Re: The 500 + members of our list

[Guest guest]

Thankyou Connie, I appreciate that.Luckily I talk to my mother every day, as

we now for the first time in over 30 years live within blocks of each

other.My husband is on the road a lot, but due in tonight for a

week.Needless to say, my two dogs and I are really anxious to see him.He has

always been so supportive, considering that fibro changed not only my life,

but his too.Not all of us are lucky or blessed enough for this support.I

have a friend who has a husband that pushed her to keep doing all kinds of

water exercises and things that really hurt her, despite having

fibromyalgia.Finally, when doctors diagnosed her with fibro, he

relented...but I know he still gives her a hard time.Makes me feel I am so

lucky!

Melodie

Re: The 500 + members of our list

>

>

> > Many people are so ill, that they can't respond, but the knowing that

> > they are not alone is enough (why some lurk).

> >

> > Dillion

> > One of but many of Kristy's mods

> >

> >

> > > Anya,

> > >

> > > Most are lurkers. The thing to do is send out an admin message

> > > to all lurkers (which I have a couple times) and find out where

> > > everyone is and also get some to introduce themselves.

> >

> >

> >

> >

> > 1. While it is wonderful to share our experiences with everyone on the

> list as to what treatments do and don't work for us, pls always check

with

> your dr. Some treatments are dangerous when given along with other meds

as

> well as to certain health conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't matter what it is) pls

> don't be afraid to ask for help. It is the first step to trying to make

> that situation better.

> >

> >

> > Have a nice day everyone.

> >

> >

[Guest guest]

> Many people are so ill, that they can't respond, but the knowing

that they are not alone is enough (why some lurk).

I have no problem with " lurkers " . I, myself, am a " lurker " on a few

other groups. Some people like the knowledge and support that they

get just knowing that there are others out there with the same things

that they have. We talk about things and others jump in and say " I

have that " - well, the lurkers are more than likely to be doing the

same thing - finding out that there are others out here just as odd

as they are. Some people do not have the time, energy, or are just

too shy to post. On my other groups, I lurk because I do not have the

time to be active on multiple lists.

As for there being >500 members - I lurk on another fm group with

almost 1500 members and a few other types with over 2000 - so I guess

we aren't too big.

One more thing before I finish running my mouth off.... LOL.

This list has gotten much more active lately. I don't know how many

of you check out the numbers but in March there were 1252 posts,

April - 1117, May - 1827, June - 2000, and in the first 10 days of

July there are already 914. Sooooo.... if all of those lurkers chose

to start posting ... I think I'd have to give up what little sleep I

get to read them all.

Just my 5 cents (inflation you know) <g>,

a -- another of the mods

[Guest guest]

Melodie,

Your a lurker that posts from time to time. That lets us know that you exsist

and that your reading the posts. * hugs *

Love and Hugs

Vicki/Lady Vader

Co owner

Melodie wrote:

I'm one of the lurkers...currently weaning myself off of effexxor without a

doctor.Lots of nightmares, and I know I must be a pain right now.Thanks for

all of you though, because I read everyday!I don't feel so alone either.

Melodie

I am Lady Vader, for those who know me respect me, For those who dont fear me.

For I am your worst nightmare. Cross me and feel my wrath.

__________________________________________________

[Guest guest]

I agree with you and that is exactly what I meant. I would never unsub someone

just because they hadn't posted in awhile, in fact I would be concered that

something was wrong and try to find out. And one good way to find out as I'm

sure you know and after running a few groups myself, I would go through the

membership and if they were on no mail or hadn't participated in long time (3

months or so) then a letter would be sent out asking if they still wanted to be

apart of the group and that they had a time frame in which to answer, say 2-4

weeks. I would then write a short note when I unsubbed them that read

something like this " I'm sorry to have to unsub you but as you did not respond

back to my email, subject line ________________ , we find that we have to

choice. If this is an error and you do want to remain a member of_____________,

please subcribe again to (whatever your subcription address is) People never

got upset, most never replied back and that was the end of that.

As I saud *JMHO*

~~~~~~~~~~

Namaste

Anya

----- Original Message -----

From: Kristy Sokoloski

Anya,

Most are lurkers. The thing to do is send out an admin message

to all lurkers (which I have a couple times) and find out where

everyone is and also get some to introduce themselves.

But it wouldn't be fair to unsub those that can't post all the

time b/c they are in a flare. Also, some people prefer just to

lurk and read the messages and get help that way so that also

wouldn't be fair to ask them to leave.

That's just my thought.

Kristy

(pres and moderator)