New kid on the block

[Guest guest]

GEE THATS INTERSETING AS THEY KEPT TELLING ME THEY THOUGH T I HAD LUPUS TO NOW SAY AUTO IMMUNE HEPATITIS. NANCY

[Guest guest]

Bill,

Check out www.dr-zhang.com

It works for me............

gin :-)

[Guest guest]

Hi, I´m a 39 years old person and about 10 years HCV (genotype 3, 314.000

copies viral load) infected and I started treatament with Interferon alpha

2b + Ribavirin in 11/2000. I have been had side effects but nothing like I

have heard about, I work with computers (support for users) and I have

worked 10 to 12 hours per day, driving 300 miles per week and someday

resting just 4 to 6 hours.

My side effects are limited to weakness (i´m feel tired in the midlle of the

day) and flu like effects.

My ast and alt decrease to normal levels and my hemoglobin decrease a little

bit, I´m not depressed and I hope after the next 9 months I´ll be ok again.

I am brazilian, living in Brazil and treatment are paid by the goverment. I

hope you get better.

good luck for everybody.

[ ] New Kid On The Block

Hi all,

I'm new here and I have been on the Peg treatment for 2 months. I

wass also on the interferon for a year. I'm seriously considering

getting off the peg as the side effects are kicking my ass to be

blunt. Besides, the chances of a cure from the peg are not good to be

sure.

Any advice from you good people would be greatly appreciated.

God Bless,

Bill Noviello

[Guest guest]

Welcome,

I too am new to this place and It really helps to get info,

Good luck,, jackie

> Hi, I´m a 39 years old person and about 10 years HCV (genotype 3, 314.000

> copies viral load) infected and I started treatament with Interferon alpha

> 2b + Ribavirin in 11/2000. I have been had side effects but nothing like I

> have heard about, I work with computers (support for users) and I have

> worked 10 to 12 hours per day, driving 300 miles per week and someday

> resting just 4 to 6 hours.

> My side effects are limited to weakness (i´m feel tired in the midlle of the

> day) and flu like effects.

>

> My ast and alt decrease to normal levels and my hemoglobin decrease a little

> bit, I´m not depressed and I hope after the next 9 months I´ll be ok again.

>

> I am brazilian, living in Brazil and treatment are paid by the goverment. I

> hope you get better.

>

> good luck for everybody.

>

> [ ] New Kid On The Block

>

> Hi all,

>

> I'm new here and I have been on the Peg treatment for 2 months. I

> wass also on the interferon for a year. I'm seriously considering

> getting off the peg as the side effects are kicking my ass to be

> blunt. Besides, the chances of a cure from the peg are not good to be

> sure.

>

> Any advice from you good people would be greatly appreciated.

>

> God Bless,

>

> Bill Noviello

>

>

>

>

[Guest guest]

hi virgillio, it was nice to read your uplifting note, i live in pa, and work

with a girl named virgillio, she is our web programmer, and her husband

is in computers too, must be something in the name, well anyway i am

48 and have just did shot 15, have 2b, hope to be better soon like you,

lets keep in touch, may god bless you, and take care, my sides have been

minimal too.

[Guest guest]

Hi, I'm also on treatmeant 7 shots so far 52 years old run 7-8 miles a day beside running I do a a 2 hour workout, drive 75 miles each way to work(150 per day) operate a train for 10 - 12 hours, 5 days a week. So far I have had 2 headaches and one upset stomach. I do find it a bit harder to run, but haven't missed a day in well over 2 years. I do not get use anti-d's lead a very happy life.I will not let this get the best of me. Bill

>From: Virgilio Rodrigues Feio Neto

>Reply- >"' '"

