Four Months on LDN Report

[Guest guest]

Friday, February 24, 2006 ~ 8:36:00 AM COMPLETED MY FOURTH MONTH ON "HOME-MADE" LDN ~ Breif history of chronic illness pre-LDN, then, (without further medical tests) my subjective observation/account today: As informed by doctors following a variety ofmedical testing: Unilateral slipped capital femoral epiphysis - Reductions and full body spika cast x 2, 8mos. then 6mos., no invasive surgery in either event. 1961 Prognosis ~ (Orthopedist stated, "unknown, but arthritis is certain later in life"). Arthritis - degenerative disc/joints - Osteo and early rheumatoid - pain for 30 plus years - Osteoporosis - (lost 3" from height, 5'8" to 5'5") Narcolepsy/Cataplexy ~ EDS noted as young teen; but dx took till 1993 (30 years), Rx'd meds did not work, (1995 began trial of Modafinil study/now called Provigil) stabilized, (noted, "pain relief", during trial of this med

as well as alertness). (This observation could not be documented since it was a double blind test trial specifically for use in Narcolepsy)....Provigil has since been also used as an "off lable" pain relief, etc., and med is widely Rx'd by doctors. Seasonal, Mold, and Med. Allergies Hypertension COPD Multiple Sclerosis - 6/9/05 diagnosis ~ (Falls noted since 1975) Cardiomegally - resulted from (multiple allergic reactions/angio edema over two years of receiving wrong BP med) Arterial plaques - left leg, doppler diagnosis - Constant pain in all major joints, intermittently and increasingly frequent in fingers and toes, chronic back pain, lost of most cartilage left hip and both knees, falls, choking, lost voice for two months, lost eyesight (white field only) several times on awakening...returned within 5 to 20 minutes, shooting (electrical) pains through legs, arms, neck, or other areas, cannot

stand for 30 minutes (abdominal tightness and stabbing pain), dropping things, frequent slurred speech, occasionally drool (eeeewwwww!), depressed, unable to concentrate well (foggy brain), dizzy, palpitations, nausea, extremely fatigued and sleepiness more often poorly controlled by Provigil, bowel and bladder problems, unable to sleep through night often waking 4 or 5 times - often from pain, usually for bthrm, frequent UTI and sinus infections. Walking is slow, stiff and require assist from a cane, pain and exhaustion made me feel useless taking a long time with rests to perform activities of daily living. Initial MRI report October 04 eluded to MS as most probable. Began to wean from arthritis, allergy, and pain meds I thought might be causing edema and unstable BP. Increased vitamin/mineral and amino acid inake, used mostly asperin and muscle rubs for pain. Started LDN last weekend in October 05, increased calcium, mag., zinc, selenium, CoQ10,

BVitamins, Fish and Flax oil, Folic, Betacarotene, Vit C, 2pkts. Knox gelatin daily in juice, and whatever other supplements I can afford - Best explanation of personal LDN effectiveness: On a pain/problem scale of "10" being the worst (above), then my present level of pain/problems after four months on LDN would be a "6", with the most significant benefits in increased energy, better concentration, weight loss, and with the addition of "soap", finally, better sleep!!! I'm sure there is something I haven't covered but considering the improvement I've felt I think LDN is GREAT and I intend to stay the course with patience. I would like to add some form of physical therapy but do not have the financial resources to do so, and insurance has cut back on coverage of meds and services. Have not heard from my neuro since I refused the LP he scheduled last summer to determine level of CRAB meds he wanted me to take, so I do not think he'd be willing to suggest

anything else beneficial covered by Ins.or not. He did not Rx my LDN. Sorry this isn't as brief as I'd planned, but it is as complete as I could get it. Gigi Held

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[Guest guest]

Thank you for your update. My Mom has been on LDN for

almost a month. She has been without her norcotic

pain killder med and it hasn't been easy. Your update

gives me hope. Kind regards, Sheng Lin

--- gigi held <georgina374@...> wrote:

> Friday, February 24, 2006 ~ 8:36:00 AM

>

> COMPLETED MY FOURTH MONTH ON " HOME-MADE " LDN ~

> Breif history of chronic illness pre-LDN, then,

> (without further medical tests) my subjective

> observation/account today:

> As informed by doctors following a variety

> ofmedical testing:

> Unilateral slipped capital femoral epiphysis -

> Reductions and full body spika cast x 2, 8mos. then

> 6mos., no invasive surgery in either event. 1961

> Prognosis ~ (Orthopedist stated, " unknown, but

> arthritis is certain later in life " ).

