Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 I need to start back taking iron supplements but not sure which kind to take. Someone wrote in an email that there were two different kinds. One is supposed to be easier for us to take. Could someone please tell me which kind I'm supposed to get? Thanks. Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 Jenn's message from Tuesday has prompted me to ask a question that has been bothering me for some time now - what is good/safe/advisable to eat with PSC and also what is bad/unsafe/inadvisable to eat ( & drink). You people must have been through this question many times by now, so sorry to rake it up again. My Drs have not been vary helpful. My GI has said something about making sure to get enough " fat-soluble vitamins " (A, D, E, K) but nothing much else & I'm not yet sure what foods contain those - but that's got to be easy to find out about. But, is there anything to specifically avoid? What about alcohol? Is some OK (please say yes!!) or is any bad?? I plan to bring this whole question up at my next Hep consultation but I would like to hear your collective wisdom. Thanks, Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 -----Original Message----- From: Terry Tnt21 ...what is good/safe/advisable to eat with PSC and also what is bad/unsafe/inadvisable to eat ( & drink). Terry, I've been told I have no restrictions in diet. However, I have pretty much had a low-fat diet for many years now - just turned out that way. Your UC may be a better guide - in my case, nothing bothers me. I know others here have strong feelings on limiting red meat, fat, alcohol, etc. (my LFTs are normal, so far). ....My GI has said something about making sure to get enough " fat-soluble vitamins " (A, D, E, K) but nothing much else & I'm not yet sure what foods contain those - but that's got to be easy to find out about. With UC, we frequently don't absorb nutrients like we should. I take a high quality vitamin supplement. I think it has made a difference in my energy level, and definitely has made a difference in my hemoglobin. If you want details, let me know. ....But, is there anything to specifically avoid? What about alcohol? Is some OK (please say yes!!) or is any bad?? I have been encouraged to reduce my alcohol consumption (woe is me, I was a home brewer). I'm down to a couple a beers twice a week, which my GI seems to think is OK. Hope this helps - you'll get a wide variety of opinions, but I think it depends on how advance your PSC is. Arne 49 - UC 1977 - PSC 2000 Alive and (mostly) well in Minnesota Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2001 Report Share Posted April 27, 2001 I would love to see more opinons on this nutrition subject..I am not sure what the doctors tell everyone else, but so far with my brief visit since having PSC, and my UC visits...the doctors all say that diet doesn't effect either disease. I have to beg to differ, how can diet not effect the diseases. I started on the " specific- carbohydrate-diet " last year for my UC....within two weeks, I had freedom from the toilet. Now granted .....I could have been going into remmission from the drugs, but every time I steped away from the diet....the " flood " started. With the SCD diet....no carbs...no lactose...and no sugar. It wasn't much fun, but I felt better. After being strict on the diet for 6 months, I discovered a happy balance that allowed me the chocolate, and ocassional bread. I wasn't watching the fat in my diet very well...I needed some flavor. I ate a lot of chicken wings. Now with this wonderful new disease, I am trying to find out a recommened diet....I know the low fat---bye bye chicken wings. But I have started back on the carbs. My husband was so excited last week when we actually had " real " spagetti, and spagetti squash for the first time in a year. (Life on the edge...real pasta.) I have found that my UC can tolerate some carbs if aren't to refined and with all of the good stuff taken out. I have dropped the amount of protein considerably. And am trying to keep to a low fat diet. I have also dropped my caffene consumption....I have pretty much quit drinking pop..I don't think there is anything healthy in that. I am to the point that I don't really care about my weight anymore...I just want to be healthy....and I am dropping the pounds. This is a great side effect. Does this sound to overboard?? Jenn 29-UC/00-PSC/01 Any input from the group would be greatly appreciated.... > >Reply-To: >To: PSC Support < > >Subject: Nutrition?? >Date: Thu, 26 Apr 2001 20:32:21 -0400 > >Jenn's message from Tuesday has prompted me to ask a question that has >been bothering me for some time now - what is good/safe/advisable to eat >with PSC and also what is bad/unsafe/inadvisable to eat ( & drink). >You people must have been through this question many times by now, so >sorry to rake it up again. >My Drs have not been vary helpful. My GI has said something about making >sure to get enough " fat-soluble vitamins " (A, D, E, K) but nothing much >else & I'm not yet sure what foods contain those - but that's got to be >easy to find out about. >But, is there anything to specifically avoid? What about alcohol? Is >some OK (please say yes!!) or is any bad?? >I plan to bring this whole question