New kid on the block

April 6, 2003

Welcome Harmony,

I'm sorry you need us..............but we are here. Unfortunately, I'm on

the East

Coast and can't help you with Drs..........but others in the group can.

This is a nice supportive group..........

Conniek nwnj

When our bodies & minds are out of balance...........we suffer!

April 20, 2003

HelloTim

I was just wondering how you made out with your TKR in Feb. I also am

going in for surgery on the 13th of May but am only having one knee done at

this time. I would be interested in knowing how it went having both done at the

same time. I assume you are still recuperating and still at home, or have you

returned to work.? I am a 56 yr old female,still working full time (Desk job)

and

I am concerned somewhat about the lenght of time to recuperate if I have both

knees done at the same time. Any advice you can give me would be

appreciated. Hope all went well for you.

> Have heard about many people with very good results with TKR of both

knees at the same time Good luck and will be prayinmg for you.

> lie

> New kid on the block

>

> Hi all!

>

> My name is Tim and I'm 49 years old. I've had knee problems for as

> long as I can remember, had my first arthoscopic procedure in 1981.

>

> My knees have become a severe limiting factor in mobility the past

> few years and the doc has offered his final option, replacement.

>

> Having talked to many people over the years, I've decided to do both

> at the same time. Too many people seem to have one done which comes

> out well, then the second a year or two later which just never seems

> to be as good. I figure I'll go for broke and both will come out

> well.

>

> I've become quite good at being a couch potato but thought I would

> make a serious attempt to try to do a little muscle toning prior to

> surgery. It is currently scheduled for 20 February so, I don't get

> much time to prepare (I've been putting this off for two years).

>

> Any suggestions from those with prior experience of having a

> bilateral TKR would be much appreciated. Also from those with a

> single TKR would be nice too.

>

> Thanks and hope you all are having a great day today!

>

> Tim

>

April 20, 2003

Hi!

I've been pretty much posting status messages since surgery but, I'll give it to you in a nutshell.

I spent 6 days in the hospital (my pulse wouldn't slow down)...was walking the halls by the 4th day. I used the walker on the first two excursions, then they swapped me to my crutches (much better). I then had in home therapy for 4 weeks. I'm now starting my 4th week of outpatient therapy and this should be it.

I plan on going back to work in another week, but only on a half-day basis to start...only because I am usually quite active at work. I do have things that will keep me deskbound though so I'll play it by ear. I went into this with a very positive attitude and have maintained a positive attitude since surgery. Yes, there are a lot of aches and pains that are still ongoing, probably because I push too hard during PT (I normally double up on everything) I can walk about a short half mile, I tossed the crutches about the second week of therapy and now only use a cane when I'll be doing a lot of standing, roaming...like trips to Home Depot...

I have over 120 degrees of flex in both knees, right is about -2 degrees from straight, left is still about -8 but, slowly improving. My in home therapist had me lay on bed with leg hanging over with weight....wrong move...I lost about 5 degrees and had hamstring contracture (it shortens trying to protect itself). I now get massages for that, was torture at first but, much better now. After the massage, I'm almost as straight with left leg as right.

I did not wish to take the two months plus off twice, didn't want to go through therapy twice...it takes twice as long per session...but, small price to pay. My surgeon recommended one at a time but, went with both with very little pressure from me.

The therapists say I am an exceptional case, especially for having bilateral...but, I think attitude has a lot to do with it.

Were I to do it again, I'd do both at the same time again. Hospital stay is the same either way, therapy is going to be the same number of weeks either way. If you can sit at a desk with feet propped up, I'd go for it. You do need to get up and move now and then, otherwise things tend to get stiff...but, my knees no longer give me pain. The muscles still complain...but, I know that will soon end. I just keep my fingers crossed that I don't have to do it again when I'm 70 <smile>.

Any questions, feel free to ask. Prior to surgery, I was much a couch potato...was about 30 pounds heavier than I needed to be. I lost nearly 20 pounds after surgery, gained a bit of it back...but, am still slowly losing more. Right now, I'm gaining muscle and losing fat so the weight is staying constant. However, my pants are getting looser by the week. If you can exercise your legs, strengthen your quads and hamstrings, you'll be much better ahead of the game...

