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Re: FC nazis

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& gt; From: acsnag@...

& gt; Subject: Re: FC Nazis......

& gt; I gather you are not a very nice person. You attack people on this list

& gt; regarding something that happened elsewhere. That has no business here.

I do not feel attacked. I don't feel that Jerry (and I don't know who he is) is

" not a very nice person " on the basis of his message. I was able to discern

independently that he is frustrated within the NT-run system that limits AS

diagnosed people the right to defend and express themselves. Even at my most

literal, I do not believe that Jerry believes that the forum to which he is

invited is run by a sanctioned third reich membership because he wouldn't

participate. Obviously, he is frustrated and I would like to know why

particularly because there is significant pressure from the parties mentioned

(Rita Rubin) to present the facets of autism according to their (NT) perspective

rather than inclusion from all aspects of the spectrum from those who know it

best.

Similarly, I do not agree that his message had " no business here " . When I signed

up, I was informed that this list was about ***whatever*** I or any other

autistic person chose to discuss. You are saying that is untrue and that the

content of our thoughts must be CENSORED to meet the dictates of your -what I

would deem as narrow- approval.

Ma'am, I don't know who you are or why it is that you seem to feel that are best

qualified to determine what I read or why you think you have the right to

pre-select whatever material I am permitted to read but I do not acquiesce!

Rather, the content of your message tells me I definitely do not want a mind

such

as yours to filter my available reading material! As I understand it, Jerry is

protesting censorship (a preferred nazi method to control the dissemination of

dissent) and tragically, you are suggesting censorship (albeit self-censorship)

yourself; the very thing he is protesting!

& gt; You call people Nazis. In all likelihood they are no closer to being

& gt; nazis than you are. Things that go on on ASA Alive should be addressed

& gt; there not here where they have no opportunity to defend themselves.

As one who knows, it is often impossible to be " heard " in a controlled forum

(ASA

Alive *and* this list if you ran it) and outside vehicles of expression are

required to inform and educate those affected. The Nazis shut down all other

venues of dissent permitting only their poison to spread...is that what you

really want? Isn't that what you are effectively suggesting? ASA Alive (whatever

that is) is far from representing my perspectives...as are you.

& gt; After your comments here I don't think I'd be interested in hearing you

& gt; speak, ever!

Then don't listen to him speak and don't read it. I have no problem reading

material I find personally repugnant. In fact, I try to read offensive material

in order to counter it should the opportunity arise. Of the two, I found your

speech to be the more offensive because it suggests I am not of sufficient

intelligence to read, analyze and make my own conclusions. Nevertheless, I would

not sanction your speech either. I prefer to counter it as I am doing here.

& gt; From: " Gerald Newport " & lt;wholphin48@... & gt;

& gt; Subject: FC Nazis......

& gt; Some FC fan on " ASA Alive " can't handle any reality. His last

What is FC?

Where is this " ASA Alive " ?

Kathleen Fasanella

http://www.kathleenfasanella.com

=====

~~~~Nurture people, not products~~~~

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> What is FC?

It is typically typing (can also be pointing, writing, etc) with the help

of physical touch/pressure by another person.

It's controversial - people tend to say it is either always legitimate or

always not legitimate. The controversial element is that some forms of FC

rely on supporting the wrist, and could be used by people to get the

autistic person who doesn't have another form of reliable communication to

say what the " facilitator " wants.

That said, anyone who says it is always communication or never

communication is wrong. There is legitimate FC. There's illegitimate FC.

It's hard to tell the two apart from outside observation. Legitimate FC

attempts to progress from supporting the wrist to eventually no supports

(with typically a progression of support - first wrist, later forearm,

then elbow, then shoulder, etc, that becomes less and less likely to be

questioned; however, some people don't progress).

Someone who doesn't have the type of movement disorder that FC helps won't

understand why someone might need it to communicate. But there is a real

physical movement disorder that it does help overcome.

I've seen legitimate and illegitimate FC. I've seen a lot that I didn't

have enough information to rule in or out as legitimate. It's easy to say

someone typing with only a hand on the shoulder is probably legitimate,

although you *STILL* don't know for sure, since that person may be

exerting psychological pressure (often the facilitator is a parent or

someone who talks to the parent a lot - do you talk the same way around

your parents as you do around others when they aren't there?). And on the

other side, holding the wrist looks to a lot of people like puppetting the

autistic person, but according to people who have become independent

communicators after initially using FC, it isn't always - some have said

that, yes, they *were* communicating their thoughts at the time.

I'm hesitant to say an individual incident of FC is either communication

or not communication. Misclassifying either is a big mistake.

I do think you have to be aware of the potential for " influence " with FC,

but I also think you have to do that anytime an autistic is not by

themselves. And when the autistic is by themselves, even then we don't

always say what we mean. It's a hard area to make clear rules of what is

" legitimate " or not. But anyone who takes the stance that it isn't ever

legitimate is ignoring first hand autistic experience, and anyone who

takes the stance that it is always legitimate is also ignoring that.

It's like saying " All families are abusive " or " No family is abusive " .

There are often more then two options - not necessarily just " two extremes

and something in the middle " even though our TV culture would try to

convince you of that.

> Where is this " ASA Alive " ?

I'm guessing something associated with the Autism Society of America, an

organization I have very little respect for - despite having an autistic

person on their board, I've seen no evidence that they value the welfare

of the autistic perspective when it conflicts with the parent perspective.

I know that there are good people in the ASA and in the local chapters.

I also know that there are bad people in the organization. I have an

autistic friend I really respect who is associated with the ASA. But

these are very much the exception, the organization as a whole does not

appear to take the autistic perspective seriously.

One of the things I most object to is their stance, which they support

through official publications of an " autism epidemic " and how " expensive "

we all are. If you are bored sometime, search for organizations that

claim to represent people with Down's Syndrome who even mention the cost

to society of Down's Syndrome. You won't find them. In fact, this tactic

wouldn't be allowed for nearly any other disability. But, like in all

other things, Autism is so horrible that we need to mention the cost -

the human rights of those pesky autistics are just speed-bumps to getting

to the goal.

--

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> Date: Fri, 13 Aug 2004 09:26:17 -0800

>

> Reply-To: AutisticSpectrumTreeHouse

> To: AutisticSpectrumTreeHouse

> Subject: Re: FC nazis

>

> Kathleen wrote:

> >> What is FC?

>

> and responded:

> >It is typically typing (can also be pointing, writing, etc) with the help

> >of physical touch/pressure by another person.

>

> FC stands for Facilitated Communication.

DOH! Talk about a ToM burp!

--

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At 07:48 AM 8/13/2004 -0700, designer-entrepreneurs.com wrote:

>What is FC?

facilitated communication (see http://www.PlanetAutism.com/fcpage.htm for

links)

>Where is this " ASA Alive " ?

http://health.groups.yahoo.com/group/ASA_Alive/

>Kathleen Fasanella

><http://www.kathleenfasanella.com>http://www.kathleenfasanella.com

-jypsy

________________________________

Ooops....Wrong Planet! Syndrome

Autism Spectrum Resources

www.PlanetAutism.com

jypsy@...

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Kathleen wrote:

>> What is FC?

and responded:

>It is typically typing (can also be pointing, writing, etc) with the help

>of physical touch/pressure by another person.

FC stands for Facilitated Communication.

Jane

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