Please Help!

[Guest guest]

This is one of those times when I wish I was physically talking to

this group and not just typing in my thoughts. I've just returned

from the neurologist and I am SO frustrated and SO upset and Gosh. I

just don't think any parent should leave a neurologist's office in

tears, not because the test results were bad, but because you're so

frustrated with the physician!

We are still diagnosing, seems to be taking F.O.R.E.V.E.R. We've

been diagnosing since February. Our first chromosomal assay came

back negative. We asked about the other assay tests, she said our

insurance wouldn't pay for it. Today she ordered a specific MDS

assay. Why the <BLEEP> couldn't she have ordered it three months ago?

What changed?

Then she says that the omega-3 supplements I'm using aren't good so I

should feed my son grilled salmon twice a week. OK. Tell me how to

get a child with sensory issues to eat salmon twice a week.

Then she tells me we're just going to do ritalin and see how it goes

from there. I had at least three other concerns that went

unaddressed because she wants to see how the ritalin affects him

first.

Then she tells me to get rid of ALL white sugared foods and all

processed foods and only feed him fresh fruit and veggies, no juice

either because fresh fruit is better. Again, how do you get a child

with sensory issues to eat pineapple? Or oranges? Or anything?!?!

hello? Do ANY of your kids eat carrots?!?!

Then she tells me not to bring my two year old to the appointments.

I tell her there is no one else to watch her. She tells me to post a

bulletin at church saying I need help and to get her into mom's day

out programs. I know like five people at church and they work during

the day and I can just barely scrape money together to keep food on

the table and buy gas and hello!? Like I can afford mom's day out.

She didn't address my son personally.

She asked me the name of the other neurologist I'm seeing. I told

her, you're the only neurologist I've EVER seen.

She told me that the reason he has to urinate every time he gets

overstimulated is because he's not intellectually smart enough to go

when he should. If that's the case, how come he's not in diapers

still? So she said the school would just have to figure that out

then when he says he has to go at inopportune times.

I told her he can remember cognitive things today and not tomorrow.

She said we had to " wait and see " after he's on ritalin. But then

she said not all kids respond to ritalin.

I could go on, but right now I can't type because I can't see the

words through my tears.

All in favor of me switching neurologists, raise your hands.. er,

type a response.

Please help. If you live in the GA area, can I call you? I could

really use a friend right now.

Jennie

Jessie (6), (5 - MDS?), Maren (2)