Good luck!

Tim

-----Original Message-----From: vcoates03 [mailto:vcoates@...]Sent: Sunday, April 20, 2003 6:06 PMJoint Replacement Subject: Re: New kid on the blockHelloTimI was just wondering how you made out with your TKR in Feb. I also am going in for surgery on the 13th of May but am only having one knee done at this time. I would be interested in knowing how it went having both done at the same time. I assume you are still recuperating and still at home, or have you returned to work.? I am a 56 yr old female,still working full time (Desk job) and I am concerned somewhat about the lenght of time to recuperate if I have both knees done at the same time. Any advice you can give me would be appreciated. Hope all went well for you.> Have heard about many people with very good results with TKR of both knees at the same time Good luck and will be prayinmg for you.> lie> New kid on the block> > > Hi all!> > My name is Tim and I'm 49 years old. I've had knee problems for as > long as I can remember, had my first arthoscopic procedure in 1981.> > My knees have become a severe limiting factor in mobility the past > few years and the doc has offered his final option, replacement.> > Having talked to many people over the years, I've decided to do both > at the same time. Too many people seem to have one done which comes > out well, then the second a year or two later which just never seems > to be as good. I figure I'll go for broke and both will come out > well.> > I've become quite good at being a couch potato but thought I would > make a serious attempt to try to do a little muscle toning prior to > surgery. It is currently scheduled for 20 February so, I don't get > much time to prepare (I've been putting this off for two years).> > Any suggestions from those with prior experience of having a > bilateral TKR would be much appreciated. Also from those with a > single TKR would be nice too.> > Thanks and hope you all are having a great day today!> > Tim> > > > >

May 10, 2003

Hi all,

I am new here, but I have been reading all of your posts for a couple of days

now, and have found them very helpful -- and scary as well. I am pretty sick

right now with micoplasma bateria infection, Epstein Barr virus and Lyme's

Disease.

It started quite a while ago, although I did not know it at the time. I have

had Fibromyalgia for many years now, and when I started to feel more fatigue,

more pain, more weakness, dizziness, etc., I guess I just thought it was from

my Fibromyalgia.

The mycoplasma bateria infection really did a job on my head, with double

horrible ear aches, really, really bad headaches, sore throat, swollen

glands, high fever and so forth. After I was tested and my doctor found out

that this was what I had, she still had some concerns that the mycoplasma was

not the whole story, so she did a bunch of tests -- many of the tests you all

have talked about on here. Those tests were the tests that showed that I had

Epstein Barr Virus and Lyme Disease. I have been very, very sick for over

four months with all of these things now, some days not even able to get out

of bed. I am on antibiotics and pain medication and antidepressant, etc.,

and my doctor is a infectious disease specialist and is very knowledgeable

about Lyme's and so forth.

But, I am getting very scared. I have developed very bad balance due to pain

and weakness in my arms and legs (in the joints mostly). In the past three

days I have taken two very bad falls -- one time nearly falling right onto my

face (which actually might have improved my looks, but I thought that was too

painful a way to try that!!).

Also, I am in constant pain, even with the pain medication. And, I am dizzy

all the time. I feel like every time I stand up either the room is standing

still and I am spinning around, or the room is spinning around and I am

standing still. It totally disorients me. I have to hold onto my furniture

to get around much of the time.

My doctor says that the test show that I have had the Lyme Disease for at

least two to three years, with it just showing its colors to me now. She

said this is why I am much sicker than someone who gets bitten and gets

treatment right away. She has also said that my disease is now chronic.

When I asked her what that meant, she said that it means that it has had time

to do damage to other organs inside, and that also although she might treat

it and get it to go away for now, there is a very good chance of it returning

again, and then again and so forth. She also told me that the Epstein Barr

Virus is chronic as well as the mycoplasma baterial thing.

I don't know what to do with all of this knowledge and information. It is

very frightening to me. Am I going to be sick like this for the rest of my

life? And, why did I get all of these things all at the same time, or at

least why did they all deside to show themselves outwardly all at the same

time? Besides being sick, it feels to me like my brain does not work any

more. I am very forgetful now, I lose track of what

I am saying right in the middle of a sentence or a conversation... I have to

read anything I write very carefully before sending it out or doing anything

else with it, as

I have found that I have written gibberish and words that make no sense

contect wise right in the middle of whatever I am writing. And, the really

scary part is that I don't even know I am doing it at the time. A friend

pointed it out to me the first time I knew. I am having an MRI on Wednesday

of next week to see how my old brain is doing in there, but I am very much

afraid of the findings.

