Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 June, what you are describing is common. I went through the same scenario for months – probably even a year or more. One of the problems is that we don’t feel like doing any exercise, but exercise is one of the things that can help us tremendously. It doesn’t have to be strenuous; even a short walk will help. Just get out in the fresh air. Doing some simple stretches can be beneficial as well. I can’t recall where you live (I’m in Australia) but if there’s a regular rehabilitation group in your area, that will help immensely. I haven’t looked back since I joined a rehab group. You’ve got to keep moving – that in turn will keep the mucus moving and get it out. You will find that the early hours of the morning – when you get up, or even before – are worst. That’s because you’re lying down to sleep. The mucus sits in one spot, and when you wake or move, it just wants out! Don’t despair of the condition. That’s the worst thing you can do. I was in a state of depression in the early days. My doctors told me I wouldn’t be able to do much at all – if I even survived. I totally ignored them and set myself on the right track. I did that by learning as much as I could about the condition; what aggravates it, what helps, what it does to my body etc. Then I took control of my own destiny. I’ve given up work as my immune system has almost packed it in, but work from home. I’m a working writing, making money from my craft. I’ve got one book published and another soon to be. I’ve had short stories published, write regular articles for magazines in the US, and run short story workshops. All the things I was told I would never do. Find yourself a good doctor – one that you can trust. Then set yourself some limits. I know when I have to stop working, and I do. Take your time, pace yourself. Don’t overdo anything. You will survive – better still, you will thrive. It just takes time to work out what’s best for you. Cheryl ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Cheryl Australian author and freelance journalist P O Box 913, Springvale South 3172...Australia Registered Business - ABN 97 864 868 214 www.cheryl-wright.com www.writer2writer.com Think Outside the Square: Writing Publishable (Short) Stories - www.writer2writer.com/book.htm For affordable short story workshops, go to www.writer2writer.com/workshop.htm Saving Emma – Coming to Whiskey Creek Press January 2005 Free ezine for writers: http://writertowriter.subto.us/subscribe.html For free articles for your ezine or website, go to: www.writer2writer.com/autoresponder.htm Desperate??? Hello again everybody, first of all I want to add my best wishes to Maggie, sounds like she is going through a bad time. I've only been in this group a couple of weeks and I am learning from you all but I need more help here. I am struggling so badly with this nightmare condition. You have all given lots of useful advice which I'm trying but I still feel so ill. For the last week despite doing the postural drainage, using Flutter, nebuliser 4 times a day, antibiotics - Moxifloxacin this time, Guifenasin syrup, water lots of it, I am still really bad. My consultant is useless, my GP helpful but not sorting me out with any success. I wake up every morning about 5 am and cough up madly, I then nebulise and cough again. This goes on all morning with bouts of actual vomiting or coughing , my ribs are killing me, I'm starting to lose weight (hooray). I feel a little better in the afternoon and can do things without too much breathlessness then as the evening comes on the whole sorry cycle starts again. How on earth do I get on top of this thing, my positive attitude is slipping fast. Does Accupuncture help, has anyone tried that? I feel like I've become an invalid almost overnight, does anything work? Desperately needing your help June in London UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 cheryl, thanks for your encouraging post for june.....it helps us all to hear words like yours. this bronch. list sure is great with helpful posts such as yours. jenniferCheryl wrote: June, what you are describing is common. I went through the same scenario for months – probably even a year or more. One of the problems is that we don’t feel like doing any exercise, but exercise is one of the things that can help us tremendously. It doesn’t have to be strenuous; even a short walk will help. Just get out in the fresh air. Doing some simple stretches can be beneficial as well. I can’t recall where you live (I’m in Australia) but if there’s a regular rehabilitation group in your area, that will help immensely. I haven’t looked back since I joined a rehab group. You’ve got to keep moving – that in turn will keep the mucus moving and get it out. You will find that the early hours of the morning – when you get up, or even