Re: Anyone have any experience with Dr. Debaise in Orlando?

[Guest guest]

Ok, Dr. Rotatori in Winter Park does the proper removal.

Lynda

At 12:27 PM 6/15/2006, you wrote:

>Hi guys,

>

>Thanks so much where you have led me so far. It's en bloc for me for

>sure -- no questions. I am indebted to you for getting me firmly on

>that path.

>

>I spoke with Dr. Kolb last night. She called me on the phone the same

>day I emailed her!!!! Pretty amazing. She was great.

>

>I am willing to go to Atlanta, but it is going to be about twice as

>much to do that than if I stayed in Florida ( higher surgery costs,

>lotel stay, flight or gas costs, etc....)

>

>I found Dr. Debaise in Orlando -- just a 2.5 hour drive from me who

>does en bloc removal.

>

>He costs about half of what Dr. Kolb costs, plus travel and hotel will

>be much less, and follow-ups will be pretty easy.

>

>Any views, sisters? If $6,000 is what it's going to take to get it

>just right, then I won't blink at it.(It's coming from a loan,

>anyway!) I just want to know if it would be just as good to go to the

>fellow in my area, even though I don't know if he is sympathetic to

>the idea of implants causing sickness or not.

>

>Thanks in advance, and I am not doubting either of these surgeons or

>questioning high prices or anything negative. Just investigating.

>

>Gratefully,

>

>Dawn in Florida

>

>

[Guest guest]

Have you talked to Dr. Debaise yet? . . . Or to his receiptionist? . . . This is something you want to be absolutely sure of . . . some doctors say they'll do en bloc, then don't. . . Do you know any of his other patients? Hugs and prayers, Rogene

[Guest guest]

Dawn

I would question the job he would do if he is half the price of Dr.

Kolb. Sometimes you do get what you pay for. More importantly, I

do think that Dr. Kolb understands the importance of taking out the

imlplants right and getting all the capsule out. Further, she has

to be alot more experienced in removing implants than the doctor in

Florida. In addition, she is very holistic oriented and I think she

has alot of knowledge in the area of healing, supplements, and

testing. I would be in favor of her. I am sure you will make a

good decision of who to go to.

Hugs, Kathy

--- In , " da7ofus " <dawnsusan@...>

wrote:

>

> Hi guys,

>

> Thanks so much where you have led me so far. It's en bloc for me

for

> sure -- no questions. I am indebted to you for getting me firmly

on

> that path.

>

> I spoke with Dr. Kolb last night. She called me on the phone the

same

> day I emailed her!!!! Pretty amazing. She was great.

>

> I am willing to go to Atlanta, but it is going to be about twice as

> much to do that than if I stayed in Florida ( higher surgery costs,

> lotel stay, flight or gas costs, etc....)

>

> I found Dr. Debaise in Orlando -- just a 2.5 hour drive from me who

> does en bloc removal.

>

> He costs about half of what Dr. Kolb costs, plus travel and hotel

will

> be much less, and follow-ups will be pretty easy.

>

> Any views, sisters? If $6,000 is what it's going to take to get it

> just right, then I won't blink at it.(It's coming from a loan,

> anyway!) I just want to know if it would be just as good to go to

the

> fellow in my area, even though I don't know if he is sympathetic to

> the idea of implants causing sickness or not.

>

> Thanks in advance, and I am not doubting either of these surgeons

or

> questioning high prices or anything negative. Just investigating.

>

> Gratefully,

>

> Dawn in Florida

>

[Guest guest]

Thanks Rogene and Lynda,

I talked with Dr. Debaise's receptionist and she said he does do en

bloc, although most procedures are removal with capsulectomy and THEN

a re-implant. He as an appt for a consult on July 11 -- not too far

away, with surgery scheduled a few days after for those who travel.

Is there a difference between en bloc removal and a capsulectomy?

Why would a doc say they do en bloc then don't? And how do you know

after surgery what he/she truly did?

I called Dr. Rotatori's office this morning and he doesn't even have a

consult appt. open until the end of August.

I can get in to Dr. Kolb June 26th.

I also called a fellow on explantation.com dr. list who is in West

Palm Beach area and the receptionist at the office said all of their

dr.s do en bloc procedures. I don't know if that is true.

