RE: anyone read any good books about Fibro?

December 29, 2003

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Hi Kathy,

Ok got a pen or pencil handy ??? or maybe you just want to print

this.

When I found out I had Fibro in October first thing I did was buy

many books on it. The one I like best is called The Arthritis

Foundations's Guide to Good Living with Fibromyalgia by the arthritis

foundation. It is great. Tells you what kind of exercise to do, keep

a diary of your pain (which I have yet to do), sleep problems, and

what to ask your doctor or tell your doctor. I found out that in some

people what they eat causes pain (my doc today just told me that not

everyone has pain from what they eat) so I got a book called the The

Fibromyalgia Cookbook More than 120 easy and Delicious Recipes by

Ann . She has Fibro and this is her diet. The spelt

flour called for in this book will run you about 13 dollars for a bag

but worth it. I also got The Fibromyalgia Advocate by Devin J.

Starlanyl M.D. It is for health professionals who don't know much

about Fibro (a letter to give them...this book is to help you get

them to believe you are not crazy) and finally from the advice of my

rheumtolgist I got Fibromyalgia and Chronic Myofascial Pain a

survival manual second edition by Devin Starlanyl M.D. and Ellen

Copeland both of who have Fibro......this book tells you everything

from what drugs are use to treat Fibro to the Zone diet which I have

chosen not to do but some people do. This book is like a

textbook....lots of reading. Hope this helps you. If you need

research done let me know. I will try to find answers for you. Jenn

In Fibromyalgia_Support_Group , " kathythompsonrrt "

<mkathy_thompson@y...> wrote:

> I'm hoping you have. I'm looking for something that deals more

with

> day-to-day issues and coping with the pain.

>

> I really over-did it this month. I didn't pace myself and have

paid

> by being in bed for days and days. I think that, though I deal

with

> it intellectually, that I'm just unwilling to " let the Fibro win "

by

> curbing my stressy life. It's funny, but I'd *never* say that

> someone with emphysema was letting the disease win if they changed

> lifestyle habits to live a fuller life. Can you guys give me some

> help?

>

> Be Blessed!

>

> Kathy T.

December 29, 2003

I know your gonna think I'm nuts but staying in bed is not good , it really ruins the mucles worse. You need to keep moving even when you think you can't

JJ

anyone read any good books about Fibro?

I'm hoping you have. I'm looking for something that deals more with day-to-day issues and coping with the pain. I really over-did it this month. I didn't pace myself and have paid by being in bed for days and days. I think that, though I deal with it intellectually, that I'm just unwilling to "let the Fibro win" by curbing my stressy life. It's funny, but I'd *never* say that someone with emphysema was letting the disease win if they changed lifestyle habits to live a fuller life. Can you guys give me some help?Be Blessed!Kathy T.

December 29, 2003

Kathy,

Oh,

I can’t agree with JJ more! I’ve

suffered for nearly a decade now and I can honestly tell you that the muscles

will begin to feel worse the longer you stop using them. Of course you don’t want to overdo

to cause a major flare but lying in bed for long periods really will cause

those muscles to weaken even more. If you can keep moving even when you don’t

feel like it, you’ll have some benefits from the endorphines your body creates. Since you are in a bad shape right now I

won’t say , “jump up and go!” My humble advice would be gentle

stretching and then small walks. You

might try taking an analysis of your home……..are there

scents (smoke, perfumes, candle scents) or foods (caffeine, simple sugars,

starches) that are harming you that you didn’t even realize? Is there a

stressful relationship that is toxic to you and causing even more flares? I noticed that when I really took

inventory of things going on around me, there were

many more triggers than I had ever realized. I was once in your place, in bed for

weeks at a time and walking with a cane so please don’t think I don’t

understand the pain…I DO! It

was only through trial and error that I have come to find what works for

me. Everyone is different. This is an extremely touchy issue…….please

do not take this in any other way than I am just sharing, okay? But I have found strength in my

faith. Prayer has been really

helpful for me. It doesn’t

make physical pain disappear but emotionally and spiritually I have been much

stronger and focused positively in my daily walk which in

turns help me with handling the pain.

I may not have been of much help but I

hope you know I care! And I understand!

Bless you too!

Tina

anyone read any good books about Fibro?

I'm hoping you have. I'm looking for something

that deals more with

day-to-day issues and coping with the pain.

I really over-did it this month. I didn't

pace myself and have paid

by being in bed for days and days. I think

that, though I deal with

it intellectually, that I'm just unwilling to

" let the Fibro win " by

curbing my stressy life. It's funny, but I'd

*never* say that

someone with emphysema was letting the disease win

if they changed

lifestyle habits to live a fuller life. Can

you guys give me some

help?

Be Blessed!

Kathy T.

Yahoo!

Groups Links

·

To visit your group on the

web, go to:

http://groups.yahoo.com/group/Fibromyalgia_Support_Group/

·

December 30, 2003

Thanks for the responses. I'll look at the books and see if I can

get them.

As for the moving part.... My doctor is a big " get moving " fan, so

it's not without medical basis. The thing is that I have a physical

job and I spend about 2 days just getting over a 3 day/36 hour week.

The first day is spent sleeping, for the most part - I work nights -

and the second day is minimally mobile. I could try exercise on that

day. I can't leave the job yet, but there is some help on the

horizon because I might be able to get a management position.

The last time I worked, the pain was so bad that I couldn't take care

of my patients the way I want to. And I got nauseated by the pain

meds, so I had to take *another* pill for nausea...not that the pain

pills are working anymore. That was how I knew that I needed to make

changes.

I have to give up caffeinated coffee? Boo! I'm surrounded by

triggers, I guess. I'll look into it.

Thanks again.

Kathy T.

December 30, 2003

Kathy,

When

I read 3 day/36hr week physical, night job….I thought OUCH! That would be a trigger for sure. Are you a nurse? I can imagine that caffeine is pretty

vital for you right now if it is what helps keep you moving at work. Sounds like you are just beat by the time

you get off your 3 day “shift” and can easily find sleep for that

first day. After reading your

response I can definitely tell you aren’t the lay in

bed for days patient which is good but it sounds like

your body is SCREAMING at you right now. I pray that schedule can change for you

soon! Pain pills are a momentary

solution and can be scary if taken for an unlimited amount of time. I began needing more to “kill”

the pain. Soon I had

gained weight and my pain never truly went a way. I can definitely see why you would

desire them though---I wanted to pop a pill when I read your schedule! Ha You made me

hurt! )

The books will be a great place to start! I am now taking guaifenesin

and tizanidine as needed in case you are

curious. I used to take all kinds

of meds but found the side effects required even more medication to control and soon I

was a zombie, depressed, and in pain….it was just “existence mode.” I am a much happier person today but it

was after all hose trials and errors.