update

October 4, 1999

This is a good basis to demand an aide for the bus!

Tim Hartshorne, father of

JPM4189@... wrote:

>

> From: JPM4189@...

>

> << They added 3 stops. She got frustrated with that and got out of her

> seatbelt on the bus, took off her clothes and diaper and went to the

> bathroom, yep both, all over the front seat of the bus. Needless to say, the

> driver was not pleased by the time

> they reached our house. We shared a few words, all were in the dictionary,

> and then she told me to clean up her bus. I couldn't do anything about it, I

> was holding a naked child.

>

> Needless to say, I cried all night long and most of the next day. By Tuesday

> evening, I almost found humor (sick, I know) in what she did. I guess you

> could say she finally communicated how displeased she is with all of the

> changes going on.>>

>

> Sheryl,

>

> How dare that busdriver tell you to clean up her bus.

>

> You are absolutely correct. was definitely expressing her

> displeasure at the situation. Our kids may have their issues, but they

> definitely know what's going on and respond to it.

>

> It really bothers me the way some schools treat our kids like cattle to be

> shuffled off here and there with no regard to the child's needs.

>

> Keep up the fight, you *will* win! And try never to lose that sense of

> humor!!!

>

> Janet

> Wife to Matt

> Mom to & (CHaRGEr) 7, nne 2 1/2, and

> Mom to 16 months, and Devon 3.

>

> Weymouth, Massachusetts, USA

>

> > For information about the CHARGE Syndrome Foundation or to become a member

please contact marion@....

September 17, 2000

www.drkoop.com has some information on tricor.

I took lipitor before, but it didn't help.

My endo prescribed it and he is aware of all the medications I am taking.

He is following the prescribing information and checking liver every 2

months for the first year - actos.

I also learned to have my bp checked standing instead of sitting. It was to

high siting but was normal standing.

Re: update

>

>Bill Eastman wrote:

>

>> I am no longer taking Lopid. I am taking 200 mg tricor in the morning

and

>> 1500 mg niaspan at diner.

>> Still taking everything else on my profile. My bp is ok. Last A1C was

6.3

>

>Doing good Bill.

>

>Is Tricor a Statin drug? Rxlist had little to say about it.

>I noted that Lopid is for those with very high lipid profiles.

>Mine is " higher " , but not very high.

>

>--

>Dave -- Sunday, September 17, 2000

>t2 8/98 Glucophage & *anything* laced with Aspartame

>ICQ 10312009

>«»

>DavOr's daily aphorism:

>STATUS QUO is Latin for " the mess we're in. "

>--

>Visit my photo page @ http://www.dorcutt.homepage.com

>

>Public website for Diabetes International:

>http://www.msteri.com/diabetes-info/diabetes_int

>

February 19, 2002

ready to go home??? im glad things are better sorry about your seroma lol

Janey

Mom In Oz Of 2 Boys

Lee 10-29-97

Hunter Shane 11-25-00

Mate For Life Tim 10-02-98

<3<3<3 X0X0 <3<3<3

February 19, 2002

, 21 pounds of water weight and 10 real pounds lost

but when it bursts thats not what caused the water weight right? i mean when

it burst it wasnt 21 lbs of water weight right lol sorry i know this is a

stupid thing to say but i dont understand the water weight lose

Janey

Mom In Oz Of 2 Boys

Lee 10-29-97

Hunter Shane 11-25-00

Mate For Life Tim 10-02-98

<3<3<3 X0X0 <3<3<3

February 19, 2002

JANEY, No, hon, 's doc put her on Lasix--which is a powerful

diuretic (water pill) because she was so full of IV fluids after

being in the hospital. Fluids are good to keep us hydrated, and make

everything work well--kidneys etc. However, if there starts to be a

fluid build up, our hearts have to work harder, and our blood

pressure goes up, so then we get a pill that causes our kidneys to

release a little more water from our system everyday. (Many people

take water pills to keep their blood pressure at a normal level.) In

obese folks, water builds up a bit easier because in between each

fat cell water is retained. After taking a water pill for a few days

when there is a fluid build up, we often experience a huge weight

drop--seemingly overnight. That is what caused 's

tremendous 'water weight' loss; the rest of her weight loss has come

from her following her post op diet.

Love, Ava Lee

In GastricBypass-InfoCentral@y..., MomNOzOf2@a... wrote:

> , 21 pounds of water weight and 10 real pounds lost

> but when it bursts thats not what caused the water weight right? i

mean when

> it burst it wasnt 21 lbs of water weight right lol sorry i know

this is a

> stupid thing to say but i dont understand the water weight lose

>

> Janey

> Mom In Oz Of 2 Boys

> Lee 10-29-97

> Hunter Shane 11-25-00

> Mate For Life Tim 10-02-98

> <3<3<3 X0X0 <3<3<3

>

February 19, 2002

LINDA--I know, I KNOW!!! But I'm havin' trouble with Yahoo getting my

posts up--and I just HAD to answer some posts! I'm goin', I'm GOING!

