Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 I was on Cefepime IV the first hospitalization, but when I had pneumonia last January, I developed a rash on my back so my pulmonary doctor took me off that the last day I was there when he finally noticed it. He the put me on oral Zithromax, but I developed diarrhea from that so discontinued that after a couple of days. I told the nurse about the rash, and we both thought it was due to the plastic mattress covers, my fever and sensitive skin. In July when I was back in the hospital for an infection, they called in two infectious disease doctors who put me on Zosyn IV. Of course I am always on Tobramycin breathing treatments at the hospital. I cannot take Cipro and any of the quinolines. My ENT had me on Batrim DS (double strength) along with Tobramycin/Clindamycin nasal spray for my greenish nasal discharge. So far I that seems under control for now. My allergist has me on Singulair. I tried Serevent and Advair, but I have an irregular and fast heartbeat so I could not tolerate it. It make me have tremors and an automobile accident. Your husband sounds real sweet. You are so lucky. My husband never seems concerned about my health. I hope things go well for you and you are able to be in the play. Sweet dreams and better health, Norma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Hi everyone! I have good news, finally. I saw a new doctor today. My husband went with me; he's so sweet! I'm finally going to have a culture done after months of misery. The doc also ordered bloodwork and had me get a chest x-ray. Reagan (husband) was so cute, today! He was practically jumping up and down, because he was so excited that everything I received today was something we hadn't tried before. I was sent home with a bag of samples of Advair, Singulair, and a nonnarcotic cough suppressant. Do any of you use these medications? He also told me to use the Flutter after every breathing treatment, which I have definitely not been slacking off on anymore. Never again will I be so stupidly lazy about those treatments. And he wrote me a prescription for a cough suppressant with Codeine. I will be sleeping well tonight! At the moment I'm quite Codeinated. My only not so good news is that I may need to get IV antibiotics in the hospital. But I've already prepared myself for that. I'm still in the play though, and have notified the director of what is going on. He said he would work around a hospitalization, but I can't hold him to that. Doing this play really makes me happy. If I have to drop it because of this illness I will be one grumpy, upset Maggie. When I'm all recovered and healed after the antibiotic I'll be brand new for opening night. Do any of you know of other antibiotics besides IV ones that will work if the bug is pseudomonas, as I'm sure it is? I've been on Levaquin, Bactrim, and Cipro, unsuccessfully. Does anyone know what my chances are that I'm headed to the hospital? Anyway, me, me, me, on and on and on. How is Becky doing? Becky I have been thinking of you and your husband. You have been going through so much, but your positive attitude just shines through your emails. That's important. We need to stay positive. Negativity will just drag us further down. You are in my prayers, as is everyone else on this list. I will follow the advice on using hand sanitizers. Why didn't I think of that before? Well I'm off to dream land. Goodnight. Please everyone, be well, Maggie P.S. As I'm dozing off I'll meditate on how clear and open my air passages are, and how beautifully free of mucus I am. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 He also told me to use the Flutter after every breathing treatment, which I have definitely not been slacking off on anymore. Never again will I be so stupidly lazy about those treatments **************************************** Maggie, pleased to hear you making an early resolution to use your flutter valve..... NEVER misses....does this morning and night along with his inhaler and postural drainage. Keep up the good work and hope you go on feeling better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 Neither the flutter valve or acapella work for me. The only thing that helps me is using The Vest during my breathing treatment with Xopenex and Muco-Mist then waiting 30 minutes and do postural drainage. That may be due to the fact that my bronchiectasis is in my lower lobes. Norma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 Thank you for the information. I have bronchiectasis, live in Sydney, have just joined this interest group. Could someone tell me anything about acapella, xopenex, muco-mist? Regards, Jim. Re: codeinated Neither the flutter valve or acapella work for me. The only thing that helps me is using The Vest during my breathing treatment with Xopenex and Muco-Mist then waiting 30 minutes and do postural drainage. That may be due to the fact that my bronchiectasis is in my lower lobes. Norma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 Jim, Welcome to the group. It is getting late here in Austin, TX (US) and I need to go to bed since I have had a bad day with my asthma and windy weather. I will respond tomorrow. Norma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 Jim, I am not sure if I ever answered your email. I think several people may have given you some information about the flutter valve and acapella. Neither worked for me. The xopenex that I mentioned that I use works like albuterol in that it opens up the airways but does not have the side effect of making me shaky. I have several heart conditions where my heart races and skips beats. I am being treated by a cardiologist with a medication for my heart rate, but the albuterol still made me shaky. My pulmonary doctor switched me to xopenex. It is more expensive than albuterol but does not affect my heart. Since I am on Medicare, I am able to get it without having to pay for it. The muco-mist or acetylesteine is an inhaled medication that I use with the xopenex. It thins the mucus so that it helps me to cough up the mucus when I do the postural drainage procedure 30 minutes after completing my breathing treatment. While I am taking my breathing treatments with xopenex and acetylesteine I am also using the vest (web site: www.thevest.com). The vest is attached to a small machine with hoses. I can set the pressure and frequency that is most comfortable for me. It helps to shake the mucus loose. The acetylesteine has a bad smell although I do not smell it when I am inhaling it. If you smell the solution in the bottle, it smells like sulfuric acid and can make the room in which you are doing your treatment smell bad for a while on humid days, and it leaves a sticky residue on the furniture. I cover my TV with a plastic drop cloth used by painters to protect it. I do not have to pay for the acetylesteine since I am on Medicare. I hope this makes sense. I am being treated for acute asthma with prednisone and a lung infection with docycycline. Both make my stomach hurt, and the prednisone makes me very nervous. Please let me know if you have further questions. Sorry I did not respond sooner. Norma Quote Link to comment Share on other sites More sharing options...
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