Re: Bed Wetting Meds- Desmopressin

[Guest guest]

Hi, I'm new and haven't yet written my intro yet (look for future posting!),

but really want to chime in on this topic. We are struggling with both

enuresis and encopresis (stool incontinence) with our 5 yr old AS little

boy. I just want to second the importance of not punishing a child for

accidents. My son is always embarassed when he has one (especially in

public of course) and I know that he does not have accidents to be

disobedient. Far from it. Although I don't generally use a rewards system

for behavior issues, I do when we go through a period of " potty problems''

as we call it. A sticker for every poop in the potty helps celebrate his

success and lightens the mood of an uncomfortable and embarassing problem

for him. We let him pick a treat after 10 stickers and continue with the

program until a regular toileting pattern is established. For us, the

encopresis rears its head on and off (when he starts holding poops if he has

a hard one and becomes fearful of pooping). Also, I highly recommend

working with a developmental or behavioral pediatritian, as they see and

treat problems like inuresis and encopresis as part of a larger picture of

the child . My two cents! Alison, Mom to 5 year old and 7 month old

Gracie.

>

>Reply-To: autism-aspergers

>To: <autism-aspergers >

>Subject: Re: Bed Wetting Meds- Desmopressin

>Date: Mon, 16 Feb 2004 06:57:05 -0500

>

>Enuresis Treatment Center

>

>We had the same problem with our Asperger son during Kindergarten. His

>pediatrician did not want him to go on any meds for this, but suggested a

>reward and punishment system. This was absolutely ridiculous to punish a

>child who is doing something that is completely out of their control.

>

>I heard an advertisement for the Enuresis Treatment Center on the radio and

>made an appointment. After signing up our son was completely dry within a

>few weeks. you might want to check out their web site and I can answer more

>specific questions if you need more info. Good luck!

>

>http://www.drybed.com/

> Bed Wetting Meds- Desmopressin

>

>

> Una,

> Our 5 year old son was just diagnosed with Aspergers and one of our

> biggest problems has been the potty training and the bed wetting. The

> doctor prescribed Desmopressin for this. This might be of some help.

>

> Of interest, the same doctor also suggested we research Risperdal and

> Abilify before meeting him again. Strattera worked only when we could

> get him (my son, not the doctor!) to take it, it tasted awful. So,

> I'm interested if anyone has more to say about either of these meds.

>

>

> a.k.a. Nicky's Mom

>

>

> > Hi everyone,

> > my name is Una and i live in the uk. I have a 13 yr old son Harry

> > who has ASD.

> > I have read many of your postings over the last few months, but

> > unfortunately have had liitle time to reply. I have 3 sons all of

> > whom have special needs problems. So its great fun here!!!

> > Harry was diagnosed with Autism just before he was 12?? although my

> > partner and i had known for many years, that there were big

> > problems, we had to fight " tooth and nail " to obtain a diagnosis

> and

> > to get help for Harry. Harry was out of school for 18 months.

> > He was generaly looked upon as being severely aggressive,

> disruptive,

> > non-compliant, odd, anti-social etc. I often wonder if Harry had

> > been given, the correct schooling help etc would he be any further

> > ahead in his life and able to manage better than he does now? We

> > will never know the answer to that.

> > He is an extrememly large child for his age, and very strong, as i

> > have found out!! he now attends an autistic unit in a special needs

> > school, but only for 3 mornings a week, as he cant handle any

> longer

> > than that. He is very, very phobic about germs, anyone else have

> > this problem, wears socks or gloves on his hands, patrols the

> > bathroom door, when people go to the loo, to make sure they have

> > washed their hands, which annoys the hell out of his brothers.. can

> > still be very agressive, obsesses to the point were sometimes i

> > think im going mad!!!

> > He has recently been put on some meds, Risperdal and i think the

> > other citroplan or something like that, cant remember how to spell

> > it!! these seem to have taken the edge off some of the behaviours,

> > and he also has a one to one in school. he still wets the bed every

> > night at 13, which is a worry, i dont know whats going to happen

> > about that, or iff eventually he will just stop.We have tried

> > buzzers and medication but nothing worked.

> > We are now finding of course that we are having the normal teenage

> > problems along with autism, and its a bit of a nightmare to say the

> > least,there is a great deal of inappropriate behaviour going on,

> and

> > i have to keep reminding Harry every day about things that are not

> > socially acceptable, but it take a long time if at all for it to

> > sink in with Harry. Some of the things he comes out with in shops

> > etc, i think to myself if ever it was a good time to disappear its

> > now!!! but the sad thing is he cant see anything wrong with it??!!

> > I feel very sad for Harry that he has no real friends at all,

> where

> > we live. His one friend who is also on the spectrum lives

> > in a differentncounty to us. I find a lot of the kids here, bully

> > and tease him, to get a reaction, and some are very unkind, and

> call

> > him weird and generally do their level best to provoke him. Harry

> in

> > turn gets angry, and what happens? all hell breaks loose, and who

> > gets the blame from the other parents..Harry. We now have to think

> > very hard about letting him outside with his brothers, socially he

> > finds it very difficult to interact, so he spends most of time on

> > the computer, hence me only being able to get on late at night !!!