> Arthritis - degenerative disc/joints - Osteo and

> early rheumatoid - pain for 30 plus years -

> Osteoporosis - (lost 3 " from height, 5'8 " to 5'5 " )

>

> Narcolepsy/Cataplexy ~ EDS noted as young teen;

> but dx took till 1993 (30 years), Rx'd meds did not

> work, (1995 began trial of Modafinil study/now

> called Provigil) stabilized, (noted, " pain relief " ,

> during trial of this med as well as alertness).

> (This observation could not be documented since it

> was a double blind test trial specifically for use

> in Narcolepsy)....Provigil has since been also used

> as an " off lable " pain relief, etc., and med is

> widely Rx'd by doctors.

> Seasonal, Mold, and Med. Allergies

> Hypertension

> COPD

> Multiple Sclerosis - 6/9/05 diagnosis ~ (Falls

> noted since 1975)

> Cardiomegally - resulted from (multiple allergic

> reactions/angio edema over two years of receiving

> wrong BP med)

> Arterial plaques - left leg, doppler diagnosis -

> Constant pain in all major joints, intermittently

> and increasingly frequent in fingers and toes,

> chronic back pain, lost of most cartilage left hip

> and both knees, falls, choking, lost voice for two

> months, lost eyesight (white field only) several

> times on awakening...returned within 5 to 20

> minutes, shooting (electrical) pains through legs,

> arms, neck, or other areas, cannot stand for 30

> minutes (abdominal tightness and stabbing pain),

> dropping things, frequent slurred speech,

> occasionally drool (eeeewwwww!), depressed, unable

> to concentrate well (foggy brain), dizzy,

> palpitations, nausea, extremely fatigued and

> sleepiness more often poorly controlled by Provigil,

> bowel and bladder problems, unable to sleep through

> night often waking 4 or 5 times - often from pain,

> usually for bthrm, frequent UTI and sinus

> infections. Walking is slow, stiff and require

> assist from a cane, pain and exhaustion made me feel

> useless taking a long time with rests to perform

> activities of daily living.

> Initial MRI report October 04 eluded to MS as most

> probable. Began to wean from arthritis, allergy, and

> pain meds I thought might be causing edema and

> unstable BP. Increased vitamin/mineral and amino

> acid inake, used mostly asperin and muscle rubs for

> pain.

> Started LDN last weekend in October 05, increased

> calcium, mag., zinc, selenium, CoQ10, BVitamins,

> Fish and Flax oil, Folic, Betacarotene, Vit C,

> 2pkts. Knox gelatin daily in juice, and whatever

> other supplements I can afford -

> Best explanation of personal LDN effectiveness: On

> a pain/problem scale of " 10 " being the worst

> (above), then my present level of pain/problems

> after four months on LDN would be a " 6 " , with the

> most significant benefits in increased energy,

> better concentration, weight loss, and with the

> addition of " soap " , finally, better sleep!!! I'm

> sure there is something I haven't covered but

> considering the improvement I've felt I think LDN is

> GREAT and I intend to stay the course with patience.

>

> I would like to add some form of physical therapy

> but do not have the financial resources to do so,

> and insurance has cut back on coverage of meds and

> services. Have not heard from my neuro since I

> refused the LP he scheduled last summer to determine

> level of CRAB meds he wanted me to take, so I do not

> think he'd be willing to suggest anything else

> beneficial covered by Ins.or not. He did not Rx my

> LDN.

> Sorry this isn't as brief as I'd planned, but it

> is as complete as I could get it.

> Gigi Held

>

>

>

>

>

>

>

>

> ---------------------------------

>

> Use Photomail to share photos without annoying

attachments.

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