Re: HELP!

[Guest guest]

Hi Sharon,

I too have been sent to a RH. He knew I was hurting because I could barely

move but he couldn't prove I had RA. I don't! Thank Heavens it's all part

of the ACM I believe. As for how to stop the pain. I've heard of trying

fish oil from the health food stores and a number of others. I'll get the

list of them and post it. I haven't had the money since my last surgery to

get it and see if it works. But honestly it ends up being another battle of

the Doctor saying there's nothing wrong to you saying than why do I hurt. I

can't explain why my joints hurt so bad and why sometimes I can hardly

move...but they do...and weather they believe me or not it's there and

somehow I have to live with it or battle it.

Good luck Sharon!

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[Guest guest]

You could hit him with a baseball bat and ask him if it hurts. Then tell

him you hurt so many times more than that!! Just kidding- some days I would

love to do that- but I am really a non-violent person.

Look at Dayle Ann's chart for pain - I think she did a really nice job.

Print it off. Show the doctor on the scale how much you hurt. Bring a

family member who can help describe or verify your pain.(like if sometimes

you have to lay in bed and cry cause you hurt so much.) My Doctor finally

took notice when I told how much tylenol I used in a day. I was prescribed

Ultram - better than tylenol - but not as good as darvocet or percocet.

Good Luck!!

Sue

----------

> From: SHu7637831@...

> To: Chiariegroups

> Subject: Help!

> Date: Sunday, June 06, 1999 6:08 PM

>

> Hi All!!

>

> Just thought since I am new to everyone I would see if any of you have

any

> advice for me. I have been to probably 12 doctors in the last 2 years.

Now

> my GP is sending me to a reumatoligist (can't spell it). Of all of the

> doctors I have been to I don't think that they think I am serious about

the

> ongoing pain I endure on a daily basis. I have already been denied by

social

> security. It is really depending on what this doctor says as to whether

I

> refile my claim. Just to refresh you on what is wrong with me: I have

had

> surgery for a Chiari Malformation, I have migraines, hern disc at C5/6,

bone

> spurs, tilted vert. Straightening of the cervical curve, and FMS. Any

> suggestions on what I may say to convince this Dr. that I really am in

pain?

> My appointment with him is Tuesday the 8th. Any help would be greatly

> appreciated.

>

> Thanks

>

> Sharon

>

> ------------------------------------------------------------------------

>

> eGroups.com home: /group/chiari

> - Simplifying group communications

>

>

>

>

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[Guest guest]

Misty join the opk club

[Guest guest]

opk club? Where and how *s*

26

Misty 30

Ricky 9

Shelby 8

TL 8-27-93 done by a surgeon dumb enough to listen to me *lol*

TR 12-18-00 - Dr. Levin

Baby Fenton (Angel in Heaven)

>From: mccoyjaime@...

>Reply-To: TubalLigationReversal

>To: TubalLigationReversal

>Subject: Re: help!

>Date: Wed, 10 Oct 2001 22:06:03 EDT

>

>Misty join the opk club

>

>

>

>

[Guest guest]

In a message dated 11/14/2001 6:57:51 PM Eastern Standard Time,

jacquie_harris@... writes:

> Alec is a terrorizing the house! He keeps beating on Greggory and

> breaking things and is a royal pain in the butt! He drops to the

> ground and wont walk so I have to carry him everywhere unless he

> wants to go somewhere in which case he will run so I have to go catch

> him. Greggory just said " write please help Greggory " ~sigh~ I mean,

> its not like he hasnt been this way before but he is getting bigger

> and older and so stronger, faster and heavier. Anyone have any good

> suggestions for dealing with a nonverbal, nonresponsive to

> punishment, awfully difficult child of almost 4 yrs? Please someone

> answer before I put my child up for sale!

> Jacquie H

>

>

>

>

>

>

Jacquie...

Per suggestion of the shrink Sam sees, we've been trying to do the " ignore "

thing.

It's very hard to do...especially when stuff is getting broken. But if there

is any way for you and to leave the room and let him do his thing,

you might find that after a few episodes, these times are not as long and not

as violent.

It seems to have worked somewhat with Sam

Ron

[Guest guest]

Thea,

Alec is on vacation for 2 weeks right now but I will talk to his

teacher when we get back to school. He does do ABA as part of his

daily school routine. Unfortuneatly noone can figure out exactly why

Alec has this type of behavior. I mean, we know he is upset or

frustrated or angry at times but sometimes that just isnt the case.

He does do it for a reaction at times as well. He has always hit

GReggory. From the time Alec was about 6 months or so Alec has hit

and pulled hair and bit Greggory. Alec doesnt care much for

attention so I dont think this is why he is tormenting the family.

The only solution I have for Alec is to put him on his top bunk

where he cant hurt anyone. That is ok but he can be up there most of

the day on some days. Alec has also been very sick for the past 3

months and so I guess he is probably not in the best of moods

either. Thanks for the suggestions.

Jacquie H

> > Alec is a terrorizing the house! He keeps beating on Greggory

and

> > breaking things and is a royal pain in the butt! He drops to the

> > ground and wont walk so I have to carry him everywhere unless he

> > wants to go somewhere in which case he will run so I have to go

> catch

> > him. Greggory just said " write please help Greggory " ~sigh~ I

mean,

> > its not like he hasnt been this way before but he is getting

bigger

> > and older and so stronger, faster and heavier. Anyone have any

good

> > suggestions for dealing with a nonverbal, nonresponsive to

> > punishment, awfully difficult child of almost 4 yrs? Please

someone

> > answer before I put my child up for sale!

> > Jacquie H

[Guest guest]

I just happen to have a nonverbal, nonresponsive to punishment,

awfully difficult child of a little more than three years who's as

strong as most 4 year olds I've met...

