Re: I just have to say, has anyone noticed.....

[Guest guest]

Let me find it first ....

Sissi

Mom to:

Amber 17 Dillon 10 Boone 4

Scoliosis HSP Autistic

http://home.isoa.net/~nitetrax/dillon.htm

" If it doesn't spin, it's obviously broken. "

Boone (translated)

Re: I just have to say, has anyone noticed.....

>

> Somebody better reply to my reply to this thread, or I am going to feel

very very stupid and sorry for myself!

>

>

>

>

[Guest guest]

Well, I hate to say it .... BUT I TOLD YOU SO!

Even before you posted this. And yes I still love you.

Sissi who must be back

Mom to:

Amber 17 Dillon 10 Boone 4

Scoliosis HSP Autistic

http://home.isoa.net/~nitetrax/dillon.htm

" If it doesn't spin, it's obviously broken. "

Boone (translated)

Re: I just have to say, has anyone

noticed.....

>

>

> >

> > Just picking up my messages before dropping off videos, waiting for

to put his socks on, and these messages were here...

> >

> > And now, even though my son is downstairs screaming, " I'M

REEEEEAAAAAADDDDDDYYYYYYY! " I must reply.

> >

> > I have this neat feeling in the pit of my stomach. Kind of queasy, but

in a GOOD way. You know the one? The feeling when you give your first

boyfriend or girlfriend a gift and they really like it?

> >

> > Again, I have to tell the story of the list's beginning. Two months

after diagnosis, and I belonged to several autism lists, one being the SJU

list which has definitely proven itself recently to be exactly what I felt

it was. I kept looking and looking for support, but could only find

information, research, studies on things I'd never even heard of, and

stories of SuperParents which made me feel so completely isolated...

> >

> > I had just moved to this tiny village, and was living in my IL's

basement. They were not accepting of the diagnosis; they were still in the,

" Oh, he'll grow out of it " stage. I had no one to talk to, since the only

moms I met were the moms of NTs at all the playgroups I tried to join, and

dh was still totally in denial.

> >

> > So I figured, " If I feel this way, then there HAS TO BE someone else out

there who needs support too. If I can find just one other person to whom I

can say, " I hate this and I feel lost, " and who will understand, then I need

to find that person. "

> >

> > And the group was born.

> >

> > Every day, I feel thankful that the members of this amazing list found

their way here. Found me, and found each other, and maybe in the process

found a little more of themselves as well.

> >

> > My view is not popular out there in the net at large, the view that you

need to be yourself FIRST, a mom SECOND, and a mom (or dad) of an *autistic*

child, an advocate, THIRD.

> >

> > To have found such people, who also feel this way and are committed to

helping others live this way, is so gratifying I cannot tell you.

> >

> > Every once in a while, someone will write a post like Penny's, saying

what a blessing the list is and thanking me. But I feel that I hardly thank

all of you enough. This list has given me so much: the knowledge that

negative feelings do not a bad parent make; the courage to voice my

innermost fears without feeling vulnerable or stupid; a warm place to share

successes, regardless of how small, and be reminded how much I have to feel

thankful for; an extended family. Being the moderator has given me many

gifts as well - the pride of seeing something I've created flourish; knowing

that what started as a desperate idea has become a way for me to help

others, if only by providing a safe place for them to be themselves, and the

constant reassurance that I have DONE SOMETHING with my life apart from

autism and anything else -- I have been a success.

> >

> > This SJU idiots vs Thea debacle has made me see that I have been true to

my mandate. Everyone is safe here, and treated with respect. It's been

that way for two years, and will continue that way as long as I can type.

> >

> > Thank you all, my list members, for being here. For joining, for

staying, for opening your hearts to each other and to yourselves.

> >

> > Without you, this list would be, most literally, nothing.

> >

> > Thank you for helping me make my life, and each other's, a much better

place to be.

