Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Maggie, you have been in our thoughts and prayers so much. I can identify with your feeling of being better before the surgery. had surgery on his hip in March 2000, he was bed bound and chair bound for almost 18 months before he got any mobility back..it was supposed to be a 6 week recivery. His Bronchiectasis is partly down to that imoblity we are sure. I hope you find each day leaves you feeling stronger. With much love and continued prayers Tina Hillier Mum to , 14 years old and possesor of an Extra Special Chromosome. Rosie 12 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 7, A budding Artist and Singer, And who is 5 years old and a lovely friend! Isle of Wight UK http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.com ALL-NEW Yahoo! Messenger - sooooo many all-new ways to express yourself Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 hallelujah, maggie's back. WELCOME maggie, we've missed you and been so worried for you. reagan was wonderful in keeping us posted....yes he must be an angel....and he loves you a LOT. i hope that you will gain strength day by day and soon be back to better than normal. jenniferMaggie wrote: Maggie here. I'm finally back 7 weeks later, Recovering at home now.I have such a long story and will have to go into it later. Thank you to everyone who sent cards and prayers. They definitely helped lift my spirits at times. I was so severely depressed, because I felt so much better before the surgery. Now I'm on constant O2 at 4 units. I have no energy. The mention of transplant came up, but I'm afraid that'll kill me before my time. I had a doctor tell me the lifespan for a transplant recipient was only 6 years. I know I have more than that. I am not going to let this thing kill me. By the way, have any of ya'll heard of a fungal infection called Cocci (shortened version). Right now I'm doing home infusion therapy. Merram 3 times a day and Amikacin once a day. Plus Sporanox (Titracanazole) for the fungal infection.I have an infectious disease control specialist on my case now, so I think I'll finally get rid of this junk and start to lead a normal life one of these days, Right now, my poor husband is a single father taking care of 3. He's an angel from heaven. I hope all is well with everyone else.I think of you and pray for you daily. Just that every day is a day closer to feeling better.I truly cherish this group.God Bless,MaggiePost your free ad now! Yahoo! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Hi Maggie, Welcome back!! I'm so pleased that you are home and on the road to recovery :-) I'm sure that you will get better and stronger with each day. Reagan sounds like a real gem. He must be so happy and relieved to have you home again with the family. Take care and get plenty of rest, as you need to let your body heal. I will keep you in my prayers, Maggie. We have all missed you!! Love Bunny I'm back. Maggie here. I'm finally back 7 weeks later, Recovering at home now.I have such a long story and will have to go into it later. Thank you to everyone who sent cards and prayers. They definitely helped lift my spirits at times. I was so severely depressed, because I felt so much better before the surgery. Now I'm on constant O2 at 4 units. I have no energy. The mention of transplant came up, but I'm afraid that'll kill me before my time. I had a doctor tell me the lifespan for a transplant recipient was only 6 years. I know I have more than that. I am not going to let this thing kill me. By the way, have any of ya'll heard of a fungal infection called Cocci (shortened version). Right now I'm doing home infusion therapy. Merram 3 times a day and Amikacin once a day. Plus Sporanox (Titracanazole) for the fungal infection.I have an infectious disease control specialist on my case now, so I think I'll finally get rid of this junk and start to lead a normal life one of these days, Right now, my poor husband is a single father taking care of 3. He's an angel from heaven. I hope all is well with everyone else.I think of you and pray for you daily. Just that every day is a day closer to feeling better. I truly cherish this group. God Bless, Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 I hope that you will be feeling better soon.... Pam de Silva > I'm back. > > > Maggie here. I'm finally back 7 weeks later, Recovering at home now.I > have such a long story and will have to go into it later. Thank you to > everyone who sent cards and prayers. They definitely helped lift my > spirits at times. I was so severely depressed, because I felt so much > better before the surgery. Now I'm on constant O2 at 4 units. I have no > energy. The mention of transplant came up, but I'm afraid that'll kill > me before my time. I had a doctor tell me the lifespan for a transplant > recipient was only 6 years. I know I have more than that. I am not > going to let this thing kill me. By the way, have any of ya'll heard of > a fungal infection called Cocci (shortened version). Right now I'm > doing home infusion therapy. Merram 3 times a day and Amikacin once a > day. Plus Sporanox (Titracanazole) for the fungal infection.I have an > infectious disease control specialist on my case now, so I think I'll > finally get rid of this junk and start to lead a normal life one of > these days, Right now, my poor husband is a single father taking care > of 3. He's an angel from heaven. I hope all is well with everyone > else.I think of you and pray for you daily. Just that every day is a > day closer to feeling better. > > I truly cherish this group. > > God Bless, > > Maggie > > > > > > Quote Link to comment Share on other sites More sharing options...
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