>Subject: RE: [ ] New Kid On The Block >Date: Fri, 22 Feb 2002 23:50:01 -0300 > > Hi, I´m a 39 years old person and about 10 years HCV (genotype 3, 314.000 >copies viral load) infected and I started treatament with Interferon alpha >2b + Ribavirin in 11/2000. I have been had side effects but nothing like I >have heard about, I work with computers (support for users) and I have >worked 10 to 12 hours per day, driving 300 miles per week and someday >resting just 4 to 6 hours. >My side effects are limited to weakness (i´m feel tired in the midlle of the >day) and flu like effects. > >My ast and alt decrease to normal levels and my hemoglobin decrease a little >bit, I´m not depressed and I hope after the next 9 months I´ll be ok again. > >I am brazilian, living in Brazil and treatment are paid by the goverment. I >hope you get better. > >good luck for everybody. > > [ ] New Kid On The Block > >Hi all, > >I'm new here and I have been on the Peg treatment for 2 months. I >wass also on the interferon for a year. I'm seriously considering >getting off the peg as the side effects are kicking my ass to be >blunt. Besides, the chances of a cure from the peg are not good to be >sure. > >Any advice from you good people would be greatly appreciated. > >God Bless, > >Bill Noviello > > > >

[Guest guest]

I am about the same as you ,53 years old, work out in the gym three days a

week.Work 50 hrs a week at my job.Very little side affects.It is important

that people like us speak up.We hear so much about the unfortunate people

who have a difficult time.This disease and this medicine is not going to beat

me!Entering my 13th week of treatment.Good Luck to all. Bob G

[Guest guest]

bob g. it is so good to hear about somebody who i can identify with, i

too used to work out, the tx has gotton me, as far as tiredness, just don't

have the energy i used to have, used to jog 3x a week, now can only walk,

slowly, but i have hope that when the meds are done doing there job, i

can return to the happy life i once had. bob, i wanted to ask you, did you

have a liver biopsy, or did you just start tx, i had a liver biopsy, just

some

inflammation there, no real damage, but someone told me that once they

puncture your liver that makes it even more weak and lets in other things.

so what do you think, stay strong, keep working out and e mail me from time

to time, let me know how you are doing on tx and such.

[Guest guest]

--- Diserafina@... wrote:

but someone told me that once

> they

> puncture your liver that makes it even more weak and lets in other

> things.

That is not true. The liver is an absolutely amazing organ! Just look

at living donor transplants. They basically cut the liver of a

healthy person in half, and transplant that section into the person

needing the transplant. BOTH sections of the liver will regrow into

complete, whole organs in only approximately 6 weeks! The livers of

people who have extensive fibrosis, especially in cases of autoimmune

hepatitis which has responded well to treatment, have been known to

completely heal themselves. Dr. Lawitz, one of the leading

doctors in treating HCV, at Brook Army Medical Center, said that in

people with HCV who have had a sustained response to treatment from

old monotherapy more than 10 years ago show no signs of liver

disease. When repeat biopsies are done the fibrosis is gone! The

point is, the liver WILL heal itself if given half a chance. A biopsy

is not going to cause any permanent damage to the liver. That is not

to say that a biopsy is completely risk free (what is?), but the

puncture site does not weaken it. I've never heard of anyone getting

an infection from a biopsy, although I suppose it's possible. The

biggest risk from the biopsy is the risk of bleeding, but that is a

very small risk, and they check your clotting factors before the

procedure anyway.

Claudine

__________________________________________________

[Guest guest]

thank you for the encouraging note, i am sure you are right, i just needed

someone to say it.

[Guest guest]

Hello back at you! I havent found anything that gives me energy...proper

diet, B-12,Folic acid seem to help maintain liver....Milk thistle is

excellent cleanser and detoxifier. Here are some sites to investigate in

spare time:

www.healthy.net/herbalists www.holisticmedicine.org These should have

links to other web sites also. after you investigate call your Doc and

discuss what herbs would be okay for you to take....for safety. Hang in

there. Remember God doesn't give us anything we can't handle

[Guest guest]

for energy try cordyceps

leroyjud02@... wrote:

> Hello back at you! I havent found anything that gives me energy...proper

> diet, B-12,Folic acid seem to help maintain liver....Milk thistle is

> excellent cleanser and detoxifier. Here are some sites to investigate in

> spare time:

> www.healthy.net/herbalists www.holisticmedicine.org These should have

> links to other web sites also. after you investigate call your Doc and

> discuss what herbs would be okay for you to take....for safety. Hang in

> there. Remember God doesn't give us anything we can't handle

>

>

>

[Guest guest]

Rexall has several great products for energy as well as

the best milk thistle on the planet,, jackie

> Hello back at you! I havent found anything that gives me energy...proper

> diet, B-12,Folic acid seem to help maintain liver....Milk thistle is

> excellent cleanser and detoxifier. Here are some sites to investigate in

> spare time:

> www.healthy.net/herbalists www.holisticmedicine.org These should have

> links to other web sites also. after you investigate call your Doc and

> discuss what herbs would be okay for you to take....for safety. Hang in

> there. Remember God doesn't give us anything we can't handle

>

>

>

[Guest guest]

Try Cordiceps, its a chinese herb. It works for my fatigue.

