Re: What Type of Doctor Do You Seek for Fibro?

[Guest guest]

Well I've just been going to a regular general practice doctor. I

lucked out because she had just attended a conference on fibro right

before I had my first appt with her. Unfortunately, my health

insurance doesn't covered specialist under our co-pay, they fall under

our $1000 deductible <yuck> so God was watching out for me LOL Found

a doctor that understood and was under my co-pay umbrella.

I hope you are able to find a doctor that understands and will work

with you!

> Sorry about two back to back posts. I was wondering what type of

> doctors have been the best help at being knowlegeable, and work with

> Fibromyalgia?

>

> My doctor of many years quit and went to work as a teacher. He

> diagnosed me and then had the nerve to run off. Although, I do tend

> to make doctors very afraid.....

>

> I tried Chiropractic, and all that I got was a trip to Pain City.

> And they told me that Fibromyalgia was not a REAL thing. Slammed

> every pressure point I had until I SCREAMED. Not going there again.

>

> Tried a rhumatologist, and she looked like I was crazy with symptoms.

> Said I did not have Rhumatoid Arthritis, and handed me a prescription

> for Motrin.

>

> Tried a new doctor who saw my medicaiton list and added more on top.

> I really think he is totally guessing at what works. Also told me to

> eat a vitamin. I said I had some vita balls gumballs at home for the

> kids. He was not amused.

>

> I even went to my orthopedist/surgeon who had done some work on

> different parts regarding the pain that I have in my hips and knees.

> He said I have bursitis. I thought only REally old people got that.

>

> I am just stumped. I tried my medical providers search engine, and

> NOTHING came up for FM or CF. I am SOOOOO confused, and want to look

> for the right doctor.

>

> Can anyone give me some insight as to who, or what specialty that I

> should be looking for? I am getting desperate for REAL answers.

>

> Thanks! It's a burning foot night, time to go wake up my husband and

> tell him it is time to rub my stinkie feet. He's pretty good at it

> in his sleep~!

>

> Barbara

[Guest guest]

My pdoc suggested that I had fibro. I'd been seeing a neurologist for a few

years and all she came up with was dystonia. But the pain kept getting

worse. My regular doctor stopped giving me pain pills, I guess he thought I

was a druggie. When I told him the pdoc suggested fibro, he immediately

agreed with the diagnosis, and gave me a prescription for pain pills. I

don't know what gave me the idea to see a rheumatologist, but that turned

out to be the best doctor I've seen for fibro. He gave me a complete exam,

including the " tender " points, and bloodwork. He is the one I would refer

anyone to if they wanted a good diagnosis.

cyn

At 05:33 AM 7/21/2004 +0000, bubbaharrell wrote:

>Sorry about two back to back posts. I was wondering what type of

>doctors have been the best help at being knowlegeable, and work with

>Fibromyalgia?

cyn

clmerritt@...

Time.....time ....time is what turns kittens into cats

[Guest guest]

Hi Barbara,

I see three docs who manage my varied aches and pains. I see a neurologist,

internist and a pain management doc. I have seen two rheumys and they were both

worthless (in my opinion).

I really like the pain center I go to...he has helped me a lot.

I had an ortho doc tell me I had bursitis, too. I don't see him anymore!

Hope this helps!

Good luck,

Kay

[Guest guest]

I saw my neurologist's assistant today, and when I told her about the

things my rheumy said, she said he was a paranoid idiot. She'd suggested a

month ago that he prescribe OxyContin for me, and he went into a real

biddy. He ranted about people breaking into my house to steal the drugs and

they'd kill me, the pills are $80 a pill on the street, and I'd be in

mortal danger; plus I'd become addicted in a week. Also, he didn't want his

DEA abused and wasn't about to prescribe it (so who the heck is going to

abuse his DEA?). She said that if I was willing for her and the neurologist

to prescribe all my meds, they'd give me the OxyContin. She couldn't write

the prescription herself, and the neurologist was off today, but she said

she'd talk to the neuro on Monday and was sure she'd write the

prescription, and they'd mail it to me. In the meantime, she gave me a

prescription for more Fiorinal#3.

I also brought up the subject of my falls. She felt it was a part of the

fibro, but was going to double-check with the neuro about it Monday. She

said I should get a cane. Until I was diagnosed with fibro, my husband used

to tease me about buying me a walker for my next birthday (because of the

difference in our ages). He feels so badly about that, but I told him it's

one of the things that adds spice to our marriage, lol!

cyn

At 12:04 AM 7/23/2004 -0400, mozart1143@... wrote:

>Hi Barbara,

>I see three docs who manage my varied aches and pains. I see a neurologist,

>internist and a pain management doc. I have seen two rheumys and they were

>both

>worthless (in my opinion).

>I really like the pain center I go to...he has helped me a lot.

>I had an ortho doc tell me I had bursitis, too. I don't see him anymore!

>Hope this helps!

>Good luck,

>Kay

cyn

clmerritt@...

Time.....time ....time is what turns kittens into cats