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Hi Tammi, most of us have been on this thyroid merry go round trying to get

the help we need. There is good help out there but you may have to search

hard to find it and become proactive. I myself was untreated for 30 years

after a partial thyroidectomy. They are giving you synthetic T4. I think

the natural medicines work better (doctors seem to prescribe what drug

companies market to them).

More info:

www.thyroid.about.com

www.armourthyroid.com

www.brodabarnes.org

Good luck, Gracia

> Hi all I am new to this group,

>

> I have been shifted and shunted between dr's so much lately that I am

> losing faith in all of them. I have tried their drugs and ideas and

> still I feel like my whole world is falling apart.

>

> I am so sure that they think I am nuerotic.

>

> I was sent to a ruematologist early in 2002 with possible ruematoid

> arthritis. I was informed by him that it was not RA but probably a

> connective tissue dissorder of some kind, possibly even early lupus!

>

> My GP then told me I had marginally low thyroid levels and started me

> on thyroxin sodium 50mcg.

>

> Next apt, the ruemy decides it is all thyroid but says come back and

> see me in 10 weeks.

>

> All the while I have been getting tireder and tireder, to the point

> where I fell asleep driving my car and only missed crashing it into a

> tree but inches.

>

> The GP says he wants to leave diagnosis up to the ruemy, but maybe it

> is all depression. In answer to that I told him he too would be

> drpressed if he was 31 years old and sleeping 14 hours a day, while

> still needing to doze during the remaining hours of the day. He

> retested the thyroid and said levels were in normal range.

>

> Ruemy then proceeds to tell me I do not have lupus or arthritis and

> that my thyroid levels are still low so he ups the thyroxin to 100

> mcgs. He too says that I sound depressed. I see him again on 10th dec.

>

> Next apt with GP he tells me that he wont need to test the thyroid

> again because if the levels were normal last time then they will

> obviously be higher next time. I asked him about the depression and

> he said that the thyroxin should clear that up if thyroid is the

> cause.

>

> Now I am at a point where I need help. My friends think I just spend

> too much time in bed. I dont have a life. I cry all the time. I am

> tired whether or not I sleep. I am sick to death of dr's and blood

> tests and if it wasn't for all my beautiful animals I can honestly

> say I am running out of reasons to even bother.

>

> How the hell do you get someone to see that the thread that I am

> hanging on by is so tenuous that it is starting to scare even me.

>

> I live in country South Australia and if anyone can offer me some

> advice I would greatly appreciate it.

>

> Blessed Be,

>

> Tammi.

>

>

>

>

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In a message dated 11/12/2002 7:08:18 PM Pacific Standard Time,

wytewing@... writes:

> The GP says he wants to leave diagnosis up to the ruemy, but maybe it

> is all depression. In answer to that I told him he too would be

> drpressed if he was 31 years old and sleeping 14 hours a day, while

> still needing to doze during the remaining hours of the day. He

> retested the thyroid and said levels were in normal range.

>

Dear Tammi,

When a person is showing normal blood test results but still has obvious

clinical signs of hypothyroidism, there's a good possiblity they have

's Thyroid Syndrome. It develops because the body stops being able to

convert T4, the stable form of thyroid hormone, into T3, the active form,

which tells the body how much energy to produce. One other symptom of WTS is

low average daily body temperature. Do you have this? You can have low body

temp even when you feel warm. The best way to check is to take your temp

three times a day for four or five days. Take the first one about four hours

after you first get up in the morning. Then at three hour intervals.

Average the three temps each day and chart them. Anything below 98.4, imo,

is suspect.

Use a new, gallium thermometer and take care not to drop it. A thermometer

that has been dropped at any time from a height of four feet or more can

become uncalibrated. Digitals are too inaccurate and loose their batteries

too quickly over the many times you'll need to measure. They aren't selling

mercury thermometers anymore and old mercury thermometers are likely to have

been dropped or banged around and thus be inaccurate.

Here's a website to learn about <A

HREF= " www.wilsonsthyroidsyndrome.com " >WTS</A>. I went 30 years dragging around

as

you've described with no doctor willing to give me any medicine for

hyothyroidism and always blaming me saying I was depressed or hypochondriac

or crazy. Then, last year a new, holistic MD saw the low body temp chart I'd

been keeping and started me on the treatment for WTS and my life has revived

dramatically!!! I'm now 95% of normal! I hope it will help you!