> >

> > Jacquie

> > mom to , 5

> > Parenting Autism moderator

> > " Not everything that is faced can be changed, but nothing can be changed

until it is faced. "

> > -- Baldwin

> >

> >

> >

> >

> >

[Guest guest]

But you did it so well.

BTW Ron, that was very cool what you did on the sju list!

Sissi

Mom to:

Amber 17 Dillon 10 Boone 4

Scoliosis HSP Autistic

http://home.isoa.net/~nitetrax/dillon.htm

" If it doesn't spin, it's obviously broken. "

Boone (translated)

Re: I just have to say, has anyone noticed.....

> What's one to say after such a heart wrenching post....

> To try and comment after that would be like trying to follow up to the

> Kennedy inaugeration speech....

>

> nuff said...

>

> P.S. That WAS sucking up

>

> Ron

>

>

>

[Guest guest]

>

>Here it is again, you ingrates!!!!

I'm glad you sent it again, because I didn't see it the first time.

Beautifully put Jacquie, as always. I really don't think that we thank YOU

enough, but I'm glad you know that we are very thankful.

I don't know what I would do without this list. It is the only one that

helps me on a day-to-day basis. I can't say more because I'm not sure how

to say it and be understood. Just know that, in the hardest of times, you

guys have made my life livable.

Amy

_________________________________________________________________

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[Guest guest]

> >

> > But you did it so well.

> > BTW Ron, that was very cool what you did on the sju list!

> >

> >

>

> Well, they messed with one of us right? My first and last post there, all

in

> one shot.

> It's my mindset, that in everyone's life there are times you just have to

say

> f & ^k em'

>

> Good to see ya back Sissi

I WANT TO SEE THIS POST.

PLEASE, PLEASE, RON????

Salli

[Guest guest]

No thanks needed, this list is the most fun I have had in years.

Okay, so it hasn't been much of a life recently, but STILL!

Salli

[Guest guest]

In a message dated 11/12/2001 1:36:12 PM Eastern Standard Time,

bunnytiner@... writes:

> I WANT TO SEE THIS POST.

>

> PLEASE, PLEASE, RON????

>

> Salli

>

>

>

Ahhhhh....maybe Sissi has it...or Thea...I'm not so sure I know how to do

it...I'll mail it off list if I can figure it out...don't know if FL would

approve....don't want to piss the boss off..

Ron

[Guest guest]

In a message dated 11/12/2001 1:36:12 PM Eastern Standard Time,

bunnytiner@... writes:

>

> I WANT TO SEE THIS POST.

>

> PLEASE, PLEASE, RON????

>

> Salli

>

>

>

Okay Salli...let me know if you got it....

Ron

[Guest guest]

What'd he do???

Kerri

Re: I just have to say, has anyone noticed.....

In a message dated 11/11/2001 9:38:32 PM Eastern Standard Time,

nitetrax@... writes:

>

> But you did it so well.

> BTW Ron, that was very cool what you did on the sju list!

>

>

Well, they messed with one of us right? My first and last post there, all in

one shot.

It's my mindset, that in everyone's life there are times you just have to say

f & ^k em'

Good to see ya back Sissi

Ron

[Guest guest]

> What'd he do???

Let me repeat. I REALLY want to see what Ron said. That first and last SJU

post.

PLEASE! Now Kerri wants to see it too. You wouldn't want to disappoint

Kerri, would you?

Salli

[Guest guest]

When I got the autism DX this was the first list I subbed to, I subbed to a ton

of others too. This is the only one I have left. It's been over a year, I never

felt comfortable on another list.

Kerri

-----

[Guest guest]

>

> Ahhhhh....maybe Sissi has it...or Thea...I'm not so sure I know how to do

> it...I'll mail it off list if I can figure it out...don't know if FL would

> approve....don't want to piss the boss off..

>

Ron:

That bad, huh?

You know, now EVERYONE wants to see it. Can you mail it off-list to all

180+ menbers? Check with Jacquie.

Salli

[Guest guest]

No way, Ron. You got to post it to the list. I want to see it also.

