Re: New here...looking for info.

February 24, 2006

CC Go Here: http://www.ldners.org/ And Here http://www.low dose naltrexone.org/ and herehttp://www.remedyfind.com/ Edcaredockmom <caredockmom@...> wrote: Hello,I recently came across an article about LDN. My sister has had MS for about 5 yrs. My friend was just diagnosed with MS a couple weeks ago along with dealing with her Lupus. These were the reasons I was searching out info. on things. So, everything I've read sounds so promising with LDN for MS. My sister cannot tolerate any of the MS meds. that are

supposed to slow the progression of the disease. The dr's last and final med. they tried was Avonex...the first she tried was Copaxone. Too many side effects. So she felt she had to live with the fact her MS is going to progress. Without the meds she ends up in the hospital about 3 times a year because of severe exasperations. So anyway, I am truely amazed with everything I've read about LDN. Why oh why don't dr's even mention this to their patients? the ones who have MS that is. I told my sister about it yesterday and am still reading as much as I can about it. Trying to find info. she can bring to her dr. or info. she can read that will convince her this may be the life saver she needs. Also, my friend who was diagnosed 2 wks ago started Avonex this week. Talk about horrible side effects that drug gives. She hated it. But wants to believe her

dr. is doing what's best for her...making the right choices for her. I've also read that LDN helps with lupus. If this could be a miracle for her as well...helping with both her lupus and now MS. Where could I find more info. I haven't found anyone say anything bad about LDN. I've been to their website so I've read all about it there. I'd like to hear the side effects or the reasons someone wouldn't try LDN. And why dr's aren't prescribing it for MS as a key to dealing with patients with MS. My sister wondered if it was the pharmasudical companies..that maybe LDN was cheap and it would put the big companies out of business that supply those extremely expensive drugs to MS patients. Tell me more..Please... ) CC

February 24, 2006

http://www.low dose naltrexone.org/ldn_and_ms.htm

http://www.low dose naltrexone.org/index.htm

http://www.ldners.org/

Start with these. They will give you the background, and Aletha has a Welcome

package with more information. As far as reasons "why" most doctors won't

prescribe it...?? My 'former' neuro told me, after I saw immediate results, she

'thought' it was a 'placebo' effect, it was all in my head, she just 'knew' it didn't

work but was happy I thought so....we have since parted company. :-)

C.C. Jim

[low dose naltrexone] New here...looking for info.

Hello,I recently came across an article about LDN. My sister has had MS for about 5 yrs. My friend was just diagnosed with MS a couple weeks ago along with dealing with her Lupus.

February 24, 2006

If you can get a copy of the book Up the Creek with a Paddle ...

Beat MS and Many Autoimmune Disorders with Low Dose Naltrexone .. on

amazon.com or barnesandboble.com .. I would.

All the Very Best

>

> Hello,

>

> I recently came across an article about LDN. My sister has had MS

> for about 5 yrs. My friend was just diagnosed with MS a couple

> weeks ago along with dealing with her Lupus. These were the

reasons

> I was searching out info. on things. So, everything I've read

> sounds so promising with LDN for MS. My sister cannot tolerate

any

> of the MS meds. that are supposed to slow the progression of the

> disease. The dr's last and final med. they tried was Avonex...the

> first she tried was Copaxone. Too many side effects. So she felt

> she had to live with the fact her MS is going to progress.

Without

> the meds she ends up in the hospital about 3 times a year because

of

> severe exasperations.

>

> So anyway, I am truely amazed with everything I've read about

LDN.

> Why oh why don't dr's even mention this to their patients? the

ones

> who have MS that is. I told my sister about it yesterday and am

> still reading as much as I can about it. Trying to find info. she

> can bring to her dr. or info. she can read that will convince her

> this may be the life saver she needs. Also, my friend who was

> diagnosed 2 wks ago started Avonex this week. Talk about horrible

> side effects that drug gives. She hated it. But wants to believe

> her dr. is doing what's best for her...making the right choices

for

> her. I've also read that LDN helps with lupus. If this could be

a

> miracle for her as well...helping with both her lupus and now MS.

>

> Where could I find more info. I haven't found anyone say anything

> bad about LDN. I've been to their website so I've read all about

it

> there. I'd like to hear the side effects or the reasons someone

> wouldn't try LDN. And why dr's aren't prescribing it for MS as a

> key to dealing with patients with MS. My sister wondered if it

was

> the pharmasudical companies..that maybe LDN was cheap and it would

> put the big companies out of business that supply those extremely

> expensive drugs to MS patients. Tell me more..Please... )

>

> CC

>

February 25, 2006

>

> Hello,

>

> I recently came across an article about LDN. My sister has had MS

> for about 5 yrs. My friend was just diagnosed with MS a couple

> weeks ago along with dealing with her Lupus. These were the reasons

> I was searching out info. on things. So, everything I've read

> sounds so promising with LDN for MS. My sister cannot tolerate any

> of the MS meds. that are supposed to slow the progression of the

> disease. The dr's last and final med. they tried was Avonex...the

> first she tried was Copaxone. Too many side effects. So she felt

> she had to live with the fact her MS is going to progress. Without

> the meds she ends up in the hospital about 3 times a year because of

> severe exasperations.

