Spleen

May 14, 2006

Sounds like a challenging position, . I'm a bit surprised by the

mortality the surgeon quotes. but he knows this far better than I do.

I think I would ask the surgeon what he thought the risk of rupture is.

On May 14, 2006, at 8:49 AM, PozHealth wrote:

> I have had an enlarged spleen (splenomegaly) for about 2 years, and

> none of my docs know what is causing it. My Infectious disease doc

> isn't sure, my oncologist/hemotologist isn't sure. I have upwards of

> 20 docs who aren't sure whats causing this. I've had all manner of

> nuclear medicine tests run. I've even had samples sent to Mayo clinic

> and those docs have no idea (though one said it may be the rare

> " Castleman's Disease " found in poz guys that have had KS as well.) I

> went to ER this past Sunday cause the pain was so great. Stayed 4

> days, only got IV fluids, good food, and dilaudid IV.

> Surgeon said that my spleen is so enlarged that they could not take

> it out without fully opening me up, and the mortality rate is 60% to

> 90% because of severe blood loss. Those rates aren't acceptable.

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