Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 Hi all, still on my rollercoaster. Was fine Saturday but felt pretty low all Sunday. Then last night I had the worst night of my life. Spent the entire night coughing up, watched the dawn come up. Three times on the nebuliser just to breathe. In the end I spent an hour using the flutter, steam neb etc until I threw up so many times eventually cleared my lungs. God this is so scary, sounds stupid this morning but I was choosing the music for my own funeral at 3 am, how can I live with this? The antibiotics are obviously working as the mucuus is now whiteish. But my lungs are just feeling waterlogged. I'm doing everything you guys have suggested but can't seem to clear my chest. I hate that awful rasping noise as I can't breathe and you feel the fluid on your chest. Karin will take your advice and do a diary but other than cigarette smoke I just don't know why I'm so bad. Really ought to go back to the doctor today but I'm fed up with him telling me that Bronchiectasis is just a nuisance disease rather than life threatening. I'd like him to see me in the middle of the night when I think I'm going to die from lack of breath! Tried propping myself up last night, hubby forgot to do the brick under the bed!But if anything I felt worse. I wonder if I'm just not doing the drainage etc well enough. Even after we do the routine I can still feel bubbling in my chest. Do you all manage to clear it completely, if so that is why I am having problems.Thanks for your continued support, this group is my lifeline at the moment Much love -June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 June I really do wonder if oyu ned a forthingth of IV antibiotics to give you some relief. Ask your GP to refer you to a respiratory consultant and get some proper assessment. hugs Tina Hillier Mum to , 14 years old and possesor of an Extra Special Chromosome. Rosie 12 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 7, A budding Artist and Singer, And who is 5 years old and a lovely friend! Isle of Wight UK http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.com Yahoo! Messenger - Communicate instantly..."Ping" your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 June, The only good thing about the bad days is that it makes you truly appreciate the good days. That’s something that “normal” people certainly don’t relate to. Barb Feel like giving up! Hi all, still on my rollercoaster. Was fine Saturday but felt pretty low all Sunday. Then last night I had the worst night of my life. Spent the entire night coughing up, watched the dawn come up. Three times on the nebuliser just to breathe. In the end I spent an hour using the flutter, steam neb etc until I threw up so many times eventually cleared my lungs. God this is so scary, sounds stupid this morning but I was choosing the music for my own funeral at 3 am, how can I live with this? The antibiotics are obviously working as the mucuus is now whiteish. But my lungs are just feeling waterlogged. I'm doing everything you guys have suggested but can't seem to clear my chest. I hate that awful rasping noise as I can't breathe and you feel the fluid on your chest. Karin will take your advice and do a diary but other than cigarette smoke I just don't know why I'm so bad. Really ought to go back to the doctor today but I'm fed up with him telling me that Bronchiectasis is just a nuisance disease rather than life threatening. I'd like him to see me in the middle of the night when I think I'm going to die from lack of breath! Tried propping myself up last night, hubby forgot to do the brick under the bed!But if anything I felt worse. I wonder if I'm just not doing the drainage etc well enough. Even after we do the routine I can still feel bubbling in my chest. Do you all manage to clear it completely, if so that is why I am having problems.Thanks for your continued support, this group is my lifeline at the moment Much love -June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 hi june, sorry you had such a bad night. what's this about cigarette smoke????????? that's a big NO NO. heaven forbid that this should happen again but why don't you call an ambulance and get to the hospital so that they can treat you there.......take any info on your meds with you and maybe a pamphlet or sheet on alpha so that, when you can't breathe you can just hand them the info and they will know what's happening to you.....jmho! hoping to hear better news soon. jennifer in canadajunefraser2002 wrote: Hi all, still on my rollercoaster. Was fine Saturday but felt pretty low all Sunday. Then last night I had the worst night of my life. Spent the entire night coughing up, watched the dawn come up.Three times on the nebuliser just to breathe. In the end I spent an hour using the flutter, steam neb etc until I threw up so many times eventually cleared my lungs. God this is so scary, sounds stupid this morning but I was choosing the music for my own funeral at 3 am, how can I live with this? The antibiotics are obviously working as the mucuus is now whiteish. But my lungs are just feeling waterlogged. I'm doing everything you guys have suggested but can't seem to clear my chest. I hate that awful rasping noise as I can't breathe and you feel the fluid on your chest. Karin will take your advice and do a diary but other than cigarette smoke I just don't know why I'm so bad. Really ought to go back to the doctor today but I'm fed up with him telling me that Bronchiectasis is just a nuisance disease rather than life threatening. I'd like him to see me in the middle of the night when I think I'm going to die from lack of breath! Tried propping myself up last night, hubby forgot to do the brick under the bed!But if anything I felt worse. I wonder if I'm just not doing the drainage etc well enough. Even after we do the routine I can still feel bubbling in my chest. Do you all manage to clear it completely, if so that is why I am having problems.Thanks for your continued support, this group is my lifeline at the momentMuch love -JunePost your free ad now! Yahoo! Canada Personals Quote Link to comment Share on other sites More sharing options...
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