Adrenal Crisis new member

[Guest guest]

Hello! I was refered to this board from Jody on Mediboard. I am

Judy K on Mediboard. I was dxed with Grave's 10-04 but feel I had it

for a long time, possible Hashi's also. 1999 had diverticulitis and

18 " of colon removed, spleen ruptured and removed and this is when

the real problems started. I was on B & R with Tap and synthoid, but

levels never stabilized. TED hit me with vision loss, I have had 2

bilateral orbital decompressions, 10 radiation treatments and have

been on between 60-80 mg of Prednisone for 14 months. Started tapering

after my 12-15 orbital decompression and was dropped too fast, going

down 10 mg every 5th day from 80 mg. When I hit 40, I was all but

dead! My Opth is the doctor who put me on Prednisone. But my Endo is

now treating the taper. I have all the cushing's symptoms and have

been through utter hell so fas. The schedule he had me on was like

this: 20 mg for 2 weeks, then 20-15-20-15 for 2 weeks, then 15 for 2

weeks,and when I got down to my 15-10-15-10 alternating I got sicker

by the day. Yesterday I was seen by my GP who did labs and urine. He

called today to confirm I was in adrenal crisis. He said my cortisol

level was all but bottomed out, WBC high, blood in urine. Symptoms

have been: SEVERE headaches, muscle weakness and pain, vomiting,

dizzy, thirsty all the time, nausea, ringing in the ears, sharp pains

in left back and flank area near kidneys...actually felt like my

kidney's were hurting. The past 2 days, pain starts at my left

shoulder blade and extends down to my feet including my butt, legs,

arms, it just hurts so bad. Yesterday, he had me take 30 am and 15

pm prednisone. Today, I took 20 when I got up and when doctor called,

he had me take 30 mg right then and to take 30 pm. Then take 20am and

20 pm Sat and Sunday, see him on Monday. I have learned from this so

far, what pains and symptoms obviously are adrenal connected. When

I take the prednisone, the brain fog lifted in 20 minutes, headache

and other aches eased and after about 2 hours, it all returns. I had

my thyroid removed in July of 05 and currently on 150 mg synthoid.

Any help, tips and/or support will be so appreciated!

Thanks,

Judy K