We threaten to punish, punish (to no effect whatsoever), and yell.

Nothing.

Our best approaches have been to first try hand-on-hand playing

(literally holding his hands/arms and helping him share, doing all the

verbal cues, etc. for playing nice). If he's not capable of

cooperating with that, we just isolate him and distract him with

something else that he likes, like a Dr. Seuss ABC book or toys that

spin and ding...

Good luck!

> Alec is a terrorizing the house! He keeps beating on Greggory and

> breaking things and is a royal pain in the butt! He drops to the

> ground and wont walk so I have to carry him everywhere unless he

> wants to go somewhere in which case he will run so I have to go

catch

> him. Greggory just said " write please help Greggory " ~sigh~ I mean,

> its not like he hasnt been this way before but he is getting bigger

> and older and so stronger, faster and heavier. Anyone have any good

> suggestions for dealing with a nonverbal, nonresponsive to

> punishment, awfully difficult child of almost 4 yrs? Please someone

> answer before I put my child up for sale!

> Jacquie H

[Guest guest]

Thanks! We do alot of prompting with other things but probably not

shring. Thats a good idea! We do isolate him but lately I feel like

he gets isolated so much he is barely a part of the family and so I

was hoping for some more suggestions. Thanks I will try them.

Jacquie H

> > Alec is a terrorizing the house! He keeps beating on Greggory and

> > breaking things and is a royal pain in the butt! He drops to the

> > ground and wont walk so I have to carry him everywhere unless he

> > wants to go somewhere in which case he will run so I have to go

> catch

> > him. Greggory just said " write please help Greggory " ~sigh~ I

mean,

> > its not like he hasnt been this way before but he is getting

bigger

> > and older and so stronger, faster and heavier. Anyone have any

good

> > suggestions for dealing with a nonverbal, nonresponsive to

> > punishment, awfully difficult child of almost 4 yrs? Please

someone

> > answer before I put my child up for sale!

> > Jacquie H

[Guest guest]

Ron,

thanks for the suggestion. I have to say that while ignoering

things may work great for lots of kids unfortuneately it works for

squat with my kids! AGHHHHHHHHHHHH! I wish it would. Alec will chase

Greggory down like a hunter and attack him. He will sneak up behind

people and get them too! Greggory of course cannot ignore Alec as he

is in the middle of being abused and I am trying to teach Greggory to

defend himself as he is a very passive child. The teachers at school

tried extinctionm with Alec for some of his behaviours but he could

care less. ~sigh~ Thanks for the help though.

Jacquie H

> In a message dated 11/14/2001 6:57:51 PM Eastern Standard Time,

> jacquie_harris@n... writes:

>

>

> > Alec is a terrorizing the house! He keeps beating on Greggory and

> > breaking things and is a royal pain in the butt! He drops to the

> > ground and wont walk so I have to carry him everywhere unless he

> > wants to go somewhere in which case he will run so I have to go

catch

> > him. Greggory just said " write please help Greggory " ~sigh~ I

mean,

> > its not like he hasnt been this way before but he is getting

bigger

> > and older and so stronger, faster and heavier. Anyone have any

good

> > suggestions for dealing with a nonverbal, nonresponsive to

> > punishment, awfully difficult child of almost 4 yrs? Please

someone

> > answer before I put my child up for sale!

> > Jacquie H

> >

> >

> >

> >

> >

> >

>

> Jacquie...

>

> Per suggestion of the shrink Sam sees, we've been trying to do

the " ignore "

> thing.

> It's very hard to do...especially when stuff is getting broken.

But if there

> is any way for you and to leave the room and let him do his

thing,

> you might find that after a few episodes, these times are not as

long and not

> as violent.

>

> It seems to have worked somewhat with Sam

>

> Ron

>

>

>

[Guest guest]

So, can he handle inserting a glycerin suppository on his own? When we have had that "stuck" issue- the glycerin suppositories provided instant relief. I think my eldest was 7 or 8 when she could handle inserting on her own...I believe embarrassment and desperation made her a quick learner.. Diane http://mitochondrialdepletionsyndrome.blogspot.com/ To: miralax Sent: Friday, July 13, 2012 4:20 PM Subject: help!

So, we have a problem... my son has a huge poop he can't get out.. nothing new of course except that this time it's just not coming... I really could use some suggestions.. he's been sitting on the toilet for days and we've thrown out a few pairs of underwear from the constant leaking --he's wearing a pull-up now---(he's almost 9 and is embarrassed--of course) he has a close friend that we're picking up this weekend to stay for the week and we would like to get this done so there's no issues! He is absolutely terrified of enemas.. to the point that he has nightmares... so that is out of the question... not sure what to do next...I had given him a few extra doses of natural calm and i have mag citrate but I feel like that's not going to help because he's so blocked...any suggestions would be much appreciated!

Thanks,

[Guest guest]

Hi! How many days has this been going on? You may want to consider medical intervention, at this point .... To: miralax Sent: Friday, July 13, 2012 5:20 PM Subject: help!

So, we have a problem... my son has a huge poop he can't get out.. nothing new of course except that this time it's just not coming... I really could use some suggestions.. he's been sitting on the toilet for days and we've thrown out a few pairs of underwear from the constant leaking --he's wearing a pull-up now---(he's almost 9 and is embarrassed--of course) he has a close friend that we're picking up this weekend to stay for the week and we would like to get this done so there's no issues! He is absolutely terrified of enemas.. to the point that he has nightmares... so that is out of the question... not sure what to do next...I had given him a few extra doses of natural calm and i have mag citrate but I feel like that's not going to help because he's so blocked...any suggestions would be much appreciated!

Thanks,