I feel so overwhelmed. I am so very scared. I find myself crying

constantly. Not making a big scene, but just with silent tears continually

streaming down my face.

I am seeing a psydoc also, and he is very knowledgeable about all of the

diseases that I have, but I am still very scared and depressed. How do I

keep going? Is it even worth it to try to keep going? My parents died when

I was in my late teens, and I have been on my own since then. I am now in my

50's. Can anyone give me any advice about how they managed to hang on when

things were and/or are really bad. And about how to deal with the idea that

even if I get it all taken care of in the next year or so, it could come

back, either all or in parts two weeks later. It all seems to be too much

for me to deal with right now. Yet, I read your e-mails, and some of you are

really feeling bad also. Still, you manage somehow to keep going and to keep

your hope. I can't even find my hope right now.. It seems like all my life

is now is pain and fear and sickness. Maybe I am just feeling sorry for

myself. I hope not, but at this point I just don't know.

Any thoughts, opinions, ideas, suggestions and so forth would really be

appreciated. I am definitely in a bad place right now.

Thank you to all of you, especially to those who managed to make it through

my very long post. I am really glad I found this list. I feel blessed to

even be here with all of you. You are so full of courage and hope -- just a

special group of people. I hope to get to know you, and I am also hopeful

that some of your courage and hope rubs off on me....

Wishing you peace in body, mind and spirit,

danyi

May 10, 2003

hi danyl

when i first got lyme and got on this list i was freaked out. but, it's ok!

here you have some of the best doctors and patients regarding lyme in

the world. there are many who have recovered or managed very serious lyme

cases. it sounds like you are in a crisis. this will pass!

the first question i hope our experts will deal with is:

what drugs are you doing and how much and when?

>Hi all,

>

>I am new here, but I have been reading all of your posts for a couple of days

>now, and have found them very helpful -- and scary as well. I am pretty sick

>right now with micoplasma bateria infection, Epstein Barr virus and Lyme's

>Disease.

>

>It started quite a while ago, although I did not know it at the time. I have

>had Fibromyalgia for many years now, and when I started to feel more fatigue,

>more pain, more weakness, dizziness, etc., I guess I just thought it was from

>my Fibromyalgia.

>

>The mycoplasma bateria infection really did a job on my head, with double

>horrible ear aches, really, really bad headaches, sore throat, swollen

>glands, high fever and so forth. After I was tested and my doctor found out

>that this was what I had, she still had some concerns that the mycoplasma was

>not the whole story, so she did a bunch of tests -- many of the tests you all

>have talked about on here. Those tests were the tests that showed that I had

>Epstein Barr Virus and Lyme Disease. I have been very, very sick for over

>four months with all of these things now, some days not even able to get out

>of bed. I am on antibiotics and pain medication and antidepressant, etc.,

>and my doctor is a infectious disease specialist and is very knowledgeable

>about Lyme's and so forth.

>

>But, I am getting very scared. I have developed very bad balance due to pain

>and weakness in my arms and legs (in the joints mostly). In the past three

>days I have taken two very bad falls -- one time nearly falling right onto my

>face (which actually might have improved my looks, but I thought that was too

>painful a way to try that!!).

>Also, I am in constant pain, even with the pain medication. And, I am dizzy

>all the time. I feel like every time I stand up either the room is standing

>still and I am spinning around, or the room is spinning around and I am

>standing still. It totally disorients me. I have to hold onto my furniture

>to get around much of the time.

>

>My doctor says that the test show that I have had the Lyme Disease for at

>least two to three years, with it just showing its colors to me now. She

>said this is why I am much sicker than someone who gets bitten and gets

>treatment right away. She has also said that my disease is now chronic.

>When I asked her what that meant, she said that it means that it has had time

>to do damage to other organs inside, and that also although she might treat

>it and get it to go away for now, there is a very good chance of it returning

>again, and then again and so forth. She also told me that the Epstein Barr

>Virus is chronic as well as the mycoplasma baterial thing.

