Re: Son POSTIVE for CHRONIC WEST NILE VIRUS

[Guest guest]

This is very interesting. Lyme and Bartonella are depicted as being acute in

the mainstream literature, but specialistes know they are often chronic. So,

this makes me wonder just how many pathogens out there are in us in a chronic

manner. Mainstream medical is so behind. This is why I say to treat for all

pathogen types long-term because it seems to be what's working, and there is so

much we don't know. My mother had polio. Hmmm, I wonder if the germ transfers

in a chronic manner to your children. Gee, so much we don't know. I remember

one day when my twins were about 17 months old, they got several mosquito bites

on them in just a few minutes, and they welted up big for days. Most of the

time we get bites, this does not happen. I always wondered if those mosquito

bites were different somehow. They stopped developing about that time. They

didn't regress, they just didn't keep developing like other children do. I am

not saying those bites were the cause, but it surely sounds like something in

those mosquito bites could have contributed to the problem. Well, I will put the

word out as I meet practitioners and scientists, to also look for chronic viral

infections like polio and West Nile. What a germy world we live in.

Love and prayers,

Heidi N

>

> Dear Listmates:

>

> I just received my son's test results from CLONGEN LAB in land and my son

is POSTIIVE for West Nile Virus.

>

> He was so glaringly red hot positive that his result was TEN times the

control. The lab said he WAS the control.

>

> I have the book The Polio Paradox. I collect books having to do with

infectious diseases, vaccination, etc. and this one caught my eye. I'd only ever

had time to skim it but I came upon a page describing a Post West Nile Syndrome

about a year or so ago. The notion of a CHRONIC form of West Nile was new to me

and over the past year and a half I've wondered if this might be a part of my

son's disease picture. I'd mentioned it to several of his physicians over the

years and of course they rolled their eyes at me. Why wouldn't they? They are

always rolling their eyes at me.

>

>

http://books.google.com/books?id=t8i4e_q3Gj0C & pg=PA301 & lpg=PA301 & dq=Dr.+Bruno+ch\

ronic+west+nile+virus & source=bl & ots=i24k6ynk-I & sig=p8b3D-18SMUxn5ZRvNyKzS6g9W0 & h\

l=en & ei=baPkStqrNofstgOF7sH6CA & sa=X & oi=book_result & ct=result & resnum=2 & ved=0CA8Q6\

AEwAQ#v=onepage & q= & f=false

>

>

> http://www.prohealth.com/me-cfs/library/showarticle.cfm?id=3938 & t=CFIDS_FM#

>

> When I saw West Nile Virus on the menu at Clongen Labs and that it would be

run via REAL TIME PCR, I jumped at the chance to explore this further. My son's

doctor signed the req. without blinking and yet when the lab received the

samples they truly felt the West Nile test was not warranted explaining that it

was a self limiting disease and that testing for it would not provide useful

information. I didn't want to challenge them and so reluctantly agreed to remove

it from the requisition. That night I could not sleep. I was obsessing over the

WNV test and I knew then that I HAD to insist it be run. I sent the lab the

following links and they admitted it was an intersting possibility. I asserted

that I wanted the test put back into the requisition and they ran it yesterday.

>

> The entire lab was blown away by the results. They ran the assay four times

via Real Time PCR to ensure the results were correct. Each time, a red hot

positive resulted. Then they ran it again via regular PCR and again, got a very

strong positive.

>

> On our farm in Florida, Aedes Aegypti mosquitoes abound. Their long

thigh-high, black and white stockings are their trademarks. Whenever my son

sustains a bite it is followed by an enormous 3 " to 4 " red, raised welt which

takes DAYS to resolve. We have all been exposed to West Nile. All of my horses

showed antibodies to West Nile but were never vaccinated for the disease.

>

> This is uncharted territory. The CDC does not recognize CHRONIC West Nile. If

my son's physician were to report it as it IS a reportable disease...what

exactly do we report? Hi, I'd like to report a case of chronic West Nile Virus.

They would laugh her off the phone. There is no ICD-9 for this either.

>

> And what experience, if any, do any of the lyme literate docs have with

treating both Lyme AND active West Nile Virus in the same patient. And how many

other Mothers and Children might be suffering from this in the way my son is

suffering and yet their doctors assume there is no such thing or even a remote

possibility of ACTIVE West Nile Infection....assuming it a scientific

impossibility. The lab thought this was the case.

>

> My son is also positive for EBV and HHV-7 but not 6.

>

> So viruses are obviously playing a HUGE role in his overall disease picture.

>

> Please pursue this with your physicians. After seeing this in my son I regret

that I did not push to get this done earlier as it had been on my mind for a

very long time. I even asked my neighbor in Florida if there was such a thing as

Chronic West Nile so it's been ping ponging around in my head for such a long

time.

>

> I shudder to think of the months and years that would have passed without this

ever being detected as NO doctor would have ordered this for my son. Not in a

million years.

>

> I feel almost paralyzed with fear. It seems impossible that my small child of

12 years old can have all of these microbes actively infecting his precious

body. It seems surreal like a terrible nightmare. Lyme, Mold, EBV, HHV-7, West

Nile Virus, possible Babesia and Bartonella. It is too horrible to imagine or

wrap my brain around. Not to mention my son's genetic weaknesses.

>

> But just like the day I received his CDC positive Lyme test from

IgeneX......as devasted as you are, there is a wave of relief which washes over

you, that you have received yet another crucial piece of the puzzle.

>

> A friend mentioned the possibility of using LDM-100 and I did find one

reference/blurb about a Dr. kson in Gaineville, Florida who has used LDM-100

in the treatment of West Nile in a teenager. Oddly enough this was my doctor for

a brief period while we were in Florida.

>

> I want to stress that we left Florida in late October 2007. The last exposure

my son ever had to Aedes Aegypti was in the summer of 2007. Since that time he

has not been bitten again by these mosquitoes. So there is absolutely NO

possibility that this is a recent or acute infection. This is a years long,

progressive and chronic infection.

>

> We have tested for CMV, Herpes 6 and 7, EBV and West Nile Virus. My son is

positive for EBV, HHV-7 and WNV.

>

> Are there any other viruses I should test in addition to those above. A friend

mentioned coronavirus, parvovirus, etc. Help.

>

> A friend mentioned the possibility of getting a study organized to further

explore the possibility of West Nile Infection in more families/children. I

think this is critical.

>

> And so the lesson here is: Mothers/Parents PERSIST! Follow our God given

Mother/Parent Instinct! Regardless of what the professionals and mainstream

scientists/doctors tell us....persist! If they say it's not possible. Persist!