before – are worst. That’s because you’re lying down to sleep. The mucus sits in one spot, and when you wake or move, it just wants out! Don’t despair of the condition. That’s the worst thing you can do. I was in a state of depression in the early days. My doctors told me I wouldn’t be able to do much at all – if I even survived. I totally ignored them and set myself on the right track. I did that by learning as much as I could about the condition; what aggravates it, what helps, what it does to my body etc. Then I took control of my own destiny. I’ve given up work as my immune system has almost packed it in, but work from home. I’m a working writing, making money from my craft. I’ve got one book published and another soon to be. I’ve had short stories published, write regular articles for magazines in the US, and run short story workshops. All the things I was told I would never do. Find yourself a good doctor – one that you can trust. Then set yourself some limits. I know when I have to stop working, and I do. Take your time, pace yourself. Don’t overdo anything. You will survive – better still, you will thrive. It just takes time to work out what’s best for you. Cheryl ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Cheryl Australian author and freelance journalist P O Box 913, Springvale South 3172...Australia Registered Business - ABN 97 864 868 214 www.cheryl-wright.com www.writer2writer.com Think Outside the Square: Writing Publishable (Short) Stories - www.writer2writer.com/book.htm For affordable short story workshops, go to www.writer2writer.com/workshop.htm Saving Emma – Coming to Whiskey Creek Press January 2005 Free ezine for writers: http://writertowriter.subto.us/subscribe.html For free articles for your ezine or website, go to: www.writer2writer.com/autoresponder.htm -----Original Message-----From: junefraser2002 Sent: Tuesday, 11 May 2004 11:33 PMTo: bronchiectasis Subject: Desperate??? Hello again everybody, first of all I want to add my best wishes to Maggie, sounds like she is going through a bad time.I've only been in this group a couple of weeks and I am learning from you all but I need more help here. I am struggling so badly with this nightmare condition. You have all given lots of useful advice which I'm trying but I still feel so ill. For the last week despite doing the postural drainage, using Flutter, nebuliser 4 times a day, antibiotics - Moxifloxacin this time, Guifenasin syrup, water lots of it, I am still really bad. My consultant is useless, my GP helpful but not sorting me out with any success. I wake up every morning about 5 am and cough up madly, I then nebulise and cough again. This goes on all morning with bouts of actual vomiting or coughing , my ribs are killing me, I'm starting to lose weight (hooray). I feel a little better in the afternoon and can do things without too much breathlessness then as the evening comes on the whole sorry cycle starts again. How on earth do I get on top of this thing, my positive attitude is slipping fast. Does Accupuncture help, has anyone tried that? I feel like I've become an invalid almost overnight, does anything work?Desperately needing your help June in London UKPost your free ad now! Yahoo! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 wrote: cheryl, thanks for your encouraging post for june.....it helps us all to hear words like yours. this bronch. list sure is great with helpful posts such as yours. Hi , I’m glad I’ve help you. Let me tell you, it wasn’t easy – at first. When I got so ill – two weeks short of two years ago - I thought my life was over. I certainly couldn’t live the way I had been in the previous six months; I was in and out of hospital all the time. In a six month period I had pneumonia three times, and serious bronchitis twice. I’d been hospitalized for all five, and ended up in ICU and almost had a heart attack. (I spent four full weeks in hospital the first time – double pneumonia.) As a result, I was so weak I couldn’t even walk sometimes. I was in a wheelchair a lot of the time. I ended up as an inpatient in a rehabilitation hospital for two whole weeks. At that stage I couldn’t walk further than 300 metres. I was about 45 at the time – I wasn’t ready to die. But I couldn’t continue like that. When I was in hospital November 2002, which was the last major hospitalization, I made a decision to change my whole lifestyle. I decided to live around my disease. After all, it was here to stay, and if I wanted to go beyond just surviving, I had to take hold of the reins and steer myself in the right direction. And that’s exactly what I did. The absolute first thing I did was sack my doctor. (Some of you might remember that!) I got a really great doctor, and still go to him. He’s moved away from my area, and it’s a two and a half hour round trip to see him now, but I’m not changing