Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 I now have Barretts esophogus Janet ************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 I'm glad you read that Live, I meant to point it out to you, I remembered you saying you had gerd. I have terrible influx? lack of acid in my stomach(what ever) and I cant burp and it hurts, it may not be in the diet plan but I dont care, I do what works to get by. I cant drink soft drinks with corn products in them but can drink diet pepsi and it helps me burp and keeps this condiction from makeing me tottally miserable. yes, I know, save the lectures, please. > > Thanks to following a link Jeanine posted a few days ago, I think that > THANKS TO HER POINTING IT OUT I've found a host of new research on the > web that IMO establishes the link between aspergillus in the air in a > sick building and esophagitis / reflux disease in a major, unassilable > way. > > Its apparently one of a family of " Eosinophilic " conditions that > appear to be not mycosis but they ARE immunological reactions to > aspergillus, etc. and possibly other aeroallergens and they can be > severe.. > > There is a condition called Eosinophilic Esophagitis that has been > known for some time. Its NOT GERD, but to a odctor it looks just like > GERD. > > But its not. Its caused by toxic mold making the immune system react > very strongly. > Can you blame it? NO. Its a natural reaction. > > High levels of aspergillus CREATED THIS CONDITION IN MICE in experiments. > > They did NOT have it before. > > There are lots of other eosonophilic conditions that are probably > caused by mold. > They seem to spread... > > > See: > > An etiological role for aeroallergens and eosinophils in experimental > esophagitis > > Anil Mishra, Simon P. Hogan, B. Brandt, and Marc E. Rothenberg > http://www.pubmedcentral.nih.gov/articlerender.fcgi? artid=198543 & tools=bot > > > and also > > An Etiological Role for Aeroallergens and Eosinophils in Experimental > Esophagitis > M. , MD > > http://pediatrics.aappublications.org/cgi/content/full/110/2/S1/436 > > and probably more... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 THANK U SO MUCH for posting this I am only 24 and supposively GERD is so bad that I havent been able to really swallow with out choking in 6 months. We had so many types of mold growing through our olf house it was like a rainbow. I started getting terrible hives headaches confussion wierd lumps, hysterical and terrible problems swallowing stomach always upset. My fiance thought I had lost my mind. But we moved a month ago and I am a little better no more hives but still having problems swallowing and really strange sinus problems. Hope It will completely go away soon. Anyways, Thanks mia LiveSimply <quackadillian@...> wrote: Thanks to following a link Jeanine posted a few days ago, I think that THANKS TO HER POINTING IT OUT I've found a host of new research on the web that IMO establishes the link between aspergillus in the air in a sick building and esophagitis / reflux disease in a major, unassilable way. Its apparently one of a family of " Eosinophilic " conditions that appear to be not mycosis but they ARE immunological reactions to aspergillus, etc. and possibly other aeroallergens and they can be severe.. There is a condition called Eosinophilic Esophagitis that has been known for some time. Its NOT GERD, but to a odctor it looks just like GERD. But its not. Its caused by toxic mold making the immune system react very strongly. Can you blame it? NO. Its a natural reaction. High levels of aspergillus CREATED THIS CONDITION IN MICE in experiments. They did NOT have it before. There are lots of other eosonophilic conditions that are probably caused by mold. They seem to spread... See: An etiological role for aeroallergens and eosinophils in experimental esophagitis Anil Mishra, Simon P. Hogan, B. Brandt, and Marc E. Rothenberg http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=198543 & tools=bot and also An Etiological Role for Aeroallergens and Eosinophils in Experimental Esophagitis M. , MD http://pediatrics.aappublications.org/cgi/content/full/110/2/S1/436 and probably more... MIA KNIPPEL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 I have acid reflux. I was prescribed Nexxium but now my insurance does not cover it so I use an over the counter medication. I remember someone on here once said Nexxium had an antifungal drug in it. I did not have reflux until I had my illness with mold. It seems to be worse when I am having an asthma attack. Often a doctor will try to say it is reflux causing the coughing and such but I know these are 2 seperate conditions going on. I can get rid of the coughing many times by doing a nebulizer treatment but I have to treat the reflux seperately. --- In , LiveSimply <quackadillian@...