[Guest guest]

what is codiceps?? where can i get more info?

[Guest guest]

cutebumby,

I am behind on reading email as was at mayo clinic for a week for a check up. What drained my energy was eating large meals.. and wrong foods.. need to eat light meals more often if needed... avoid too much meat .. esp red meat or fatty... and lots of fruits and veggies are good... ummm drink lots of water.. i had to split day up with a nap sometimes... cuz couldnt sleep whole nights... anyway that is most i remember right now.. altho.. i do have lots of energy now.. i did the combo for 6 months.. it didnt clear the hep c.. am in early stage cirrhosis .. but the treatment did get liver functioning better and have energy now.. feel so much better...

Dawn

[Guest guest]

Cordeceps is an adaptogen, like ginseng, is used by Chinese athletes, just

do a search on , etc. or check out dr. zhang's site...I like his brand-hepapro

alot! I take 2 3x a day.

pumpboz@... wrote:

what

is codiceps?? where can i get more info?

[Guest guest]

What do you do now ?Do you stay on the combo ?I am in a similar situation.Do

they see anything new in the future?I am sure you are tired from the trip.

Curious about what the Mayo is doing?Thank you for the info.

Bob G

[Guest guest]

Hi

I have heard she is excellent

Marge

>

> Hi to all,

>

> I was diagnosed with dermatomyositis in Nov. 2001. I've been on

> prednisone eversince and on methotrexate, cyclosporine,and imuran

> at different times. I also just stayed in the hospital 3 days

getting

> intrevienous imugloblin.

>

> I really want to get off of all the bad stuff and try the antibiotic

> therapy. I've read THE ROAD BACK book and it sure sounds good.

>

> We live in south central Oklahoma and am wondering if any of you

have

> been to a Dr. that knows anything about the therapy in this area?

>

> I was thinking of going to Dr. in Willis, Tx. Has

anyone

> heard of her?

>

> I'm anxious for answers.

>

> Carolyn Ethel

[Guest guest]

Hi Carolyn,

I just wanted to say "welcome" to our group. I hope that we can

be of help to you. I have had RA for 28 years and didn't think I

would ever find any treatment that could give me my life back. I

was wrong! A little over two years ago I found this antibiotic therapy

and I am getting my life back now. It has helped me so tremendously!

I want to encourage you to go for it and get on AP. It's a little

rough at first and takes patience, but it is worth it!

Please know that we have chats going on. Our next one is tomorrow

(Thursday) night at 9:00 p.m. Eastern time, 8:00 p.m. Central Time for

you. We will post reminders of each chat the night before the chat.

This is a great place to go to talk with people directly who have been

on AP & a great place to ask questions and get answers. Also

a great way to get to know people you see posting here on this website.

I hope you find a great doctor and can get on AP soon!

Jeanette

ethelhousewife wrote:

Hi to all,

I was diagnosed with dermatomyositis in Nov. 2001. I've been

on

prednisone eversince and on methotrexate, cyclosporine,and imuran

at different times. I also just stayed in the hospital 3

days getting

intrevienous imugloblin.

I really want to get off of all the bad stuff and try the antibiotic

therapy. I've read THE ROAD BACK book and it sure sounds

good.

We live in south central Oklahoma and am wondering if any of you

have

been to a Dr. that knows anything about the therapy in this area?

I was thinking of going to Dr. in Willis, Tx. Has anyone

heard of her?

I'm anxious for answers.

