Re: families normal children

June 2, 2005

Hi T & J,

I have a sister that does the same thing, but

she talks about her friends child that is s age,

what cute things she does and says. Most of my family

still don't get it. My mom still calls it artistic

instead of autistic. My sister thinks (her quote),

" beat her a-- and she'll behave " , so I feel for you

with the family issues. See ya Sherrie

Sherrie

__________________________________

Discover Yahoo!

Have fun online with music videos, cool games, IM and more. Check it out!

http://discover.yahoo.com/online.html

June 2, 2005

Hi T & J,

I have a sister that does the same thing, but

she talks about her friends child that is s age,

what cute things she does and says. Most of my family

still don't get it. My mom still calls it artistic

instead of autistic. My sister thinks (her quote),

" beat her a-- and she'll behave " , so I feel for you

with the family issues. See ya Sherrie

Sherrie

__________________________________

Discover Yahoo!

Have fun online with music videos, cool games, IM and more. Check it out!

http://discover.yahoo.com/online.html

June 2, 2005

Hi T & J,

I have a sister that does the same thing, but

she talks about her friends child that is s age,

what cute things she does and says. Most of my family

still don't get it. My mom still calls it artistic

instead of autistic. My sister thinks (her quote),

" beat her a-- and she'll behave " , so I feel for you

with the family issues. See ya Sherrie

Sherrie

__________________________________

Discover Yahoo!

Have fun online with music videos, cool games, IM and more. Check it out!

http://discover.yahoo.com/online.html

June 2, 2005

Sounds like my father-in-law. He told me " she just needs to be shown

who's boss! "

> My sister thinks (her quote),

> " beat her a-- and she'll behave " , so I feel for you

> with the family issues.

June 2, 2005

Sounds like my father-in-law. He told me " she just needs to be shown

who's boss! "

> My sister thinks (her quote),

> " beat her a-- and she'll behave " , so I feel for you

> with the family issues.

June 2, 2005

Sounds like my father-in-law. He told me " she just needs to be shown

who's boss! "

> My sister thinks (her quote),

> " beat her a-- and she'll behave " , so I feel for you

> with the family issues.

June 2, 2005

-

Same here!! You'd think family would want to get to know about the

disability or the child because it is so facinating that some things

they do with such ease and other are very difficult.

My father-rest-his-sole would always say " she'll grow out of it "

or " She'll snap out of it " that kind of thing. I guess he was

denying that there was anything wrong.

Also, I can help but bring this up again....My sister was very

hurtful to me early on. I was complaining about all the medical

expenses that weren't covered. I guess I was looking for a little

compassion. Silly me. She said to me and I quote " Why are you

spending so much money on something that there is no cure for! "

What like I should just let her vegetate in the corner?????

I only forgave her because she's my sister but you can rest assured

that I WILL NEVER FORGET!!

Family???@!!!!

-- In Autism_in_Girls , cathylynn2 <cathylynn2@m...>

wrote:

> Sounds like my father-in-law. He told me " she just needs to be

shown

> who's boss! "

>

> > My sister thinks (her quote),

> > " beat her a-- and she'll behave " , so I feel for you

> > with the family issues.

June 2, 2005

-

Same here!! You'd think family would want to get to know about the

disability or the child because it is so facinating that some things

they do with such ease and other are very difficult.

My father-rest-his-sole would always say " she'll grow out of it "

or " She'll snap out of it " that kind of thing. I guess he was

denying that there was anything wrong.

Also, I can help but bring this up again....My sister was very

hurtful to me early on. I was complaining about all the medical

expenses that weren't covered. I guess I was looking for a little

compassion. Silly me. She said to me and I quote " Why are you

spending so much money on something that there is no cure for! "

What like I should just let her vegetate in the corner?????

I only forgave her because she's my sister but you can rest assured

that I WILL NEVER FORGET!!

Family???@!!!!

-- In Autism_in_Girls , cathylynn2 <cathylynn2@m...>

wrote:

> Sounds like my father-in-law. He told me " she just needs to be

shown

> who's boss! "

>

> > My sister thinks (her quote),

> > " beat her a-- and she'll behave " , so I feel for you

> > with the family issues.

June 2, 2005

-

Same here!! You'd think family would want to get to know about the

disability or the child because it is so facinating that some things

they do with such ease and other are very difficult.

My father-rest-his-sole would always say " she'll grow out of it "

or " She'll snap out of it " that kind of thing. I guess he was

denying that there was anything wrong.