All the best,

in LA

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Thanks for you answer Tammi. I have been having trouble for the last 30 years.

Less than a year ago I found out it was hypothyroidism. My tsh was at 86.0.

Having trouble with 3 doctors saying my test are nomal but still cold. Cold to

the point of pain, even though tem. my be in lower 70's. Tom

annah1149@... wrote:In a message dated 11/12/2002 7:08:18 PM Pacific

Standard Time,

wytewing@... writes:

> The GP says he wants to leave diagnosis up to the ruemy, but maybe it

> is all depression. In answer to that I told him he too would be

> drpressed if he was 31 years old and sleeping 14 hours a day, while

> still needing to doze during the remaining hours of the day. He

> retested the thyroid and said levels were in normal range.

>

Dear Tammi,

When a person is showing normal blood test results but still has obvious

clinical signs of hypothyroidism, there's a good possiblity they have

's Thyroid Syndrome. It develops because the body stops being able to

convert T4, the stable form of thyroid hormone, into T3, the active form,

which tells the body how much energy to produce. One other symptom of WTS is

low average daily body temperature. Do you have this? You can have low body

temp even when you feel warm. The best way to check is to take your temp

three times a day for four or five days. Take the first one about four hours

after you first get up in the morning. Then at three hour intervals.

Average the three temps each day and chart them. Anything below 98.4, imo,

is suspect.

Use a new, gallium thermometer and take care not to drop it. A thermometer

that has been dropped at any time from a height of four feet or more can

become uncalibrated. Digitals are too inaccurate and loose their batteries

too quickly over the many times you'll need to measure. They aren't selling

mercury thermometers anymore and old mercury thermometers are likely to have

been dropped or banged around and thus be inaccurate.

Here's a website to learn about <A

HREF= " www.wilsonsthyroidsyndrome.com " >WTS</A>. I went 30 years dragging around

as

you've described with no doctor willing to give me any medicine for

hyothyroidism and always blaming me saying I was depressed or hypochondriac

or crazy. Then, last year a new, holistic MD saw the low body temp chart I'd

been keeping and started me on the treatment for WTS and my life has revived

dramatically!!! I'm now 95% of normal! I hope it will help you!

All the best,

in LA

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  • 2 years later...

It is 2:46 here. You still up?

How long have you had your implants? Insurance may pay if you have pain, or

rupture,

depending on the insurance. My breast hurt too.

I know now that the mammogram ruptured my implants, 4 years before I had them

removed.

>

> Anybody out there? It's 1:30 am on the 10th of Oct. I can't sleep

> because my leaking implants hurt. It feels like it did 30 years ago

> when nursing babies first slept through the night...and now I'm

> feeling nauseated and dizzy. I took my temp and it was normal. I

> have a doctors appointment Tuesday, tonight is Sun (well actually Mon.

> morning now), to find out what when and how we remove them and what my

> options are. I don't know if my feeling sick has to do with this.

> Should I be afraid? Is there anything to be gained by trying to get

> in to see him just a day sooner? I can't like fall over dead all of a

> sudden can I? Anyone know? Anyone awake? I'm going to go take some

> Excedrin. This pain is new and is so sudden, I know it has been

> aggrivated from that damn mammogram, I didn't hurt like this until

> they smashed me between the glass. Does insurance pay to have them

> removed if they are leaking? Oh I'm just rambling since I'm wide

> awake and hurting. Thanks for anyone who can answer me.

>

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--- In , " MollyBloom54 " <mollyb54@b...>

wrote:

>

> --- In , " Charlotte " <chiandjoe@s...>

wrote:

> It is 2:46 here. You still up?

> How long have you had your implants? Insurance may pay if you

have pain, or rupture,

> depending on the insurance. My breast hurt too.

> I know now that the mammogram ruptured my implants, 4 years before

I had them

> removed.

>

> >

> > Anybody out there? It's 1:30 am on the 10th of Oct. I can't

sleep

> > because my leaking implants hurt. It feels like it did 30 years

ago

> > when nursing babies first slept through the night...and now I'm

> > feeling nauseated and dizzy. I took my temp and it was normal.