> wrote: > > Thanks to following a link Jeanine posted a few days ago, I think that > THANKS TO HER POINTING IT OUT I've found a host of new research on the > web that IMO establishes the link between aspergillus in the air in a > sick building and esophagitis / reflux disease in a major, unassilable > way. > > Its apparently one of a family of " Eosinophilic " conditions that > appear to be not mycosis but they ARE immunological reactions to > aspergillus, etc. and possibly other aeroallergens and they can be > severe.. > > There is a condition called Eosinophilic Esophagitis that has been > known for some time. Its NOT GERD, but to a odctor it looks just like > GERD. > > But its not. Its caused by toxic mold making the immune system react > very strongly. > Can you blame it? NO. Its a natural reaction. > > High levels of aspergillus CREATED THIS CONDITION IN MICE in experiments. > > They did NOT have it before. > > There are lots of other eosonophilic conditions that are probably > caused by mold. > They seem to spread... > > > See: > > An etiological role for aeroallergens and eosinophils in experimental > esophagitis > > Anil Mishra, Simon P. Hogan, B. Brandt, and Marc E. Rothenberg > http://www.pubmedcentral.nih.gov/articlerender.fcgi? artid=198543 & tools=bot > > > and also > > An Etiological Role for Aeroallergens and Eosinophils in Experimental > Esophagitis > M. , MD > > http://pediatrics.aappublications.org/cgi/content/full/110/2/S1/436 > > and probably more... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 Jeanine, Have you ever heard of carnosine? Carnosine (and mold avoidance) seems to be helping heal mine a lot. But the thought of it coming back terrifies me. It sounds like you are taking a high dose of a proton pump inhibitor.. like prilosec or prevacid. Have you ever tried taking digestive enzymes like those chewable papaya pills.. bromelain, etc? Or even the non-chewable ones with betaine HCL are good.. and cheaper.. ** On 2/27/07, who <jeaninem660@...> wrote: > > I'm glad you read that Live, I meant to point it out to you, I > remembered you saying you had gerd. I have terrible influx? lack of > acid in my stomach(what ever) and I cant burp and it hurts, it may > not be in the diet plan but I dont care, I do what works to get by. I > cant drink soft drinks with corn products in them but can drink diet > pepsi and it helps me burp and keeps this condiction from makeing me > tottally miserable. yes, I know, save the lectures, please.--- In > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 All of you people who have this need to see doctors.. and you really need to see gastroenterologists.. Please don't just limp through life.. You (we!) need to get this treated. Prilosec will only help so much.. If it ever gets really bad you'll never be the same again.. You start inhaling stomach acid and your throat swells up and you can't drink or breathe. When that happened to me it was absolute hell. I couldn't work for almost a year. I couldn't sleep. A lot like Jeanine. Its absolutely terrifying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 Live, I'm not takeing anything,no inhibitors, no nothing. but I will check out Carnosine.thanks > > > > I'm glad you read that Live, I meant to point it out to you, I > > remembered you saying you had gerd. I have terrible influx? lack of > > acid in my stomach(what ever) and I cant burp and it hurts, it may > > not be in the diet plan but I dont care, I do what works to get by. I > > cant drink soft drinks with corn products in them but can drink diet > > pepsi and it helps me burp and keeps this condiction from makeing me > > tottally miserable. yes, I know, save the lectures, please.--- In > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 Live, There is a problem though w/seeing doctors sometimes. First you have to get them to agree you have a problem. We have been to 3 gastro doctors. All of which practice out of one of the leading hospitals here. They insist this does not effect kids. One of the doctors saw my daughter the night I brought her to the ER because the pain was so bad, I thought she was having a heart attack or something. They have told me she is a 100% healthy child. (geez, that just makes me so mad when they say that) My grandmother has run into the same problem. The have told her not to eat or drink 2-3 hours before going to bed. It's kinda like the mold issue. If they are not going to agree and help, then after awhile you just give up and try to fix it