help

[Guest guest]

Helena,

If I had a dime for every time I said why, why oh lord WHY? I could by a

new clothes. Your body is getting used to all new tastes, textures and

foreign foods that under the old life we would have never eaten. I guess I

would have to ask, are you eating too quickly, drinking to fast. If you

seem to have trouble w/ Jell-O , the sf pops, and drinks, stick w/chicken,

beef broth and just make sure everything is pureed really really good. Your

mind heals faster than the body, and you are having that hibernation

syndrome, its all part of the process. That's why you have us. Man I

wanted to rip someone's hair out if I couldn't get the heck out of this

house, four walls, ceiling, floor and Oh my cob webs...... mmmmmm wonder if

I could clean, NO I can't do that either, hmmmm wonder if I could...... Nope

No can do.... well craps now what? READ A BOOK, Cross word puzzle, watch

life time channel, rent movies, start your journal, start a web page, if you

don't know how good time to start, have someone drive you to a mall, drop

you off and pick you up in an hour, you can walk a little, rest a little,

walk a little, rest a little, sip water through the whole time. Its hard

but bet you me, it does get better girlfriend!

Hang in there!!

Love,

Theresa

~You grow up the day you have your

first real laugh at yourself~

*Ethel Barrymore*

Help

OK i am at the end of my rope and it has only been 9 days and I am starting

to have regrets. I have never threw up but I seem to always have a yucky

taste in my mouth and I just don't feel good. I did this to be healthy and

right now I feel like S**t. I am losing weight but I know I am losing muscle

too. I did get my protein today (thanks ) and that seemed to stay

down but it seems like it will come up any min

is there anything I can eat that doesn't have sugar substitute in it? that

seems to make me feel worse. I have tried Jell-O, frozen pops but after I

eat

them I feel sick. I also tried those s/f drinks you ladies were talking

about

Helena Beasley

post-Op Open RNY

5'2 " 247 lb. BMI 46

Surgery February 20, 2002

[Guest guest]

Helena Hon I know it is very hard at first and things don't feel good on your

tummy but I promise it does get better . I wasn't sure till around four weeks

and then I thought heck yes I can do this so be patient Hon and give your body

time to heal and things will start getting better two weeks post op and then

each day will get better . If the sugars bother you it might be best to stick

with plain on H2o . I am drinking tons trying to lose more weight I think I am

too slow but at least the scale is going down and NOT UP !

Help

OK i am at the end of my rope and it has only been 9 days and I am starting

to have regrets. I have never threw up but I seem to always have a yucky

taste in my mouth and I just don't feel good. I did this to be healthy and

right now I feel like S**t. I am losing weight but I know I am losing muscle

too. I did get my protein today (thanks ) and that seemed to stay

down but it seems like it will come up any min

is there anything I can eat that doesn't have sugar substitute in it? that

seems to make me feel worse. I have tried Jell-O, frozen pops but after I eat

them I feel sick. I also tried those s/f drinks you ladies were talking about

Helena Beasley

post-Op Open RNY

5'2 " 247 lb. BMI 46

Surgery February 20, 2002

[Guest guest]

OH Ava you are so right I am seven weeks and Geesssssss sometimes my breath is

horrible I brush brush brush and mouth wash and SF mints and floss Glad to lose

the fat but wish the bad breath was not part of the exchange

Re: Help

HELENA--Of course you feel lousy, hon; you've just had major surgery

and you're completely changing around your entire eating system! Your

body's telling you that that makes it cranky!

Try drinking--sipping--water; I think you're drinking the flavored

drinks a little too fast because they taste good. Try upping your

protein too, if you can in case your body is hungry for more. Right

now, with no/few carbs, you'll be going into ketosis, I think, as

your body burns up all that fat. Ketosis DOES put a bad taste in our

mouths, so brush and floss more frequently. Drinking lots of water

helps; artificial sweetener always put a bad taste in my mouth too!

Yes, now is the time we most frequently regret our decision. We

remember how it felt pre op and now, post op, we don't think we'll

ever feel normal again like that. Not true, sweetheart! You'll be

healing for about 4-6 weeks; you'll be trying out different foods and

our new way of eating for maybe another month or so. After that,

you'll feel more and more normal. One day--maybe 3 mo./6 mo./surely

after that, you'll realize that you feel just like you did before

your operation.

Honest, things will get better! I am sending you my info sheet on the

Hibernation Syndrome in case you don't have it. If you do have it,

read it again1 Write in often, hon, we're concerned about ya!

