symptoms

[Guest guest]

As you know Maddy has CM and was decompressed in 2007. They opened the dura but

no patch was placed. She did well for about 18 months or so. In the last 18

months or she has started gagging some on food,or will hold the food in her

mouth. She has been complaining of neck pain for over 18 months. The last few

months she has been complaining more about her neck. She takes swimming lessons

and gets very upset when they ask her to try and float on her back. She will

refuse to put her head and neck in the water. She says it hurts. She has also

been having the leg pain,lower back pain,headaches.She also snores VERY loud.

Local nsg said the decompression area looks a bit snug still as did a nsg in

UCSF. Is it possible that she is having increase chiari symptoms? Also if it

looks a bit snug isnt that a bad thing. if you want to call me.

ADDD6F65-1BEB-A824-2A48-BDE1F8F3B131

1.03.01

[Guest guest]

Just realized I am double digit years past decompression(11!). Just thought I'd

share...

From my HTC Sensation 4G on T-Mobile. The first nationwide 4G network

----- Reply message -----

To: " CCI " < >

Cc: " Sally R "

Subject: Symptoms

Date: Mon, Apr 30, 2012 10:40 am

Hi guys...

Regarding these questions about symptoms, I thought I would just send along this

study:

http://www.conquerchiari.org/subs%20only/Volume%202/Issue%202(5)/Wide%20Range%20\

Symptoms%202(5).html

If you haven't read it, it's pretty interesting.... It's not real current, but I

don't know of a better one that has been done since and I still feel that it is

VERY valid...

And yes, one needs to be careful not to chalk every symptom up to CM...On the

other hand it can be overwhelming for people to have a list of " diagnosed

illnesses and syndromes " a mile long...when it COULD be that they are

essentially all manifestations of one...Chiari! A true double edged sword...

Keep learning AMAP about the whole area, this is a " good thing " . One of the

things that has kept me around for more than 20 years since decompression...

Take care,

Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling pretty

good on NO meds in Bethlehem,Pa

[Guest guest]

Hi guys..

I'm hearing that some people are having trouble accessing this link...I am not

sure why.... It does work for me...

I guess the easiest thing would be to go to :

http://www.conquerchiari.org

Go to tab for " Education "

Then " Research Articles "

Then " symptoms General "

Then down to " Large Study Reveals Wide Range Of Chiari Symptoms

" ...

Sorry this is somewhat cumbersome, but the search engine doesn't appear to be

here anymore. ;-{ There is quite a bit of good information on the site...look

around while you are there.

Hope this helps, and sorry for any problems with the first URL...honestly don't

know what the issue was..

Take care,

Sally

Hi guys...

Regarding these questions about symptoms, I thought I would just send along this

study:

http://www.conquerchiari.org/subs%20only/Volume%202/Issue%202(5)/Wide%20Range%20\

Symptoms%202(5).html

If you haven't read it, it's pretty interesting.... It's not real current, but I

don't know of a better one that has been done since and I still feel that it is

VERY valid...

And yes, one needs to be careful not to chalk every symptom up to CM...On the

other hand it can be overwhelming for people to have a list of " diagnosed

illnesses and syndromes " a mile long...when it COULD be that they are

essentially all manifestations of one...Chiari! A true double edged sword...

Keep learning AMAP about the whole area, this is a " good thing " . One of the

things that has kept me around for more than 20 years since decompression...

Take care,

Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling pretty

good on NO meds in Bethlehem,Pa