>

>I don't know what to do with all of this knowledge and information. It is

>very frightening to me. Am I going to be sick like this for the rest of my

>life? And, why did I get all of these things all at the same time, or at

>least why did they all deside to show themselves outwardly all at the same

>time? Besides being sick, it feels to me like my brain does not work any

>more. I am very forgetful now, I lose track of what

>I am saying right in the middle of a sentence or a conversation... I have to

>read anything I write very carefully before sending it out or doing anything

>else with it, as

>I have found that I have written gibberish and words that make no sense

>contect wise right in the middle of whatever I am writing. And, the really

>scary part is that I don't even know I am doing it at the time. A friend

>pointed it out to me the first time I knew. I am having an MRI on Wednesday

>of next week to see how my old brain is doing in there, but I am very much

>afraid of the findings.

>

>I feel so overwhelmed. I am so very scared. I find myself crying

>constantly. Not making a big scene, but just with silent tears continually

>streaming down my face.

>I am seeing a psydoc also, and he is very knowledgeable about all of the

>diseases that I have, but I am still very scared and depressed. How do I

>keep going? Is it even worth it to try to keep going? My parents died when

>I was in my late teens, and I have been on my own since then. I am now in my

>50's. Can anyone give me any advice about how they managed to hang on when

>things were and/or are really bad. And about how to deal with the idea that

>even if I get it all taken care of in the next year or so, it could come

>back, either all or in parts two weeks later. It all seems to be too much

>for me to deal with right now. Yet, I read your e-mails, and some of you are

>really feeling bad also. Still, you manage somehow to keep going and to keep

>your hope. I can't even find my hope right now.. It seems like all my life

>is now is pain and fear and sickness. Maybe I am just feeling sorry for

>myself. I hope not, but at this point I just don't know.

>

>Any thoughts, opinions, ideas, suggestions and so forth would really be

>appreciated. I am definitely in a bad place right now.

>

>Thank you to all of you, especially to those who managed to make it through

>my very long post. I am really glad I found this list. I feel blessed to

>even be here with all of you. You are so full of courage and hope -- just a

>special group of people. I hope to get to know you, and I am also hopeful

>that some of your courage and hope rubs off on me....

>

>Wishing you peace in body, mind and spirit,

>danyi

>

May 10, 2003

Hello Danyi and welcome to the group. You will find a lot of ideas

and support here so stick around. Really, as grim as things might

look, congratulations are in order because you now know what is wrong

with you and can start treating it. Lyme disease can account for all

of the symptoms you mentioned, and I would hazard to say that it is

the root cause of your health problems. The Epstien Barr virus is

certainly an opportunistic infection. Most people carry it their

whole lives, but it reactivates in immune compromised people. Lyme

weakens your defenses and allows these things to become a problem

when they would normally be suppressed by a healthy immune system.

As you treat the lyme, they will probably go away. I'm not a doctor,

this is just what I have gathered over the years. I would hazard a

guess that mycoplasma is in the same arena- opportunistic, but it

will be treated by some of the same antibiotics that you use for

lyme, so you'll probably be nuking it too as a matter of course.

Fibromyalgia, in my view, is a symptom and not a disease. The

symptoms of fibromyalgia can be caused by lyme, and in your case

almost certainly are.

You must also be tested for two infections that are common

coinfections with lyme disease. They are carried by the same ticks,

and can complicate treatment. Babesia (Babesiosis) is related to

Malaria, and is a blood parasite. It is treated with different

medications than lyme, and seems to often be treated first before

tackling the lyme. Erlichia (erlichiosis) is treated by some of the

same medications, but should still be tested for. Bartonella, the

cause of cat scratch fever, is another common one that many LLMD's

(lyme litterate doctors) are testing for and treating. It seems that

most LLMD's use Igenex laboratories in Palo Alto California for these

tests. http://www.Igenex.com

Lyme takes a long time to treat, and the road to recovery is paved

with herxes. A herx is short for Jarisch Herxhiemer reaction and

refers to the phenomenon of the die off of the bacteria when treating

the disease making you sick. When you kill the bugs, they dump all

that dead spirochete junk and toxins into your blood stream and you

can feel absolutely wretched. You can have brief episodes or chronic

bouts of either the same old lyme symptoms, or new ones.