Love, Ava Lee

In GastricBypass-InfoCentral@y..., hell606@a... wrote:

> OK i am at the end of my rope and it has only been 9 days and I am

starting

> to have regrets. I have never threw up but I seem to always have a

yucky

> taste in my mouth and I just don't feel good. I did this to be

healthy and

> right now I feel like S**t. I am losing weight but I know I am

losing muscle

> too. I did get my protein today (thanks ) and that seemed

to stay

> down but it seems like it will come up any min

> is there anything I can eat that doesn't have sugar substitute in

it? that

> seems to make me feel worse. I have tried Jell-O, frozen pops but

after I eat

> them I feel sick. I also tried those s/f drinks you ladies were

talking about

>

> Helena Beasley

> post-Op Open RNY

> 5'2 " 247 lb. BMI 46

> Surgery February 20, 2002

>

>

>

[Guest guest]

Dear Helena,

is absolutely correct.. Marginal ulcers are a big deal if not

dealtt with early on.. call your doc..

Hugs,

open RNY 12/12/00

revision 04/18/01

revision 02/07/02

sw392

cw 218

-174

5'6

l

[Guest guest]

You can get one of those as early as 9 days out?

Helena Beasley

post-Op Open RNY

5'2 " 247 lb. BMI 46

Surgery February 20, 2002

[Guest guest]

We actually think my staple line started disrupting in the hospital after my

first surgery before I was released, and my marginal ulcer also began at that

time, just wasnt discovered for 4 months, mostly due to the surgeon and his

staff not taking my complaints seriously enough.

My marginal ulcer perforated, eroded to the back side of my liver and caused

me to have peritonitis, plus helping my staple line to completely unzip..

This may could have been prevented if treated with proper medication at the

earliest symptoms..

So, yes, marginal ulcers can occur at 9 days post op or even sooner..

Hugs,

open RNY 12/12/00

revision 04/18/01

revision 02/07/02

sw392

cw 218

-174

5'6

l

[Guest guest]

My DR is on vacation this week. I was taking Prevacid 30 before my surgery

but stopped my surgeon said I didn't need it anymore. I was taking it for

GERD.

would it hurt if I took it until my DR came back? you guys are making me

nervous and I do have pain even sucking on ice

Helena Beasley

post-Op Open RNY

5'2 " 247 lb. BMI 46

Surgery February 20, 2002

[Guest guest]

I know you guys aren't doctors and I will call the DR office Monday I know he

must have someone taking his workload till he gets back. I will make sure

that someone sees me

Helena Beasley

post-Op Open RNY

5'2 " 247 lb. BMI 46

Surgery February 20, 2002

[Guest guest]

Helena....my doc was on vacation also. His associate took on my case and did

just fine. I missed what was wrong with you. Are you having the same symptons as

I did? How far out are you? Forgive me but I am still VERY behind on

posts.....annee

---------------------------------

[Guest guest]

What? Marginal ulcer? 24 hours is enough for one of those.

Thanks,

http://www.vitalady.com

For info on PayPal, click this link:

https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com

Re: Help

You can get one of those as early as 9 days out?

Helena Beasley

post-Op Open RNY

5'2 " 247 lb. BMI 46

Surgery February 20, 2002

[Guest guest]

They routinely put us on that after surgery nowadays here. 30 days for some, 60

days for others. I just stayed on for life.

Thanks,

http://www.vitalady.com

For info on PayPal, click this link:

https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com

Re: Help

My DR is on vacation this week. I was taking Prevacid 30 before my surgery

but stopped my surgeon said I didn't need it anymore. I was taking it for

GERD.

would it hurt if I took it until my DR came back? you guys are making me

nervous and I do have pain even sucking on ice

Helena Beasley

post-Op Open RNY

5'2 " 247 lb. BMI 46

Surgery February 20, 2002

[Guest guest]

Lou,

You will have my prayers. If it's any help I think most of us went through

wondering the same things. I did. But ya know. now that I'm over a year out and

down 113#. Food is not an issue. Yea I have cravings and I do eat things I

shouldn't and I usually pay for it. But food is no longer my life. My life is my

life and food is an after thought.

You won't fail! You can't God won't let you. The surgery won't let you. This

is your time to restart your life. A second chance to make right some of the

wrong chances that we've made over the years. I was forced to deal with my

issues that cause me to over eat. I can't turn to food any more so I don't have

a choice but to deal with my life weather I want to or not.

You have our love and our support. You will do fine. May God Bless you and

Give you the peace to calm yourself before your surgery. Love Dawn

Help

I've been reading the posts for a long time. Thank you all for sharing your

stories and questions. Now , I need to ask for help and prayers. My surgery

is scheduled for Thursday,March 14. It's been a long road. Over a year and a

half of doctors, tests, medifast and etc. My problem is my blood pressure is

high and if it doesn't get under control by next week they may cancel on me.