>

> Suzan

>

[Guest guest]

Yes. I think we must make every effort to refute this annoying and erroneous

view held by modern science/medicine that these diseases are self limited. That

they cannot be chronic. That it is an impossibility.

I just found this link about a girl, , still struggling with West Nile two

years after infection.

http://blog.hcibooks.com/tag/chronic-illness/

I want to stress also that my son never had an obvious or reported case of Acute

West Nile like did. He had four bouts of a 24 hour illness over the course

of one year. Each time it was accompanied by severe photophobia, very stiff

neck, severe sweats, very high fever. Up until now, I'd assumed, for the past

year since my son's cdc positive IgeneX that this was the beginning of Lyme...as

one looks back and tries to determine when it all started. But now I wonder if

this was West Nile. But each time, it lasted only 24 hours and then he was

zinging around the farm again. This was in 2006. He never suffered like in

the years since these bizarre meningitis-like episodes.

But I believe he was hit with West Nile, Lyme, Co-Infections AND Mold all at the

same time after the Hurricanes of 2005 practically washed Florida off the map.

It is nothing short of a miracle that even as I write this he is playing on the

floor with his creations, role playing and smiling and excited about tonight.

How is this even possible? And so even though I am shaken with fear I am

grateful for this day that my son is feeling well and happy despite a raging

active WNV infection, ET AL!

Suzan

> >

> > Dear Listmates:

> >

> > I just received my son's test results from CLONGEN LAB in land and my

son is POSTIIVE for West Nile Virus.

> >

> > He was so glaringly red hot positive that his result was TEN times the

control. The lab said he WAS the control.

> >

> > I have the book The Polio Paradox. I collect books having to do with

infectious diseases, vaccination, etc. and this one caught my eye. I'd only ever

had time to skim it but I came upon a page describing a Post West Nile Syndrome

about a year or so ago. The notion of a CHRONIC form of West Nile was new to me

and over the past year and a half I've wondered if this might be a part of my

son's disease picture. I'd mentioned it to several of his physicians over the

years and of course they rolled their eyes at me. Why wouldn't they? They are

always rolling their eyes at me.

> >

> >

http://books.google.com/books?id=t8i4e_q3Gj0C & pg=PA301 & lpg=PA301 & dq=Dr.+Bruno+ch\

ronic+west+nile+virus & source=bl & ots=i24k6ynk-I & sig=p8b3D-18SMUxn5ZRvNyKzS6g9W0 & h\

l=en & ei=baPkStqrNofstgOF7sH6CA & sa=X & oi=book_result & ct=result & resnum=2 & ved=0CA8Q6\

AEwAQ#v=onepage & q= & f=false

> >

> >

> > http://www.prohealth.com/me-cfs/library/showarticle.cfm?id=3938 & t=CFIDS_FM#

> >

> > When I saw West Nile Virus on the menu at Clongen Labs and that it would be

run via REAL TIME PCR, I jumped at the chance to explore this further. My son's

doctor signed the req. without blinking and yet when the lab received the

samples they truly felt the West Nile test was not warranted explaining that it

was a self limiting disease and that testing for it would not provide useful

information. I didn't want to challenge them and so reluctantly agreed to remove

it from the requisition. That night I could not sleep. I was obsessing over the

WNV test and I knew then that I HAD to insist it be run. I sent the lab the

following links and they admitted it was an intersting possibility. I asserted

that I wanted the test put back into the requisition and they ran it yesterday.

> >

> > The entire lab was blown away by the results. They ran the assay four times

via Real Time PCR to ensure the results were correct. Each time, a red hot

positive resulted. Then they ran it again via regular PCR and again, got a very

strong positive.

> >

> > On our farm in Florida, Aedes Aegypti mosquitoes abound. Their long

thigh-high, black and white stockings are their trademarks. Whenever my son

sustains a bite it is followed by an enormous 3 " to 4 " red, raised welt which

takes DAYS to resolve. We have all been exposed to West Nile. All of my horses

showed antibodies to West Nile but were never vaccinated for the disease.

> >

> > This is uncharted territory. The CDC does not recognize CHRONIC West Nile.

If my son's physician were to report it as it IS a reportable disease...what

exactly do we report? Hi, I'd like to report a case of chronic West Nile Virus.

They would laugh her off the phone. There is no ICD-9 for this either.

> >

> > And what experience, if any, do any of the lyme literate docs have with

treating both Lyme AND active West Nile Virus in the same patient. And how many

other Mothers and Children might be suffering from this in the way my son is

suffering and yet their doctors assume there is no such thing or even a remote

possibility of ACTIVE West Nile Infection....assuming it a scientific

impossibility. The lab thought this was the case.

> >

> > My son is also positive for EBV and HHV-7 but not 6.

> >

> > So viruses are obviously playing a HUGE role in his overall disease picture.

> >

> > Please pursue this with your physicians. After seeing this in my son I

regret that I did not push to get this done earlier as it had been on my mind

for a very long time. I even asked my neighbor in Florida if there was such a

thing as Chronic West Nile so it's been ping ponging around in my head for such

a long time.

> >

> > I shudder to think of the months and years that would have passed without

this ever being detected as NO doctor would have ordered this for my son. Not in

a million years.

> >

> > I feel almost paralyzed with fear. It seems impossible that my small child

of 12 years old can have all of these microbes actively infecting his precious

body. It seems surreal like a terrible nightmare. Lyme, Mold, EBV, HHV-7, West

Nile Virus, possible Babesia and Bartonella. It is too horrible to imagine or

wrap my brain around. Not to mention my son's genetic weaknesses.

> >

> > But just like the day I received his CDC positive Lyme test from

IgeneX......as devasted as you are, there is a wave of relief which washes over

you, that you have received yet another crucial piece of the puzzle.

> >

> > A friend mentioned the possibility of using LDM-100 and I did find one

reference/blurb about a Dr. kson in Gaineville, Florida who has used LDM-100

in the treatment of West Nile in a teenager. Oddly enough this was my doctor for

a brief period while we were in Florida.

> >

> > I want to stress that we left Florida in late October 2007. The last

exposure my son ever had to Aedes Aegypti was in the summer of 2007. Since that

time he has not been bitten again by these mosquitoes. So there is absolutely NO

possibility that this is a recent or acute infection. This is a years long,

progressive and chronic infection.

> >

> > We have tested for CMV, Herpes 6 and 7, EBV and West Nile Virus. My son is

positive for EBV, HHV-7 and WNV.

> >

> > Are there any other viruses I should test in addition to those above. A

friend mentioned coronavirus, parvovirus, etc. Help.

