Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 June, rotating anti’s will not necessarily help. They did that with me a long time ago and it didn’t work. The thing you need to be constantly aware of, is that having antibiotics on an ongoing basis can make you immune to them down the track. That’s already happened with me (with certain anti’s). Besides, they can do terrible things to your system. Just off the top of my head comes pseudomonas; a shocking thing to get, and difficult to treat. I ended up with it last year after three months on antibiotics. But… I haven’t had any antibiotics since last October; I’m determined to keep well, but struggling at present. It probably isn’t helping that it’s cold and wet here in Melbourne. I’m also under a bit of stress as I struggle to finish four books by the end of the year. My writing business is growing at a rapid pace, but I’m determined not to do too much. Four or five hours a day seems to be my limit; some days I manage more, but I need to rest in between. I can live with that. So June, don’t pin your hopes on antibiotics. Please. You need to exercise and do your postural drainage daily. Cheryl ========== Cheryl , Australian author – http://www.cheryl-wright.com Think Outside the Square: Writing Publishable (Short) Stories Saving Emma – coming to Whiskey Creek Press January 2005 Affordable Workshops: http://www.writer2writer.com Free articles: http://www.writer2writer.com/autoresponder.htm “Writer to Writer” – free ezine for writers: writertowriter-subscribe@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Hi June, The one method that that is helping gets accurate reports for my sputum cultures is to have them labelled, as "cystic fibrosis cultures." The CF cultures are treated differently. Generally, these cultures are also grown out longer. I think that all cultures should be treated in this matter regardless of a CF diagnosis. It is important to yield results that are more accurate. In this way, our infections can be properly treated. Before labelling my cultures as "cystic fibrosis," my doctors were getting reports back stating "normal flora" when we knew that this was simply wrong. This even happened during severe pneumonia and other times when IV antibiotics were necessary. Anyhow, since labelling the cultures CF all of a sudden they are actually growing out bacteria’s that had been there before, but were missed by the lab. For instance, MRSA was picked up this way. Had this not been found I would not be treated for contact isolation precautions whilst in hospital, so its important in protecting other patients, as well. I also would have gone to CF conferences, etc, because we would not have known about the MRSA. This infection has done much amage to my lungs, because it was not being caught. Would your doctor agree to label the cultures, as a cystic fibrosis culture? I have atypical CF, so this was not a problem for me. In addition, my cultures are now taken to our local community hospital, which sends them on to a larger microbiology lab in Halifax (at least most are sent on). This too makes a difference. Before it was hit or miss. Now whenever we take a culture to the hospital something is "always" found. I am always frequently on antibiotics including IV antibiotics, inhaled or oral (IVs every 4-6 wks). We have found with my lungs that despite chestphysio, the lungs cannot wait or I will just end up much sicker with a severe pneumonia. It is better to treat the infections to avert severe lung damage. Sometimes according to my specialists there is no other choice. I hope this will change down the road with the help of medical research. Hope this Helps, Hugs:0) with atypical CF, MRSA+, MAC, restrictive lung disease, etc ... Mommy to Bonnie cat and Suzzy dogwww.geocities.com/lungsformary/countryside.html "Don't take your organs to Heaven, heaven knows we need them here."Post your free ad now! Yahoo! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 So June, don’t pin your hopes on antibiotics. Please. You need to exercise and do your postural drainage daily. Cheryl******************************** hi friends, yes, cheryl this is THE bottom line. roger finds it a total drag some days but has to do it morning and night. he had a doctor's visit yesterday to go over his pft results and he's doing great. this is encouraging for both of us, because, let's face it, when your spouse/partner suffers we do too, and now we both feel great and optimistic. it does take time, but if you don't do it, then the problems soon start and it takes longer to recover. jmho!!!! jennifer in canada Post your free ad now! Yahoo! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 My SPOUSE DOES NOT SUFFER. He sits all afternoon in the bar, and I do not have enough food to eat. He is going to the zoo in San this week and goes to London and never cares what happens to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 > Prednisolone does different things to different people. Like you I can get > irritable and sometimes teary. After a ton of courses of it, the effects > reduced. It's worse though, if you go off it too quickly. It makes me bloated (moon face, anyone?) and have to pee a lot. (I think that might be because it ups the sugar level in my blood.) And I find myself getting cranky because I hate how I look. Karin Quote Link to comment Share on other sites More sharing options...
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