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Hugs Lyn

-- Update

Hi people, Hope you all have a happy and safe 2007.

Well and I went and sen his Mum on New Years Eve well I don't know

what to think any more.

She says some nasty things, she has us looking for things and then had me

finding this bubble wrap and then I had to find this paper wrap and then

wrap the bubble wrap inside the paper wrap and place it back in the cupboard

She then had her daughter standing on a chair looking for these things in

the bag and they were her winter nighties and she argued with her daughter

to leave them down and we just couldn't get through to her.

She is starting to touch her self in inappropriate places and she got hold

of this pen and was pushing it in the top of her leg really hard we had to

take it off of her.

The psychiatrist has put her on Epilim now 2.5 mgs once a day.

She is not singing out any more, but she is still not moving she just sits

in the chair and she doesn't even like she wants to get dressed.

She says she doesn't want to be here she wants to be with her husband who

died 2and half years ago.

Well people I will write again soon

Hugs Lyn

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Quoting mimiartsy :

One thing we found with my Dad - is that anti-biotics - actually kill

off the normal (good) flora of bacteria in the colon/intestins -

allowing th C.diff to take over a bit. (I think there might always be

some low level of c.diff around - that's why we don't catch it as fast).

Anyway - things like Yogourt (especially maybe that Activa stuff out

now) helop rebuild the natural flora.

Or maybe try a different anti-biotic ?

Donna

> My husband finished his last dose of Vacomycin to rid him of C

> DIFF..yesterday I thought it had gone away..well today he has diarrhea

> again and the doctor started him back on Vacomycin 250 mg 4x ..he has

> also been put back on Florinef because his BP is so low..I have been

> giving him Culturelle,gatorade and all the fluids that I can get into

> him...this is so frustrating ...meg

>

>

>

> Welcome to LBDcaregivers.

>

>

>

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Meg,

Sorry to read about your roller coaster of diarrhea. Now, he'll probably get

Thrush from the antibiotics - which means Swish & Swallow - if he can.

Many here seem to be aware of the benefits of yogurt cultures when taking

antibiotics. While true,,,,,,, replacing the " good bacteria " in the digestive

system would take eating a whole room full of yogurt. You can get the

concentrated form in capsules - natural foods stores - refrigerated section

about $10/12.00 a bottle. While there, get yourself a treat - I'm thinking

homemade soap, exotic wrinkle cream, locally produced honey (keeps regional

allergies less severe). You deserve some pampering.

Sue in WV

mimiartsy wrote:

My husband finished his last dose of Vacomycin to rid him of C

DIFF..yesterday I thought it had gone away..well today he has diarrhea

again and the doctor started him back on Vacomycin 250 mg 4x ..he has

also been put back on Florinef because his BP is so low..I have been

giving him Culturelle,gatorade and all the fluids that I can get into

him...this is so frustrating ...meg

__________________________________________________

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  • 4 years later...

Hello group how is everyone doing? As for me I have been doing so-so. I had my

surgery about 2 weeks ago and instead of getting rid of all the pain, I still

have pain. I sometimes can not walk on my left leg and am having pain when I

urinate. I know to much information. I have an appointment on Friday so I hope

to get some answers soon.

Another thing I have been experiencing is lack of sleep. And it is affecting

alot of things especially my concentration level. I don't know if anyone else

experiences this and if you do what have you done to sleep better through the

night?

Well I hope things are ok with everyone. Take care

Hugs and blessings,

P

Corpus Christi, Tx

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,

The only thing that gets me to sleep at night is a mixture of 3 different kinds

of medications. I have to stagger them as my sleeping issues are so severe.

I take Seroquel 12hrs b/f I want to wake up I take 1/2 mg of Klonopin about 2

hours later and then 8 hours before I want to go to bed I take AmbienCR ...lol I

also have ADD so I take my Adderal in the morning when I want to get up and it

is about the only thing that will give me a normal day as far as sleep and

concentration. I keep hoping if I can get my Pain in control that I can go off

these other meds but so far this is the only thing that works and sadly there

are still nights like the night before last where I didn't fall asleep to 6am.

Hopefully no one else has issues with this as bad as I do, but Ambien usually

works really well.... Also if you talk to your doctor fist but Melatonin an

supplement can help people fall asleep there is also chamomille tea....these are

some less durastic things you can try.

Sweet Dreams I hope

<3 aka Jalee ..<>..One in a Million <3

<3 Female 25yrs old ..<>.. Mandan, ND <3

<3 Diagnosed with AOSD on 10/20/10 <3

<3 www.stillsdisease.org <3

<3 Highest temperature 106 on 10/10/10 <3

<3 Positive RH Factor (no Rheumatoid Arthritis) <3

<3 Positive AMA M2 (no Primary Biliary Cirrhosis)<3

________________________________

Another thing I have been experiencing is lack of sleep. And it is affecting

alot of things especially my concentration level. I don't know if anyone else

experiences this and if you do what have you done to sleep better through the

night?

Well I hope things are ok with everyone. Take care

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 sorry the surgery's did not help you or may be yet.

Now as for sleep best thing I found for me and it works 100% every time is I get

the wife really mad at me and then she grabs that number 10 cast iron skillet

and blam its good night for a good 8 to 10 hours. no with me its more like sleep

whats that as I am up some times for days with out any drives every one here

nuts then when I do sleep its only for say 4 to 6 hours at best. now every once

in a bit I do crash for 12 hours or more but that like 2 or 3 times a year. I do

not worry about it because growing up I also did not need much sleep. so I am

still that way but now not working and having no real daily plans its just a do

as the body says thing and I just go with it . once I started to do that the

sleep I do get is restful sleep even tho it may not be much.

 but that cast iron pan idea sounds good some times may still have to try it

just scared what happens if I get her a bit to mad .

hugs

 

 

The  Redneck  

Marty G     

 

Excuses are like backsides. Everybody’s got one and they all stink.

 

A person who demands more gun control legislation is like a chicken who roots

for Colonel

To learn more about Stills Disease or to make a tax deductible donation:

 http://www.stillsdisease.org/stills_info

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