Also, I can help but bring this up again....My sister was very

hurtful to me early on. I was complaining about all the medical

expenses that weren't covered. I guess I was looking for a little

compassion. Silly me. She said to me and I quote " Why are you

spending so much money on something that there is no cure for! "

What like I should just let her vegetate in the corner?????

I only forgave her because she's my sister but you can rest assured

that I WILL NEVER FORGET!!

Family???@!!!!

-- In Autism_in_Girls , cathylynn2 <cathylynn2@m...>

wrote:

> Sounds like my father-in-law. He told me " she just needs to be

shown

> who's boss! "

>

> > My sister thinks (her quote),

> > " beat her a-- and she'll behave " , so I feel for you

> > with the family issues.

June 2, 2005

That's awful! I have a gigantic family with a ton of relatives

somewhere on the spectrum, and all those who have to live with it

everyday obviously are compassionate. The ones who don't on the

other hand...I got into a big arguement with one of my uncles who

said the only reason my cousin has Asperger's is that no one

ever " makes " him play imaginative games!!! How does one " make " a

child imagine? Because if I could do that, I'd be rich and famous,

lol. Besides, even if he could do pretend play, obviously that is

NOT his only issue! But he still has a little baby, and they are

planning on having more kids, so I figure with the genetics in my

family, it's only a matter of time before they find out what it's

like for themselves.

Amnesty

> >

> > > My sister thinks (her quote),

> > > " beat her a-- and she'll behave " , so I feel for you

> > > with the family issues.

June 2, 2005

My sister-in-law does the same thing. She constantly brags on her grandkids

that are the same age as . Then she always makes a point to ask if

can do this or that (Fill in the blank) the way her grandkids do!

Talk about a lack of class!!! She also loves to tell us how she's taking

the grandkids so the parent's can have a vacation and that she babysits them

all the time. She's never asked to babysit once. Since she's my

husband's sister, he knows to keep her away from me. I've told him she's

toxic and I won't put up with it.

Diane ('s Mom)

Re: families " normal " children

Hi T & J,

I have a sister that does the same thing, but

she talks about her friends child that is s age,

what cute things she does and says. Most of my family

still don't get it. My mom still calls it artistic

instead of autistic. My sister thinks (her quote),

" beat her a-- and she'll behave " , so I feel for you

with the family issues. See ya Sherrie

Sherrie

__________________________________

Discover Yahoo!

Have fun online with music videos, cool games, IM and more. Check it out!

http://discover.yahoo.com/online.html

Autism_in_Girls-subscribe

------------------------

Autism_in_Girls-unsubscribe

June 2, 2005

My dad just passed away in April as well. That's a whole other

issue. How do you explain this to a 5 year old autistic girl?

And don't get me started on the babysitting thing...!!!

I usually (when we feel brave) we run around after the kids not

enjoying anything about the holiday or celebration. Leave when were

exhusted and as we drive away say " why do we continue to submit

ourselve to this? "

You think someone would offer to watch them for 20 minutes so you

could gobble down some food. Not a chance.

> My dad who just passed away at age 81 this past April, as

thought "

> will grow out of iit " ..same comments that deester_s dad had made.

Even

> though is semi-verbal, the last time she saw her

Grandfather

> (Sunday, 4 days before he passed) she said " Hi Grandpa " when he

came in the

> back door...he was soooo Happy!! He came from a large family, one

of eight

> children, and NONE of his siblings had any kind of disability, nor

at that

> time were mentally disabled or physically disabled exposed to the

public.

>

> Just thought I'd make a comment.

>

> RE: Re: families " normal " children

>

> > My father who is 85 years old says that

is " retarded " . Of

> course

> > she's not, she's autistic. But an old man his age just

remembers what

>

June 2, 2005

My dad just passed away in April as well. That's a whole other

issue. How do you explain this to a 5 year old autistic girl?

And don't get me started on the babysitting thing...!!!

I usually (when we feel brave) we run around after the kids not

enjoying anything about the holiday or celebration. Leave when were

exhusted and as we drive away say " why do we continue to submit

ourselve to this? "

You think someone would offer to watch them for 20 minutes so you

could gobble down some food. Not a chance.

> My dad who just passed away at age 81 this past April, as

thought "

> will grow out of iit " ..same comments that deester_s dad had made.

