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Elaine:

If you want to be sure he's getting adequate calories, contact a

nutritionist at the hospital. They will have you track each and every

drop you feed your child for 3 whole days. Though it's difficult to get

a good reading if your child has 3 good days or 3 bad days, at least the

nutritionist can get a good feel (this will be easier if your child is

only on formula).

The nutritionist felt that our daughter had adequate caloric intake but

was obviously burning it up too quickly whether it was because of a high

metabolism or her heart and lung condition. Regardless, she felt that

without additional calories and fat, my child would not be able to grow

and would be susceptible to infection.

The products that were recommended to us since birth was 1) Polycose - a

tasteless powder to be added to formula or milk to add calories, 2)

Scandical - a presciption powder to be added to liquid or food to add

calories, 3) Pediasure, and 4) Carnation Instant Breakfast. The last

two choices can be mixed with milk or formula slowly over time to get

the child used to the taste.

Now my daughter is very thin, so this may be why the docs recommended

this. And in heart failure her first year, she was certainly not taking

in 1/2 the calories she needed to grow. But even now that she's

healthier she's benefited from the Carnation Instant Breakfast and

though she's not gaining much weight, she finally didn't lose any

either!

Jeanne

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