> >

> > A friend mentioned the possibility of getting a study organized to further

explore the possibility of West Nile Infection in more families/children. I

think this is critical.

> >

> > And so the lesson here is: Mothers/Parents PERSIST! Follow our God given

Mother/Parent Instinct! Regardless of what the professionals and mainstream

scientists/doctors tell us....persist! If they say it's not possible. Persist!

> >

> > Suzan

> >

>

[Guest guest]

Suzan, that virus CAN DEFINITELY be chronic, there is published data on

this.

I'll post some studies, if you need to do convincing...

btw flaviviridae prenatal infection is also well studied, and a good

model for autism

Heidi, viruses can be transmitted from parents either through germline

insertion (this would mean both parents can pass it on... but only some

viruses can do this...) or through placental transmission, from mum.

Natasa

>

> Dear Listmates:

>

> I just received my son's test results from CLONGEN LAB in land and

my son is POSTIIVE for West Nile Virus.

>

> He was so glaringly red hot positive that his result was TEN times the

control. The lab said he WAS the control.

>

> I have the book The Polio Paradox. I collect books having to do with

infectious diseases, vaccination, etc. and this one caught my eye. I'd

only ever had time to skim it but I came upon a page describing a Post

West Nile Syndrome about a year or so ago. The notion of a CHRONIC form

of West Nile was new to me and over the past year and a half I've

wondered if this might be a part of my son's disease picture. I'd

mentioned it to several of his physicians over the years and of course

they rolled their eyes at me. Why wouldn't they? They are always rolling

their eyes at me.

>

>

http://books.google.com/books?id=t8i4e_q3Gj0C & pg=PA301 & lpg=PA301 & dq=Dr.+\

Bruno+chronic+west+nile+virus & source=bl & ots=i24k6ynk-I & sig=p8b3D-18SMUxn\

5ZRvNyKzS6g9W0 & hl=en & ei=baPkStqrNofstgOF7sH6CA & sa=X & oi=book_result & ct=re\

sult & resnum=2 & ved=0CA8Q6AEwAQ#v=onepage & q= & f=false

>

>

>

http://www.prohealth.com/me-cfs/library/showarticle.cfm?id=3938 & t=CFIDS_\

FM#

>

> When I saw West Nile Virus on the menu at Clongen Labs and that it

would be run via REAL TIME PCR, I jumped at the chance to explore this

further. My son's doctor signed the req. without blinking and yet when

the lab received the samples they truly felt the West Nile test was not

warranted explaining that it was a self limiting disease and that

testing for it would not provide useful information. I didn't want to

challenge them and so reluctantly agreed to remove it from the

requisition. That night I could not sleep. I was obsessing over the WNV

test and I knew then that I HAD to insist it be run. I sent the lab the

following links and they admitted it was an intersting possibility. I

asserted that I wanted the test put back into the requisition and they

ran it yesterday.

>

> The entire lab was blown away by the results. They ran the assay four

times via Real Time PCR to ensure the results were correct. Each time, a

red hot positive resulted. Then they ran it again via regular PCR and

again, got a very strong positive.

>

> On our farm in Florida, Aedes Aegypti mosquitoes abound. Their long

thigh-high, black and white stockings are their trademarks. Whenever my

son sustains a bite it is followed by an enormous 3 " to 4 " red, raised

welt which takes DAYS to resolve. We have all been exposed to West Nile.

All of my horses showed antibodies to West Nile but were never

vaccinated for the disease.

>

> This is uncharted territory. The CDC does not recognize CHRONIC West

Nile. If my son's physician were to report it as it IS a reportable

disease...what exactly do we report? Hi, I'd like to report a case of

chronic West Nile Virus. They would laugh her off the phone. There is no

ICD-9 for this either.

>

> And what experience, if any, do any of the lyme literate docs have

with treating both Lyme AND active West Nile Virus in the same patient.

And how many other Mothers and Children might be suffering from this in

the way my son is suffering and yet their doctors assume there is no

such thing or even a remote possibility of ACTIVE West Nile

Infection....assuming it a scientific impossibility. The lab thought

this was the case.

>

> My son is also positive for EBV and HHV-7 but not 6.

>

> So viruses are obviously playing a HUGE role in his overall disease

picture.

>

> Please pursue this with your physicians. After seeing this in my son I

regret that I did not push to get this done earlier as it had been on my

mind for a very long time. I even asked my neighbor in Florida if there

was such a thing as Chronic West Nile so it's been ping ponging around

in my head for such a long time.

>

> I shudder to think of the months and years that would have passed

without this ever being detected as NO doctor would have ordered this

for my son. Not in a million years.

>

> I feel almost paralyzed with fear. It seems impossible that my small

child of 12 years old can have all of these microbes actively infecting

his precious body. It seems surreal like a terrible nightmare. Lyme,

Mold, EBV, HHV-7, West Nile Virus, possible Babesia and Bartonella. It

is too horrible to imagine or wrap my brain around. Not to mention my

son's genetic weaknesses.

>

> But just like the day I received his CDC positive Lyme test from

IgeneX......as devasted as you are, there is a wave of relief which

washes over you, that you have received yet another crucial piece of the

puzzle.

>

> A friend mentioned the possibility of using LDM-100 and I did find one

reference/blurb about a Dr. kson in Gaineville, Florida who has used

LDM-100 in the treatment of West Nile in a teenager. Oddly enough this

was my doctor for a brief period while we were in Florida.

>

> I want to stress that we left Florida in late October 2007. The last

exposure my son ever had to Aedes Aegypti was in the summer of 2007.

Since that time he has not been bitten again by these mosquitoes. So

there is absolutely NO possibility that this is a recent or acute

infection. This is a years long, progressive and chronic infection.

>

> We have tested for CMV, Herpes 6 and 7, EBV and West Nile Virus. My

son is positive for EBV, HHV-7 and WNV.

>

> Are there any other viruses I should test in addition to those above.

A friend mentioned coronavirus, parvovirus, etc. Help.

>

> A friend mentioned the possibility of getting a study organized to

further explore the possibility of West Nile Infection in more

families/children. I think this is critical.

>

> And so the lesson here is: Mothers/Parents PERSIST! Follow our God

given Mother/Parent Instinct! Regardless of what the professionals and

mainstream scientists/doctors tell us....persist! If they say it's not

possible. Persist!

>

> Suzan

>

[Guest guest]

So odd this is mentioned. May be coincidental but my son who is affected with

autism as a regression case also swelled terribly when bitten by mosquitoes. At

the time we lived in southern FL but the year he became ill he was bitten

several times and swelled so much he became black and blue from it, the kind of

bruise that lasts over a week and changes colors as it fades. I always have

wondered about those bites and how odd they were. He is eight now and they are

still in my mind from the time he had just turned two.