Even

> though is semi-verbal, the last time she saw her

Grandfather

> (Sunday, 4 days before he passed) she said " Hi Grandpa " when he

came in the

> back door...he was soooo Happy!! He came from a large family, one

of eight

> children, and NONE of his siblings had any kind of disability, nor

at that

> time were mentally disabled or physically disabled exposed to the

public.

>

> Just thought I'd make a comment.

>

> RE: Re: families " normal " children

>

> > My father who is 85 years old says that

is " retarded " . Of

> course

> > she's not, she's autistic. But an old man his age just

remembers what

>

June 2, 2005

My dad just passed away in April as well. That's a whole other

issue. How do you explain this to a 5 year old autistic girl?

And don't get me started on the babysitting thing...!!!

I usually (when we feel brave) we run around after the kids not

enjoying anything about the holiday or celebration. Leave when were

exhusted and as we drive away say " why do we continue to submit

ourselve to this? "

You think someone would offer to watch them for 20 minutes so you

could gobble down some food. Not a chance.

> My dad who just passed away at age 81 this past April, as

thought "

> will grow out of iit " ..same comments that deester_s dad had made.

Even

> though is semi-verbal, the last time she saw her

Grandfather

> (Sunday, 4 days before he passed) she said " Hi Grandpa " when he

came in the

> back door...he was soooo Happy!! He came from a large family, one

of eight

> children, and NONE of his siblings had any kind of disability, nor

at that

> time were mentally disabled or physically disabled exposed to the

public.

>

> Just thought I'd make a comment.

>

> RE: Re: families " normal " children

>

> > My father who is 85 years old says that

is " retarded " . Of

> course

> > she's not, she's autistic. But an old man his age just

remembers what

>

June 2, 2005

I remember before Allie thinking I had all the answers and didn't mind

telling people. I guess I needed some major humble pie, so now I have

my Allie, lol.

Debi

I got into a big arguement with one of my uncles who

> said the only reason my cousin has Asperger's is that no one

> ever " makes " him play imaginative games!!!

June 15, 2005

The people who thought it was wrong to ask probably had the most

ability to help if it's like my experience. I've heard of lots of CA

residents moving here to Knoxville. Don't know why, lol. Our cost of

living is MUCH less. You can get a 1200 sq ft rancher here for about

$120,000. Gas right now is $1.97/gal. Of course, we don't have nearly

the autism resources of CA.

We started speech therapy with 4.5hrs/wk with ABA emphasis when Allie

was 20 mos old. She started 2 hrs/wk of OT when she was 23 mos and it

had an ABA emphasis, as well. This went on until age 3, when she

started an autism demo class at a public preschool for disabled

students for 16.5 hrs/wk with ABA emphasis in the classroom, along

with sensory diet. One day a week she got ABA all day. At age 4 she

had 32hr/wk autism demo class with one day a week being all ABA.

Within 2 mos of the 4 yr class they felt she was too advanced, but we

decided to keep her there the rest of the year because she LOVED that

school and we did, too. This past year she was in a pre-k class with

some sped students and some typical and spent some of the time in the

k classroom and it did not go well. The people who ran that program

feel Allie needs to be in a a restrictive setting and people who run

restrictive settings feel Allie needs inclusion. I'm beginning to feel

the gened professionals I have delt with are a bunch of lazy people

who don't wanna have to do any more than the bare minimum. They set

goals for Allie that I had her meeting in Nov, they didn't show her as

mastered until April. Within one week I had her mastering goals they

said she couldn't do in a year. Nothing difficult, just telling you

her sisters' names, parents' names, and address. One week it took,

actually 2 days!

All during her 2 yr old year I focused on biological treatments as

well. We began super nu-thera, gfcf, and salicylate-free. The diet

seemed to help her the most, and she also did well with dietary supps.

6 mos after the diet we put her on paxil with *significant* progress.

We decided to try paxil because dietary supps, diet, and behavior mods

did not help her spiraling obsessional/anxious behavior. Within 2 days

of paxil she was a different child. We just switched her to zoloft

this past spring, thinking she might be building a tolerance to the

paxil. Saw some improvements, but I think most of her behaviors have

been a low immune system and not liking her program. with Allie, if

she isn't happy you might as well hang up trying to get her to do

anything.

I'm really thinking of homeschooling. We're doing some RDI with her

and I really like that approach. She seems to pay much more attention

to us when we've done some of the activities. I feel like a year or so

of homeschooling could make all the diff in her future. She is so

advanced academically and I refuse to allow her to be left behind

because they don't wanna have to deal with her behaviors related to

needing the correct programming. She also loves being with me and in

so many ways I feel I missed out on her toddlerhood by being so

obsessed with autism. Homeschooling might give me a chance to recreate

that connection I missed.

