about the flutter valve, I> > was told that if I bring up mucus like I do I don't need the flutter> > valve. It's for people that can't bring it up, so much for that. My> > 02 is at 96 wich is very good. I lost 10 pounds since last October> > that is not so good, she also told me that I was half the man she> > saw last October as far as my physical and spirit was concerned. She> > also told me that I look depresse and should seek help, I felt like> > crying, and told her that I was not raise to feel or talk about my> > emotion . Sorry for venting like this, it's not natural for me and I> > should be a man and take it.> > > > Take care. Guy> > > > > > --- In Breathe-Support , "Guy> >

[Guest guest]

Hi Guy, Real men do cry when the world falls apart if you don't then your are not human. Deep inside we all are weak at times. Just remember, you must know pain to truly know joy.So cry for the man you were, and rejoice in the man you now have become. This monster can change us from stronge individuals to crying babies in the blink of an eye. Then we turn around and become strong again. Let us in the group help shoulder your pain and we will also rejoice in your triumps. May God Keep You in the Palms of His Hands . ipf 7/05Guy Legault wrote: Hi Joyce, I was at the rehab today, I ask about the flutter valve, I was told that if I bring up mucus like I do I don't need the flutter valve. It's for people that can't bring it up, so much for that. My 02

is at 96 wich is very good. I lost 10 pounds since last October that is not so good, she also told me that I was half the man she saw last October as far as my physical and spirit was concerned. She also told me that I look depresse and should seek help, I felt like crying, and told her that I was not raise to feel or talk about my emotion . Sorry for venting like this, it's not natural for me and I should be a man and take it. Take care. Guy> > > > >> > > > > Hi all, my name is Guy Legault. I was wondering if you could> > > tell me> > > > > where I might find the flutter valve to help me get the gunk > out> > > of my> > > > > lungs. I live in Ottawa, Canada. I am only currently taking > the> > > NAC> > > > > supplement.> > > > >> > > > > Thank-you for your help...Guy> > > > >> > > >> > >> >> __________________________________________________

[Guest guest]

Joyce, your soooo right.

There is one thing about this group, we understand, what is pain,

not only physical but emotional. I am glad to be able to write

openly with a group that know's our felling. At the rehab, I do

walking on treadmill. My 02 is witout oxygen. I was told that it is

common that people with IPF still have good oxygen by the nurse at

the rehab. Are you on oxygen? Have you been to a rehab centre? If

not you should try and get into one, it is a good place to go to,

for me it was.

Be good to yourself. Guy

PS: Excuse my english I am a french Canadian.

> > > > > > >

> > > > > > > Hi all, my name is Guy Legault. I was wondering if you

> > could

> > > > > tell me

> > > > > > > where I might find the flutter valve to help me get the

> > gunk

> > > out

> > > > > of my

> > > > > > > lungs. I live in Ottawa, Canada. I am only currently

> > taking

> > > the

> > > > > NAC

> > > > > > > supplement.

> > > > > > >

> > > > > > > Thank-you for your help...Guy

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Guy,

I went to rehab about 8 months after biopsy. I was still on 02. They helped me to learn to breathe and keep my saturation up without it. I was off for about 2 years, then got really sick with infection/pneumonia and more new growth (all due to a baaaaad doc). They put me on oxygen then at 2L. That was about 6 years or so ago. I have been on it ever since. I am on 4 to 5L, now.

I loved rehab. I did so well. But, I should have stayed in an active program because as time went on, I stopped walking and quit doing excersizes. Lazy! I am so mad at myself, now. Feel so weak. It is a good thing. Much easier to do when you have the kind of support that you get in the program. Self motivation is not easy when you feel lousy.

Hugs,

Joyce PF 1997> > > > > > > >> > > > > > > > Hi all, my name is Guy Legault. I was wondering if you> > > could> > > > > > tell me> > > > > > > > where I might find the flutter valve to help me get the> > > gunk> > > > out> > > > > > of my> > > > > > > > lungs. I live in Ottawa, Canada. I am only currently> > > taking> > > > the> > > > > > NAC> > > > > > > > supplement.> > > > > > > >> > > > > > > > Thank-you for your help...Guy> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

Guy, I haven't been on the board very long but one thing I know is we have a common denominator....HONESTY. Vent all you need and say all you need and ask for what you need. It will be forth coming. In my opinion, you are a man who is taking it. We all need help along the way. Hugs to you. Sher ipf 5-06

Re: Flutter Valve

Hi Joyce, I was at the rehab today, I ask about the flutter valve, I was told that if I bring up mucus like I do I don't need the flutter valve. It's for people that can't bring it up, so much for that. My 02 is at 96 wich is very good. I lost 10 pounds since last October that is not so good, she also told me that I was half the man she saw last October as far as my physical and spirit was concerned. She also told me that I look depresse and should seek help, I felt like crying, and told her that I was not raise to feel or talk about my emotion . Sorry for venting like this, it's not natural for me and I should be a man and take it. Take care. Guy> > > > >> > > > > Hi all, my name is Guy Legault. I was wondering if you could> > > tell me> > > > > where I might find the flutter valve to help me get the gunk > out> > > of my> > > > > lungs. I live in Ottawa, Canada. I am only currently taking > the> > > NAC> > > > > supplement.> > > > >> > > > > Thank-you for your help...Guy> > > > >> > > >> > >> >>

[Guest guest]

yuor words hit home thankyou dorislinda arnold wrote: Hi Guy, Real men do cry when the world falls apart if you don't then your are not human. Deep inside we all are weak at times. Just remember, you must know pain to truly know joy.So cry for the man you were, and rejoice in the man you now have become. This monster can change us from stronge individuals to crying babies in the blink of an eye. Then we turn around and become strong again. Let us in the group help shoulder your pain and we will also rejoice in your triumps. May God Keep You in the Palms of His Hands . ipf 7/05Guy Legault wrote: Hi Joyce, I

was at the rehab today, I ask about the flutter valve, I was told that if I bring up mucus like I do I don't need the flutter valve. It's for people that can't bring it up, so much for that. My 02 is at 96 wich is very good. I lost 10 pounds since last October that is not so good, she also told me that I was half the man she saw last October as far as my physical and spirit was concerned. She also told me that I look depresse and should seek help, I felt like crying, and told her that I was not raise to feel or talk about my emotion . Sorry for venting like this, it's not natural for me and I should be a man and take it. Take care. Guy> > > > >> > > > > Hi all, my name is Guy Legault. I was wondering if you could> > > tell me> > > > > where I might find the flutter valve to help me get the gunk > out> > > of my> > > > > lungs. I live in Ottawa, Canada. I am only currently taking > the> > > NAC> > > > > supplement.> > > > >> > > > > Thank-you for your help...Guy> > > > >> > > >> > >> >> __________________________________________________