> >

> > Dear Listmates:

> >

> > I just received my son's test results from CLONGEN LAB in land and my

son is POSTIIVE for West Nile Virus.

> >

> > He was so glaringly red hot positive that his result was TEN times the

control. The lab said he WAS the control.

> >

> > I have the book The Polio Paradox. I collect books having to do with

infectious diseases, vaccination, etc. and this one caught my eye. I'd only ever

had time to skim it but I came upon a page describing a Post West Nile Syndrome

about a year or so ago. The notion of a CHRONIC form of West Nile was new to me

and over the past year and a half I've wondered if this might be a part of my

son's disease picture. I'd mentioned it to several of his physicians over the

years and of course they rolled their eyes at me. Why wouldn't they? They are

always rolling their eyes at me.

> >

> >

http://books.google.com/books?id=t8i4e_q3Gj0C & pg=PA301 & lpg=PA301 & dq=Dr.+Bruno+ch\

ronic+west+nile+virus & source=bl & ots=i24k6ynk-I & sig=p8b3D-18SMUxn5ZRvNyKzS6g9W0 & h\

l=en & ei=baPkStqrNofstgOF7sH6CA & sa=X & oi=book_result & ct=result & resnum=2 & ved=0CA8Q6\

AEwAQ#v=onepage & q= & f=false

> >

> >

> > http://www.prohealth.com/me-cfs/library/showarticle.cfm?id=3938 & t=CFIDS_FM#

> >

> > When I saw West Nile Virus on the menu at Clongen Labs and that it would be

run via REAL TIME PCR, I jumped at the chance to explore this further. My son's

doctor signed the req. without blinking and yet when the lab received the

samples they truly felt the West Nile test was not warranted explaining that it

was a self limiting disease and that testing for it would not provide useful

information. I didn't want to challenge them and so reluctantly agreed to remove

it from the requisition. That night I could not sleep. I was obsessing over the

WNV test and I knew then that I HAD to insist it be run. I sent the lab the

following links and they admitted it was an intersting possibility. I asserted

that I wanted the test put back into the requisition and they ran it yesterday.

> >

> > The entire lab was blown away by the results. They ran the assay four times

via Real Time PCR to ensure the results were correct. Each time, a red hot

positive resulted. Then they ran it again via regular PCR and again, got a very

strong positive.

> >

> > On our farm in Florida, Aedes Aegypti mosquitoes abound. Their long

thigh-high, black and white stockings are their trademarks. Whenever my son

sustains a bite it is followed by an enormous 3 " to 4 " red, raised welt which

takes DAYS to resolve. We have all been exposed to West Nile. All of my horses

showed antibodies to West Nile but were never vaccinated for the disease.

> >

> > This is uncharted territory. The CDC does not recognize CHRONIC West Nile.

If my son's physician were to report it as it IS a reportable disease...what

exactly do we report? Hi, I'd like to report a case of chronic West Nile Virus.

They would laugh her off the phone. There is no ICD-9 for this either.

> >

> > And what experience, if any, do any of the lyme literate docs have with

treating both Lyme AND active West Nile Virus in the same patient. And how many

other Mothers and Children might be suffering from this in the way my son is

suffering and yet their doctors assume there is no such thing or even a remote

possibility of ACTIVE West Nile Infection....assuming it a scientific

impossibility. The lab thought this was the case.

> >

> > My son is also positive for EBV and HHV-7 but not 6.

> >

> > So viruses are obviously playing a HUGE role in his overall disease picture.

> >

> > Please pursue this with your physicians. After seeing this in my son I

regret that I did not push to get this done earlier as it had been on my mind

for a very long time. I even asked my neighbor in Florida if there was such a

thing as Chronic West Nile so it's been ping ponging around in my head for such

a long time.

> >

> > I shudder to think of the months and years that would have passed without

this ever being detected as NO doctor would have ordered this for my son. Not in

a million years.

> >

> > I feel almost paralyzed with fear. It seems impossible that my small child

of 12 years old can have all of these microbes actively infecting his precious

body. It seems surreal like a terrible nightmare. Lyme, Mold, EBV, HHV-7, West

Nile Virus, possible Babesia and Bartonella. It is too horrible to imagine or

wrap my brain around. Not to mention my son's genetic weaknesses.

> >

> > But just like the day I received his CDC positive Lyme test from

IgeneX......as devasted as you are, there is a wave of relief which washes over

you, that you have received yet another crucial piece of the puzzle.

> >

> > A friend mentioned the possibility of using LDM-100 and I did find one

reference/blurb about a Dr. kson in Gaineville, Florida who has used LDM-100

in the treatment of West Nile in a teenager. Oddly enough this was my doctor for

a brief period while we were in Florida.

> >

> > I want to stress that we left Florida in late October 2007. The last

exposure my son ever had to Aedes Aegypti was in the summer of 2007. Since that

time he has not been bitten again by these mosquitoes. So there is absolutely NO

possibility that this is a recent or acute infection. This is a years long,

progressive and chronic infection.

> >

> > We have tested for CMV, Herpes 6 and 7, EBV and West Nile Virus. My son is

positive for EBV, HHV-7 and WNV.

> >

> > Are there any other viruses I should test in addition to those above. A

friend mentioned coronavirus, parvovirus, etc. Help.

> >

> > A friend mentioned the possibility of getting a study organized to further

explore the possibility of West Nile Infection in more families/children. I

think this is critical.

> >

> > And so the lesson here is: Mothers/Parents PERSIST! Follow our God given

Mother/Parent Instinct! Regardless of what the professionals and mainstream

scientists/doctors tell us....persist! If they say it's not possible. Persist!

> >

> > Suzan

> >

>

[Guest guest]

Hi Eva:

I do hope you will consider getting your son tested. I believe very strongly

that we have made a significant discovery regarding the existence of a CHRONIC

form of West Nile disease and it very well may be a CO-INFECTION of lyme disease

but NO one is testing for it. I have not been able to find any expert/doctor who

understands this disease (west nile) or knows how to treat it either alone or in

the presence of Lyme and all the other co-infections. The notion of a CRHONIC

form of West Nile is new to science and testing for this virus needs to be right

up there in the top five microbes tested for when exploring Lyme and

Co-Infections.

West Nile can be a very, very dangerous virus/infection. The suppression of the

immune system by Lyme and co-infections may be preventing the body from mounting

an adequate response to it's presence and thus allowing the WNV to become

chronic in an immunosuppressed individual.