Carolyn Ethel

[Guest guest]

Have heard about many people with very good results with TKR of both knees at the same time Good luck and will be prayinmg for you.

lie

New kid on the block

Hi all!My name is Tim and I'm 49 years old. I've had knee problems for as long as I can remember, had my first arthoscopic procedure in 1981.My knees have become a severe limiting factor in mobility the past few years and the doc has offered his final option, replacement.Having talked to many people over the years, I've decided to do both at the same time. Too many people seem to have one done which comes out well, then the second a year or two later which just never seems to be as good. I figure I'll go for broke and both will come out well.I've become quite good at being a couch potato but thought I would make a serious attempt to try to do a little muscle toning prior to surgery. It is currently scheduled for 20 February so, I don't get much time to prepare (I've been putting this off for two years).Any suggestions from those with prior experience of having a bilateral TKR would be much appreciated. Also from those with a single TKR would be nice too.Thanks and hope you all are having a great day today!Tim

[Guest guest]

Hi Tim....Welcome!

My Doc will be setting the date for my TKR (x2) on Feb 12th. I've

been waiting for over 10 yrs for this. They kept telling me that I

was too young. Now I can't work like I used to and have a desk

job. I'd be glad to trade places with you if you need more time to

get used to the idea of the surgery. Everything I have learned

tells me that 1. The surgery hurts. 2. It's less pain than you

have been having. 3. It will go away as you heal. 4. Do your PT

as you are told to....without fail!

I'll be praying for you and the medical staff that are fixing you on

the 20th.

P

[Guest guest]

and lie,

Thanks for the warm welcomes.

I was told in my 30's to plan on replacement but back then, they were saying

when I was 70.

In the 90's, they told me mid-50's.

So, I've put up with my share of less than pleasant days. Several 'scopes

and one time of taking a wedge out to make me knock-kneed on side. That was

really good after 6 months...but, after a year, it was back on the downhill

curve.

I'm concerned about mobility right after surgery. I'm looking at grab bars

by the toilet, picking up all the rugs, possibly a handrail on the other

side of the steps to the second floor (I went up them 10 times today trying

to build up a bit of muscle <and paying dearly for it now>)

I'm also pulling the weight bench out of the garage in an attempt to try to

build up the quads and hamstrings a bit. I hope that a bit of work now will

pay off later.

Of course, the fear factor keeps trying to get my attention....

Let's see now, where'd I put that percocet?

Tim

Re: New kid on the block

Hi Tim....Welcome!

My Doc will be setting the date for my TKR (x2) on Feb 12th. I've

been waiting for over 10 yrs for this. They kept telling me that I

was too young. Now I can't work like I used to and have a desk

job. I'd be glad to trade places with you if you need more time to

get used to the idea of the surgery. Everything I have learned

tells me that 1. The surgery hurts. 2. It's less pain than you

have been having. 3. It will go away as you heal. 4. Do your PT

as you are told to....without fail!

I'll be praying for you and the medical staff that are fixing you on

the 20th.

P

[Guest guest]

Hi Tim

Welcome to the group. I've had both my hips replaced and will need at least one need done in the future. Can certainly relate to not being able to do what you used to do. My new hips gave me my life back.....I am blessed.

Sally

[Guest guest]

Dear Harmony,

Hello. I live in California too. My doc is in San Diego though.

I see him in Long Beach.

I didn't know there were more than one site for lyme support emails.

What are the others?

I called the lyme disease association and received 3 names of doctors who

treat lyme for CA.

I too wish I had a primary doc close by who was lyme literate.

I went to a " ivy league " doctor by his own words a couple of months ago.

He said he knew all about lyme and that CA was the second highest when it

comes to infection.

But, then he looked at my Igenex lab results and said that they contradicted

themselves.

He also said that he wanted to make sure my primary doc was not having me be

on drugs too long.

I told him there seemed to be two schools of thought...docs from Yale who

seem to think 4 weeks of abx is enough.

And those docs who are actually treating lyme.

I was hoping to find a primary doc nearby to help out but I am still looking.

This doc was 2 hours away that I went to see.

I live in a small town so I need to drive just about where ever I go.

I am interested in hearing if you find someone.

I am happy with my LLMD but he wants to be a consulting doc only. I still

need a primary doc that cares after looking for the past year and a half.

Welcome to Lyme Aid.

I wish you health and hope!