Re: Trauma as an EN trigger?

[Guest guest]

Hi and Group,

<I originally thought this was the trigger, or the trauma maybe be a

trigger >

I have had EN going on 40 years so lots of time to reflect on this

painful and life robbing disorder.

I too have had EN flare ups occur after injury--mostly to the legs. I

think that the tissue damage AND stress from the injury [which floods

the body with stress hormones], can trigger EN--at least for those of

us who are called " idiopathic " .

I wrote up a proposal for a research study--which will probably not be

done anytime soon as we need to accumulate at least $35,000 for any

research and the group has, in 5 years, only managed to collect $1,000.

You can read my proposal on our new EN Website:

http://www.geocities.com/erythema_nodosum/rebecca/index.htm

If a miracle happens and we get the funds together we can have studies

like this done and get answers to our many, many EN questions

including how to best treat and CURE this nasty illness.

Love,

idiopathic EN '68

[Guest guest]

Forty years! I didn't realise that it could go on for that long! I am beginning to think that I am lucky not to have caught it until late middle age.

Re: Trauma as an EN trigger?

Hi and Group,<I originally thought this was the trigger, or the trauma maybe be atrigger >I have had EN going on 40 years so lots of time to reflect on thispainful and life robbing disorder. I too have had EN flare ups occur after injury--mostly to the legs. Ithink that the tissue damage AND stress from the injury [which floodsthe body with stress hormones], can trigger EN--at least for those ofus who are called "idiopathic". I wrote up a proposal for a research study--which will probably not bedone anytime soon as we need to accumulate at least $35,000 for anyresearch and the group has, in 5 years, only managed to collect $1,000.You can read my proposal on our new EN Website:http://www.geocities.com/erythema_nodosum/rebecca/index.htmIf a miracle happens and we get the funds together we can have studieslike this done and get answers to our many, many EN questionsincluding how to best treat and CURE this nasty illness.Love,idiopathic EN '68

[Guest guest]

Yes, but my EN is not as bad as many. I get it in the lower left leg

only and with few nodes. Rarely do I get malaise or fever and when I

do, a day or so of rest and I am over it. I go into remission without

medication --only rest, and I use a compression stocking on the EN leg.

Love,

idio. EN '68

>

> Forty years! I didn't realise that it could go on for that long!

I am beginning to think that I am lucky not to have caught it until

late middle age.

>

>