Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 i am sorry to hear that you are having some trouble...i hope that you are on your way home as i write this. i need a lap top too it will help me alot on these trips. please let me know how you are today. i told my husband how important it is to follow the team direction...so he better do as i tell him too. i have been fretting over the fact that he does not want to be fussed over and as such we have no doctors documentation for most of the little issues related to the live disease...these thoughts come to me cause of the questions on the forms from the team. he has bs issues but no doctor documentation...he does have some weird auto immune disorder i feel is related too. i think is is a sort of sjogrens conditions. i have some documentation but not a definitive diagnose just treatment. and minor encephalopathy some times nothing to alarm at and no doctor documentation. i explained that he needs to from now on go see his pcp and the gi on a reg basis... yours sandra ________________________________ To: livercirrhosissupport Sent: Thursday, January 8, 2009 11:04:54 AM Subject: Re: transplant nancy Good luck ! I think I just went on auto-pilot and followed the yellow brick road...... I used to be such a control freak over my calendar, etc....and basically just gave the coordinator first dibs on anything. Whatever they wanted just always came first. I still do.... as a matter of fact I am back in the hospital and have been since last Friday...I came in for my weekly follow up and my labs were off so they asked me to stay a night to check for rejection and then found my bile ducts had strictures in them. They have put a stint in. I will find out my numbers later today. So, what started out as an overnight turned into a week long visit. But, the good news is they are paying attention to everything and THAT is what will keeep me and my new liver together! > > i see what you are talking about with the compliance.. .this paper work is intimidating. ..but i know all will be fine cause the lord has him. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 OMG, . I meant to check out the reallife yesterday, and I got really busy going to a lawyer trying to sue the city of denver for my retirement pension. They were going to do a scope the last I heard. They put the stint in when they did the scope? Good luck, and hugs to you. We said a special prayer for you and Terry last night. Love, Bobby and Sharon Ps . If you get bored in there in the middle of the night, Ill keep the yahoo chat on at all times. I hope you have your trusty crackberry. B Sent via BlackBerry from T-Mobile Re: transplant nancy Good luck ! I think I just went on auto-pilot and followed the yellow brick road...... I used to be such a control freak over my calendar, etc....and basically just gave the coordinator first dibs on anything. Whatever they wanted just always came first. I still do.... as a matter of fact I am back in the hospital and have been since last Friday...I came in for my weekly follow up and my labs were off so they asked me to stay a night to check for rejection and then found my bile ducts had strictures in them. They have put a stint in. I will find out my numbers later today. So, what started out as an overnight turned into a week long visit. But, the good news is they are paying attention to everything and THAT is what will keeep me and my new liver together! > > i see what you are talking about with the compliance...this paper work is intimidating...but i know all will be fine cause the lord has him. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 , I'm sorry you're having troubles, but I so admire your attitude about the whole episode! I'm praying for you and hoping you will be able to be back home very soon. Hugs........ Diane ________________________________ To: livercirrhosissupport Sent: Thursday, January 8, 2009 10:04:54 AM Subject: Re: transplant nancy Good luck ! I think I just went on auto-pilot and followed the yellow brick road...... I used to be such a control freak over my calendar, etc....and basically just gave the coordinator first dibs on anything. Whatever they wanted just always came first. I still do.... as a matter of fact I am back in the hospital and have been since last Friday...I came in for my weekly follow up and my labs were off so they asked me to stay a night to check for rejection and then found my bile ducts had strictures in them. They have put a stint in. I will find out my numbers later today. So, what started out as an overnight turned into a week long visit. But, the good news is they are paying attention to everything and THAT is what will keeep me and my new liver together! > > i see what you are talking about with the compliance.. .this paper work is intimidating. ..but i know all will be fine cause the lord has him. > > > > > Quote Link to comment Share on other sites More sharing options...
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