You know, I went to my primary care today to see about getting some

bloodwork done -- and even though I brought literature with me, with

sources cited, the guy (a resident) basically said, " I don't believe

you, my wife has saline implants and she's fine. I'll order the tests

anyway. If you have lupus or rheumatoid arthritis or fibromyalgia, it

is totally unrealted to your implants. " EXACTLY what Dr. Kolb said he

would say. Plus he gave me that " I'm dealing with a crazy lady " look

that I am sure many of you get.

I did get tests for lupus, RA, and a sed rate test.

I feel like I take a step down on the " diminishing capacity " ladder

every three weeks or so. I don't want to wait, because I can feel

myself getting worse, but at the same time, I feel like I have to

investigate the money end. If I can get truly successful en bloc

removal in state for 3,500....why spend over 6,000 and travel? If

the answer is " because you're guaranteed a good surgical result with a

true en bloc removal and that will help your chances of recovery, plus

Dr. Kolb rocks " then it's fine.

And last, why would one snotty opinion from a 1st year resident make

me doubt myself?!! ARrrrghhhh!

Dawn

>

> Have you talked to Dr. Debaise yet? . . . Or to his receiptionist?

.. . .

>

> This is something you want to be absolutely sure of . . . some

doctors say they'll do en bloc, then don't. . . Do you know any of his

other patients?

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

Dawn

It is hard to be demeaned by doctors who insist that you are not

sick from your implants. Often they try to make you think it is

stress or psychological. That is one of the ways that this support

group is so supportive. We understand what you are going through

and we know that implants can make you sick.It is so important to

find people who truly understand what you are going through and how

you feel. Now that I am better I tell my ob/gyn and my regular

doctor that implants made me sick. They both seem to be listening

somewhat because they can tell the changes since I was explanted

four years ago. Especially my ob/gyn. A year after explant I went

back in for my yearly and he could not believe how much better I was

doing. He said that he had been really worried about my heart and

the way it had sounded the previous year. We just have to be tough

enough to demand that we be taken seriously and not cave in when we

get treated badly. I have little respect for most doctors who don't

seem to be openminded nor well read. Most of what they know they

read in some journal article and they believe it as gospel. My

sister is a pharmacist and we got in a real argument one night about

implants. She kept saying she read that studies show they don't

make women sick. I felt likeI was talking to a fencepost. I have

generally found most people in the medical community to be very

closeminded. None of us can tell if Dr. Kolb or the less expensive

guy would be the better choice. Just be aware that how people

advertise themselves and how they actually perform can be two

different matters. Several years ago I called around looking for

someone who knew how to treat vulvadynia. This doctor's office I

called said that the doctor knew what it was and how to treat it

effectively. I was glad because I was in alot of pain and my ob/gyn

and regular docs did't even know what I had. Anyway, this guy was

basically worthless. He tried steriods (contraindicated) and

testosterone and they made me worse. Than he wanted to do six punch

biopsies of my vulvar area to " make sure that we weren't dealing

with something like lichen sclerosis or cancer " . I promptly said no

as I had already researched and decided that wasn't what I had.

Well I found the vulvadyniafoundation and they helped me

tremendously and that is hardly ever a problem anymore. Alot of

people advertise that they do this or that and then when you

actually go to them the true story is slightly different. Over a

lifetime the money isn't going to make that much difference--but the

expertise of the surgery will. I think whichever you have more of a

peace about is the right person. I really believe in listening to

our inner voice or intuition. Going against that seldom works out.

Hugs, Kathy

eSupport , " da7ofus " <dawnsusan@...> wrote:

>

> Thanks Rogene and Lynda,

>

> I talked with Dr. Debaise's receptionist and she said he does do

en

> bloc, although most procedures are removal with capsulectomy and

THEN

> a re-implant. He as an appt for a consult on July 11 -- not too

far

> away, with surgery scheduled a few days after for those who travel.

>

> Is there a difference between en bloc removal and a capsulectomy?

>

> Why would a doc say they do en bloc then don't? And how do you

know

> after surgery what he/she truly did?

>

> I called Dr. Rotatori's office this morning and he doesn't even

have a

> consult appt. open until the end of August.

>

> I can get in to Dr. Kolb June 26th.

>

> I also called a fellow on explantation.com dr. list who is in West

> Palm Beach area and the receptionist at the office said all of

their

> dr.s do en bloc procedures. I don't know if that is true.

