Re: Adrenal Crisis new member

[Guest guest]

WOW you are in a real dilemma. You need to get th Pred stabilized at a

level you can live with, without Cushings symptoms but without low

Cortisol levels too. Have you tried adding in a milder adrenal support

such as Isocort or Hydrocortisone to help replace some of the Pred? That

would be my suggestion for your taper to lower the pred a tad and

replace with not quite equal amounts of HC.

--

Artistic Grooming- Hurricane WV

My Ebay Jewelry Store http://stores.ebay.com/valeriescrystalcreations

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

/

>Val,

Thanks for your quick response. I am a bit perturbed at my Endo right

now. I had called his office with my symptoms and was told on Monday of

last week that I should just stay on 15 mg of Pred until I saw them

again this coming up Thursday. I had all the symptoms of an adrenal

crisis, but it was never mentioned. And, I continued to get sicker by

the day on the 15 until I saw my GP on Thursday. He did blood labs and

urine, which showed blood in the urine, my BP was 120/98, which puzzled

him since low BP is usual in a crisis. I am wondering if all the pain I

was in made it read like this? I still do not feel right today. I took

my 30 mg when I woke up. At that time, I was real shaky and still am

with the pain returning, especially in my kidney area of my back. I am

so blessed to find this board and I hope you can guide me through this.

My Endo says I must get off the pred because of the Cushing's and I am

just at a loss as to what to do next. My thyroid was removed in July

last year because my levels would not stabilize and it was making my

TEd worse. I had radiation treatments on my eyes 2 weeks ago to reduce

the swelling as there is nothing more to be done or removed to help my

TED. I have had vision loss and tremendous swelling even after the

thyroid was removed. I was on B & R before that. So, when we try to

taper, the eyes swell back up. Then the Cushing's hit FULL FORCE. Those

symptoms on top of the withdrawal has been utter hell. Now, I just

don't know what to do! Apparently I am going to have adrenal

issues...is it addisons? And this will require the steroids but I need

to get off because of the cushings? I am scared, depressed and sick!

Any help will be so appreciated. Pleaase excuse any spelling mistakes

as my vision is not good.

Judy

[Guest guest]

I take it none of your doctors has explained to you that your Cushings

will go away as soon as you are lower on the adrenal meds? When your

Cortisol drops into normal ranges, the Cushings stops. But now that you

have been on those high steroids for this long you WILL just about be

guaranteed Additions. Which is not as bad. You will need to stay on some

steroids for life, most likely. But just enough to replace your own

hormones that your body cannot make any longer. Now this is the extent

that I am familiar with Cushings caused by too much steroids.I am at

work right now but I promise I will do some research tonight and find

you some GOOD info.

--

Artistic Grooming- Hurricane WV

My Ebay Jewelry Store http://stores.ebay.com/valeriescrystalcreations

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

Yes, they did explain the Cushing's will go away when I get off the

steroids. I guess the trick is going to be living through the tapering

process to get down to that point. Thank you for your info and concern.

I really need it right now. I feel my levels dropping as we speak,

shakey and the crying is setting in again along with more pain and

headache. I took an extra 10 mg a few minutes ago to see if it helps.

Then, I'll try to just do 20 tonight instead of the 30.

Judy

[Guest guest]

>

> Yes, they did explain the Cushing's will go away when I get off the

> steroids. I guess the trick is going to be living through the

tapering

> process to get down to that point. Thank you for your info and

concern.

> I really need it right now. I feel my levels dropping as we speak,

> shakey and the crying is setting in again along with more pain and

> headache. I took an extra 10 mg a few minutes ago to see if it helps.

> Then, I'll try to just do 20 tonight instead of the 30.

> Judy

>

Hi Judy

I wonder if homeopathic cortisone might help you?

Mo

[Guest guest]

> >> >

> Hi Judy

> I wonder if homeopathic cortisone might help you?

>

> Mo

>

Mo,

That is why I am SO VERY grateful I found you guy's! I know NOTHING

about homeopathic medicine. Any books or websites you can recommend? I

have a terrible time reading books with my vision as bad as it is, but

on the internet, if I have to, I can copy and paste into word and blow

the font size up! It's a pain, but I am determined to educate myself in

order to help myself through this.

Many Thanks!

Judy

[Guest guest]

> Mo,

> That is why I am SO VERY grateful I found you guy's! I know NOTHING

> about homeopathic medicine. Any books or websites you can

> Judy

Hi Judy

I am sorry to say that I don't have any info on homeopathic cortisone

myself.

I bought some from Ainsworths, Homeopathic Pharmacy in London but have

not been able to find any information myself on self-treating with it.

Do you have a homeopathic in your area?

Mo

[Guest guest]

I can look it up, what is the name its listed as? I looked under cortison

and hydrocoritson, and didnt' see it in my materia medica

Best,

Handcrafted Jewelry ~ http://www.ChestnutHillDesigns.com

Curly Horse Rescue ~ http://www.CurlyRescue.com

~Age is a case of mind over matter. If you don't mind then it really doesn't

matter.~

>

>

> Hi Judy

> I am sorry to say that I don't have any info on homeopathic cortisone

> myself.

> I bought some from Ainsworths, Homeopathic Pharmacy in London but have

> not been able to find any information myself on self-treating with it.

> Do you have a homeopathic in your area?

> Mo

>

[Guest guest]

>

>

>

> > Mo,

> > That is why I am SO VERY grateful I found you guy's! I know

NOTHING

> > about homeopathic medicine. Any books or websites you can

> > Judy

>

>

> Hi Judy

> I am sorry to say that I don't have any info on homeopathic

cortisone

> myself.

> I bought some from Ainsworths, Homeopathic Pharmacy in London but

have

> not been able to find any information myself on self-treating with

it.

> Do you have a homeopathic in your area?

> Mo

>

I live in a large ciy and I am sure we do have them here. I'll be

checking on that next week. Thanks!

Judy

[Guest guest]

Welcome to the group Judy,

I'm sorry to hear you're going through such a hard time. I don't

think I've seen anybody on such a high dose of pred before. I'm

thinking your aldosterone levels might have something to do with it.

With the high dose you're taking your adrenals are surely shut down,

and the pred has mineralcorticoid activity that can make up for the

lack of aldosterone it can cause. So maybe when you're trying to

reduce you're also reducing the mineralcorticoids in your system which

might cause the cramping, nausea, kidney pain and dizziness from salt

loss. How's your blood pressure when you're feeling so badly? Do you

feel better when you lie down? Try drinking some salt water (1/2tsp

sea salt in a glass of warmish water) and see if that doesn't help,

and also ask you doctors about some Florinef (synthetic aldosterone)

to see you through the taper.

Also, with the high WBCs and blood in the urine you could have a

kidney or urinary tract infection which would have to be treated

seperately. High levels of pred can suppress your immune system so

having an infection wouldn't be surprising.

It certainly sounds like you've been through the wringer. I hope you

can get this straightened out. Take the taper as slowly as you need

to, it sounds like you'll probably always need some level of pred or

HC, so make sure you're feeling consistantly good on one dose before

you drop down to the next.

Best of luck and feel free to ask us anything or just vent when you

need to. You've found a good group. Hope we can help.

Jen

>

> Hello! I was refered to this board from Jody on Mediboard. I am

> Judy K on Mediboard. I was dxed with Grave's 10-04 but feel I had it

> for a long time, possible Hashi's also. 1999 had diverticulitis and

> 18 " of colon removed, spleen ruptured and removed and this is when

> the real problems started. I was on B & R with Tap and synthoid, but

> levels never stabilized. TED hit me with vision loss, I have had 2

> bilateral orbital decompressions, 10 radiation treatments and have

> been on between 60-80 mg of Prednisone for 14 months. Started tapering

> after my 12-15 orbital decompression and was dropped too fast, going

> down 10 mg every 5th day from 80 mg. When I hit 40, I was all but

> dead! My Opth is the doctor who put me on Prednisone. But my Endo is

> now treating the taper. I have all the cushing's symptoms and have

> been through utter hell so fas. The schedule he had me on was like

> this: 20 mg for 2 weeks, then 20-15-20-15 for 2 weeks, then 15 for 2

> weeks,and when I got down to my 15-10-15-10 alternating I got sicker

> by the day. Yesterday I was seen by my GP who did labs and urine. He

> called today to confirm I was in adrenal crisis. He said my cortisol

> level was all but bottomed out, WBC high, blood in urine. Symptoms

> have been: SEVERE headaches, muscle weakness and pain, vomiting,

> dizzy, thirsty all the time, nausea, ringing in the ears, sharp pains

> in left back and flank area near kidneys...actually felt like my

> kidney's were hurting. The past 2 days, pain starts at my left

> shoulder blade and extends down to my feet including my butt, legs,

> arms, it just hurts so bad. Yesterday, he had me take 30 am and 15

> pm prednisone. Today, I took 20 when I got up and when doctor called,

> he had me take 30 mg right then and to take 30 pm. Then take 20am and

> 20 pm Sat and Sunday, see him on Monday. I have learned from this so

> far, what pains and symptoms obviously are adrenal connected. When

> I take the prednisone, the brain fog lifted in 20 minutes, headache

> and other aches eased and after about 2 hours, it all returns. I had

> my thyroid removed in July of 05 and currently on 150 mg synthoid.

> Any help, tips and/or support will be so appreciated!

> Thanks,

> Judy K

>

[Guest guest]

cortisol, cortisone and hydrocortisone

Jen

>

> I can look it up, what is the name its listed as? I looked under

cortison

> and hydrocoritson, and didnt' see it in my materia medica

>

> Best,

>

> Handcrafted Jewelry ~ http://www.ChestnutHillDesigns.com

> Curly Horse Rescue ~ http://www.CurlyRescue.com

>

> ~Age is a case of mind over matter. If you don't mind then it really

doesn't

> matter.~

> >

> >

> > Hi Judy

> > I am sorry to say that I don't have any info on homeopathic cortisone

> > myself.

> > I bought some from Ainsworths, Homeopathic Pharmacy in London but have

> > not been able to find any information myself on self-treating with it.

> > Do you have a homeopathic in your area?

> > Mo

> >

>

[Guest guest]

Judy,

One other thing I forgot. It might be worth it to invest in a blood

glucose monitor and a blood pressure monitor. If your cortisol drops

too low, so will your blood sugar and the same thing with aldosterone

and blood pressure (low and low). I've always used both to regulate

my (much lower) HC and Florinef doses and have found it works well.

Jen

>

> Welcome to the group Judy,

>

> I'm sorry to hear you're going through such a hard time. I don't

> think I've seen anybody on such a high dose of pred before. I'm

> thinking your aldosterone levels might have something to do with it.

>

[Guest guest]

>

> I can look it up, what is the name its listed as? I looked under

cortison

> and hydrocoritson, and didnt' see it in my materia medica

Hi

It is spelt cortisone 30x and it comes under the heading of nosodes

I think.

I have googled and found it being used to wean animals off Pred. in

veterinary situations but have not been able to find anything else.

Mo

[Guest guest]

Here is where yo ucan buy it:

http://www.homeopathyworks.com/product.php?xProd=9038

AHA! Here's something, though its very hard to read:

http://www.bakson.net/steroid/3.htm

Oh darn, that just tells how to make it.

OK, here's something: http://www.bakson.net/steroid/27.htm

WOW!!! Totally fascinating!!!! Its really not clear if its indicated for

hypoadrena, or not.

Oh, and btw -- I do know how to spell cortisone, I don't know why, when I

type it, my fingers almost always drop the final " e " . <rolling eyes>

Best,

Handcrafted Jewelry ~ http://www.ChestnutHillDesigns.com

Curly Horse Rescue ~ http://www.CurlyRescue.com

~Age is a case of mind over matter. If you don't mind then it really doesn't

matter.~

Re: Adrenal Crisis new member

>

> >

> > I can look it up, what is the name its listed as? I looked under

> cortison

> > and hydrocoritson, and didnt' see it in my materia medica

>

> Hi

> It is spelt cortisone 30x and it comes under the heading of nosodes

> I think.

> I have googled and found it being used to wean animals off Pred. in

> veterinary situations but have not been able to find anything else.

>

> Mo

>

>

>

>

>

>

>

>

[Guest guest]

Thanks for the reply and I feel very lucky to have found you guy's! I

just posted my abnormal labs in another post. I will certainly look

into and try all you have suggested. Here are the labs again:

I am going to post all the flagged items, he did a lot of test!

Cortisol=0.9L Ref: 3.1-22.4 (it was bottomed out!)

WBC=18.2 Ref: 4.0-10.5

Hemoglobin=16.8 Ref: 11.5-15.0

Hematocrit=49.8 Ref: 34.0-44.0

Platelets=581 Ref: 140-415

Neutrophils Absolute=9.1 REf: 1.8-7.8

Lymps Absolute=7.8 Ref: 0.7-4.5

Monocytes Absolute=1.1 Ref: 0.1-1.0

Triglycerides=295 Ref: 0-149

VLDL Cholesterol Cal=59 Ref: 5-40

And Thyroid;

TSH=0.642 Ref: 0.350-5.500

T4 Thoraxine=8.1 Ref: 4.5-12.0

Lipase Serium=43 Ref: 0-59 (better)

Labcorp/Louisville, KY

Note: My platelets have been high since my spleenectomy, so this is

normal for me.

Any comments?

Judy

Ref: T3Free 2.3-4.2 pg/dl

T4F- 0.54-1.61 NG/DL

TSH- 0.4-5.5

TSI-<130%

Severe TED, Bilateral Orbital Decompression 4-25-05

Total Thyroidectomy July 21, 2005

Second Orbital Decompression 12-15-05

12-01-05 labs:T4F-1.62

TSH-0.00

Dxed with Steroid Induced Cushing's Syndrome 02-27-06

Feb 27, 2006 Labs

TSH-0.01

T4F-1.38

March 14, 2006 Radiation Treatments