Janae

, 9, ADD

Jake, 6, autism

Ahhhhh....maybe Sissi has it...or Thea...I'm not so sure I know how to do

it...I'll mail it off list if I can figure it out...don't know if FL would

approve....don't want to piss the boss off..

[Guest guest]

Re: I just have to say, has anyone noticed.....

> In a message dated 11/12/2001 1:36:12 PM Eastern Standard Time,

> bunnytiner@... writes:

>

>

> > I WANT TO SEE THIS POST.

> >

> > PLEASE, PLEASE, RON????

> >

> > Salli

> >

> >

> >

>

> Ahhhhh....maybe Sissi has it...or Thea...I'm not so sure I know how to do

> it...I'll mail it off list if I can figure it out...don't know if FL would

> approve....don't want to piss the boss off..

>

> Ron

The sju archives are public. You can read the whole thing.

Here's the url:

http://hunter.apana.org.au/~cas/autismlist/data/msg00484.html

Sissi

[Guest guest]

Well, I just read through all of that , I Love this list even more!!

Those people are crazy. I feel sorry for their kids.

Kerri

Re: I just have to say, has anyone noticed.....

> In a message dated 11/12/2001 1:36:12 PM Eastern Standard Time,

> bunnytiner@... writes:

>

>

> > I WANT TO SEE THIS POST.

> >

> > PLEASE, PLEASE, RON????

> >

> > Salli

> >

> >

> >

>

> Ahhhhh....maybe Sissi has it...or Thea...I'm not so sure I know how to do

> it...I'll mail it off list if I can figure it out...don't know if FL would

> approve....don't want to piss the boss off..

>

> Ron

The sju archives are public. You can read the whole thing.

Here's the url:

http://hunter.apana.org.au/~cas/autismlist/data/msg00484.html

Sissi

[Guest guest]

> I was at a hockey practice a year or so ago where one guy yelled to

> his 6-7 year old son, " Hey, are you gonna get me another beer, or am I

> gonna have to kick your worthless ass? "

Last week, as I was walking up the hallway to look out my front door, I heard

voices coming through my connecting wall from my Martha neighbor's

house, the one with the GORGEOUS and clean interior that intimidated the hell

out of me and the son who roams the neighborhood all by himself at 6 years

old...

She was calling him stupid, and then she yelled, " Just get out of here! " When I

reached the door, he was on the front lawn, (he WAS wearing outdoor clothes, at

least) and the door slammed. Then it slammed open again, and his stepfather

yelled, " Should I come out and smack you now, or you want it when you come

home? "

I wanted to go over there and slap their stupid faces.

Jacquie

[Guest guest]

Raena, you made tears well up in my eyes. Thank you for that.

<sniff>

Jacquie

[Guest guest]

>From: rgr4us@...

>I belong to several " technical " lists, attend professional

>conferences when I can, and am a good enough internet sleuth to be

>able to find just about everything about autism out there...what I

>could never find until now was a place to say what I feel. A place

>where I don't have to try to be a supermom or the world's greatest

>living expert on this mess. Yes, I still work hard to understand my

>son's problems, and that won't stop. But how wonderful it is to be

>able to just say, " Parts of this really stink! "

Raena,

Beautifully said and I especially agree with this last part. I love that I

can get on here and express myself, and you all completely understand!

Amy

_________________________________________________________________

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[Guest guest]

In a message dated 11/12/2001 7:10:52 PM Central Standard Time,

klwally@... writes:

> When I got the autism DX this was the first list I subbed to, I subbed to a

> ton of others too. This is the only one I have left. It's been over a

> year, I never felt comfortable on another list

I agree! I subbed to a bunch of others also. I wasn't quite sure what I was

looking for back then. But I must have found it because this is the only 1 of

2 lists I still belong to (and the other is just my home state autism list,

for informational purposes only). So Thank You Jacquie!!!!!!! You have a

great List. With alot of really good people.

Tracey

mom to

4

Brynn 7mos