>

> So anyway, I am truely amazed with everything I've read about LDN.

> Why oh why don't dr's even mention this to their patients? the ones

> who have MS that is. I told my sister about it yesterday and am

> still reading as much as I can about it. Trying to find info. she

> can bring to her dr. or info. she can read that will convince her

> this may be the life saver she needs. Also, my friend who was

> diagnosed 2 wks ago started Avonex this week. Talk about horrible

> side effects that drug gives. She hated it. But wants to believe

> her dr. is doing what's best for her...making the right choices for

> her. I've also read that LDN helps with lupus. If this could be a

> miracle for her as well...helping with both her lupus and now MS.

>

> Where could I find more info. I haven't found anyone say anything

> bad about LDN. I've been to their website so I've read all about it

> there. I'd like to hear the side effects or the reasons someone

> wouldn't try LDN. And why dr's aren't prescribing it for MS as a

> key to dealing with patients with MS. My sister wondered if it was

> the pharmasudical companies..that maybe LDN was cheap and it would

> put the big companies out of business that supply those extremely

> expensive drugs to MS patients. Tell me more..Please... )

>

> CC

>

=========

Visit my LDN site.

Low Dose Naltrexone Forum - Home

http://ldn.proboards3.com/index.cgi?

February 25, 2006

Hi CC, Welcome aboard! I would suggest getting the book up the

creek written by Bradely. It is her story of getting ldn for

her husband who has progressive ms. Its a very good book with tons

of info and sites to learn.

I have ms and have tried the copaxone and avonex. Your sister is

right. They had awful side effects but like alot of people I stuck

with them for as long as I could. After all doctors know best

right? I sat down one day and read the studies that gained various

abcr drugs fda approval. For avonex there was a study of 277

patients that got it fda approved. Yes there are larger studies now

but when it got approval it was based on only 277 people. The 277

people who stayed on it were the ones it worked for. It does not

work for everyone. Also the study relied upon mri's to show that it

worked. Mri's are not a good diagnostic tool as they can change day

to day hour to hour even. I read time and time again that these

injectable meds. were modest at best. I asked my neuro about this.

She agreed they were only modest at best but were all they had.

Long story short I went off the avonex and started ldn. At first I

had some sleepless nights but let me tell you nothing like what the

injectable meds. made me feel.

I was lucky that I got abit of symptom improvement. Not everyone

does. LDN is to stop progression but some do get symptom

improvement. I have less fatigue and an improvement in cognitive

impairment.

Read all you can at the main site. Be prepared to hear no by your

doc. Some will not prescribe it because they want to see trials.

Trouble is trials are very expensive. Also LDN has already been

tested for efficacy. It was used for heroine addiction at a much

higher dose. Also LDN has gone generic so there is not alot of

money to be had. My own neuro. even told me this.

A close friend of mine with als has had fantastic results. I don't

see why it wouldn't help for your friends fibro.

If you want email me at my addy and I can try to explain more

or you could join a small group we have for chronic illness. I am a

rotten typer and it takes me so long to type something but at the

group there are more who can butt in. Its a small group so easier

to keep track.

Good luck!

>

> Hello,

>

> I recently came across an article about LDN. My sister has had MS

> for about 5 yrs. My friend was just diagnosed with MS a couple

> weeks ago along with dealing with her Lupus. These were the

reasons

> I was searching out info. on things. So, everything I've read

> sounds so promising with LDN for MS. My sister cannot tolerate

any

> of the MS meds. that are supposed to slow the progression of the

> disease. The dr's last and final med. they tried was Avonex...the

> first she tried was Copaxone. Too many side effects. So she felt

> she had to live with the fact her MS is going to progress.

Without

> the meds she ends up in the hospital about 3 times a year because

of

> severe exasperations.

>

> So anyway, I am truely amazed with everything I've read about

LDN.

> Why oh why don't dr's even mention this to their patients? the

ones

> who have MS that is. I told my sister about it yesterday and am

> still reading as much as I can about it. Trying to find info. she

> can bring to her dr. or info. she can read that will convince her

> this may be the life saver she needs. Also, my friend who was

> diagnosed 2 wks ago started Avonex this week. Talk about horrible

> side effects that drug gives. She hated it. But wants to believe

> her dr. is doing what's best for her...making the right choices

for

> her. I've also read that LDN helps with lupus. If this could be

a

> miracle for her as well...helping with both her lupus and now MS.

>

> Where could I find more info. I haven't found anyone say anything

> bad about LDN. I've been to their website so I've read all about

it

> there. I'd like to hear the side effects or the reasons someone

> wouldn't try LDN. And why dr's aren't prescribing it for MS as a

> key to dealing with patients with MS. My sister wondered if it

was

> the pharmasudical companies..that maybe LDN was cheap and it would

> put the big companies out of business that supply those extremely

> expensive drugs to MS patients. Tell me more..Please... )

>

> CC

>

February 25, 2006

Hi CC,

I will be sending you a copy of the Welcome e-mail for LDN. It should be

there shortly.

Excellent choice looking into LDN

Aletha