Emails from Moms with sick kids

[Guest guest]

Thanks Lea! . . . Wouldn't you think, that after all

this time, someone would ask to examine these children

to see WHY they are sick? - Rogene

----------------------------------

Date: Mon, 06 Mar 2000 14:39:35 -0500

DXK@...

From: " Edwin Guy Brent Jr. " <brentko@...

Subject: E-MAILS FROM MOMS WITH SICK CHILDREN

Cc: fuchsmorrissey@...

Dear Dr. Krauss,

Should I send you each e-mail from women who have had

their Dr. say " your child's problem's aren't from the

implants " . They really are clueless so what am I to

say ?

Do you really think it is fair to put this burden of

explaining how lame the studies are on me ?? I have my

own health and family to deal with without this as

well. Why is it up to me, the consumer, to " prove " my

black fungi and bacteria filled implant is unsafe??

I really don't want to bother you with so many

e-mails but I need to know who it is at the FDA that I

refer these women to for answers. I know Sami is

a contact person but she is working part-time. I think

this is a full-time problem. The IOM never even looked

at the individual reports on our children. THAT IS A

CRIME.

Please help me.

Sincerely,

PJ Brent

-------------------------------

[P.J. Brent committed suicide in dispair after her two

daughters experinced severe health problems as a

result of her implants]

---------------------------------------

PS- Remember if the FDA approves the " new and

improved " saline implant you really should do a recall

of " old " ones that grow bacteria and fungi and make

little babies sick.

Dear ,

My daughter looked like she had Cerebral Palsy but it

was finally diagnosed as CIDP. The pediatric

neurologist would have NEVER thought to test for it

because it is so rare.

Please have your friends ped-neuro speak to mine.

His number is 404 256 3535 Dr. Ed Goldstein.

Love,

PJ

-------------------------------------------------

At 09:22 PM 3/4/2000 EST, you wrote:

PJ,

I forgot one more thing, I wanted to thank you for

the information that you sent. I have some friends who

breast feed, and I am forwarding this email on to

them. This is very important information. Thank you

for sending it to me. I won't go on and on again, but

I appreciate the information.

Love, (Name Removed)

PS My best friends daughter-in-law breast fed, and

she had implants, her child was born with Cerebral

Palsy, and several neurological problems, of course

the doctors see no connection to it, but we know

differently. I have sent your email to her, she has

already called me to thank me for it, she is sending

it right away to her daughter in law. Thanks again.

*****************************************************************

HERE IS ANOTHER E-MAIL

AT four, Connor has really funny skin. It is scaly

and very dry. Very sensitive to anything even chewing

red chewing gum irritates the skin around his mouth. I

have to keep his skin really moisturized and use

unscented products. I will keep an alert out for the

small patches if they start to appear. Thank you for

the information.

How old was she? My child that lived 45 minutes

looked like she had been burned and had scar tissue

from the waist down, no genitals, Skin like you said

shiny, just looked like melded plastic over the little

bones. From the waist up she wasn't that bad, as far

as skin. Thank you for responding.

-------------------------------------------------

sey wrote:

Dear ****** PJ Brent just sent me an e-mail about you

and your son. You questioned what are the first signs

of scleroderma. I know that others may have different

first signs, but for it was tissue that looked

like varnished tissue on her legs. They were very,

small patches of shiny tissue. Then with the first

winter of her life these patches began to merge

together. She also had (still has) very, very dry,

cracked tissue that will wax and wane. Where ever the

very dry tissue went is where the very shiny,

varnished skin would go. It looks as though someone

put spots of clear fingernail polish on her skin. I

had this problem too with my skin my right hand on the

last knuckle, but mostly on my right ankle, was also

extremely dry-underneath the dry tissue was shiny

skin, but my problem reversed itself after I had the

mastectomy of both breasts in 1993. I never got my

problem documented as I did not know what I was

dealing with. As I saw experiencing the same

thing I knew like mother like daughter. I have made a

big issue out of 's tissue, her small body,

large head and her very tiny hands and feet. Doctors

at first dismissed my concerns, but I kept questioning

what I saw. In 1996 at the age of 6 yrs old a skin

punch biopsy was done which speaks VOLUMES.

Hypersilicemia has never, ever been fully investigated

in the first place and still to date has not been

FULLY investigated...if the companies say that

hypersilicemia has a " acceptable risk " then they need

to show us mothers & the general public the

studies...show us the studies! Because what I and my

daughters are going thru is not " acceptable " . Neuro

problems, growth problems, diseases of autoimmunity

like scleroderma in the offspring of a child whose

mother had silicone & double lumen breast

implants(3M/McGhan in my case) is NOT AN ACCEPTABLE

RISK. Anyway, I made sure that I had a doctor who

stayed neutral/objective and kept that open-mind. I

did not want her (the physician) to side with me or

against me...I just wanted her to tell me what she

observed. Other doctors who also treat all of us see

what has happened.

Just hang in there with everything. At some point

those in medicine will have to uphold medicine in its

greatest/grandest form of DO NO HARM and uphold

medicine, science, and research to a higher standard

of DO NO HARM...after all they were suppose to do this

in the first place and have failed greatly. Shame on

those who fail to listen to their patient with a

open-mind, in a neutral/objective way which is indeed

vital in medicine, research and science. Take care,

Fuchs-sey Fuchssey@...

------------------------------------------------------------------

http://www.sclerodermasupport.com/support/stories/scleroderma/diffuse/cind

ym.htm

(ALWAYS REMEMBER: since when is it an " acceptable

risk " in medicine, science and research to pull ones

trigger, IN ONES YOUTH, in one's old age OR VIA THE

PLACENTAL BARRIER IN THE OFFSPRING? ACCEPTABLE RISKS?

Hold on wait a minute,

I would call this negligence/selfserving/being

medically

stupid in its greatest form! " ACCEPTABLE RISKS " , the

companies need to greatly define " acceptable risks "

with a breast implant of any kind to me & others. What

they(the breast implant companies) are doing to the

general public and to the INNOCENT children of this

earth is far worse than what did with

smoking: Aflatoxin/ Aspergillus flavus, Tobacco,

Ammonia,

The Tumor-Suppressor Gene, which is cancer's missing

link.

Silicone exerted the immune response in the animal

models many yrs ago way before it happened to any one

of us or via the placental barrier in our children-

process known as MICROCHIMERIMSM/GVHD fetal cells in

autoimmunity along with a possible " two hit " theory

meaning with OR without a genetic predisposition & how

many " hits " did it take to cross the threshold to a

chronic disease/What about HERVs, ALUs and jumping

genes?....as again allow me to remind you,

hypersilicemia was never, ever fully investigated in

the first place & has not been FULLY investigated to

date. They are bushwhacking the general public...this

is sick medicine. The human body is speaking volumes,

is anyone listening? They should if they wish to

uphold their oath of DO NO HARM)