Re: Selling my parents home

[Guest guest]

Norma

Just enjoy the moments you have. The good days when

come. Many others here have loved ones who know them

up until the last day. It is not a progression that

happens to everyone, so your mom may always know you.

My mom just does not. Hope that helps.

Dena in So Cal

Mother (84) Living with LBD in NH

--- Norma Loeb/CORPHQ/NYTIMES

wrote:

> Thank you again, Dena. My mother's speech is worse

> this week. I'm

> wondering if a medication can help. Maybe there

> have been too many

> different caregivers. Maybe she needs to get out!

> She is barely making sense in most of her talking

> and can't follow conversations. But I couldn't

> believe how well she answered pointed questions by

> her doctor two weeks ago! It was amazing. She was

> beaming and answered questions after she thought

> about them. I feel like bringing her there every

> week! But it just shows me that there are

> possibilities. I just haven't tapped into them as

> yet. But I'll keep trying.

>

> I live in New York, Dena.

>

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[Guest guest]

Did he take them all off at once or gradually, one at

a time. If not, no wonder she crashed. I think my

husband worsened after we took him off Aricept after 7

years on it. They say it doesn't do that much good

after that long a time, but he did seem to worsen.

However, he also had UTIs and aspiration pneumonia,

which could have contributed.

--- Dena LEAVITT wrote:

> Hi Norma

>

> My mom was on Aricept, Namenda, Risperdal,

> Clonazapam

> and other blood pressure drugs, but the Hospice Dr.

> removed her from all last year. Then he did this her

> mind just totally went. In three weeks she could no

> longer answer a simple yes or no question. She

> cannot

> understand you and I cannot understand her to this

> day

> and it is 12 months later. She has had a few

> glimmers

> but they fade with the next breath. Yesterday, I

> asked

> her " How are you doing today, Mom? " and she said, "

> Well I thought she said so " That is a good day.

> Usually I get no response at all and she hates to

> even

> be touched now too. I cannot even hold her hand

> anymore with out her trying to get away from me. It

> just breaks my heart. So in her case removing the

> drugs was a bad thing to do, but she settling into

> her

> own world and was continent there. The good thing

> about all this is that she does not know what is

> going

> on. She does not ask to go home etc... She just

> lives

> in the shell of who she once was and continues to be

> stable and eats well. She may be like this for years

> to come.

>

> I hope this answers your question Norma

>

> Dena in So Cal

> Mother (84) Living with LBD in NH

> --- Norma Loeb/CORPHQ/NYTIMES

> wrote:

>

> > Dena,

> >

> > Can you tell me if your Mom has been on medication

> > all of this time? My Mom has been off the Reminyl

> > and Namenda for quite some time and I keep

> wondering

> > if either one might make a difference.

> >

> > Thank you, Norma

> >

> >

>

>

>

>

>

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[Guest guest]

Hi June

It was all at once. So I stupidly followed the

Doctor's orders. He felt she only had a few months to

live. So did I at that point. Anyway, it was not a

good thing for her.

Dena in So Cal

Mother (84) Living with LBD in NH

--- June Christensen

wrote:

> Did he take them all off at once or gradually, one

> at

> a time. If not, no wonder she crashed. I think my

> husband worsened after we took him off Aricept after

> 7

> years on it. They say it doesn't do that much good

> after that long a time, but he did seem to worsen.

> However, he also had UTIs and aspiration pneumonia,

> which could have contributed.

>

>

> --- Dena LEAVITT wrote:

>

> > Hi Norma

> >

> > My mom was on Aricept, Namenda, Risperdal,

> > Clonazapam

> > and other blood pressure drugs, but the Hospice

> Dr.

> > removed her from all last year. Then he did this

> her

> > mind just totally went. In three weeks she could

> no

> > longer answer a simple yes or no question. She

> > cannot

> > understand you and I cannot understand her to this

> > day

> > and it is 12 months later. She has had a few

> > glimmers

> > but they fade with the next breath. Yesterday, I

> > asked

> > her " How are you doing today, Mom? " and she said, "

> > Well I thought she said so " That is a good day.

> > Usually I get no response at all and she hates to

> > even

> > be touched now too. I cannot even hold her hand

> > anymore with out her trying to get away from me.

> It

> > just breaks my heart. So in her case removing the

> > drugs was a bad thing to do, but she settling into

> > her

> > own world and was continent there. The good thing

> > about all this is that she does not know what is

> > going

> > on. She does not ask to go home etc... She just

> > lives

> > in the shell of who she once was and continues to

> be

> > stable and eats well. She may be like this for

> years

> > to come.

> >

> > I hope this answers your question Norma

> >

> > Dena in So Cal

> > Mother (84) Living with LBD in NH

> > --- Norma Loeb/CORPHQ/NYTIMES

> > wrote:

> >

> > > Dena,

> > >

> > > Can you tell me if your Mom has been on

> medication

> > > all of this time? My Mom has been off the

> Reminyl

> > > and Namenda for quite some time and I keep

> > wondering

> > > if either one might make a difference.

> > >

> > > Thank you, Norma

> > >

> > >

> >

> >

> >

> >

> >

>

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> > It's here! Your new message!

> > Get new email alerts with the free Yahoo! Toolbar.

> >

> http://tools.search.yahoo.com/toolbar/features/mail/

> >

>

>

>

>

>

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[Guest guest]

,

Thank you for the note about a possible UTI. I don't think she has one now, but

it's worth double-checking. I changed doctors months ago because the doctor

told me she didn't have one--because she didn't have fever and wasn't urinating

frequently. But I insisted and had my sister bring in a urine specimen a few

days later. Sure enough, she had one. My sister mentioned last week that my

Mom's urine looked dark and we spoke about it. I had suggested she take a sample

in. She must have forgotten and I didn't follow up. I've been so busy arranging

for different caregivers every weekend (we have had 6 different ones), that I

wasn't focused on this.

I just called my weekday caregiver who is doing a good job. She told me her

urine has not been dark and there isn't any odor which, she said are the signs.

Do you agree with that? I'll look it up online now too.

Thanks again, Norma

[Guest guest]

Dena,

I really do enjoy the moments. They've all become special. Thank you for your

lovely words.

Where in Southern California do you live, Dena? My beloved aunt and uncle lived

in Laguna for many many years. And my cousins, with whom I usually visit

yearly, are in Manhattan Beach.

[Guest guest]

June, thanks for confirming my suspicions. I will wait till I see the new

neurologist soon to get her opinion before I do anything.

[Guest guest]

Hi Norma

I live more inland. The town is Colton. It is in the

Riverside area. I have viisted a few times with

another caregiver Stevie, she lives in Laguna Nigel.

Dena in So Cal

Mother (84) Living with LBD in NH

--- Norma Loeb/CORPHQ/NYTIMES

wrote:

> Dena,

>

> I really do enjoy the moments. They've all become

> special. Thank you for your lovely words.

>

> Where in Southern California do you live, Dena? My

> beloved aunt and uncle lived in Laguna for many many

> years. And my cousins, with whom I usually visit

> yearly, are in Manhattan Beach.

>

>

>

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