Debi

--- In Autism_in_Girls , aimee henkel

>

> ps do you have ABA therapy? What early interventions have you used?

>

June 15, 2005

You may find that if you do try the gfcf diet she will become more

wiling to try new foods. Many kids self limit b/c setain foods make

them feel sick (ie, pasta) I have seen kids go from eating 2 or 3

foods to eating nearly anything you put in front of them, or at

least TRY it. Most grocery stores sell many gfcf foods now.

Honestly, when we were trying to determine what my son was allergic

to, we were hoping it was gluten, b/c the foods are so easy to find

now! Turned out to be corn, which is much harder!

I have a ton of gfcf websites, I will find and post them for you!

Amnesty

> The people who thought it was wrong to ask probably had the most

> ability to help if it's like my experience. I've heard of lots of

CA

> residents moving here to Knoxville. Don't know why, lol. Our cost

of

> living is MUCH less. You can get a 1200 sq ft rancher here for

about

> $120,000. Gas right now is $1.97/gal. Of course, we don't have

nearly

> the autism resources of CA.

>

> We started speech therapy with 4.5hrs/wk with ABA emphasis when

Allie

> was 20 mos old. She started 2 hrs/wk of OT when she was 23 mos and

it

> had an ABA emphasis, as well. This went on until age 3, when she

> started an autism demo class at a public preschool for disabled

> students for 16.5 hrs/wk with ABA emphasis in the classroom, along

> with sensory diet. One day a week she got ABA all day. At age 4 she

> had 32hr/wk autism demo class with one day a week being all ABA.

> Within 2 mos of the 4 yr class they felt she was too advanced, but

we

> decided to keep her there the rest of the year because she LOVED

that

> school and we did, too. This past year she was in a pre-k class

with

> some sped students and some typical and spent some of the time in

the

> k classroom and it did not go well. The people who ran that program

> feel Allie needs to be in a a restrictive setting and people who

run

> restrictive settings feel Allie needs inclusion. I'm beginning to

feel

> the gened professionals I have delt with are a bunch of lazy people

> who don't wanna have to do any more than the bare minimum. They set

> goals for Allie that I had her meeting in Nov, they didn't show

her as

> mastered until April. Within one week I had her mastering goals

they

> said she couldn't do in a year. Nothing difficult, just telling you

> her sisters' names, parents' names, and address. One week it took,

> actually 2 days!

>

> All during her 2 yr old year I focused on biological treatments as

> well. We began super nu-thera, gfcf, and salicylate-free. The diet

> seemed to help her the most, and she also did well with dietary

supps.

> 6 mos after the diet we put her on paxil with *significant*

progress.

> We decided to try paxil because dietary supps, diet, and behavior

mods

> did not help her spiraling obsessional/anxious behavior. Within 2

days

> of paxil she was a different child. We just switched her to zoloft

> this past spring, thinking she might be building a tolerance to the

> paxil. Saw some improvements, but I think most of her behaviors

have

> been a low immune system and not liking her program. with Allie, if

> she isn't happy you might as well hang up trying to get her to do

> anything.

>

> I'm really thinking of homeschooling. We're doing some RDI with her

> and I really like that approach. She seems to pay much more

attention

> to us when we've done some of the activities. I feel like a year

or so

> of homeschooling could make all the diff in her future. She is so

> advanced academically and I refuse to allow her to be left behind

> because they don't wanna have to deal with her behaviors related to

> needing the correct programming. She also loves being with me and

in

> so many ways I feel I missed out on her toddlerhood by being so

> obsessed with autism. Homeschooling might give me a chance to

recreate

> that connection I missed.

>

> Debi

>

> --- In Autism_in_Girls , aimee henkel

> >

> > ps do you have ABA therapy? What early interventions have you

used?

> >

>

> Autism_in_Girls-subscribe

> ------------------------

> Autism_in_Girls-unsubscribe

>

> ---------------------------------

>

June 16, 2005

I have heard good things about ACES, I actually looked into getting

a job with them before I decided on the company I am with now. It

sounds like she's doing great! It's always nice to have parents that

are so involved and actually reading the binders!

I saw the article, but I haven't read it yet. I am in the middle of

writing behavior intervention plans, lol.