yourself. We have been able to do this 95% effective thru diet. Unless she is re-exposed to mold. But, even then it isn't like it was. I am not disagreeing w/you. Just stating that it is not just as easy as seeing a doctor and getting diagnosed and getting medication for some of us. You must have wonderful luck w/doctors. Our luck pretty much sucks w/doctors. I do agree that this does seem to get worse w/exposure. Re: [] Re: Sick Buildings and Reflux - Is this the causal link? All of you people who have this need to see doctors.. and you really need to see gastroenterologists.. Please don't just limp through life.. You (we!) need to get this treated. Prilosec will only help so much.. If it ever gets really bad you'll never be the same again.. You start inhaling stomach acid and your throat swells up and you can't drink or breathe. When that happened to me it was absolute hell. I couldn't work for almost a year. I couldn't sleep. A lot like Jeanine. Its absolutely terrifying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 Yes, I too have had improper diagnosis, endoscopy, ph test, barium swallow, they say I have gerd put me on protonix, it didn't help, so they tripled dosage and added antinausea, nitro, benadryl, and said dont eat or drink 3 hours before bed. I asked them how I was supposed to swaLLOW my pills they said keep trying. It is rediculous after the tripple dose which costs over 1000 month i still have no results, lost job, lost insurance, 10000 in medical bills, applied for disability lost 60 lbs and still cant swallow. This is while under treatment of gastro specialist. If you guys have had any results with meds let me know. Mia > > Live, > There is a problem though w/seeing doctors sometimes. First you have to get them to agree you have a problem. We have been to 3 gastro doctors. All of which practice out of one of the leading hospitals here. They insist this does not effect kids. One of the doctors saw my daughter the night I brought her to the ER because the pain was so bad, I thought she was having a heart attack or something. They have told me she is a 100% healthy child. (geez, that just makes me so mad when they say that) My grandmother has run into the same problem. The have told her not to eat or drink 2-3 hours before going to bed. It's kinda like the mold issue. If they are not going to agree and help, then after awhile you just give up and try to fix it yourself. We have been able to do this 95% effective thru diet. Unless she is re-exposed to mold. But, even then it isn't like it was. I am not disagreeing w/you. Just stating that it is not just as easy as seeing a doctor and getting diagnosed and getting medication for some of us. You must have wonderful luck w/doctors. Our luck pretty much sucks w/doctors. > I do agree that this does seem to get worse w/exposure. > > > Re: [] Re: Sick Buildings and Reflux - Is this the causal link? > > > All of you people who have this need to see doctors.. and you really > need to see gastroenterologists.. > > Please don't just limp through life.. You (we!) need to get this treated. > > Prilosec will only help so much.. > > If it ever gets really bad you'll never be the same again.. You start > inhaling stomach acid and your throat swells up and you can't drink or > breathe. When that happened to me it was absolute hell. I couldn't > work for almost a year. I couldn't sleep. A lot like Jeanine. > > Its absolutely terrifying. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 Live, I live in the state of missery, well thats what some call it. lol's, translated- the show me state, need I say more? > > > > > > I'm glad you read that Live, I meant to point it out to you, I > > > remembered you saying you had gerd. I have terrible influx? lack > of > > > acid in my stomach(what ever) and I cant burp and it hurts, it may > > > not be in the diet plan but I dont care, I do what works to get > by. I > > > cant drink soft drinks with corn products in them but can drink > diet > > > pepsi and it helps me burp and keeps this condiction from makeing > me > > > tottally miserable. yes, I know, save the lectures, please.--- In > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 You are right Live. This stuff is horrible. My insurance will not pay for any of the Nexxium which helped me more than anything. Right now I am using Prilosec as a temp fix. This is what the dcotor told me to take since insurance will not pay for Nexxium. However, I saw a commerical the other day that Nexxium makers will help a person without insurance. Now that I am thinking about this, I am going to google Nexxium to see if I can find more information. As far as what you said reflux does, you are 100% right and thanks for sharing this with others. What got me back in the doctor was one night I spit the acid up and inhaled it in my sleep! Talking about a horrible scary thing! I could had choked to death. So anyway, you are right, this is not something to play around with. --- In , LiveSimply <quackadillian@...