> > Well thats enough of me and my ramblings,

> > Take care all......

> > una

>

>

>

>------------------------------------------------------------------------------

>

[Guest guest]

Hi, I'm new and haven't yet written my intro yet (look for future posting!),

but really want to chime in on this topic. We are struggling with both

enuresis and encopresis (stool incontinence) with our 5 yr old AS little

boy. I just want to second the importance of not punishing a child for

accidents. My son is always embarassed when he has one (especially in

public of course) and I know that he does not have accidents to be

disobedient. Far from it. Although I don't generally use a rewards system

for behavior issues, I do when we go through a period of " potty problems''

as we call it. A sticker for every poop in the potty helps celebrate his

success and lightens the mood of an uncomfortable and embarassing problem

for him. We let him pick a treat after 10 stickers and continue with the

program until a regular toileting pattern is established. For us, the

encopresis rears its head on and off (when he starts holding poops if he has

a hard one and becomes fearful of pooping). Also, I highly recommend

working with a developmental or behavioral pediatritian, as they see and

treat problems like inuresis and encopresis as part of a larger picture of

the child . My two cents! Alison, Mom to 5 year old and 7 month old

Gracie.

>

>Reply-To: autism-aspergers

>To: <autism-aspergers >

>Subject: Re: Bed Wetting Meds- Desmopressin

>Date: Mon, 16 Feb 2004 06:57:05 -0500

>

>Enuresis Treatment Center

>

>We had the same problem with our Asperger son during Kindergarten. His

>pediatrician did not want him to go on any meds for this, but suggested a

>reward and punishment system. This was absolutely ridiculous to punish a

>child who is doing something that is completely out of their control.

>

>I heard an advertisement for the Enuresis Treatment Center on the radio and

>made an appointment. After signing up our son was completely dry within a

>few weeks. you might want to check out their web site and I can answer more

>specific questions if you need more info. Good luck!

>

>http://www.drybed.com/

> Bed Wetting Meds- Desmopressin

>

>

> Una,

> Our 5 year old son was just diagnosed with Aspergers and one of our

> biggest problems has been the potty training and the bed wetting. The

> doctor prescribed Desmopressin for this. This might be of some help.

>

> Of interest, the same doctor also suggested we research Risperdal and

> Abilify before meeting him again. Strattera worked only when we could

> get him (my son, not the doctor!) to take it, it tasted awful. So,

> I'm interested if anyone has more to say about either of these meds.

>

>

> a.k.a. Nicky's Mom

>

>

> > Hi everyone,

> > my name is Una and i live in the uk. I have a 13 yr old son Harry

> > who has ASD.

> > I have read many of your postings over the last few months, but

> > unfortunately have had liitle time to reply. I have 3 sons all of

> > whom have special needs problems. So its great fun here!!!

> > Harry was diagnosed with Autism just before he was 12?? although my

> > partner and i had known for many years, that there were big

> > problems, we had to fight " tooth and nail " to obtain a diagnosis

> and

> > to get help for Harry. Harry was out of school for 18 months.

> > He was generaly looked upon as being severely aggressive,

> disruptive,

> > non-compliant, odd, anti-social etc. I often wonder if Harry had

> > been given, the correct schooling help etc would he be any further

> > ahead in his life and able to manage better than he does now? We

> > will never know the answer to that.

> > He is an extrememly large child for his age, and very strong, as i

> > have found out!! he now attends an autistic unit in a special needs

> > school, but only for 3 mornings a week, as he cant handle any

> longer

> > than that. He is very, very phobic about germs, anyone else have

> > this problem, wears socks or gloves on his hands, patrols the

> > bathroom door, when people go to the loo, to make sure they have

> > washed their hands, which annoys the hell out of his brothers.. can

> > still be very agressive, obsesses to the point were sometimes i

> > think im going mad!!!

> > He has recently been put on some meds, Risperdal and i think the

> > other citroplan or something like that, cant remember how to spell

> > it!! these seem to have taken the edge off some of the behaviours,

> > and he also has a one to one in school. he still wets the bed every

> > night at 13, which is a worry, i dont know whats going to happen

> > about that, or iff eventually he will just stop.We have tried

> > buzzers and medication but nothing worked.

> > We are now finding of course that we are having the normal teenage

> > problems along with autism, and its a bit of a nightmare to say the

> > least,there is a great deal of inappropriate behaviour going on,

> and

> > i have to keep reminding Harry every day about things that are not

> > socially acceptable, but it take a long time if at all for it to

> > sink in with Harry. Some of the things he comes out with in shops

> > etc, i think to myself if ever it was a good time to disappear its

> > now!!! but the sad thing is he cant see anything wrong with it??!!