I'm taking my medicine and finally my doctor here is calling in something

new today and I'm praying it does the trick. This time before surgery I have

so many things to do and visits to hospitals and doctor and wonderful enemas

to take. I'm asking that on my surgery day, would you please pray for God to

bless the doctors and me with a safe surgery . I keep wondering about the

pain and what if I fail. What if I don't lose a lot of weight? What if I can

never eat normal food again? I'm praying that this surgery will help me to

get off of a lot of the medicines I take and that I can become healthier and

more active. But yes, I'm also hoping that down the road I can eat normal

food in small portions. I'll never be thin or probably not normal weight but

just to be in the hundreds would be wonderful. I'm short 5'1 " and at my

highest was 365. I have lost hundreds of pounds only to put them back on and

more. I'm hoping this time , the weight won't come back on. I was dieting

again before and while I was on this wait list. Our doctor puts you on

medifast for a month before surgery. So as of now I'm 300 pounds. Sorry, I'm

rambling nervous and want support. Thank you. Lou

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[Guest guest]

can any one help me i have fibro and i am now getting pins and

neddles in my hands and feet, and also feel faint at all times

PLEASE HELP ME

[Guest guest]

Hi,

I don't have any concrete advice for you... sorry. I have the same

things happen to me. All I do is stretch out and massage the area until

I get the feeling back. Have you seen your doctor about it?

hugs,

Norah Bleazard - Burlington, Ontario Canada

www.bleazard.net ~ www.janorlites.com

E-MAIL=

norah.fibroyahoo@...

CHAT=

MSN = black_dak_98@...

Yahoo = drazaelbn

AIM = black98dak

ICQ = 105346330

Fibromites_Fighting_Weight:

http://groups.yahoo.com/group/Fibromites_Fighting_Weight

http://fibromites.ath.cx

fmaureen2002 wrote:

> can any one help me i have fibro and i am now getting pins and

> neddles in my hands and feet, and also feel faint at all times

> PLEASE HELP ME

[Guest guest]

Oh Dash,

I hope you're felling better soon. I can sure relate to the back acting

up. I've been sitting at the computer a little too long and I'm kind've

avoiding the pain that will come with the attempt at standing up. Some

days I wish I could apply WD-40 to all my rusting parts. Need some

muscle strength to get me up... ugggh. Here goes nothing.

mega hugs,

Norah Bleazard - Burlington, Ontario Canada

www.bleazard.net ~ www.janorlites.com

E-MAIL=

norah.fibroyahoo@...

CHAT=

MSN = black_dak_98@...

Yahoo = drazaelbn

AIM = black98dak

ICQ = 105346330

Fibromites_Fighting_Weight:

http://groups.yahoo.com/group/Fibromites_Fighting_Weight

http://fibromites.ath.cx

dash wrote:

> I have been dizzy, sick, faint the last two mornings at least. MY

> back is kicking up again..... do you have trouble with your back?

> Have u seen a neurologist to rule out anything? Pins and needles can

> mean pinched things and I am not sure what all, but have you done all

> the obvious and now turned to us, the professional fibros?

> ((((((hugs)))))) dash

[Guest guest]

I have been dizzy, sick, faint the last two mornings at least. MY back is

kicking up again..... do you have trouble with your back? Have u seen a

neurologist to rule out anything? Pins and needles can mean pinched things and

I am not sure what all, but have you done all the obvious and now turned to us,

the professional fibros? ((((((hugs)))))) dash

help

can any one help me i have fibro and i am now getting pins and

neddles in my hands and feet, and also feel faint at all times

PLEASE HELP ME

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

Have a nice day everyone.

[Guest guest]

Kathy,

That's what I was thinking. Is this a child? Those drugs are addictive.

That's probably why Medicaid denied the claim.

Anne

_____

From: tetheredspinalcord

[mailto:tetheredspinalcord ] On Behalf Of DK Moulton

Sent: Thursday, July 01, 2010 8:39 PM

To: tetheredspinalcord

Subject: Re: Help

I'm not brushing you off at all, but not only because I have no experience

with Medicaid, but because you really should speak to the prescribing doctor

about this problem. " They " have probably run into this issue before and it

may be that they just need to send in documentation of her medical problems.

On a side note - I had no idea they prescribed such heavy-duty drugs for

toddlers. None of the anti-seizure meds or lighter narcotics worked?

Kathy

Help

My

daughter had her 4th detethering surgery last Feb. was a year ago.