> wrote: > > All of you people who have this need to see doctors.. and you really > need to see gastroenterologists.. > > Please don't just limp through life.. You (we!) need to get this treated. > > Prilosec will only help so much.. > > If it ever gets really bad you'll never be the same again.. You start > inhaling stomach acid and your throat swells up and you can't drink or > breathe. When that happened to me it was absolute hell. I couldn't > work for almost a year. I couldn't sleep. A lot like Jeanine. > > Its absolutely terrifying. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 So what you guys are telling me is this can get worse than it already has been? The only way to fix it is w/medication? This is not a jerkish question. I really want to know. I just can't imagine it getting worse. But, geez after listening to some you it gets more horrible. If it does then I'm going to have to arm myself w/documents before our next doctors visit. Ask him how it's no big deal, how is she going to outgrow this? That's the answer to everything: She'll outgrow it. But, now I'm concerned. [] Re: Sick Buildings and Reflux - Is this the causal link? You are right Live. This stuff is horrible. My insurance will not pay for any of the Nexxium which helped me more than anything. Right now I am using Prilosec as a temp fix. This is what the dcotor told me to take since insurance will not pay for Nexxium. However, I saw a commerical the other day that Nexxium makers will help a person without insurance. Recent Activity a.. 10New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 Mia, I am so sorry to hear how sick you are. I have no suggestions as I am just learning how serious this can become. But, I hope one day you will find something that works. [] Re: Sick Buildings and Reflux - Is this the causal link? Yes, I too have had improper diagnosis, endoscopy, ph test, barium swallow, they say I have gerd put me on protonix, it didn't help, so they tripled dosage and added antinausea, nitro, benadryl, and said dont eat or drink 3 hours before bed. Recent Activity a.. 10New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 One needs meds to heal the erosions. I guess they can heal on their own but I would not chance it. By far, the best medication I use for it was Nexxium but it is very expensive. Changing the diet helps too. > > So what you guys are telling me is this can get worse than it already has been? The only way to fix it is w/medication? This is not a jerkish question. I really want to know. I just can't imagine it getting worse. But, geez after listening to some you it gets more horrible. If it does then I'm going to have to arm myself w/documents before our next doctors visit. Ask him how it's no big deal, how is she going to outgrow this? That's the answer to everything: She'll outgrow it. But, now I'm concerned. > > [] Re: Sick Buildings and Reflux - Is this the causal link? > > > You are right Live. This stuff is horrible. My insurance will not pay > for any of the Nexxium which helped me more than anything. Right now I > am using Prilosec as a temp fix. This is what the dcotor told me to > take since insurance will not pay for Nexxium. However, I saw a > commerical the other day that Nexxium makers will help a person without > insurance. > Recent Activity > a.. 10New Members > Visit Your Group > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Mia, OMG.. look, you should try OTC prilosec first. Its not the best PPI out there (for me Prevacid has been much better) but it works. And a months supply should cost $50 or so.. You should take whatever it takes to get symptomatic relief, which when I was really bad was 3x a day ASK A DOCTOR, PLEASE.. In order to work, PPIs in general but especially OTC prilosec (because its not enterically coated) needs to be taken on a completely empty stomach and not taken after cholestyramine either. I tried protonix, I tried Aciphex neither worked for me. High doses of Prilosec also seemed to be making me lose my hearing so I couldn't take them.. (but NAC might stop that.. NAC seems to help things like that) It was the worst nightmare you could ever imagine.. the EE. I spent months in bed.. I couldn't eat or drink. I could barely swallow the pills. I lost a huge amount of weight. Now I am taking 30 mg Prevacid 2 x a day