Re: Hello, I have been a member for a bit but have not posted yet:(/Jessie

[Guest guest]

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Hi Jessie,

Welcome to Hugs! You will find the people here to be warm and kind.

I'm sorry about all your dx's. you are really young to be in such

pain. My sympathies from the loss of your father. I lost my mother

this summer who was my best friend so I know how you feel. I'm also

so sorry you are getting bad vibes from your future inlaws, I have

not told my father about my meds I take. I have osteo arthritis from

6 surgeries on my right knee, and I am bipolar-so I take about 7 or 8

different meds. I dont think my father would understand. He is a

pharmacist from waaay back and is still of the thinking that we

should just suck it up! Besides that he's the nicest guy!

I know how you feel about not being able to have children. I just had

a complete hysterectomy in October of last year and we cant afford to

adopt. So I am without children. That plus I'm 47 so thats getting

too old to have them anyway. The only other option is to be a foster

parent and I dont know if I could do that.

My knees are hurting now, which means we will be having bad weather

soon! It's supposed to snow on Monday. I love the snow but not what

it does to my body. I wish I had a hot tub but would have a hard time

going in because I wear a hormone patch and it might fall off! Now

that would'nt be good.LOL.

If you ever need to talk, feel free to reach out to anyone of us!

HUGS

keliz

In Hugs-N-Pain , " jessi_febee "

wrote:

>

> Hello,

>

> My name is . I have been a member for a bit but have yet to

post:( However I do

> read all of your messages/postings daily and I truly feel like I

know some of you even

> though you have no idea who I am. All of your stories touch me and

I look forward to

> getting to know each of you and interacting often.

>

> Let me tell you all a little about myself. I apologize right now

because my story is not very uplifting:( As I said my name is

, I am 25 and in a couple days (on the 12th to be

> exact) will be 26. I have multiple health problems including:

Ankylosing Spondyolitis (AS)

> (I am not sure if I spelled that right), Degenerative Joint Disease

(DJD), Osteoarthritis (OA), Scoliosis, a long history of

gastric/peptic ulcers, Gastro Esophageal Reflux Disease

> (GERD), Infertility problems, long history of ovarian cysts

including cysts in my fallopian

> tubes, and finally anxiety and depression. Recently in a overnight

stay at the hospital it

> looks like I have sleep apnea, due to multiple and prolonged pauses

in my breathing at

> night. I have cancelled the test now 3 times to have a sleep study

because I cannot deal

> with another thing wrong with me right now. I know this is

serious, but right now I cannot mentally handle this.

>

> I have had 4 surgeries on my jaw due to very aggressive DJD. My

doctors are recommending a complete bilateral joint replacement of my

jaw, because I have bone on

> bone articulation with absolutely no cartilage left in my jaw. Of

course I am having

> problems with my health insurance wanting to cover the procedure so

mean while their

> deciding if they want to help me (basically knit picking over the

name and coverage of the

> procedure) all while I am in unbearable amounts of pain. I have

become severely limited

> in what I cam eat, my jaw constantly aches, there is not a day that

goes by without

> unrelenting pain. My whole life has changed due to this problem, I

have become very

> limited in what I can do any more due to the pain becoming so

crippling. My AS is pretty

> bad in my hips, knees, lower back and neck and it it is becoming a

daily struggle to get

> around. My Rheumatologist has switched me to Humara and oh gosh

something to the equivalency of Celebrex, I can't think of the name

right of the top of my head. However I

> have been getting minimal relief with these drugs. My doctor also

has me on pain pills

> trying to help me so that the pain isn't as bad. However where I

live in Northern Utah the

> weather has become so bitter cold and has caused some bad flare ups

for me more so

> than usual.

>

> As far as my stomach problems go what do I say all these

medications have created havoc

> on my stomach and they have me on medication to counter balance it,

and luckily I have

> been getting some relief with the medication.

>

> I have infertility issues that cause me several physical and

emotional problems. I have had

> about 5 surgeries to remove ovarian/fallopian tube cysts. The

thought that I will probably

> never have children absolutely crushes my heart. This is something

very difficult for me

> to talk about.

>

> My anxiety and depression stems from a couple of issues, however

one of the biggest

> issues is I last my dear father who was my best friend over 2 years

ago from complications

> from his Rheumatoid Arthritis (RA). I have been surprised how

little people know about

> RA and that not only does RA attack your joints but also your

internal organs.

>

> Aside from all that sad news I like to garden when I can, knit,

read, cook and I rescue

> animals.

>

> I am wanting to be part of this group because I get little support

from my fiance. Is all he

> tells me is he doesn't understand how someone so young can be so

sick and he basically

> leaves it at that. His mom has at times told me to basically suck

it up and its all in my

> head. I have told her many times to come with me to the doctor and

look at my blood

> work and let the doctor explain this to them. My CRP levels which

is an indicator of

> chronic inflammation is through the roof, my hormone levels due to

my infertily issues are

> abnormal, I am having acute liver problems, I have tested for the

gene that shows I have

> AS, all my CT scans show severe joint deteriation, but yet i am

treated by her and some of

> that side of the family like I am a hypochondriac. Dave (fiance)

and I have been together

> for almost 4 years and he has two chldren that live with us that I

adore. I know Dave loves

> me he just doesn't understand. My life at times can be very lonley

because I feel so

> misunderstood. I also go to college and at times I just can't

physically walk due to such

> bad flare ups, so I have to miss class. I get doctors

documentation explaing this but my

> professors just dont seem to care and they just want me there no

matter what.

>

> Well I apoligize for the rambling, I just really need some support

and some friends.

> Basically all but one of my friends have left me. I am not the fun

Jessie that can go out

> and do whatever anymore. I feel embarssed and ashamed that I am so

sick for my age. I

> feel like I will always be misunderstood. I feel as if I want to

get anywhere in this world I

> have to fake who I am by never discussing my limitations which in

the end causes a lot of

> harm because I always end up over doing it. Anyways I hope to get

to know you all and

> here your stories. Thanks again for letting me share my story and

I apoligize for the lengthiness of it. Big hugs.

>

> Sincerely,

>

> Jessie

>