I urge you to call CLONGEN LABS in land:

or www.clongen.com

and educate yourself further regarding what you need to do to pursue testing. I

merely filled out their requisition which I'd downloaded during the summer but

failed to pursue the testing for a variety of reasons until last week when we

all got the shock of our lives. Since that time (summer) they've removed West

Nile from their current requisition forms and the former requisition form is no

longer available on their site. Since my son's smoking hot positive West Nile

result via Real Time PCR they are considering putting it back on the

requisition.

I urge you to pursue this Eva.

Take care,

Suzan

> > >

> > > Dear Listmates:

> > >

> > > I just received my son's test results from CLONGEN LAB in land and my

son is POSTIIVE for West Nile Virus.

> > >

> > > He was so glaringly red hot positive that his result was TEN times the

control. The lab said he WAS the control.

> > >

> > > I have the book The Polio Paradox. I collect books having to do with

infectious diseases, vaccination, etc. and this one caught my eye. I'd only ever

had time to skim it but I came upon a page describing a Post West Nile Syndrome

about a year or so ago. The notion of a CHRONIC form of West Nile was new to me

and over the past year and a half I've wondered if this might be a part of my

son's disease picture. I'd mentioned it to several of his physicians over the

years and of course they rolled their eyes at me. Why wouldn't they? They are

always rolling their eyes at me.

> > >

> > >

http://books.google.com/books?id=t8i4e_q3Gj0C & pg=PA301 & lpg=PA301 & dq=Dr.+Bruno+ch\

ronic+west+nile+virus & source=bl & ots=i24k6ynk-I & sig=p8b3D-18SMUxn5ZRvNyKzS6g9W0 & h\

l=en & ei=baPkStqrNofstgOF7sH6CA & sa=X & oi=book_result & ct=result & resnum=2 & ved=0CA8Q6\

AEwAQ#v=onepage & q= & f=false

> > >

> > >

> > >

http://www.prohealth.com/me-cfs/library/showarticle.cfm?id=3938 & t=CFIDS_FM#

> > >

> > > When I saw West Nile Virus on the menu at Clongen Labs and that it would

be run via REAL TIME PCR, I jumped at the chance to explore this further. My

son's doctor signed the req. without blinking and yet when the lab received the

samples they truly felt the West Nile test was not warranted explaining that it

was a self limiting disease and that testing for it would not provide useful

information. I didn't want to challenge them and so reluctantly agreed to remove

it from the requisition. That night I could not sleep. I was obsessing over the

WNV test and I knew then that I HAD to insist it be run. I sent the lab the

following links and they admitted it was an intersting possibility. I asserted

that I wanted the test put back into the requisition and they ran it yesterday.

> > >

> > > The entire lab was blown away by the results. They ran the assay four

times via Real Time PCR to ensure the results were correct. Each time, a red hot

positive resulted. Then they ran it again via regular PCR and again, got a very

strong positive.

> > >

> > > On our farm in Florida, Aedes Aegypti mosquitoes abound. Their long

thigh-high, black and white stockings are their trademarks. Whenever my son

sustains a bite it is followed by an enormous 3 " to 4 " red, raised welt which

takes DAYS to resolve. We have all been exposed to West Nile. All of my horses

showed antibodies to West Nile but were never vaccinated for the disease.

> > >

> > > This is uncharted territory. The CDC does not recognize CHRONIC West Nile.

If my son's physician were to report it as it IS a reportable disease...what

exactly do we report? Hi, I'd like to report a case of chronic West Nile Virus.

They would laugh her off the phone. There is no ICD-9 for this either.

> > >

> > > And what experience, if any, do any of the lyme literate docs have with

treating both Lyme AND active West Nile Virus in the same patient. And how many

other Mothers and Children might be suffering from this in the way my son is

suffering and yet their doctors assume there is no such thing or even a remote

possibility of ACTIVE West Nile Infection....assuming it a scientific

impossibility. The lab thought this was the case.

> > >

> > > My son is also positive for EBV and HHV-7 but not 6.

> > >

> > > So viruses are obviously playing a HUGE role in his overall disease

picture.

> > >

> > > Please pursue this with your physicians. After seeing this in my son I

regret that I did not push to get this done earlier as it had been on my mind

for a very long time. I even asked my neighbor in Florida if there was such a

thing as Chronic West Nile so it's been ping ponging around in my head for such

a long time.

> > >

> > > I shudder to think of the months and years that would have passed without

this ever being detected as NO doctor would have ordered this for my son. Not in

a million years.

> > >

> > > I feel almost paralyzed with fear. It seems impossible that my small child

of 12 years old can have all of these microbes actively infecting his precious

body. It seems surreal like a terrible nightmare. Lyme, Mold, EBV, HHV-7, West

Nile Virus, possible Babesia and Bartonella. It is too horrible to imagine or

wrap my brain around. Not to mention my son's genetic weaknesses.

> > >

> > > But just like the day I received his CDC positive Lyme test from

IgeneX......as devasted as you are, there is a wave of relief which washes over

you, that you have received yet another crucial piece of the puzzle.

> > >

> > > A friend mentioned the possibility of using LDM-100 and I did find one

reference/blurb about a Dr. kson in Gaineville, Florida who has used LDM-100

in the treatment of West Nile in a teenager. Oddly enough this was my doctor for

a brief period while we were in Florida.

> > >

> > > I want to stress that we left Florida in late October 2007. The last

exposure my son ever had to Aedes Aegypti was in the summer of 2007. Since that

time he has not been bitten again by these mosquitoes. So there is absolutely NO

possibility that this is a recent or acute infection. This is a years long,

progressive and chronic infection.

> > >

> > > We have tested for CMV, Herpes 6 and 7, EBV and West Nile Virus. My son is

positive for EBV, HHV-7 and WNV.

> > >

> > > Are there any other viruses I should test in addition to those above. A

friend mentioned coronavirus, parvovirus, etc. Help.

> > >

> > > A friend mentioned the possibility of getting a study organized to further

explore the possibility of West Nile Infection in more families/children. I

think this is critical.

> > >

> > > And so the lesson here is: Mothers/Parents PERSIST! Follow our God given

Mother/Parent Instinct! Regardless of what the professionals and mainstream

scientists/doctors tell us....persist! If they say it's not possible. Persist!

> > >

> > > Suzan

> > >

> >

>

[Guest guest]

How do you treat WNV? I sometimes find trying to treat something as a way to

see if it is a possible stressor.

BTW, I never knew I had Rocky Mountain Spotted Fever until I broke out in it

after taking LDM100.