and the 2x is enough but for so long 2x was NOT enough and just the little healing that it has taken to get me to where I am now and can sleep on a normal bed.. (without the head lifted up at least 5 or 6 inches) has taken YEARS.. I personally think that this erupting ear thing and erupting chest thing that I have is related to eosinophilic esophagitis.. The last time i had an endoscopy I was conscious as the thing went into me (I didn't have a ride home so they could not give me the serious anesthesia) and i was watching on the screen as the camera went in and I saw the ridges on my esophagus just like in the pictures.. And our aspergillius /penicillium counts were very high and that was on the morning of a calm, good day.. at other times it was far worse.. On 2/27/07, Knippel <windigo5150@...> wrote: > > Yes, I too have had improper diagnosis, endoscopy, ph test, barium > swallow, they say I have gerd put me on protonix, it didn't help, so > they tripled dosage and added antinausea, nitro, benadryl, and said > dont eat or drink 3 hours before bed. I asked them how I was supposed > to swaLLOW my pills they said keep trying. It is rediculous after the > tripple dose which costs over 1000 month i still have no results, > lost job, lost insurance, 10000 in medical bills, applied for > disability lost 60 lbs and still cant swallow. This is while under > treatment of gastro specialist. If you guys have had any results > with meds let me know. > > Mia > > > > > > > Live, > > There is a problem though w/seeing doctors sometimes. First you > have to get them to agree you have a problem. We have been to 3 > gastro doctors. All of which practice out of one of the leading > hospitals here. They insist this does not effect kids. One of the > doctors saw my daughter the night I brought her to the ER because the > pain was so bad, I thought she was having a heart attack or > something. They have told me she is a 100% healthy child. (geez, > that just makes me so mad when they say that) My grandmother has run > into the same problem. The have told her not to eat or drink 2-3 > hours before going to bed. It's kinda like the mold issue. If they > are not going to agree and help, then after awhile you just give up > and try to fix it yourself. We have been able to do this 95% > effective thru diet. Unless she is re-exposed to mold. But, even > then it isn't like it was. I am not disagreeing w/you. Just stating > that it is not just as easy as seeing a doctor and getting diagnosed > and getting medication for some of us. You must have wonderful luck > w/doctors. Our luck pretty much sucks w/doctors. > > I do agree that this does seem to get worse w/exposure. > > > > > > Re: [] Re: Sick Buildings and Reflux - Is > this the causal link? > > > > > > All of you people who have this need to see doctors.. and you > really > > need to see gastroenterologists.. > > > > Please don't just limp through life.. You (we!) need to get this > treated. > > > > Prilosec will only help so much.. > > > > If it ever gets really bad you'll never be the same again.. You > start > > inhaling stomach acid and your throat swells up and you can't > drink or > > breathe. When that happened to me it was absolute hell. I couldn't > > work for almost a year. I couldn't sleep. A lot like Jeanine. > > > > Its absolutely terrifying. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 hmmmm. Well as we all can tell I don't know much about this subject. Never until today gave this another thought. So, the meds help the erosions heal. (I'll look the erosion thing up-hehehe) Time to do some more homework. Geez, today I feel like I am cramming for a college exam. LOL But, heck I am leaning alot. We should start our own clinic here. hehehe [] Re: Sick Buildings and Reflux - Is this the causal link? > > > You are right Live. This stuff is horrible. My insurance will not pay > for any of the Nexxium which helped me more than anything. Right now I > am using Prilosec as a temp fix. This is what the dcotor told me to > take since insurance will not pay for Nexxium. However, I saw a > commerical the other day that Nexxium makers will help a person without > insurance. > Recent Activity > a.. 10New Members > Visit Your Group > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Sorry, one other question. Somehow I am going to press this issue. Gotta do it so they really don't think I am. (you know what I mean) Are all medications for kids and adults the same? Guess, I am trying to find out if there is a medication I should try and ask for. They are atleast good w/that. If I'd rather try another med that has the same effect they generally let me use it. [] Re: Sick Buildings and Reflux - Is this the causal link? > > > You are right Live. This stuff is horrible. My insurance will not pay > for any of the Nexxium which helped me more than anything. Right now I > am using Prilosec as a temp fix. This is what the dcotor told me to > take since insurance will not pay for Nexxium. However, I saw a > commerical the other day that Nexxium makers will help a person without > insurance. > Recent Activity > a.. 10New Members > Visit Your Group > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Everyone who thinks they have this should read the Mishra paper. It looks like that is what is happening with me, I am almost sure. But I am NOT a doctor. By the way, this is diagnosed more often in children than adults. But the numbers are inexplicably rising FAST. Its a new disease.. they only recently figured out the mold connection too.. (2005 I think) so GI doctors should be given slack as they might not be keeping up on all this. I do have a good GI doctor, though.. who I am going to talk to about this as soon as he gets back from his vacation. If there is anything I am learning is that we really have to be proactive about our health care and nicely demand that they engage. I suspect that doctors, like so many other workers, just go through life in a sort od daze and deal with things as they come up snap snap snap. HMO medicine is really under pressure. They have basically 6 to 8 minutes to spend with each patient. So if you have an HMO plan or not, and you have some issue like this you NEED TO FIND A GOOD SPECIALIST WHO IS ALSO IN YOUR PLAN. If you can, call around BEFORE getting the referral. You know, I could ask my doctor for hints on getting a good GI doctor locally. I will post what I find out. What would be the best would be to find someone who both does research (in a teaching hospital usually) and who also has a private practice... Its a job but think of how much of a difference it makes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 There is a school of thought and books about this, that reflux is actually a symptom of too little stomach acid where the food fails to be properly broken down and comes back up. The treatment would be betaine HCL, I believe. I don't claim to know a lot about this, but I remember once doing a self-test for stomach acidity with bicarbonate and water. I have read about this in other groups. An Internet search might prove helpful here. I think it was a Dr. who wrote the book, but not sure. I just thought for those who are not getting good results with their care this might be something to check out. - Yes, I too have had improper diagnosis, endoscopy, ph test, barium swallow, they say I have gerd put me on protonix, it didn't help, so they tripled dosage and added antinausea, nitro, benadryl, and said dont eat or drink 3 hours before bed. I asked them how I was supposed to swaLLOW my pills they said keep trying. It is rediculous after the tripple dose which costs over 1000 month i still have no results, lost job, lost insurance, 10000 in medical bills, applied for disability lost 60 lbs and still cant swallow. This is while under treatment of gastro specialist. If you guys have had any results with meds let me know. Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 ARRGH... That is what happened to me, for months.. months.. I was dying.. the entire inside of my mouth and throat and ears and neck felt like one big scar.. there were scars and plaques i could feel.. it was hell.. I couldn't even drink water.. it would come back up. Words don't describe. I had a incredibly smart, cool girlfriend who watched as I fell apart right before her eyes. I lost my job, then couldn't afford health insurance, then I went into debt to her for $8000 before it was over.. I couldn't pay rent or any other bills for almost a year. that was the beginning of my bad health trip.. We split up but had to continue living together in the same apt because I couldnt afford to move and for a long time she couldn't either. I had depleted her savings. I ended up with the apartment because I couldnt get another. All this time we had mold problems but I didn't connect the two of them together. Now, she has celiac disease.. shes studying psychiatry.. > >sharing this with others. What got me back in the doctor was one night > I spit the acid up and inhaled it in my sleep! Talking about a horrible > scary thing! I could had choked to death. So anyway, you are right, > this is not something to play around with. > > -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Yes, yes but here is the important thing. if what people here have is EOSINOPHILIC esophagitis, the INFLAMMATION is caused by eosinophils and aeroallergens. the etiology seems more like athsma..