I promise!

Love, Ava Lee

In GastricBypass-InfoCentral@y..., " Odom " <lodom@h...> wrote:

> Ava I know I didn't know this but am I going to have to come give

you a country whippin to get you in bed ? If you have been up all

nite the fibro is going to get worse for you .

>

> Re: update

>

> JANEY, No, hon, 's doc put her on Lasix--which is a powerful

> diuretic (water pill) because she was so full of IV fluids after

> being in the hospital. Fluids are good to keep us hydrated, and

make

> everything work well--kidneys etc. However, if there starts to be

a

> fluid build up, our hearts have to work harder, and our blood

> pressure goes up, so then we get a pill that causes our kidneys

to

> release a little more water from our system everyday. (Many

people

> take water pills to keep their blood pressure at a normal level.)

In

> obese folks, water builds up a bit easier because in between

each

> fat cell water is retained. After taking a water pill for a few

days

> when there is a fluid build up, we often experience a huge weight

> drop--seemingly overnight. That is what caused 's

> tremendous 'water weight' loss; the rest of her weight loss has

come

> from her following her post op diet.

>

> Love, Ava Lee

>

> In GastricBypass-InfoCentral@y..., MomNOzOf2@a... wrote:

> > , 21 pounds of water weight and 10 real pounds lost

> > but when it bursts thats not what caused the water weight

right? i

> mean when

> > it burst it wasnt 21 lbs of water weight right lol sorry i know

> this is a

> > stupid thing to say but i dont understand the water weight lose

> >

> > Janey

> > Mom In Oz Of 2 Boys

> > Lee 10-29-97

> > Hunter Shane 11-25-00

> > Mate For Life Tim 10-02-98

> > <3<3<3 X0X0 <3<3<3

> >

February 19, 2002

Dear ,

Thanks.. Mom and Dad said they might keep me awhile longer to be sure I am

perfect before I go home.. Mom wants the doctor to do blood work Thursday to

make sure everything is a ok before I leave..

Hugs,

February 20, 2002

might not be a bad idea sis ! I want you to be perfect too and who will

see you for after care when you get home ? Obviously not the last DR who did

your previous surgeries ! I had my first labs done last Thursday and will have

them all back today I am kinda anxious for mom to tell me what she thinks.

Re: update

Dear ,

Thanks.. Mom and Dad said they might keep me awhile longer to be sure I am

perfect before I go home.. Mom wants the doctor to do blood work Thursday to

make sure everything is a ok before I leave..

Hugs,

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February 20, 2002

oh good that scared me lol

Janey

Mom In Oz Of 2 Boys

Lee 10-29-97

Hunter Shane 11-25-00

Mate For Life Tim 10-02-98

<3<3<3 X0X0 <3<3<3

February 20, 2002

Dear ,

My internist, infectious disease doctor, and gastroenterologist will be doing

my aftercare when I return home..

I want everything to be a ok before I leave too..

Hugs,

February 20, 2002

In a message dated 2/20/02 6:36:50 PM Eastern Standard Time, Gigi1078@...

writes:

> Dear ,

> My internist, infectious disease doctor, and gastroenterologist will be

> doing my aftercare when I return home..

> I want everything to be a ok before I leave too..

>

OK here is a good question...I do not have a Dr here..I am going to Louisiana

for my surgery...what kind of Dr should i get????? I better do it this week

March 2, 2002

OK I will be waiting

Re: Update

I'll have to get someone to take a picture of me and post it.

March 2, 2002

that is so sweet Amy !

Re: Update

Ethel:

No problem. I already told them that I wouldn't be in the office on

Wednesday. I'll work from home for a little while in the morning and then head

down to the hospital in the afternoon. If you aren't up to getting up and

walking the halls I'll just sit there and keep you both company.

You're doing great getting everything together. If you need anything let me

know.

Amy

March 5, 2002

Suzanne:

I was on clear liquids for almost 2 months after my surgery. Now I'm very

careful to choose foods that are high in protein, low fat and low carbohydrate.

I stay somewhere between 500 and 600 calories a day and walk on my treadmill 45

minutes a day (not all at the same time). So I'm not really doing anything

special.

Amy

Re: Update

Yes Amy do give us some tips.

Please

Suzanne from Ca.

March 6, 2002

I am sure i've asked this before but.......

Could someone please send me a list of the vitamins they are on.