> > > >

> > > > Dear Listmates:

> > > >

> > > > I just received my son's test results from CLONGEN LAB in land and

my son is POSTIIVE for West Nile Virus.

> > > >

> > > > He was so glaringly red hot positive that his result was TEN times the

control. The lab said he WAS the control.

> > > >

> > > > I have the book The Polio Paradox. I collect books having to do with

infectious diseases, vaccination, etc. and this one caught my eye. I'd only ever

had time to skim it but I came upon a page describing a Post West Nile Syndrome

about a year or so ago. The notion of a CHRONIC form of West Nile was new to me

and over the past year and a half I've wondered if this might be a part of my

son's disease picture. I'd mentioned it to several of his physicians over the

years and of course they rolled their eyes at me. Why wouldn't they? They are

always rolling their eyes at me.

> > > >

> > > >

http://books.google.com/books?id=t8i4e_q3Gj0C & pg=PA301 & lpg=PA301 & dq=Dr.+Bruno+ch\

ronic+west+nile+virus & source=bl & ots=i24k6ynk-I & sig=p8b3D-18SMUxn5ZRvNyKzS6g9W0 & h\

l=en & ei=baPkStqrNofstgOF7sH6CA & sa=X & oi=book_result & ct=result & resnum=2 & ved=0CA8Q6\

AEwAQ#v=onepage & q= & f=false

> > > >

> > > >

> > > >

http://www.prohealth.com/me-cfs/library/showarticle.cfm?id=3938 & t=CFIDS_FM#

> > > >

> > > > When I saw West Nile Virus on the menu at Clongen Labs and that it would

be run via REAL TIME PCR, I jumped at the chance to explore this further. My

son's doctor signed the req. without blinking and yet when the lab received the

samples they truly felt the West Nile test was not warranted explaining that it

was a self limiting disease and that testing for it would not provide useful

information. I didn't want to challenge them and so reluctantly agreed to remove

it from the requisition. That night I could not sleep. I was obsessing over the

WNV test and I knew then that I HAD to insist it be run. I sent the lab the

following links and they admitted it was an intersting possibility. I asserted

that I wanted the test put back into the requisition and they ran it yesterday.

> > > >

> > > > The entire lab was blown away by the results. They ran the assay four

times via Real Time PCR to ensure the results were correct. Each time, a red hot

positive resulted. Then they ran it again via regular PCR and again, got a very

strong positive.

> > > >

> > > > On our farm in Florida, Aedes Aegypti mosquitoes abound. Their long

thigh-high, black and white stockings are their trademarks. Whenever my son

sustains a bite it is followed by an enormous 3 " to 4 " red, raised welt which

takes DAYS to resolve. We have all been exposed to West Nile. All of my horses

showed antibodies to West Nile but were never vaccinated for the disease.

> > > >

> > > > This is uncharted territory. The CDC does not recognize CHRONIC West

Nile. If my son's physician were to report it as it IS a reportable

disease...what exactly do we report? Hi, I'd like to report a case of chronic

West Nile Virus. They would laugh her off the phone. There is no ICD-9 for this

either.

> > > >

> > > > And what experience, if any, do any of the lyme literate docs have with

treating both Lyme AND active West Nile Virus in the same patient. And how many

other Mothers and Children might be suffering from this in the way my son is

suffering and yet their doctors assume there is no such thing or even a remote

possibility of ACTIVE West Nile Infection....assuming it a scientific

impossibility. The lab thought this was the case.

> > > >

> > > > My son is also positive for EBV and HHV-7 but not 6.

> > > >

> > > > So viruses are obviously playing a HUGE role in his overall disease

picture.

> > > >

> > > > Please pursue this with your physicians. After seeing this in my son I

regret that I did not push to get this done earlier as it had been on my mind

for a very long time. I even asked my neighbor in Florida if there was such a

thing as Chronic West Nile so it's been ping ponging around in my head for such

a long time.

> > > >

> > > > I shudder to think of the months and years that would have passed

without this ever being detected as NO doctor would have ordered this for my

son. Not in a million years.

> > > >

> > > > I feel almost paralyzed with fear. It seems impossible that my small

child of 12 years old can have all of these microbes actively infecting his

precious body. It seems surreal like a terrible nightmare. Lyme, Mold, EBV,

HHV-7, West Nile Virus, possible Babesia and Bartonella. It is too horrible to

imagine or wrap my brain around. Not to mention my son's genetic weaknesses.

> > > >

> > > > But just like the day I received his CDC positive Lyme test from

IgeneX......as devasted as you are, there is a wave of relief which washes over

you, that you have received yet another crucial piece of the puzzle.

> > > >

> > > > A friend mentioned the possibility of using LDM-100 and I did find one

reference/blurb about a Dr. kson in Gaineville, Florida who has used LDM-100

in the treatment of West Nile in a teenager. Oddly enough this was my doctor for

a brief period while we were in Florida.

> > > >

> > > > I want to stress that we left Florida in late October 2007. The last

exposure my son ever had to Aedes Aegypti was in the summer of 2007. Since that

time he has not been bitten again by these mosquitoes. So there is absolutely NO

possibility that this is a recent or acute infection. This is a years long,

progressive and chronic infection.

> > > >

> > > > We have tested for CMV, Herpes 6 and 7, EBV and West Nile Virus. My son

is positive for EBV, HHV-7 and WNV.

> > > >

> > > > Are there any other viruses I should test in addition to those above. A

friend mentioned coronavirus, parvovirus, etc. Help.

> > > >

> > > > A friend mentioned the possibility of getting a study organized to

further explore the possibility of West Nile Infection in more

families/children. I think this is critical.

> > > >

> > > > And so the lesson here is: Mothers/Parents PERSIST! Follow our God given

Mother/Parent Instinct! Regardless of what the professionals and mainstream

scientists/doctors tell us....persist! If they say it's not possible. Persist!

> > > >

> > > > Suzan

> > > >

> > >

> >

>

[Guest guest]

Hi Caryn:

That is the question of the millenium isn't it. Now that we've uncovered

this.....what do we do about it? Ribavirin is the conventional treatment of

choice but is not a drug I could ever give my son. Anemia is one of the severe

side effects and my son's Ferritin hit a new low of 12 today. So that's out. And

no one knows what the potential interaction of that drug might be when Borrelia

and possible bart and babes are part of the picture. It's an antiviral and those

are not viruses of course but I am not taking anything for granted anymore. I've

now spoken to four doctors (LLMDs) and three infectious disease specialists and

no one knows what to do about this. None have heard of CHRONIC WEST NILE. That

sure instills confidence doesn't it?