Since that time her symptoms have not improved at all and in fact, now

she has bladder and incontinence issues. Her pain has been managed for

the past year with the use of oxycodone and oxycontin. Recently her

insurance (medicaid) has denied and said they will no longer pay for

these meds. Has anyone else had this problem and what was the

resolution?

Thanks,

Livvie

[Guest guest]

Kathy,

my daughter is 27 years old and has been on all kinds of things.  she is

tethered now and has been for a rigth good while.  the dr says since the last

surgery didn't help there was no point in putting her through it again unless we

see nuerological decline.  i really feel that they need to look at something

more long term for her pain management...she can't stay on these drugs

forever.  the dr's office has really been a big help with trying to get this

approved and is just as frustrated as she is about the whole thing.  i can't

believe that her records don't speak for themselves.  they are trying her on a

new long acting morphine.  she says it doesn't help much, but they can increase

the dosage, so we will just keep trying.

thanks,

livvie

Subject: Re: Help

To: tetheredspinalcord

Date: Thursday, July 1, 2010, 9:39 PM

 

I'm not brushing you off at all, but not only because I have no experience with

Medicaid, but because you really should speak to the prescribing doctor about

this problem. " They " have probably run into this issue before and it may be that

they just need to send in documentation of her medical problems.

On a side note - I had no idea they prescribed such heavy-duty drugs for

toddlers. None of the anti-seizure meds or lighter narcotics worked?

Kathy

Help

My

daughter had her 4th detethering surgery last Feb. was a year ago.

Since that time her symptoms have not improved at all and in fact, now

she has bladder and incontinence issues. Her pain has been managed for

the past year with the use of oxycodone and oxycontin. Recently her

insurance (medicaid) has denied and said they will no longer pay for

these meds. Has anyone else had this problem and what was the

resolution?

Thanks,

Livvie

[Guest guest]

Hi

You are (possibly) not expecting too much to ask him to recognize the warning

signs of these events and do some kind of intervention.

YOu are, however, expecting it too soon, too easily and expecting him to do it

on his own, as if all you have to do is tell him what is expected and he should

be able to say " of course, that's what my problem is " and change. That so isn't

going to fly. He is not currently in a place he can recognize, let alone

control these feelings. He probably does not have enough internal awareness to

know that these--things-- that swirl inside *are* feelings, let alone know he

has power over them. Many Aspies see feelings as mysterious external weather or

oceans that come out of no where, wash over them involuntarily, drag and pull at

them while they swirl helplessly in the storm. There is no recognition that

they, themselves, generate this flood and can influence its course. Someone

outside of him has to teach him. The following assumes the behavioral episodes

are not a form of temporal lobe seizure.

someone has to recognize the approaching storm externally, point it out to him

while it is still early enough to pay attention, and teach him how to handle it

successfully.

I recommend contacting his school or therapist and ask for a behavioral

intervention plan to go over with you how to do this.

You have to observe him, recognize the physical and emotional triggers,

recognize the beginning of a buildup, stop it early enough to point it out to

him, emotionally defuse it, intellectualize it, give him a tool to manipulate it

and then a way to resolve it. All while remaining impartial and nonjudgemental

yourself. This takes time in the best of circumstances, months to years.

I don't see this happening easily two days a week easily, especially when it

will actively be undermined, but someone has to try--you are right, he will get

into trouble, and puberty is coming. It *will get worse* and he will be bigger

and stronger. That is why you must get the school and therapist on board.

Possibly legal action against mom if it is the opinion that this is harming your

stepson.

Good luck

> Anyone give me a clue or some inspiration?

> Its a long story but just for now, I have a step son who is diagnosed with AS.

His father, my partner is self diagnosed, Stepson is 14 and only diagnosed 6

months ago. His mother refuses to acknowledge anything about him or his

behaviour, has made little effort in his parenting from and early age, just left

him to it. Little discipline, no rules. easier for her to let him rant and

rave.She does little if nothing to accomodate for his AS. Anyways. In His home

environment he is shouted at alot of the time,no one can say anything to him at

all without him taking it as criticism. He has a meltdown like a three year old,

if he feels criticised. Am I and his father expecting to much of him to want him

to catch these meltdowns before they occur? sHOULD WE BE ABLE TO EXPECT HIM TO

MANAGE THIS?as I say he is 14 but very immature.I would put him at a 10 year

old. I fear he will get himself into lots more trouble if he can't control this

stuff.He is already getting into trouble at school. He does not show a high HQ

in relation to his academic ability, but has all the other AS traits. He repeats

himself alot, has special subjects that he bores people with,Logical responses,

no idea of personal space for others. Every time he comes to us, bi-weekly it is

constant tension, my own partner becomes overwhelmed. Any suggestions?

>

>