up at my next Hep consultation but I >would like to hear your collective wisdom. >Thanks, > Terry > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2001 Report Share Posted April 27, 2001 I have been trying the Live Right 4 Your Type, or blood type diet (BTD) lately. I have been absolutely amazed at how it 'nailed' me according to my blood type. Dr. D'Adamo has written a few other books that I read, but didn't pay much heed to. A friend of mine told me about this newest book and how it really details individuals according to blood type and explains so scientifically how it applies. As a type O, non-secretor status (you have to be tested for this), my diet consists of lean red meat, fish, LOTS of veggies (not many starchy ones either), some fruit and nuts/seeds/olive oil, and lots of water. I have basically cut out all pork, grains, dairy, and sweeteners (this is the toughest part for me) other than molasses or fruit. I know this is extreme (especially for me), but I've been working in this direction for some time anyway. Also, I buy most everything organic, even the meats. Type Os are supposed to workout very hard and ususally have a strong immune system, in that it takes a lot to break it down, but when it breaks down it's tougher to get well. It's the non-secretors that generally have to deal with bad teeth and bad health. My mother is also type O, and a non-secretor with bad teeth and rheumatoid arthritis. My father, 3 brothers and hubby are all type O and very strong in their health. My mom and I were the only ones who suffered. I'm not sure about my children yet, but nobody else is interested in eating as I do anyway, and I can hardly blame them. The only reason I am is that I am a FIGHTER for my health! My diet is very, very strict compared to the other Blood type diets (because of being type O non-secretor), but I find it crucial to adhere to it. I have been feeling a big overall difference and it's only been a few months. I believe food is to be our medicine and not just a lot of supplements, although I swear by my milk thistle. GOOD food can be hard to find, learn to like (the key is learning how to make it flavorful without adding crap to it), and a major inconveniece. I believe that's why so many people are so sick these days. A good diet takes a LOT of education and discipline. Not everyone is to be a vegetarian. I think I remember type As and many ABs are supposed to be though. It never worked for me...I felt worse. After reading the book, now I understand why. I don't like to suffer needlessly, and I have with other diets that I have tried...feeling very deprived. This is what is amazing to me...I haven't felt deprived and am satisfied with eating less. This is not about weight loss/gain, but I have read testimonials of others who have written that their metabolism basically stabilizes itself. I needed to lose, unlike most people on this board, and I am losing without trying...nice and slow. I might be considered the 'quack' in this group. I tend to be game to try what other's may call 'off the wall'. I figure I have nothing to lose and everything to gain. Glad you found our group, sorry you had to. Hope you find a nutritional plan that works for you. You can check out Dr. D'Adamo's website if you want more detailed info at: www.dadamo.com Cheryl in Charlotte, NC Crohn's and PSC dx 1991 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2001 Report Share Posted April 27, 2001 Terry wrote: >My GI has said something about making sure to get enough " fat-soluble vitamins " (A, D, E, K) I'm not yet sure what foods contain those A: liver, dairyproducts (fat), kidney, herring, eggs, fatty fish The others I don't know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2001 Report Share Posted April 27, 2001 Ferrous fumarate or ferrous glutamate are OK , I think (NOT ferrous sulfate). Arne 49 - UC 1977 - PSC 2000 Alive and (mostly) well in Minnesota Re: Nutrition?? I need to start back taking iron supplements but not sure which kind to take. Someone wrote in an email that there were two different kinds. One is supposed to be easier for us to take. Could someone please tell me which kind I'm supposed to get? Thanks. Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Beverly, I thought iron was iron, until I took it with calcium and got very ill, immediately (20 minutes), the next day I saw my general GP and he yelled at me for doing that. Neither supplement had warnings not to take with the other, and well let's face it, people with chronic illnesses pop so many pills, they have to pop some together or they would be taking a pill every hour 24/7. Anyway, I had originally bought iron ferrous. Bad choice, it is the hardest on the digestive system!! I ended up going to a health store and asking which iron supplement was the easiest on my system, and that absorbed quickly. They pointed me to Ironchel (brand name), and I bought it. I am on day 8 now, and I already notice my energy level perking up. I can do more than one task after work and not feel like I ran the Boston Marathon! My doc did say iron glutonate was the better one over sulfate. There is one other one, tri something, but I can't for the life of me remember the name. Anyway, that one is expensive. Hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2001 