Re: Help and advice for starting SCD, please!

[Guest guest]

Hi Margaret,

We've been doing the SCD for about 19 months now and we've had amazing

improvements in my son from doing it. I would suggest you look at the site

www.pecanbread.com and there's also a very active yahoo group for them. They're

US based but there are lots of people from elsewhere on the group. The site is

basically dedicated to children with autism doing SCD and there is a wealth of

information on there about how to do the diet / recipes / suppliers etc.

Feel free to email me about anything else to do with the diet that you want to

know - not as experienced as the other poster but very happy to try and help!

Best wishes,

Lorna

xxx

>

> >

> >

> > Hello, I haven't posted for a while but we had a consultation with Dr

> > Yeoh at The Breakspear last week and she has suggested we move from the

> > GF/CF diet (nearly eight years later!) to SCD with my twelve year old

> > son and I don't really know where to start ... other than here! Sorry

> > if this is a bit long ...

> >

> > We had the GF/CF diet more or less sussed, although as my son is

> > mainstream and very social so whenever he went to people's houses or

> > away on trips, he would take HNI enzymes. Most of the time he is doing

> > very well both in and out of school, but he does have an ongoing issue

> > with weekly tummy aches and occasional bouts of vomiting. Both issues

> > have decreased over the years, partly helped when we took out

> > boiled/fried/scrambled eggs, too, but they ARE still there - and often,

> > but not always, co-incide with times of heightened emotions: anxieties

> > re SATS or sport event, and evn birthday and christmas - when he really

> > is NOT negatively emotional!

> >

> > He has been having CBT with his therapist (he was on ABA for several

> > years but no longer needs their input) since he started secondary school

> > last September but the anxieties continue - although not at school

> > where he is much happier than at primary - so I think Dr Yeoh is right

> > and it is worth trying the SCD. Howver, at 165cm and weighing just 45k

> > (and with hollow legs and doing various sports up to eight times a week

> > - and that's apart from PE!), I can't imagine how I will fill him up and

> > he not lsoe weight! My husband (a similar build to my son) is an

> > insulin-dependent diabetic who runs so needs LARGE amounts of complex

> > carbs, so a family change to all SCD is out of the question - my husband

> > would quickly end up on the floor with hypoglycaemia and

> > life-threatening fits - so I am, understandably, anxious about how to do

> > this.

> >

> > I am also not an experienced baker (having been with a type 1 diabetic

> > for 20 years), so I really need the easiest/tastiest recipes for bread

> > and muffins and any advice people have, please, such as breadmachines,

> > do I need a yoghurt maker, should he still be casein free (he's been

> > doing very well on goat's milk so far)! I am up in Yorkshire and don't

> > know anyone here who is doing SCD but if there is a specific support

> > group, preferably in the UK, I'd love to know! Thanks for reading

> > this!

> >

> > Yours, hopefully, Margaret

> >

>