You might very well battle this for a long time. Some medications

probably won't work at all for you. Some might work for a while and

then stop working. You will likely have complications like yeast

infections and maybe side effects from the antibiotics. But at least

you are treating something that you know is making you sick. People

do get better, not everyone, but I think the majority at least see a

lot of improvements. I've gone from 130 pounds living mostly in my

lazy boy feeling like crap basically all of the time, bizarre

symptoms coming and going and doing very little to having many

symptoms resolve, up to 145 pounds, feeling not too bad as a norm,

occasionally feeling ACTUALLY GOOD, and expecting to be able to do

stuff during the day instead of expecting not to. It has taken over

two years to get here, and quite a few wrong turns, and a lot of

herxing!

While antibiotics are the mainstay of LLMD's, there are alternative

treatments being used and tried by many lyme patients. Treatments in

hyperbaric oxygen chambers, Rife frequency devices, various heat

treatment things (like inducing fever), and bee sting therapy are

some that come to mind.

Educate yourself about lyme, make eating well a priority, and drink

lots of water. Best of luck.

E.

>Hi all,

>

>I am new here, but I have been reading all of your posts for a couple of days

>now, and have found them very helpful -- and scary as well. I am pretty sick

>right now with micoplasma bateria infection, Epstein Barr virus and Lyme's

>Disease.

>

May 10, 2003

Hello Danyi

I thought I would just add some things to 's post.

One of the best pieces of encouragement I can give you is that

probably most of the cognitive stuff you are experiencing is very

" normal " for Lyme and will come and go and hopefully go away for good

someday. Even if something shows up on the MRI, it does not mean it

is permanent. I have been consistently amazed at how completely

unable to think we have both gotten in the past and it really does

feel like it might stay that way. But.... we have both improved a

lot, even to the point of thinking pretty straight most of the time.

When we get tired or are going through a herx it comes back to some

degree, but almost never gets as severe as at the beginning.

You are right, there are some incredibly courageous people on this

list and, strange thought it seems, having contact with people who

are as bad off (or even worse) as we are has helped give me some

perspective and deal with things a little better. I have learned a

lot from other peoples experiences and advice. Hopefully this

community can help you in a similar way.

It is very easy to get depressed and feel stuck but now that you have

some answers you can start the road to improvement. I try not to

dwell on the possibility of the lyme recurring sometime off in the

future, but instead concentrate on getting better this time.

Best wishes, Tamara

May 10, 2003

At least you can feel better (maybe) knowing that all your symptoms are common.

They can be caused by the mycoplasm and the Epstein Barr in addition to the

lyme. When you start treating the bacteria and viruses and your immune system

gets stronger many of your symptoms should go away. So hang in there.

Thanks,

Doris

----- Original Message -----

From: danyi17@...

I am new here, but I have been reading all of your posts for a couple of days

now, and have found them very helpful -- and scary as well. I am pretty sick

right now with micoplasma bateria infection, Epstein Barr virus and Lyme's

Disease.

June 12, 2003

Welcome to the group !!

I'm Missy mom to 5 kidlets

MISSY

SAHM to some special kids!!!

Excuse Me While I Go

Raise Tomorrow's Future.

( ) New Kid on the Block

Hello Everyone!

My name is and I have a 12 year old son named with Aspergers. He

was born at 1pound 6.5 ounces and has had 18 surgeries. He is a joy! He is

constant! and he is like the Energizer Bunny!

It will be nice to hear from all of you.

Take care!

June 12, 2003

Hi & welcome.My he was tiny. My grandson is 11 with Asperger/Bipolar.He

was 10 lbs 10 ozs. He lives with me & pappy. He is the love of my life. Take

care,Betty

Notis <notis@...> wrote:Hello Everyone!

My name is and I have a 12 year old son named with Aspergers. He

was born at 1pound 6.5 ounces and has had 18 surgeries. He is a joy! He is

constant! and he is like the Energizer Bunny!

It will be nice to hear from all of you.

Take care!

June 13, 2003

HI, Melisa!

