Guest guest Posted January 17, 2006 Report Posted January 17, 2006 Hi, I was 50 when diagnosed with PPMS in Dec 2003 I went on to 3.0mgs LDN in Feb 2004 I had 14 months of no progression, which was great. Then I had 2 spells in 2005 where my legs went alot stiffer & also the numbness got worse. I was advised to get my LDN from another sorce as The Prescription Centre Wisconnsin was taken off the advised list. In July 2005 I was supplied from another Pharmacy. Since then I have not experienced any more deteioration. As an ex Triathlete I was used to stiffness ( training ) this is the only discomfort I feel. I try to cycle 20-30mls at the w/end or walk 3-4 miles with the aid of poles. When I get off the bike I find it difficult to balance so sit down & rest. After 1 hre I seem fine again. The trouble is I don't know when I have done too much, because as a normal person I would feel stiffness when I was tired, & know when to stop. When walking, I get out of the car & my legs are very stiff but if I carry on they free off. After 1-2 hrs brisk walking I begin to slow as my reactions slow down. This is where the poles help to prevent me from stumbling. I think it is very important to keep mobile & push yourself, as a Maintenance Eng. in a car factory I still work a normal 6-2 shift. I just plan my life to make sure I don't over do it. I live with stiffness & numbness always, the worst problem for me is the incontinence on occasions infrequent bowel movements. Life is still good. Eddieturnerpllcmj <turnerpllcmj@...> wrote: Hi guysI understand there are issues with people starting LDN. Prior to starting it I had a lot MS symptoms the one that is flaring is numbness, and now I have stiffness in my upper legs and it is like someone has wrapped a tourniquet around both upper legs and is twisting them hard. This is making me have thoughts of stopping it. Can someone please answer some questions if you have had similar symptoms?1. Are these permanent symptoms. 2. If not does the stiffness go away or reduce3. What is the cause of the flaring. I have read that it is the body getting used to it. I have ordered 3mg tablets and will start them Thursday night. Acidophilus filler.Kind regardsPhil Quote
Guest guest Posted January 18, 2006 Report Posted January 18, 2006 My dog Madeline is on LDN for her bone cancer and is still with us surpassing the median life span of animals with her condition. Make sure you get the dosage right according to her weight. Ask Skip. Blessings, Kathy [low dose naltrexone] Stiffness in upper legs, numbness (servere) Hi guys I understand there are issues with people starting LDN. Prior to starting it I had a lot MS symptoms the one that is flaring is numbness, and now I have stiffness in my upper legs and it is like someone has wrapped a tourniquet around both upper legs and is twisting them hard. This is making me have thoughts of stopping it. Can someone please answer some questions if you have had similar symptoms? 1. Are these permanent symptoms. 2. If not does the stiffness go away or reduce 3. What is the cause of the flaring. I have read that it is the body getting used to it. I have ordered 3mg tablets and will start them Thursday night. Acidophilus filler. Kind regards Phil Quote
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