I

> > have a doctors appointment Tuesday, tonight is Sun (well

actually Mon.

> > morning now), to find out what when and how we remove them and

what my

> > options are. I don't know if my feeling sick has to do with

this.

> > Should I be afraid? Is there anything to be gained by trying to

get

> > in to see him just a day sooner? I can't like fall over dead

all of a

> > sudden can I? Anyone know? Anyone awake? I'm going to go take

some

> > Excedrin. This pain is new and is so sudden, I know it has been

> > aggrivated from that damn mammogram, I didn't hurt like this

until

> > they smashed me between the glass. Does insurance pay to have

them

> > removed if they are leaking? Oh I'm just rambling since I'm

wide

> > awake and hurting. Thanks for anyone who can answer me.

Oh yeah, I'm still up. I was searching through some of the links.

It sounds like this might be a complicated proceedure. I'm in

Chicago area, there's a recommended Doctor in Milwaukee, maybe I

should go there instead. I hate to put off the appointment. I got

these implants in 1981! So that's what..24 years?

> >

>

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I bet they are ruptured. Mine were 20 years old when I had them removed.

If you would like to email me, I am at mollyb54@....

> > It is 2:46 here. You still up?

> > How long have you had your implants? Insurance may pay if you

> have pain, or rupture,

> > depending on the insurance. My breast hurt too.

> > I know now that the mammogram ruptured my implants, 4 years before

> I had them

> > removed.

> >

> > >

> > > Anybody out there? It's 1:30 am on the 10th of Oct. I can't

> sleep

> > > because my leaking implants hurt. It feels like it did 30 years

> ago

> > > when nursing babies first slept through the night...and now I'm

> > > feeling nauseated and dizzy. I took my temp and it was normal.

> I

> > > have a doctors appointment Tuesday, tonight is Sun (well

> actually Mon.

> > > morning now), to find out what when and how we remove them and

> what my

> > > options are. I don't know if my feeling sick has to do with

> this.

> > > Should I be afraid? Is there anything to be gained by trying to

> get

> > > in to see him just a day sooner? I can't like fall over dead

> all of a

> > > sudden can I? Anyone know? Anyone awake? I'm going to go take

> some

> > > Excedrin. This pain is new and is so sudden, I know it has been

> > > aggrivated from that damn mammogram, I didn't hurt like this

> until

> > > they smashed me between the glass. Does insurance pay to have

> them

> > > removed if they are leaking? Oh I'm just rambling since I'm

> wide

> > > awake and hurting. Thanks for anyone who can answer me.

>

>

>

>

>

> Oh yeah, I'm still up. I was searching through some of the links.

> It sounds like this might be a complicated proceedure. I'm in

> Chicago area, there's a recommended Doctor in Milwaukee, maybe I

> should go there instead. I hate to put off the appointment. I got

> these implants in 1981! So that's what..24 years?

> > >

> >

>

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> > > It is 2:46 here. You still up?

> > > How long have you had your implants? Insurance may pay if you

> > have pain, or rupture,

> > > depending on the insurance. My breast hurt too.

> > > I know now that the mammogram ruptured my implants, 4 years before

> > I had them

> > > removed.

> > >

> > > >

> > > > Anybody out there? It's 1:30 am on the 10th of Oct. I can't

> > sleep

> > > > because my leaking implants hurt. It feels like it did 30 years

> > ago

> > > > when nursing babies first slept through the night...and now I'm

> > > > feeling nauseated and dizzy. I took my temp and it was normal.

> > I

> > > > have a doctors appointment Tuesday, tonight is Sun (well

> > actually Mon.

> > > > morning now), to find out what when and how we remove them and

> > what my

> > > > options are. I don't know if my feeling sick has to do with

> > this.

> > > > Should I be afraid? Is there anything to be gained by trying to

> > get

> > > > in to see him just a day sooner? I can't like fall over dead

> > all of a

> > > > sudden can I? Anyone know? Anyone awake? I'm going to go take

> > some

> > > > Excedrin. This pain is new and is so sudden, I know it has been

> > > > aggrivated from that damn mammogram, I didn't hurt like this

> > until

> > > > they smashed me between the glass. Does insurance pay to have

> > them

> > > > removed if they are leaking? Oh I'm just rambling since I'm

> > wide

> > > > awake and hurting. Thanks for anyone who can answer me.