(???) You need to get out of the mold and I don't know if it ever heals. They kept saying mine should heal with (insert drug name here) but it would just heal a bit then flare up again. When it flares up it takes a long time to heal. Cholestyramine definitely helps.. Carnosine helps.. NAC seems to help too.. The papers recommend steroids but I don't know if they are the thing given what people say happens with mold. There MUST be someone I can talk to about this.. Clearly, whoever is studying this NEEDS TO TALK TO US.. On 2/27/07, sea <jackiebreeze@...> wrote: > > > One needs meds to heal the erosions. I guess they can heal on their > own but I would not chance it. By far, the best medication I use for > it was Nexxium but it is very expensive. Changing the diet helps too. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Extremely interesting! I had eosinophils in the pathology report of my cancer. That is why one doctor said my cancer could be connected to mold exposure, due to the eosinophils found in area. I've also been diagnosed with GERD and have digestive problems. Dr Croft says that the digestive tract is one of the most vulnerable areas to toxic mold exposure. --- In , LiveSimply <quackadillian@...> wrote: > > Thanks to following a link Jeanine posted a few days ago, I think that > THANKS TO HER POINTING IT OUT I've found a host of new research on the Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Also, there are a few other drugs that seem to help in addition to the proton pump inhibitors.. There are motility drugs that push things through your stomach faster. Now I think we are getting into the realm of needing Dr. Shoemaker or someone similar to weigh in on this but I think that a common reactio of the body to mycotoxins is to just freeze up in order to minimize the contact of the body to the toxified stuff.. At one point it seemed like my insides were all sloghing off and coming out in my poop.. it was really bad.. I was trying to take metamucil thinking that would help and it was and wasn't.. Now I have a presciption for metaclopromide and when I get bad mold exposure I also take that but thank God I haven't had to take it in a while.. It helps the esophagitis but it also dries you out terribly and it also seems to worsten my short term memory.. which is the last thing I need right now.. its an anticholinergic.. But its good to have around.. The military uses it as part of their aflatoxin treatment recommendations I remember reading somewhere.. It also stimulates liver or kidney enzymes, I think.. These are all prescription drugs and I really am not qualified to say any more than my own experiences.. They may kill you ... get my drift.. don't take my word for anything on these meds.. There is another drug available on the international markey called domperidone.. I forget what happened with that but I didn't continue taking it.. it must not have helped.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 I went to a gastro doctor and he did endoscopy. He said my digestive tract was very inflamed and had ulcerations. He said I obviously had H-pylori infection but would have to do test to be sure. Test came back negative for H-pylori and so he diagnosed me with GERD and said it was just too much acid and Rxed a proton pump inhibitors. I said what about other bacteria or infections? He said just H-pylori would cause this. I hate to go to doctors anymore, it's such as waste of my time, even if my insurance does pay for it, my time is worth something (to me). --- In , LiveSimply <quackadillian@...> wrote: > > All of you people who have this need to see doctors.. and you really > need to see gastroenterologists.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 I've heard that inflamation in digestive tract makes it difficult for gi tract to digest food, so that taking digestive aids are best. If you take anything that inhibits stomach acid, I've heard it makes indigestion worse since your stomach needs acid to digest food. Your stomach acid also kills microbes that you swallow. I was Rxed one of those but never filled the Rx. Actually I rarely take anything my regular doctor gives me though. My alternative mold doc gave me pancreatic digestive aid for protein (which I've heard are the problem generally) and to stay away from foods I tested allergic too. I must add though I am not getting much better. I was for awhile and now sliding backward but I stopped taking my digestive enzyme, just forget as I focus on a different problem. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.