Report Share Posted April 30, 2001 Terry, I'm a little late coming into this one and will probably find you've gotten the answers as I weed through the emails.... low fat....the more fat you eat the more bile is produced, putting a strain on already strained bile ducts.... lots of water..... turkey, grapes, beets, artichoke, excellent for the liver to name a few... of course a diet high in vegetables and fruit is beneficial for all of us... protein can be a problem because it's hard on a stressed liver, however, too little protein and you have a problem there..... having fun yet????? Mike eats two eggs daily, he has cut out ALL processed meats and cheeses, he drinks water (lots of it), cut out coffee, no alcohol, loves his tea......and we have all benefited from a lower fat diet...don't get me wrong, we still pig out on trash from time to time...a person has got to have some vices eh? hope this helps... Patti > >Reply-To: >To: PSC Support < > >Subject: Nutrition?? >Date: Thu, 26 Apr 2001 20:32:21 -0400 > >Jenn's message from Tuesday has prompted me to ask a question that has >been bothering me for some time now - what is good/safe/advisable to eat >with PSC and also what is bad/unsafe/inadvisable to eat ( & drink). >You people must have been through this question many times by now, so >sorry to rake it up again. >My Drs have not been vary helpful. My GI has said something about making >sure to get enough " fat-soluble vitamins " (A, D, E, K) but nothing much >else & I'm not yet sure what foods contain those - but that's got to be >easy to find out about. >But, is there anything to specifically avoid? What about alcohol? Is >some OK (please say yes!!) or is any bad?? >I plan to bring this whole question up at my next Hep consultation but I >would like to hear your collective wisdom. >Thanks, > Terry > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2001 Report Share Posted April 30, 2001 --- Weigand wrote: > I would love to see more opinons on this nutrition > subject..I am not sure > what the doctors tell everyone else, but so far with > my brief visit since > having PSC, and my UC visits...the doctors all say > that diet doesn't effect > either disease. I have to beg to differ, how can > diet not effect the > diseases. > > I started on the " specific- carbohydrate-diet " last > year for my UC....within > two weeks, I had freedom from the toilet. Now > granted .....I could have been > going into remmission from the drugs, but every time > I steped away from the > diet....the " flood " started. With the SCD diet....no > carbs...no > lactose...and no sugar. It wasn't much fun, but I > felt better. After being > strict on the diet for 6 months, I discovered a > happy balance that allowed > me the chocolate, and ocassional bread. I wasn't > watching the fat in my > diet very well...I needed some flavor. I ate a lot > of chicken wings. > > Now with this wonderful new disease, I am trying to > find out a recommened > diet....I know the low fat---bye bye chicken wings. > But I have started back > on the carbs. My husband was so excited last week > when we actually had > " real " spagetti, and spagetti squash for the first > time in a year. (Life on > the edge...real pasta.) I have found that my UC can > tolerate some carbs if > aren't to refined and with all of the good stuff > taken out. I have dropped > the amount of protein considerably. And am trying to > keep to a low fat diet. > I have also dropped my caffene consumption....I have > pretty much quit > drinking pop..I don't think there is anything > healthy in that. > > I am to the point that I don't really care about my > weight anymore...I just > want to be healthy....and I am dropping the pounds. > This is a great side > effect. > > Does this sound to overboard?? > Jenn > 29-UC/00-PSC/01 > > Any input from the group would be greatly > appreciated.... > > > >Reply-To: > >To: PSC Support < > > >Subject: Nutrition?? > >Date: Thu, 26 Apr 2001 20:32:21 -0400 > > > >Jenn's message from Tuesday has prompted me to ask > a question that has > >been bothering me for some time now - what is > good/safe/advisable to eat > >with PSC and also what is bad/unsafe/inadvisable to > eat ( & drink). > >You people must have been through this question > many times by now, so > >sorry to rake it up again. > >My Drs have not been vary helpful. My GI has said > something about making > >sure to get enough " fat-soluble vitamins " (A, D, E, > K) but nothing much > >else & I'm not yet sure what foods contain those - > but that's got to be > >easy to find out about. > >But, is there anything to specifically avoid? What > about alcohol? Is > >some OK (please say yes!!) or is any bad?? > >I plan to bring this whole question up at my next > Hep consultation but I > >would like to hear your collective wisdom. > >Thanks, > > Terry > > > Dear Terry, My doctors told me to take fat soluble vitamins and eat protein but not to overdo it (I'm a powerlifter). I can't have caffine of any kind but they said I could have ONE drink a night. That's all I have gotten out of them. Basically they tell me, this is a rare disease and we just don't know. Jim Young dx 1998 PSC > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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