I am banking on LDM-100 and Plant Stem Cells to get my son to a better place.

Re-test and see where he is after a few months. We are now running quantitative

studies as the Real Time PCR is qualitative and not quantitative. Will share

those results too.

I've been thinking of you non-stop Caryn as we go through this and about your

journey with LDM and the viruses you cleared. I am wondering if West Nile was

part of your picture and if it might be a part of your son's picture. Something

to consider.

Every single person with Lyme Disease and/or chronic fatigue syndrome, CFIDS,

Fibromyalgia, autism needs to put this virus on their radar. Because it is

mosquito borne it is MUCH more easily transmitted than Lyme. And if it is true

that lyme disease is now being found in mosquitos, well, I just don't know what

to do about it all. It's an overwhelming thought.

Hugs.

Suzan

> > > > >

> > > > > Dear Listmates:

> > > > >

> > > > > I just received my son's test results from CLONGEN LAB in land and

my son is POSTIIVE for West Nile Virus.

> > > > >

> > > > > He was so glaringly red hot positive that his result was TEN times the

control. The lab said he WAS the control.

> > > > >

> > > > > I have the book The Polio Paradox. I collect books having to do with

infectious diseases, vaccination, etc. and this one caught my eye. I'd only ever

had time to skim it but I came upon a page describing a Post West Nile Syndrome

about a year or so ago. The notion of a CHRONIC form of West Nile was new to me

and over the past year and a half I've wondered if this might be a part of my

son's disease picture. I'd mentioned it to several of his physicians over the

years and of course they rolled their eyes at me. Why wouldn't they? They are

always rolling their eyes at me.

> > > > >

> > > > >

http://books.google.com/books?id=t8i4e_q3Gj0C & pg=PA301 & lpg=PA301 & dq=Dr.+Bruno+ch\

ronic+west+nile+virus & source=bl & ots=i24k6ynk-I & sig=p8b3D-18SMUxn5ZRvNyKzS6g9W0 & h\

l=en & ei=baPkStqrNofstgOF7sH6CA & sa=X & oi=book_result & ct=result & resnum=2 & ved=0CA8Q6\

AEwAQ#v=onepage & q= & f=false

> > > > >

> > > > >

> > > > >

http://www.prohealth.com/me-cfs/library/showarticle.cfm?id=3938 & t=CFIDS_FM#

> > > > >

> > > > > When I saw West Nile Virus on the menu at Clongen Labs and that it

would be run via REAL TIME PCR, I jumped at the chance to explore this further.

My son's doctor signed the req. without blinking and yet when the lab received

the samples they truly felt the West Nile test was not warranted explaining that

it was a self limiting disease and that testing for it would not provide useful

information. I didn't want to challenge them and so reluctantly agreed to remove

it from the requisition. That night I could not sleep. I was obsessing over the

WNV test and I knew then that I HAD to insist it be run. I sent the lab the

following links and they admitted it was an intersting possibility. I asserted

that I wanted the test put back into the requisition and they ran it yesterday.

> > > > >

> > > > > The entire lab was blown away by the results. They ran the assay four

times via Real Time PCR to ensure the results were correct. Each time, a red hot

positive resulted. Then they ran it again via regular PCR and again, got a very

strong positive.

> > > > >

> > > > > On our farm in Florida, Aedes Aegypti mosquitoes abound. Their long

thigh-high, black and white stockings are their trademarks. Whenever my son

sustains a bite it is followed by an enormous 3 " to 4 " red, raised welt which

takes DAYS to resolve. We have all been exposed to West Nile. All of my horses

showed antibodies to West Nile but were never vaccinated for the disease.

> > > > >

> > > > > This is uncharted territory. The CDC does not recognize CHRONIC West

Nile. If my son's physician were to report it as it IS a reportable

disease...what exactly do we report? Hi, I'd like to report a case of chronic

West Nile Virus. They would laugh her off the phone. There is no ICD-9 for this

either.

> > > > >

> > > > > And what experience, if any, do any of the lyme literate docs have

with treating both Lyme AND active West Nile Virus in the same patient. And how

many other Mothers and Children might be suffering from this in the way my son

is suffering and yet their doctors assume there is no such thing or even a

remote possibility of ACTIVE West Nile Infection....assuming it a scientific

impossibility. The lab thought this was the case.

> > > > >

> > > > > My son is also positive for EBV and HHV-7 but not 6.

> > > > >

> > > > > So viruses are obviously playing a HUGE role in his overall disease

picture.

> > > > >

> > > > > Please pursue this with your physicians. After seeing this in my son I

regret that I did not push to get this done earlier as it had been on my mind

for a very long time. I even asked my neighbor in Florida if there was such a

thing as Chronic West Nile so it's been ping ponging around in my head for such

a long time.

> > > > >

> > > > > I shudder to think of the months and years that would have passed

without this ever being detected as NO doctor would have ordered this for my

son. Not in a million years.

> > > > >

> > > > > I feel almost paralyzed with fear. It seems impossible that my small

child of 12 years old can have all of these microbes actively infecting his

precious body. It seems surreal like a terrible nightmare. Lyme, Mold, EBV,

HHV-7, West Nile Virus, possible Babesia and Bartonella. It is too horrible to

imagine or wrap my brain around. Not to mention my son's genetic weaknesses.

> > > > >

> > > > > But just like the day I received his CDC positive Lyme test from

IgeneX......as devasted as you are, there is a wave of relief which washes over

you, that you have received yet another crucial piece of the puzzle.

> > > > >

> > > > > A friend mentioned the possibility of using LDM-100 and I did find one

reference/blurb about a Dr. kson in Gaineville, Florida who has used LDM-100

in the treatment of West Nile in a teenager. Oddly enough this was my doctor for

a brief period while we were in Florida.

> > > > >

> > > > > I want to stress that we left Florida in late October 2007. The last

exposure my son ever had to Aedes Aegypti was in the summer of 2007. Since that

time he has not been bitten again by these mosquitoes. So there is absolutely NO

possibility that this is a recent or acute infection. This is a years long,

progressive and chronic infection.

> > > > >

> > > > > We have tested for CMV, Herpes 6 and 7, EBV and West Nile Virus. My

son is positive for EBV, HHV-7 and WNV.

> > > > >

> > > > > Are there any other viruses I should test in addition to those above.

A friend mentioned coronavirus, parvovirus, etc. Help.

> > > > >

> > > > > A friend mentioned the possibility of getting a study organized to

further explore the possibility of West Nile Infection in more

families/children. I think this is critical.