I don't what to " wow " from first: his birth weight or the number of surgeries !

welcome to our group!

Fania

Re: ( ) New Kid on the Block

Hi & welcome.My he was tiny. My grandson is 11 with

Asperger/Bipolar.He was 10 lbs 10 ozs. He lives with me & pappy. He is the love

of my life. Take care,Betty

Notis <notis@...> wrote:Hello Everyone!

My name is and I have a 12 year old son named with Aspergers. He

was born at 1pound 6.5 ounces and has had 18 surgeries. He is a joy! He is

constant! and he is like the Energizer Bunny!

It will be nice to hear from all of you.

Take care!

June 14, 2003

In a message dated 6/12/2003 4:16:03 PM Pacific Daylight Time,

notis@... writes:

> Hello Everyone!

>

> My name is and I have a 12 year old son named with Aspergers.

> He was born at 1pound 6.5 ounces and has had 18 surgeries. He is a joy! He

> is constant! and he is like the Energizer Bunny!

>

> It will be nice to hear from all of you.

>

> Take care

Hi ,

I have a 4.5 yr old son with 3 dx in the last 6 months so its a mystery but

we definitely feel on the spectrum. Its amazing that a child can survive birth

at 1 lb. 6.5 oz ....what a blessing! However, I know you must have gone

through a lot during these last 12 years. Please feel free to share any

questions

or just to imput!

Johanna

Mom to Ariana 17, ph 4.5 AS or PDD or Exp Recp LD, Sam 2.5

Wife to M self dx Aspie

June 15, 2003

,

> Hello Everyone!

>

> My name is and I have a 12 year old son named with Aspergers.

> He was born at 1pound 6.5 ounces and has had 18 surgeries. He is a joy! He

> is constant! and he is like the Energizer Bunny!

>

> It will be nice to hear from all of you.

> Take care

Hi

I am Dawn

Mother of Bradley - 6 - AS-OCD-ADHD and Ally - 5 - NT (asperger's by proxy)

I also think my dh ( and at the moment I use the term loosely) has AS too.

Welcome, I had to write because of your Energizer Bunny comment.

I told my doctor that my son sometimes acts like the Energizer Bunny on

crack.

He laughed so hard he had tears coming down his face.

I know how you feel - welcome - welcome - welcome.

Dawn

June 20, 2003

Hi I am Sue also just joined the group, I had to giggle at eh 'Energizer

Bunny' comparison my daughter who has AS heard me and I explained how it had

reminded me of her when she was younger. She says to tell you she is calmer

these days. She is a darling (most of the time).

I look forward getting to know you better.

Sue

( ) New Kid on the Block

> Hello Everyone!

>

> My name is and I have a 12 year old son named with Aspergers.

He was born at 1pound 6.5 ounces and has had 18 surgeries. He is a joy! He

is constant! and he is like the Energizer Bunny!

>

> It will be nice to hear from all of you.

>

> Take care!

>

June 20, 2003

> Hi I am Sue also just joined the group, I had to giggle at

eh 'Energizer

> Bunny' comparison my daughter who has AS heard me and I explained

how it had

> reminded me of her when she was younger. She says to tell you she

is calmer

> these days. She is a darling (most of the time).

> I look forward getting to know you better.

> Sue

Hi Sue. Welcome to the list.

Kathy

September 4, 2003

Welcome Rita,

Im in Florida. In Feb 2003 I was diagnosed with a bulging disc,spinal

stenosis,pinched nerve between L2-3,and degenerative wear from L4 down to

S1.Have numbness and pain in the front of my right thigh 24/7. I also went thru

the series of epidurals and they didn't help me at all. I don't recall having

any discomfort after any of my injections as at the time I was on Vicodin

7.5mg(1 every 3 hrs),Soma 4x daily and valium....All I know is that the

epidurals DID NOT WORK FOR ME! Are you seeing a Neurosurgeon or Orthopedic

Surgeon?

I just saw my Neuro today and possibly thus far will have a microdiscectomy,but

waiting for radiologists to make a 2nd review of all my tests.

Anyhow Rita, I hope the Epirdural Injections do work for ya.....and there is

alot of great people here with an unbelievable amount of knowledge to help

you...