I'd sure appreciaite it

Tracey

Re: Update

>

> Yes Amy do give us some tips.

> Please

> Suzanne from Ca.

>

March 6, 2002

KAREN--What a dear, dear letter... What heartfelt, kind words! They

really touched me; I had no idea I'd get that response--I try so hard

to keep my negative feelings to myself... You've really lifted a very

big burden off of me in more ways than you know. Thank you so much

for reaching out to me; I really needed it...

Love, Ava Lee

In GastricBypass-InfoCentral@y..., pahendrsht@a... wrote:

> Hi Again Ava Lee;

> Thanks for griping. I had no idea what Fibro can do to you and how

difficult

> it is to cope with the fact that you have not done enough in this

life and

> that

> darn fibro prevents you from doing and being what you want. I'm

sure we

> all will do well to know what you have to deal with daily. Even so

you are

> so remarkable with others. God gave you the blessing of being able

to help

> those here on the board. Do you realize how many people you are

touching?

> I for one am so grateful for you. Please gripe anytime. You help

others

> with their gripes so much that you have " earned the right. " After

all we

> are all sisters and brothers here and we all love each other.

> I am so sorry. If prayer helps I want you to know I will remember

you every

> day and night. May the Lord bless you for all of your efforts.

> ((((((((( Big Hug)))))))

> in Pa.

>

March 6, 2002

LINDA--Thanks hon for your kind concern. You have always been my

fibro-sister; I know we talk about it a lot! Thanks for your tip

about a neurologist; I really need to hook up to the med community

here! Guess I'll have to sooner or later; I'm down to my last refill

of my thyroid medicine from last September! Thanks for caring!

Love, Ava Lee

In GastricBypass-InfoCentral@y..., " Odom " <lodom@h...> wrote:

> Ava we are here for support and I know first hand what you mean

about Fibromylgia and you know that . I suggest when money allows you

to that you see a good neurologist they are doing a lot of fibro

treatments now and Mine has helped no it is not gone but it sure

make it more bearable

> hugs TN

> Re: Update

>

> KAREN--I don't think I misunderstood your letter, hon; I just

wanted

> to point out that we try to minimize 'shoulds' here... I DO

admire

> Amy's plan of attack--and that anyone has one--and I know that

that

> was what you were addressing... (And, actually, I'd thought you

were

> doing very well with YOUR program--exercise or not! LOL!)

>

> As far as chronic pain goes, I don't do nearly what I'd like to

do; I

> often think of the lost opportunities, graduate school, jobs,

> recreation, work--things to make 's life easier--I wish I

COULD

> do...

>

> Doctor's don't understand a thing; they're always wanting me

to 'put

> up with it', take as little meds as possible--or tell me it's all

in

> my mind... I often consider how much my life has been diminished--

> it's hard to keep going sometimes... I'm impaired enough to not

work

> like I educated myself to do, but not enough for disability, so

every

> dime we have goes for my med bills...

>

> I haven't even seen a doctor here yet because I just can't bear

> having to face the accusations that I'm 'not really in pain',

that I

> just want meds, having to constantly hear that 'pain meds aren't

the

> best way to deal with fibromyalgia' (but they have no other

method to

> suggest)--or that fibro is not a real illness in the first place.

>

> I have a nightmare where, on one side of my tombstone is a list

of

> all the things I could've accomplished--what a contribution I

> could've made to society--even what an enjoyable life I could've

had

> and, on the other side, is the single notation 'but she wasn't a

drug

> addict'--and that's the only thing important to doctors and,

thus,

> the only thing I've been able to accomplish...

>

> Well, as one friend of mine pointed out, other people have worse

> problems and, if I took on a different set of them, maybe mine

would

> look light in comparison. Maybe they would, but that sure didn't

make

> me feel very understood...

> Sorry for griping; I usually like to keep my own problems off the

> board...

>

> Love, Ava Lee

>

> In GastricBypass-InfoCentral@y..., pahendrsht@a... wrote:

> > Hi Ava Lee;

> > Sorry if I was misunderstood, Amy said that they were the

things

> she was doing

> > I do realize that everyone cant exercise 45 minutes a day. Lord

> knows I cant

> > do

> > that yet or just wont yet, maybe wont is the better statement.

All

> I meant

> > was she

> > has a plan of attack. I had none up until a month ago when I

> started reading

> > GBIC and asked how to break a plateau. I got tons of advice

and

> incorporated

> > it and tailored it to my situation. Result I am down another 5

> lbs. Before

> > that

> > I was just eating whatever I wanted for the 3 meals a day. It

wasnt

> very much

> > but now I see the stuff was wrong for me. I was not drinking

lots

> of water

> > nor taking protein. I feel I am much better off now than I was

a

> month ago.