> > I feel very sad for Harry that he has no real friends at all,

> where

> > we live. His one friend who is also on the spectrum lives

> > in a differentncounty to us. I find a lot of the kids here, bully

> > and tease him, to get a reaction, and some are very unkind, and

> call

> > him weird and generally do their level best to provoke him. Harry

> in

> > turn gets angry, and what happens? all hell breaks loose, and who

> > gets the blame from the other parents..Harry. We now have to think

> > very hard about letting him outside with his brothers, socially he

> > finds it very difficult to interact, so he spends most of time on

> > the computer, hence me only being able to get on late at night !!!

> > Well thats enough of me and my ramblings,

> > Take care all......

> > una

>

>

>

>------------------------------------------------------------------------------

>

[Guest guest]

My 5 year old boy, (just recently diagnosed with AS) has had

encopresis. Its a reoccuring problem which seems to start when

under stress (ie. change in routine, starting kinder, etc). We

received help from our Paediatrician who had a reward chart system.

Apparently there is a whole section in the Royal Childrens Hospital

(Melbourne, Australia) dedicated to this problem. Firstly,

was put on a medication called Parachoc which is a liquid Parafin

taken orally to soften stools and make them easier to pass and it

also prevents the kids from trying to constipate themselves (or

holding off on going). Initially we also gave him a supository to

empty the bowel. Our doctor believes in tackling the problem from

both ends! The chart system requires the child starts sitting on the

toilet for at least 5 mins about 30 mins after each meal. They get

a tick on the chart for sitting or a star for a poop. You also

record any accidents but they are not punished for these it is more

a record for you and the doctor. You set a target for the end of

the week and they get a reward for say 10 stars you might take them

to the park or whatever. The doctor also gave us a little book

about a boy who has this problem and how the doctor helps him

overcome it.

Hope this helps. Leanne

> > > Hi everyone,

> > > my name is Una and i live in the uk. I have a 13 yr old son

Harry

> > > who has ASD.

> > > I have read many of your postings over the last few months,

but

> > > unfortunately have had liitle time to reply. I have 3 sons

all of

> > > whom have special needs problems. So its great fun here!!!

> > > Harry was diagnosed with Autism just before he was 12??

although my

> > > partner and i had known for many years, that there were big

> > > problems, we had to fight " tooth and nail " to obtain a

diagnosis

> > and

> > > to get help for Harry. Harry was out of school for 18 months.

> > > He was generaly looked upon as being severely aggressive,

> > disruptive,

> > > non-compliant, odd, anti-social etc. I often wonder if Harry

had

> > > been given, the correct schooling help etc would he be any

further

> > > ahead in his life and able to manage better than he does

now? We

> > > will never know the answer to that.

> > > He is an extrememly large child for his age, and very

strong, as i

> > > have found out!! he now attends an autistic unit in a

special needs

> > > school, but only for 3 mornings a week, as he cant handle any

> > longer

> > > than that. He is very, very phobic about germs, anyone else

have

> > > this problem, wears socks or gloves on his hands, patrols

the

> > > bathroom door, when people go to the loo, to make sure they

have

> > > washed their hands, which annoys the hell out of his

brothers.. can

> > > still be very agressive, obsesses to the point were

sometimes i

> > > think im going mad!!!

> > > He has recently been put on some meds, Risperdal and i think

the

> > > other citroplan or something like that, cant remember how to

spell

> > > it!! these seem to have taken the edge off some of the

behaviours,

> > > and he also has a one to one in school. he still wets the

bed every

> > > night at 13, which is a worry, i dont know whats going to

happen

> > > about that, or iff eventually he will just stop.We have tried

> > > buzzers and medication but nothing worked.

> > > We are now finding of course that we are having the normal

teenage

> > > problems along with autism, and its a bit of a nightmare to

say the

> > > least,there is a great deal of inappropriate behaviour going

on,

> > and

> > > i have to keep reminding Harry every day about things that

are not

> > > socially acceptable, but it take a long time if at all for

it to

> > > sink in with Harry. Some of the things he comes out with in

shops

> > > etc, i think to myself if ever it was a good time to

disappear its

> > > now!!! but the sad thing is he cant see anything wrong with

it??!!

> > > I feel very sad for Harry that he has no real friends at

all,

> > where

> > > we live. His one friend who is also on the spectrum lives

> > > in a differentncounty to us. I find a lot of the kids here,

bully

> > > and tease him, to get a reaction, and some are very unkind,

and

> > call

> > > him weird and generally do their level best to provoke him.

Harry

> > in

> > > turn gets angry, and what happens? all hell breaks loose,

and who

> > > gets the blame from the other parents..Harry. We now have to

think

> > > very hard about letting him outside with his brothers,

socially he

> > > finds it very difficult to interact, so he spends most of

time on

> > > the computer, hence me only being able to get on late at

night !!!

> > > Well thats enough of me and my ramblings,

> > > Take care all......

> > > una

> >

> >

> >

> >------------------------------------------------------------------

------------

> >