New kid on the block

Hello all. I was dianosed with cervial stenois with bone spurs on

several disc in July this year. I just underwent my second eppidural

steriod injection due to the first one not helping. On the next day

after this and the last procedure, the next day has been the worse. He

has me on Norco 7.5mgs.x4 a day, soma, one time a day and valum. Has

anyone experienced this post op procedure pain and what did u do? I

really hope this second injection helps. I am glad I found this list

to know I am not the only one in this boat. Thanks you so much for any

advice that u can give me. Bluelady (Rita)

July 16, 2006

Candace wrote:

Hi Candida. Welcome to our group!

> Well, I am learning that this candida issue is going to be a life

> long battle. I was diagnosed with candida and hypothyroid this

past April. I went on a major diet change, lost 28 pounds in 2 mos.,

> began armour natural thyroid, etc. It has been a rollercoaster,

> however, I am very positive because at least I now have a

> diagnosis! I think I've been hypo for nine years. (since the

birth of my second child)

==>I lost my thryoid due to too much tampering with it while I was

curing my candida in the mid 1980s. Candida causes thryoid problems,

as well as malfunctioning of many other organs in the body, because

it causes all cells in the body to go rigid, therefore hormones,

nutrients, etc. cannot get into them where they are needed to do

their job, and also rigid thyroid cells interfere with it's

functioning. I would caution you to be alert to over-active thyroid

symptoms so you can cut down on your meds at the right time. The

thyroid tends to go irratic when treated directly with meds so it can

be low and then go very high.

>

> Anyway, I've been on Nystatin and a no-sugar (no carb) diet since

> April.

==>Sugar is not the only carb; all foods that are not classed as

protein and fats are carbs, i.e. veggies, grains, nut, seeds,

legumes, fruits, etc. It isn't enough to just cut out sugars - see

my article for other foods that must be eliminated in order to cure

candida, including soy, all grains, nuts, seeds, legumes and high

carb veggies, along with all fruits except lemons and limes.

> I ran out of nystatin 3 days ago and I was lazy and way too

> casual about refilling. (don't ask me why, I've been having a very

> rough couple of weeks with my hypo and extremely high bp and the

> nystatin took a backseat to these other things) Anyway, I am

> suffering!! My tongue is white and I have a metallic sort of taste

> in my dry mouth! I feel like maybe I am coming down w/the flu, I

> have a slight fever, am dizzy and have a horrible headache. (to

go along w/my high bp)

==>A white tongue is thrush (candida overgrowth) and the flu is a way

for the body to detoxify, to get rid of toxins, especially candida

toxins, which are mainly alcohol.

>

> So, now I am a believer. I see that I need to take this candida

> seriously and have joined here to hopefully find others on the path

> to good health. I am going to read everything that I can find

about this and hopefully I can add something positive to this group.

==>That's great you are a believer! We're happy you joined us.

>

> Currently I am taking:

> 4 grains armour thyroid

> 1 whole food vitamin (this may need to stop, I don't know)

==>Multi vitamins are a waste of money; per my article buy the

individual ones.

> 4 nystatin day (picking up this evening)

> 16 mg. Atacand for high bp

==>You should be able to get off high bp meds as you continue to

progress on the diet, which helps stabilize blood pressure, esp. the

good fats recommended, ie coconut oil, butter, lard, etc., etc., and

also omega 3 from fish oil or cod liver oil (see my article).

> 1/4 tsp sea salt x 2 day ( I just read that this may need to

> increase)

==>Yes, it's a good ideas to increase it; get the right ocean sea

salt which also stabilizes blood pressure.

>

> I am planning on adding Vit. C and not sure what else.

==>See my article and also the Candida Supplements Folder for a handy

list.

>

> I am so sick of eating boiled eggs and canned tuna on lettuce!! I

> have got to find some better food options. I'd rather not eat than

> eat an egg, right now. yuck!

==>I hear you my friend! Try Bee's Raw Egg Drink which is easy to

make, tasty and very nutritious. Also see our Recipes Folder for

many great ideas.

>

> Ok, now you know my story.

==>Thanks for sharing it Candace.