>

> You know, I went to my primary care today to see about getting some

> bloodwork done -- and even though I brought literature with me,

with

> sources cited, the guy (a resident) basically said, " I don't

believe

> you, my wife has saline implants and she's fine. I'll order the

tests

> anyway. If you have lupus or rheumatoid arthritis or

fibromyalgia, it

> is totally unrealted to your implants. " EXACTLY what Dr. Kolb

said he

> would say. Plus he gave me that " I'm dealing with a crazy lady "

look

> that I am sure many of you get.

> I did get tests for lupus, RA, and a sed rate test.

>

> I feel like I take a step down on the " diminishing capacity " ladder

> every three weeks or so. I don't want to wait, because I can feel

> myself getting worse, but at the same time, I feel like I have to

> investigate the money end. If I can get truly successful en bloc

> removal in state for 3,500....why spend over 6,000 and travel? If

> the answer is " because you're guaranteed a good surgical result

with a

> true en bloc removal and that will help your chances of recovery,

plus

> Dr. Kolb rocks " then it's fine.

>

> And last, why would one snotty opinion from a 1st year resident

make

> me doubt myself?!! ARrrrghhhh!

>

> Dawn

>

>

> >

> > Have you talked to Dr. Debaise yet? . . . Or to his

receiptionist?

> . . .

> >

> > This is something you want to be absolutely sure of . . . some

> doctors say they'll do en bloc, then don't. . . Do you know any of

his

> other patients?

> >

> > Hugs and prayers,

> >

> > Rogene

> >

>

[Guest guest]

Penni

I hate to say it but very few of us here have been helped by

rheumatologists. Most are old school and all they want to do is

diagnose you with an autoimmune disease. If they can't, they are

done with you. If they can, then they will try to prescribe toxic

drugs that you wouldn't want to take. Personally I feel most of

them are useless. You would do better to go to someone who is

holistic. I have had fms for over twenty years and the thing that

helped me most was a book I lent out and never got back. I can't

remember who has it so I am looking to find an out of print copy. It

is called Myotherapy by Bonnie Prudden. It is the best book and

helped me more than regular physical therapy or chiropractic etc.

She shows how to find the trigger points all over the body that

cause all this pain and release them. Then she has extensive

exercises to strengthen the area so that it is a permanent fix. I

can't say enough good about this book or the technique. Compared to

paying for useless doctor visits or injections of steroids or

expensive physical therapy this is priceless!

Love, Kathy

> >

> > Have you talked to Dr. Debaise yet? . . . Or to his

receiptionist?

> . . .

> >

> > This is something you want to be absolutely sure of . . . some

> doctors say they'll do en bloc, then don't. . . Do you know any

of his

> other patients?

> >

> > Hugs and prayers,

> >

> > Rogene

> >

>

[Guest guest]

,

I understand what you are going through...

But it is not guilt that you are feeling. I think you are feeling uncertain

about the whole aspect of disability. The thought of being labeled as disabled

at a young age is disconcerting, and rightfully so. By the same token that

label will provide you with the validation that you are seeking. We all want

that validation...so you are not alone. These feelings meshed together have

manifested themselves into " guilt. " Push it aside, take control and know that

you ARE deserving! Yes, YOU VICTORIA!

I do wish I had that magic wand. But your husband is right. You must think

about 2 years from now, but your positive sttitude and desire to be working 2

years from now will see you through the rough waters ahead. I'll have to tell

you more about what to expect from disability doctors in another post. In the

meantime...

Prepare for the worst and pray for the best! That theory will NEVER let you

down. I promise!

Christene

> > >

> > > Have you talked to Dr. Debaise yet? . . . Or to his

> receiptionist?

> > . . .

> > >

> > > This is something you want to be absolutely sure of . . . some

> > doctors say they'll do en bloc, then don't. . . Do you know any

> of his

> > other patients?

> > >

> > > Hugs and prayers,

> > >

> > > Rogene

> > >

> >

>

>

>

>

>

>

> ------------------------------------------------------------------------------

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[Guest guest]

Dawn

I certainly don't want to make your decision more difficult but did you ever get my post on Dr. Bridge in ? I live close to there and he is who I used and I liked him a lot - he was cheaper than you described although I can not say he is better or as good... I don't know much about these things. I just know the end results were great and he was very helpful and polite - hekped me win an appeal with my insurance co. Just an idea... if you have already decided please do not let this confuse you... I was just in a position where money was a BIG issue and he did a good Job. He also talked me out of a lift saying he didn't think I needed one - how many docs these days talk themselves out of extra money? just an option

good luck no matter where you go!!! I be praying for you!!

shari