doctors now that I’ve got a great one. I know it doesn’t sound like much, and many of you probably travel a lot further, but I do find it extremely difficult to drive long distances – my concentration wanes after about twenty minutes. Learning your limitations can make a big - make that huge - difference. That’s what I did; l learned what I could cope with, and what I couldn’t do easily. I learned to pace myself so that I could work to capacity. I also learned when to say no, and when to give up trying. I know that I can’t baby-sit my three grandchildren at the same time. Two is an effort, but possible. Three could put me in bed for a day. I can’t run after the children – I could have an attack and have to call an ambulance. If I need to go away for a weekend or a few days, or even longer, I know that it will take me a day either side to recover as it tires me something chronic – I work that into my schedule. As you can see, my life is often carefully planned. Bottom line? I have a life, and it’s worth living. I want to see my children grow old, and my grandchildren grow up. I have many novels I want to write, short stories I have to finish. Wannabee writers I have to teach. Books to sell. Nothing is a failure to me – everything is a huge achievement. Be true to yourself, live the way your body can cope. At first it’s a struggle, you’ll have those ‘why me?’ moments – I certainly did. But, you will survive – you have to survive; if not for yourself, for your family. And there are always positives. Without this illness my writing career would not have gotten to this stage so quickly. Sure, I would have got there eventually, but probably another eight or ten years down the track. (This way I get to write many more hot shower scenes!) Cheryl ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Cheryl Australian author and freelance journalist P O Box 913, Springvale South 3172...Australia Registered Business - ABN 97 864 868 214 www.cheryl-wright.com www.writer2writer.com Think Outside the Square: Writing Publishable (Short) Stories - www.writer2writer.com/book.htm For affordable short story workshops, go to www.writer2writer.com/workshop.htm Saving Emma – Coming to Whiskey Creek Press January 2005 Free ezine for writers: http://writertowriter.subto.us/subscribe.html For free articles for your ezine or website, go to: www.writer2writer.com/autoresponder.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Hi june have you been looking at what you are eating I find any dairy whatso ever adds to the buildup of mucus have you heard of Colourpunture I have found this has helped me strengthens the immune system at times when I have been to the thereapist my body has shown I have been in autoimmune and having the colourpunture every couple of days until my immune system has clicked back in again I havent taken antibiotics since I have been having this treatment which is about 2or more years I believe in this treatment for me above anything else It has been formed from a German naturopath Mandel okay what has changed for you since your diagnosis or have you felt like this for sometime take care and be very gentle with yourself and have lots of cuddles Pamela Maree > >Reply-To: bronchiectasis >To: bronchiectasis >Subject: Desperate??? >Date: Tue, 11 May 2004 13:32:48 -0000 > >Hello again everybody, first of all I want to add my best wishes to >Maggie, sounds like she is going through a bad time. >I've only been in this group a couple of weeks and I am learning >from you all but I need more help here. I am struggling so badly >with this nightmare condition. You have all given lots of useful >advice which I'm trying but I still feel so ill. For the last week >despite doing the postural drainage, using Flutter, nebuliser 4 >times a day, antibiotics - Moxifloxacin this time, Guifenasin syrup, >water lots of it, I am still really bad. My consultant is useless, my >GP helpful but not sorting me out with any success. I wake up >every morning about 5 am and cough up madly, I then nebulise >and cough again. This goes on all morning with bouts of actual >vomiting or coughing , my ribs are killing me, I'm starting to lose >weight (hooray). I feel a little better in the afternoon and can do >things without too much breathlessness then as the evening >comes on the whole sorry cycle starts again. How on earth do I >get on top of this thing, my positive attitude is slipping fast. Does >Accupuncture help, has anyone tried that? I feel like I've become >an invalid almost overnight, does anything work? >Desperately needing your help June in London UK > _________________________________________________________________ What's your house worth? Click here to find out: http://www.ninemsn.realestate.com.au Quote Link to comment Share on other sites More sharing options...
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