Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 I have had an enlarged spleen (splenomegaly) for about 2 years, and none of my docs know what is causing it. My Infectious disease doc isn't sure, my oncologist/hemotologist isn't sure. I have upwards of 20 docs who aren't sure whats causing this. I've had all manner of nuclear medicine tests run. I've even had samples sent to Mayo clinic and those docs have no idea (though one said it may be the rare "Castleman's Disease" found in poz guys that have had KS as well.) I went to ER this past Sunday cause the pain was so great. Stayed 4 days, only got IV fluids, good food, and dilaudid IV. Surgeon said that my spleen is so enlarged that they could not take it out without fully opening me up, and the mortality rate is 60% to 90% because of severe blood loss. Those rates aren't acceptable. So.....I'm supposed to see a pain management doctor Monday to help me deal with the pain as it comes and goes. Never ever been to pain management, so it will be new for me. I have a bottle of 60 dilaudin, and she's supposed to help me manage the pain w/o becoming a dilaudin junky. Does anyone else have an enlarged spleen? Mine is as large as a football, and you can see it and feel it I'll be having my sinus surgery soon as well. Hopefully this will keep my WBC low, making my spleen shrink some. Finally got my Social Security Disability, and officially I'm RETIRED. Will be moving in with sister soon enough, and I'll get a little dog to love on. And being around family will help "get me out of bed" and put that smile back on my face. I plan on volunteering a little bit at the hospital as well. Hugs Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.