Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 ….thinking of you Becki. Hope you get the call sooner than later. Cheryl ========== Cheryl – http://www.cheryl-wright.com Think Outside the Square: Writing Publishable (Short) Stories For more information go to http://www.writer2writer.com Saving Emma – coming to Whiskey Creek Press January 2005 Transplant Update Hi Waiting for a TX is a really weird thing. The only way I can describe it is like being 7yo again and waiting to leave on your summer vacation with just hours to spare. You are just waiting on your grandparents arrival. You're so excited your bouncing off the walls, you can't sleep, and any little sound you hear outside makes you think this could be time to leave. Only there is one major difference, you are not going on a trip to Disney World but instead waiting for the chance at major surgery. The major surgery of course will save your life but it still doesn't make you less nervous. I am literally sitting at the computer vibrating......my nails are all bitten off and all I can think about is getting that call. Im not obessing, but just really hurting tonight and hoping that someday soon my lungs won't hurt so much trying to take a deep breath. I am praying for that day. When I was back in NC I knew I was active on Mayo's list but then again I knew I wouldn't get " THE CALL " . Now that I am here in Florida and minutes away from St. Lukes, and that the next ring that the phone makes could mean my life is about to begin, is just a powerful feeling I cannot describe. The scariest thing is knowing if that phone rings in the middle of the night I will know instantly what and who it is ... The doctor told me that I'll get the call when I least expect it, when I am sound asleep in bed and have plans for a full afternoon the next day. So I hope that in the near future I will finally be rid of these dang nasal prongs and trade them in for a neat stylish purse. Something I haven't been able to do for 6 years. I need to get to bed, as the doctor said, the call will come when I'm sound asleep and in the early hours of the morning. Becki Life is not measured by the number of breaths we take, but by the moments that take our breath away. Listed for Lungs 1/19/04 at Mayo Clinic ville,Fla. YOUNGLUNG EMAIL SUPPORT LIST http://health.groups.yahoo.com/group/YOUNGLUNG/ Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Becki, Hoping and praying for that call to come soon, and hten for a rapid complete recovery. I am sure your nerves are jangling. I know how I felt the night before 's heart surgery and I am sure oyur feelings are very similar. You certainly had a good descriptive way of explaining that feeling. Loads of love to you. Tina Hillier Mum to , 14 years old and possesor of an Extra Special Chromosome. Rosie 12 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 7, A budding Artist and Singer, And who is 5 years old and a lovely friend! Isle of Wight UK http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.com Yahoo! Messenger - Communicate instantly..."Ping" your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Hi Becki, Thinking of you while you wait for your transplant. Stay positive and just focus on all the wonderful things you will be able to do when you get your new lungs. I hope you get the call soon. Meanwhile you will be in my thoughts and prayers. Love Bunny -----Original Message-----From: MissGooberGirl@... Sent: Tuesday, 1 June 2004 4:19 PMTo: cysticfibrosis@...; cfparents ; IMMUNEBuddies ; shwachmansyndrome Cc: CYXTY5RSS@...; bronchiectasis Subject: Transplant UpdateHiWaiting for a TX is a really weird thing. The only way I can describe it is like being 7yo again and waiting to leave on your summer vacation with just hours to spare. You are just waiting on your grandparents arrival. You're so excited your bouncing off the walls, you can't sleep, and any little sound you hear outside makes you think this could be time to leave. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 hi becki, i'm praying for that call every day for you. wishing you patience and peace as you w a i t ! jennifer in canadaMissGooberGirl@... wrote: HiWaiting for a TX is a really weird thing. The only way I can describe it is like being 7yo again and waiting to leave on your summer vacation with just hours to spare. You are just waiting on your grandparents arrival. You're so excited your bouncing off the walls, you can't sleep, and any little sound you hear outside makes you think this could be time to leave.Only there is one major difference, you are not going on a trip to Disney World but instead waiting for the chance at major surgery. The major surgery of course will save your life but it still doesn't make you less nervous.I am literally sitting at the computer vibrating......my nails are all bitten off and all I can think about is getting that call. Im not obessing, but just really hurting tonight and hoping that someday soon my lungs won't hurt so much trying to take a deep breath. I am praying for that day.When I was back in NC I knew I was active on Mayo's list but then again I knew I wouldn't get " THE CALL". Now that I am here in Florida and minutes away from St. Lukes, and that the next ring that the phone makes could mean my life is about to begin, is just a powerful feeling I cannot describe.The scariest thing is knowing if that phone rings in the middle of the night I will know instantly what and who it is ...The doctor told me that I'll get the call when I least expect it, when I am sound asleep in bed and have plans for a full afternoon the next day. So I hope that in the near future I will finally be rid of these dang nasal prongs and trade them in for a neat stylish purse. Something I haven't been able to do for 6 years. I need to get to bed, as the doctor said, the call will come when I'm sound asleep and in the early hours of the morning. BeckiLife is not measured by the number of breaths we take, but by the moments that take our breath away.Listed for Lungs 1/19/04 at Mayo Clinic ville,Fla.YOUNGLUNG EMAIL SUPPORT LISThttp://health.groups.yahoo.com/group/YOUNGLUNG/Pediatric Interstitial Lung Disease Societyhttp://groups.yahoo.com/group/InterstitialLung_Kids/Post your free ad now! Yahoo! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Becki, I am praying that day comes soon too and that you will be breathing easier soon. My thoughts are prayers are with you daily. Norma Quote Link to comment Share on other sites More sharing options...
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