Re: Kaylee

[Guest guest]

Sandy

I am glad to hear that Kaylee is in a program now. Yes, speech should be

coming soon. Some families have had difficutly getting their child speech

therapy. Flowers may want to give you some tips on how to best go about

that. My thoughts are that the earlier the speech therapy the better chance that

you do not experience difficulties in speech.

The conference will be at VCU where the MDS study is being conducted. Because

it is ongoing research, you will not really hear back from them for probably

years, but it is helping us to know more about MDS. During the conference you

will have the opportunity to speak with the doctors there and do the blood

tests.

Kristy

Nordgren wrote:

Hi Kristy

Thanks for the info and the web site. Trust me, more

questions are on the way!

Kaylee is in the Loudoun County PIE program. She was

evaluated by physical and occupational therapists when

she was about one month old. For now she has a

therapist visit once a month to work on motor skills.

We haven't heard anything yet about speech therapy.

Does that usually come later?

Shortly after birth we sent in photos and filled out a

questionnaire to participate in the VCU Mosaic Down

Syndrome study. I haven't heard anything from them

yet. They may be waiting to get blood samples from

our family. I'm having a hard time coordinating

appointments for the 6 of us to have it done on the

same day.

Hope to talk to you soon!

Sandy

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[Guest guest]

Kristy,

I cant wait for the conference at VCU! Richmond is

only about 2 1/2 hours away so I'll find out when it

is and plan to be there.

Thanks,

Sandy

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