> > Hope your fibro doesn't get you down too much. I have a friend

> with it and

> > think its wonderful all that you do even though you have it.

> > Hugs,

> > in pa.

> >

March 6, 2002

this is mine that I take as per Vitalady's recommendation as you can see

she gets the credit here . This is for a proximal if you are distal there will

be more !

30g of protein supplement, made in water, 2 to 6 times per day,

> no milk, no sugar.

>

> AND 64 oz of water

>

> 1 Perfect iron = 100 days = 5.50 (never ferrous SULFATE)

> 1 Citrate = 80 days = 15.00 ( 500 mg calcium citrate + D + mag, per

EACH)

> 1 A & D (dry) = 100 days = 4.50 (oil gels are not absorbed)

> 1 zinc (tablet) = 250 days = 5.50

> 1 E (dry) = 100 days = 11.00 (oil gels are not absorbed)

> *1 multi = 250 days = 15.00

> *1 C = 500 days = 18.00

>

> * = OR choose the chewables

>

> Chewable:

> chewable C = 300 days = 16.00

> chewable multi = 150 days = 12.50

>

> Schedule:

> AM:

> 2 iron

> 1 C

>

> mid-day:

> 1 calcium

> 1 E

> 1 multi

>

> evening:

> 1 calcium

> 1 zinc

> 1 A & D

>

> bedtime:

> 1 calcium

> 1 multi

>

> Thanks,

>

> www.vitalady.com

Re: Update

>

> Yes Amy do give us some tips.

> Please

> Suzanne from Ca.

>

March 6, 2002

Thanks ! You always make me feel better about things.

Amy

March 6, 2002

Ava:

I'm sorry that your pain keeps you from doing the things you would like to do in

your life. I don't know what the pain of fibromyalgia is like but I understand

from talking with people that have it that its severe. I have severe carpal

tunnel and osteoarthritis and I know on the days when I am in pain I can barely

function. I can't imagine how much worse things are for you. Hopefully the

medical profession will come to realize that fibromyalgia is a real disease and

start looking for better ways to treat and maybe one day cure it.

Amy

March 6, 2002

:

Thanks for the update on . I'm glad she made it through the surgery and

is resting in ICU. Hopefully she will do fine with her leak test and be home

soon..

Amy

March 11, 2002

Sis I am so happy to know you are doing well . Do I need to remind you what

happens with too little water I know mom will so I won't and I know you feel

great to be able to eat and keep it down where you need to . you were sick so

long sis I was really concerned you just don't know . big hugs love ya

TN

update

Hello my sisters and brothers, Mom and Dad,

I am still doing fabulously I think.. I have experienced a few episodes of

nausea because I chose to eat the wrong foods for the stage of recovery I am at

presently.. Mom quickly pointed that out to me.

I feel good, have energy to go and do the things I need to do without

violating the lifting restrictions and etc that I am under from the surgeon.

I probably need to submit myself for one of Ava's whompings.. I have not

been faithfully doing the 150 gm of protein daily, but getting between 90 and

120 most days.. also have had some days where water consumption was really

slackin. I am putting forth effort to get more protein down and more water in

..... I have finally readjusted to east coast time, seems it took forever though,

We are having crazy weather here.. low 30/s this morning, sunny and very

windy, and now in mid 60's. No wonder everyone here is sick with flu/bronchitis,

colds, etc,

I was glad to hear that Vic is resting and doing well after her surgery. My

prayers are going out for her still..

Hugs,

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May 19, 2010

Maddy had an abdominal xray and u/s of her kidneys and bladder today.

She said the urologist after the scans. She is still retaining urine.

The doc is concerned because she saw Maddy about 6 weeks ago and she

said things are progressing. She listened to Maddy's other symptoms

again.She wants her to have another mri of her lower spine.She said

again based on symptoms she probably has a tethered cord.She said if

nothing is done surgically that her bladder function will continue to

get worse. The next step would be teaching me how to cath her or do

surgery to wear she pees in a diaper. She asked what nsg has said I told her he

ordered an mri of her neck which is in about 6 weeks,and he said he thinks her

nerves are interfering with her bladder. We saw the

pediatrician yesterday who said she thinks she has a tc and she needs to have

another mri done of her lower spine as well. I will call nsg

office tomorrow morning to demand that mri. If he refuses I will take

her somewhere else. I dont want this to get any worse to were its too

late even with tc surgery. I already have a name and info for another

doc. Please keep Maddy in your prayers.

May 19, 2010

Maddy is in my prayers as is the fervent wish that you find a NSG in whom

you have confidence. randee

In a message dated 5/18/2010 10:45:24 P.M. Central Daylight Time,

cedgecomb_1977@... writes: