Introduction ~ Cat

[Guest guest]

jmharderaz wrote:

>Haven't heard of it in my 7 1/2 years. No magic cure I'm aware of.

>Though many treatment plans encourage use off magnesium/maalic acid

>blends along with Vit C and Calcium. There is a company called

>To Your Health in Fountain Hills Arizona that sends out a free paper

>and sells FMS/CFS products.......the owner is one of us.....call em

>up or Google them and get on the mailing list. There's usually good

>info on the newsletter/paper. Of course talk to your doc before

>adding any supplements.

>

>Blessings, and Hugs, Judy in AZ : )

Hi ~ I just joined the group - I live in CT but plan to move to AZ this year

with my hubby.

It has taken me years to figure out what is going on with me. I used to skate

4 hours a day 5 days a week and can bare do anything any more. My life has

come to almost a complete halt. I finally got my internist to refer me to a

rhumatoid specialist *after* I figured out what I have symptoms of. I had

liver pain and thought I had NASH, but with acupuncture it got better. After 5

months of acupuncture it helped my liver and my stomach. I have been

complaining about my hands and feet hurting and bone-crushing fatigue for years.

Yikers ! Now I am getting much worse. The pain is really becoming a

nuisance.

One of the first posts I read is this one. THANK YOU SO MUCH JUDY FOR POSTING

THIS !!!!! Very positive and hopeful.

Judy, we are looking at Flagstaff, may I ask where about you are?

Cheers, Cat

^. .^ ~

[Guest guest]

Hi Cat-

I know what it feels like to loose skating. I was the 100K national in-line

champion in the 30 & over age group in 1997. That took a lot of training and

dedication. I also did a lot of freestlye skating on in-lines, and that has

stopped. I now spend most of my time teaching. I was also a figure skater.

I have been coaching for 18 years now, and have come to realize that I have

to skate vicariously through my students. When people see me without

skates, they often comment about where my skates are.

Hang in there. With the right treatment, you will be able to get back to

skating-- limited, but skating. Get into teaching if you can. It is a

rewarding experience.

Amy

> I used to

> skate 4 hours a day 5 days a week and can bare do anything any more. My life

> has come to almost a complete halt.

[Guest guest]

Amy Krut wrote:

>Hi Cat-

>I know what it feels like to loose skating. I was the 100K national in-line

>champion in the 30 & over age group in 1997. That took a lot of training and

>dedication. I also did a lot of freestlye skating on in-lines, and that has

>stopped. I now spend most of my time teaching. I was also a figure skater.

>I have been coaching for 18 years now, and have come to realize that I have

>to skate vicariously through my students. When people see me without

>skates, they often comment about where my skates are.

>

>Hang in there. With the right treatment, you will be able to get back to

>skating-- limited, but skating. Get into teaching if you can. It is a

>rewarding experience.

>

>Amy

>

Hi Amy - and thank you for your kind note. I am sorry that you are able to

empathize by losing your own skating. Major bummer. :-( But I do

appreciate your support.

I did teach for 15 years and had to retire because I couldn't go to the rink

consistently. I have several other problems (like severe asthma) which

developed over a 5 year period as the FM but I didn't realize what was going on.

I developed severe pain in my liver and stomach and the doctor did every test

and couldn't figure out what was wrong. dumb docs!

I had no idea that I had a disease which would bring on relapses and couldn't

understand what was happening to me.

I had spent half a year out of skating and was able to come back slowly during

the last few months.

I had gotten myself up to 2 hours, 3 days a week. I added in an hour of tennis

after that for a week, taking 4 rest days that one week (which is way way more

than I ever needed during the past) and couldn't understand why I couldn't

function for a week the following week. I just went back today for 45 minutes

and feel terrible.

Then I found some web info and realized what is going on. When I read how

disabling this is, I became even more depressed than I was. I was in shock !!!

Hence the SAMe for pain and depression.

I have taken supplements all of my life but in cycles, So I shifted all of my

supplements to deal with the FM. I am still in total denial thinking if I take

care of myself, meditate, and take the " right " supplements that I will recover

from this. But from what I have read, people do not recover. I would like to

read of one case where people ever get back to normal, but I am not hopeful.

If anyone knows of anyone, please let me know.

And I know in my case it was brought on by years of stress--lack of sleep and

conflict. Not my eating or drinking habits as I have been eating organic food

and getting acupuncture etc. since the 70s, and I have severe allergies to mold.

I am sure everyone else has gone through the same shock and anger which I am

going through.

Cheers, Cat

^. .^ ~

[Guest guest]

Hi Cat!

Didn't I tell you these ladies were awesome!? I just joined here a

few days ago and they opened their hearts to me. I don't even know

everybody yet, but they are all so sweet. I've been reading older

messages and am amazed at how encouraging they are. I am so glad

you decided to come over.

I think it's hard to always not feel well no matter what it is.

Today, I got sick a couple of times and feel like a Mack Truck hit

me. The bad part is I don't really know why because the past few

weeks have been relatively better (I mean in the big scheme of

things). I am taking it one hour at a time. Some days that's just

how it is.

Big, big soft hugs!

Star Dance

[Guest guest]

mystardance wrote:

>Hi Cat!

>Didn't I tell you these ladies were awesome!?

Yes you did, and yes they are! :-)

>I just joined here a

>few days ago and they opened their hearts to me. I don't even know

>everybody yet, but they are all so sweet. I've been reading older

>messages and am amazed at how encouraging they are. I am so glad

>you decided to come over.

Thanks - I need to check the past posts and files out . . . my dialup is a pain.

>I think it's hard to always not feel well no matter what it is.

>Today, I got sick a couple of times and feel like a Mack Truck hit

>me. The bad part is I don't really know why because the past few

>weeks have been relatively better (I mean in the big scheme of

>things). I am taking it one hour at a time. Some days that's just

>how it is.

Yes, it does seem that some days are better than others. I was reading some

info

about being sure not to get too much exercise in one day precipitating a relapse

and

still get some aerobic exercise every day. So instead of resting today, I went

for a 45 min.

walk/jog (walking just does not get my heart rate up and when I power walk

I just want to lift off, hard to stop myself); and then had a hot shower when I

came home. I am not sure how I am going to feel tomorrow when I get up to

skate.

I have cut my skating from two hours to one to see how it goes for a while.

Also

I am not planning to play tennis on days that I skate. I was wondering why

shopping

and cooking in one day seemed like such a chore months ago. Now I know.

We'll see whether I feel better or pay tomorrow. ;-)

>Big, big soft hugs!

Thanks so much and BACK AT YA !

Cheers, Cat

^. .^ ~