The best in health,

Bee

August 15, 2006

Hi

I am new here too. RA and Lupus is my diagnosis, I have kidney and

liver involvement.The pain is incredible. Perhaps we can help each

other. Please respond to my email addy as I do not get to read all the

postshere.Kitt

August 15, 2006

>

Welcome to the group, My name is Janet and I too have oa,ra and

fribo, along with the other thing that sometimes go along with RA, I

had to leave my job too because of the pain, and it took me about

2yrs to my disabily aproved, it sure does help when you start getting

your money every month and I know for me that took alot off my mind,

and when you don't worry so much about everything that help's with the

fribo, again I want to welcome you to the group you will find

alot of info here and everyone is just great, good luck to you with

getting your disabily,

Janet in il

> Hi everyone!

>

> Just found out about this groups a few days ago and wanted to say hi

> to everyone. Until the end of February I was working full-time as

an > I'm looking forward to getting to know everyone. Postings may

be

> shorter in the future as my hands hurt a lot when I type.

>

> Hugs,

>

August 16, 2006

Hi Kitt,

Sorry to hear that you, too, have pain problems. However, I like the

idea of us helping one another. It's always easier when you have

someone who really understands what you are going through. I checked

out some books from the library on chronic pain, but am still sifting

through the information. Seems they all have a similiar message that

exercise can really help. Once I can get my energy levels up and

my " to do list " smaller maybe I can try them as they seem very easy

in the beginning.

I, too, don't read all the posts nor do I have time to respond to all

of them, but hope we can be a source of comfort and help to one

another.

---

>

August 16, 2006

Hi Janet,

Thanks for the kind welcoming greeting. I can see that this site has

lots of postings and information so look forward to exploring as well

as getting to know individuals. Maybe somewhere along the way I can

even hook-up with someone who lives in the Houston area.

Have a great day!

August 18, 2006

:

Hard to keep up with all the names and places, so if I've already responded to

you before, forgive my fibro foggy, sleep-deprivated memory. I'm in Alvin just

south of Houston.

Jennnifer

foxzzz1 <foxzzzzzzz@...> wrote:

Hi Janet,

Thanks for the kind welcoming greeting. I can see that this site has

lots of postings and information so look forward to exploring as well

as getting to know individuals. Maybe somewhere along the way I can

even hook-up with someone who lives in the Houston area.

Have a great day!

April 30, 2007

Hi Haley,

I'm new on the block. I was exposed to bad mold 2 months ago. Any suggestions

other than allergie medicine?

a

Haley <myhaze@...> wrote:

It was just announced in the last week or so...I am under the

impression that the Wild Oats stores will turn into Whole Foods at some point.

~Haley

ssr3351@... wrote:

Thanks, Barb for the excellent information. I know I don't have a Wild Oats

in my area. I think the closest one to land is in NJ which is a shame. I

looked at the website and the store looks wonderful.

I see more and more otc products coming out for anxiety. I go to Wild

Oat grocery store that has alot of health products but any health food

or vitamin store. Whole foods if you have one too. There are tons of

them. You have to experiment around and try them. Right now I like

the Schiff's Knock-Out which has It has vit B6 which in combination

with magnesium has had good effect for me before (Solgar makes a good

magnesium product with vit B6 which is one of few magesium supplements

which had good effect without giving me 'the runs'-magnesium is active

ingredient in Milk of Magnesium and can give you diahrea is you aren't

careful with dose. Knock-Out also has Calcium, magnesium, Melatonin

(3 mg), L-Theanine, Valerian (root I'm assuming) extract, GABA

(gamma=aminobutyric acid. It helps me and I'm hard one to relax. To

be fully honest, I take a benzo though at night!!! ...so telling you

to do something I'm not but I frequently fall asleep before taking

it. I have to slowly taper off of it. NOT because I get withdrawal

************************************** See what's free at http://www.aol.com.

April 30, 2007

Hi a-

Sorry to hear about it... I'm no expert, but many of us here have learned a lot

from Dr. Shoemaker's book, MoldWarriors which can be found at moldwarriors.com

Fascinating reading.

Best,

~Haley

a Townsend <kmtown2003@...> wrote:

Hi Haley,

I'm new on the block. I was exposed to bad mold 2 months ago. Any

suggestions other than allergie medicine?