Re: Precious Penny

[Guest guest]

Hi Lyncia,

Somehow I missed this post of yours. I'm sorry. That's terrible

that your Meld score went down, but now you feel worse. It doesn't

make a lot of sense. How are you doing? Did you have an appointment

today? If so, how did that go?

Penny

> >

> > I sure hope you continue to do well with your treatments.

> > Maybe with all the things you have planned, you will be so

> > busy that the time will appear to go very fast.

> > Yes, kill the little bugger...the best way you can.

> > Just think, if you can do that, you will be home free.

> >

> > My husband had many complications after his transplant.

> > Was in the hospital for almost a year and one half...

> > most people do well with a transplant, but some don't.

> > I really believe, the farther up the list you are...the

> > harder it is to return to normal again.

> >

> > How high on the list were you before you got your transplant?

> >

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[Guest guest]

That is okay       just worrying about you........Waiting on results and want

the meld score to go up.

 

I have decided to redevelop my life so now as a little girl, what do I want to

do.....???????  They are laying off people at work again but I am on medical

leave but if I were to go back....umph   I would be in the first ten.  Anyone

have suggestions of what I can do to kept myself out of trouble I would

appreciate it very much.  My eyesight isn't as good as it used to be....

Thanks.

Lyncia

 

In life family and friends take us on all kinds of adventures, God helps us

choose our path....Enjoy your journey!

Subject: Re: Precious Penny

To: livercirrhosissupport

Date: Monday, December 29, 2008, 3:37 PM

Hi Lyncia,

Somehow I missed this post of yours. I'm sorry. That's terrible

that your Meld score went down, but now you feel worse. It doesn't

make a lot of sense. How are you doing? Did you have an appointment

today? If so, how did that go?

Penny

> >

> > I sure hope you continue to do well with your treatments.

> > Maybe with all the things you have planned, you will be so

> > busy that the time will appear to go very fast.

> > Yes, kill the little bugger...the best way you can.

> > Just think, if you can do that, you will be home free.

> >

> > My husband had many complications after his transplant.

> > Was in the hospital for almost a year and one half...

> > most people do well with a transplant, but some don't.

> > I really believe, the farther up the list you are...the

> > harder it is to return to normal again.

> >

> > How high on the list were you before you got your transplant?

> >

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[Guest guest]

Thanks, Abijann. We have said that we'll have to talk to the social

worker about it one of these days and see what she says.

Penny

>

> You said you were on Prograf...go the the official prograf site...

> some of these drugs companies will help you get the medication you

> need if you are unable to pay for them. I would also talk to

> your transplant team about this and they may have you talk with

> your transplant social worker there so your medication doesn't

> become interrupted.

> http://www.prograf.com/

>

[Guest guest]

unbelievable lyncia, unbelievable. stay on their butts file that

appeal, oh my goodness what do they want from us our left nipple???

sorry but this makes me go off, good luck honey i am sorry for all

your stress, stay strong and fight those people. barby

>

> From: abijann <no_reply >

> Subject: Precious penny

> To: livercirrhosissupport

> Date: Saturday, January 31, 2009, 10:40 PM

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> Your husband knows how precious you are, just like we do.

> I sure hope that that drug works as fast as the Epogen does.

> Sometimes it take a little bit to kick in. It does stress

> the bone marrow. I think once you start getting more oxygen

> than you will feel better. Did they start you on any iron

> medications. ..or don't you need that?

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