Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Hi Everyone I got this off another list serve and thought I would pass it along. If your child does have Celiac Disease and you choose to contact Joan, please be sure to mention that your child has mosaic Down syndrome and not Down syndrome. It would be very beneficial for others to know that people with MDS can have the same issues as one with Ds and the only way this will happen is if we get this type of recognition. Kristy Dear Listmates, First of all, I hope you are all having a great week with your kids! It's always nice to have some quality time, I think. I am currently working on an article about celiac disease and people with Down syndrome. If anyone has a child with Down syndrome who also has celiac disease, and would like to share stories or tips you found especially helpful, please email me at: joan@... Some of these stories will also be considered for revisions of " The Down Syndrome Nutrition Handbook. " Thanks so much! Joan Guthrie Medlen, RD, LD Mother of Andy (17.9) who has autism, Down syndrome, and celiac disease www.DisabilitySolut ions.org www.DownSyndromeNut rition.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Kristy, could you please resend the walmart recall for the wetwipes. I deleted the original but would like to have ghe information for my daughter-in-law. Thanks. Terry Down syndrome and Celiac Disease To: mosaicds > Hi Everyone > I got this off another list serve and thought I would pass it > along. If your child does have Celiac Disease and you choose to > contact Joan, please be sure to mention that your child has mosaic > Down syndrome and not Down syndrome. It would be very beneficial > for others to know that people with MDS can have the same issues > as one with Ds and the only way this will happen is if we get this > type of recognition. > Kristy > > > > Dear Listmates, > > First of all, I hope you are all having a great week with your > kids! It's > always nice to have some quality time, I think. > > I am currently working on an article about celiac disease and > people with > Down syndrome. If anyone has a child with Down syndrome who also has > celiac disease, and would like to share stories or tips you found > especiallyhelpful, please email me at: > joan@... > > Some of these stories will also be considered for revisions of > " The Down > Syndrome Nutrition Handbook. " > > Thanks so much! > Joan Guthrie Medlen, RD, LD > Mother of Andy (17.9) who has autism, Down syndrome, and celiac > diseasewww.DisabilitySolut ions.org > www.DownSyndromeNut rition.com > > > Quote Link to comment Share on other sites More sharing options...
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