> >

> >

> >

> >

> >

> > Oh yeah, I'm still up. I was searching through some of the links.

> > It sounds like this might be a complicated proceedure. I'm in

> > Chicago area, there's a recommended Doctor in Milwaukee, maybe I

> > should go there instead. I hate to put off the appointment. I got

> > these implants in 1981! So that's what..24 years?

> > > >

> > >

> >

>Good morning. Time to be up and I just got to sleep. Not hurting as much this

morning as last night but I put on an industrial strength bra! Should I be

looking for someone who specializes in explants, or at least believes in this

" en bloc " that I am reading about? Any idea how I can find out where my medical

records might be since my doctor died? I wonder if since the implant industry

was in such turmoil the surgeons were required to keep their records for a

longer period of time. I don't even know if mine are silicone, for some reason

I don't think they are. Was anything else even available back in 1981? I've

been asked to bring all that to my appointment tomorrow...I just keep running

into dead ends. I was so happy to find this site. Maybe no one has my answers

but at least I can ask out loud to someone who knows why I need to know.

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Charlotte,

I have absolutely no doubt your implants are at the

root of your problems. . . A sleep disorder goes alone

with it. . . If you can, get your doctor to prescribe

medication for sleep - Rozerem is a new, non-narcotic

drug. You probably have Fibromyalgia . . . But, once

you get your implants out, you can start feeling much

better.

It's important that your doctor remove your implants

en bloc - if at all possible - or if not, remove all

the capsule and as much silicone as possible. If your

doctor tells your implants aren't causing your

problems, he/she is a problem. Find a doctor who

cares!

Sometimes insurance pays. . . Your doctor will have to

cooperate and tell the insurance company they MUST

come out! Many doctors won't!

In the meantime, chances are very good you have a

systemic fungal problem. You can do a self test by

spitting in a glass of water the first thing in the

morning. Let it sit for about 15 minutes. If it's

clear, no problem, you're fine. If there's a milkly

blob floating, with tendrils hanging down - if its

broken into floating chunks, or if it's sunken to the

bottom in a milky blob, you likely have a problem.

There are a number of things that help. A quick start

is prescription Diflucan or Nystatin. I've had very

good luck with Garden of Life products. . . You can

start with one bottle of Fungal Defense followed by

Primal Defense (which you'll probably need for

months). " The Maker's Diet " is an outstanding book

that the author, Rubin, considers a 40 day plan to

health. Besically he recommends a no sugar, no refined

grains, no processed foods. Eating as organically as

possible, with a host of supplements.

With ruptured implants, it's essential that you drink

plenty unchlorinated, pure water to flush as much

silicone out of your body as possible. . . 1/2 ounce

per pound of body weight is recommended.

However, with breast implants, it's unlikely you'll

make any significant gains until your implants are

out.

There are a lot of suggestions for getting better in

our archives. Please check them out. And, when you

have questions, ask away! . . . We have some wonderful

ladies here!

Hugs and prayers,

Rogene

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Thank you for your message. My doctor appointment is today and I will find out what this doctor is all about. No one has a recommendation for me here in the Chicago area. At least this doctor has "Implant Removal" listed on his web site. I was told he's a fighter when it comes to insurance so I hope he can be "the one" - I don't want to go through this process too many times, I just want them out. I've had these implants for 24 years. I have no idea what I'm going to look like when all is said and done. There goes a big chunk of our retirement savings. Oh well....who knew?

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Please let us know how it goes with this doctor. We can always use

more references!

Patty

>

> Thank you for your message. My doctor appointment is today and I

will find out what this doctor is all about. No one has a

recommendation for me here in the Chicago area. At least this doctor

has " Implant Removal " listed on his web site. I was told he's a

fighter when it comes to insurance so I hope he can be " the one " - I

don't want to go through this process too many times, I just want them

out. I've had these implants for 24 years. I have no idea what I'm

going to look like when all is said and done. There goes a big chunk

of our retirement savings. Oh well....who knew?

>

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