> > > > >

> > > > > And so the lesson here is: Mothers/Parents PERSIST! Follow our God

given Mother/Parent Instinct! Regardless of what the professionals and

mainstream scientists/doctors tell us....persist! If they say it's not possible.

Persist!

> > > > >

> > > > > Suzan

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thanks Suzan. Please let us know what you find to work for WNV. I am sure you

will be the one to find a good treatment. Then, we will all let the LLMDs know.

)

Caryn

> > > > > >

> > > > > > Dear Listmates:

> > > > > >

> > > > > > I just received my son's test results from CLONGEN LAB in land

and my son is POSTIIVE for West Nile Virus.

> > > > > >

> > > > > > He was so glaringly red hot positive that his result was TEN times

the control. The lab said he WAS the control.

> > > > > >

> > > > > > I have the book The Polio Paradox. I collect books having to do with

infectious diseases, vaccination, etc. and this one caught my eye. I'd only ever

had time to skim it but I came upon a page describing a Post West Nile Syndrome

about a year or so ago. The notion of a CHRONIC form of West Nile was new to me

and over the past year and a half I've wondered if this might be a part of my

son's disease picture. I'd mentioned it to several of his physicians over the

years and of course they rolled their eyes at me. Why wouldn't they? They are

always rolling their eyes at me.

> > > > > >

> > > > > >

http://books.google.com/books?id=t8i4e_q3Gj0C & pg=PA301 & lpg=PA301 & dq=Dr.+Bruno+ch\

ronic+west+nile+virus & source=bl & ots=i24k6ynk-I & sig=p8b3D-18SMUxn5ZRvNyKzS6g9W0 & h\

l=en & ei=baPkStqrNofstgOF7sH6CA & sa=X & oi=book_result & ct=result & resnum=2 & ved=0CA8Q6\

AEwAQ#v=onepage & q= & f=false

> > > > > >

> > > > > >

> > > > > >

http://www.prohealth.com/me-cfs/library/showarticle.cfm?id=3938 & t=CFIDS_FM#

> > > > > >

> > > > > > When I saw West Nile Virus on the menu at Clongen Labs and that it

would be run via REAL TIME PCR, I jumped at the chance to explore this further.

My son's doctor signed the req. without blinking and yet when the lab received

the samples they truly felt the West Nile test was not warranted explaining that

it was a self limiting disease and that testing for it would not provide useful

information. I didn't want to challenge them and so reluctantly agreed to remove

it from the requisition. That night I could not sleep. I was obsessing over the

WNV test and I knew then that I HAD to insist it be run. I sent the lab the

following links and they admitted it was an intersting possibility. I asserted

that I wanted the test put back into the requisition and they ran it yesterday.

> > > > > >

> > > > > > The entire lab was blown away by the results. They ran the assay

four times via Real Time PCR to ensure the results were correct. Each time, a

red hot positive resulted. Then they ran it again via regular PCR and again, got

a very strong positive.

> > > > > >

> > > > > > On our farm in Florida, Aedes Aegypti mosquitoes abound. Their long

thigh-high, black and white stockings are their trademarks. Whenever my son

sustains a bite it is followed by an enormous 3 " to 4 " red, raised welt which

takes DAYS to resolve. We have all been exposed to West Nile. All of my horses

showed antibodies to West Nile but were never vaccinated for the disease.

> > > > > >

> > > > > > This is uncharted territory. The CDC does not recognize CHRONIC West

Nile. If my son's physician were to report it as it IS a reportable

disease...what exactly do we report? Hi, I'd like to report a case of chronic

West Nile Virus. They would laugh her off the phone. There is no ICD-9 for this

either.

> > > > > >

> > > > > > And what experience, if any, do any of the lyme literate docs have

with treating both Lyme AND active West Nile Virus in the same patient. And how

many other Mothers and Children might be suffering from this in the way my son

is suffering and yet their doctors assume there is no such thing or even a

remote possibility of ACTIVE West Nile Infection....assuming it a scientific

impossibility. The lab thought this was the case.

> > > > > >

> > > > > > My son is also positive for EBV and HHV-7 but not 6.

> > > > > >

> > > > > > So viruses are obviously playing a HUGE role in his overall disease

picture.

> > > > > >

> > > > > > Please pursue this with your physicians. After seeing this in my son

I regret that I did not push to get this done earlier as it had been on my mind

for a very long time. I even asked my neighbor in Florida if there was such a

thing as Chronic West Nile so it's been ping ponging around in my head for such

a long time.

> > > > > >

> > > > > > I shudder to think of the months and years that would have passed

without this ever being detected as NO doctor would have ordered this for my

son. Not in a million years.

> > > > > >

> > > > > > I feel almost paralyzed with fear. It seems impossible that my small

child of 12 years old can have all of these microbes actively infecting his

precious body. It seems surreal like a terrible nightmare. Lyme, Mold, EBV,

HHV-7, West Nile Virus, possible Babesia and Bartonella. It is too horrible to

imagine or wrap my brain around. Not to mention my son's genetic weaknesses.

> > > > > >

> > > > > > But just like the day I received his CDC positive Lyme test from

IgeneX......as devasted as you are, there is a wave of relief which washes over

you, that you have received yet another crucial piece of the puzzle.

> > > > > >

> > > > > > A friend mentioned the possibility of using LDM-100 and I did find

one reference/blurb about a Dr. kson in Gaineville, Florida who has used

LDM-100 in the treatment of West Nile in a teenager. Oddly enough this was my

doctor for a brief period while we were in Florida.

> > > > > >

> > > > > > I want to stress that we left Florida in late October 2007. The last

exposure my son ever had to Aedes Aegypti was in the summer of 2007. Since that

time he has not been bitten again by these mosquitoes. So there is absolutely NO

possibility that this is a recent or acute infection. This is a years long,

progressive and chronic infection.

> > > > > >

> > > > > > We have tested for CMV, Herpes 6 and 7, EBV and West Nile Virus. My

son is positive for EBV, HHV-7 and WNV.

> > > > > >

> > > > > > Are there any other viruses I should test in addition to those

above. A friend mentioned coronavirus, parvovirus, etc. Help.

> > > > > >

> > > > > > A friend mentioned the possibility of getting a study organized to

further explore the possibility of West Nile Infection in more

families/children. I think this is critical.

> > > > > >

> > > > > > And so the lesson here is: Mothers/Parents PERSIST! Follow our God

given Mother/Parent Instinct! Regardless of what the professionals and

mainstream scientists/doctors tell us....persist! If they say it's not possible.

Persist!

> > > > > >

> > > > > > Suzan

> > > > > >

> > > > >

> > > >

> > >

> >

>