Amnesty

> > The people who thought it was wrong to ask probably had the most

> > ability to help if it's like my experience. I've heard of lots

of

> CA

> > residents moving here to Knoxville. Don't know why, lol. Our

cost

> of

> > living is MUCH less. You can get a 1200 sq ft rancher here for

> about

> > $120,000. Gas right now is $1.97/gal. Of course, we don't have

> nearly

> > the autism resources of CA.

> >

> > We started speech therapy with 4.5hrs/wk with ABA emphasis when

> Allie

> > was 20 mos old. She started 2 hrs/wk of OT when she was 23 mos

and

> it

> > had an ABA emphasis, as well. This went on until age 3, when she

> > started an autism demo class at a public preschool for disabled

> > students for 16.5 hrs/wk with ABA emphasis in the classroom,

along

> > with sensory diet. One day a week she got ABA all day. At age 4

she

> > had 32hr/wk autism demo class with one day a week being all ABA.

> > Within 2 mos of the 4 yr class they felt she was too advanced,

but

> we

> > decided to keep her there the rest of the year because she LOVED

> that

> > school and we did, too. This past year she was in a pre-k class

> with

> > some sped students and some typical and spent some of the time

in

> the

> > k classroom and it did not go well. The people who ran that

program

> > feel Allie needs to be in a a restrictive setting and people who

> run

> > restrictive settings feel Allie needs inclusion. I'm beginning

to

> feel

> > the gened professionals I have delt with are a bunch of lazy

people

> > who don't wanna have to do any more than the bare minimum. They

set

> > goals for Allie that I had her meeting in Nov, they didn't show

> her as

> > mastered until April. Within one week I had her mastering goals

> they

> > said she couldn't do in a year. Nothing difficult, just telling

you

> > her sisters' names, parents' names, and address. One week it

took,

> > actually 2 days!

> >

> > All during her 2 yr old year I focused on biological treatments

as

> > well. We began super nu-thera, gfcf, and salicylate-free. The

diet

> > seemed to help her the most, and she also did well with dietary

> supps.

> > 6 mos after the diet we put her on paxil with *significant*

> progress.

> > We decided to try paxil because dietary supps, diet, and

behavior

> mods

> > did not help her spiraling obsessional/anxious behavior. Within

2

> days

> > of paxil she was a different child. We just switched her to

zoloft

> > this past spring, thinking she might be building a tolerance to

the

> > paxil. Saw some improvements, but I think most of her behaviors

> have

> > been a low immune system and not liking her program. with Allie,

if

> > she isn't happy you might as well hang up trying to get her to do

> > anything.

> >

> > I'm really thinking of homeschooling. We're doing some RDI with

her

> > and I really like that approach. She seems to pay much more

> attention

> > to us when we've done some of the activities. I feel like a year

> or so

> > of homeschooling could make all the diff in her future. She is so

> > advanced academically and I refuse to allow her to be left behind

> > because they don't wanna have to deal with her behaviors related

to

> > needing the correct programming. She also loves being with me

and

> in

> > so many ways I feel I missed out on her toddlerhood by being so

> > obsessed with autism. Homeschooling might give me a chance to

> recreate

> > that connection I missed.

> >

> > Debi

> >

> > --- In Autism_in_Girls , aimee henkel

> > >

> > > ps do you have ABA therapy? What early interventions have you

> used?

> > >

> >

> > Autism_in_Girls-subscribe

> > ------------------------

> > Autism_in_Girls-unsubscribe

> >

> > ---------------------------------

> >

June 16, 2005

Kids always make the most progress when everyone in their lives is

involved, there's no denying that!

I am with ABC Inc in Sacramento, yes, they are Regional Center

vendored. There are ABC services in LA and Stockton, as well as

overseas too. I have only been working with them for a few months

now, before that I worked for Lovaas in Atlanta for many years, and

a few smaller, lessor known companies briefly.

Amnesty

> > > The people who thought it was wrong to ask probably had the

most

> > > ability to help if it's like my experience. I've heard of lots

> of

> > CA

> > > residents moving here to Knoxville. Don't know why, lol. Our

> cost

> > of

> > > living is MUCH less. You can get a 1200 sq ft rancher here for

> > about

> > > $120,000. Gas right now is $1.97/gal. Of course, we don't have

> > nearly

> > > the autism resources of CA.

> > >

> > > We started speech therapy with 4.5hrs/wk with ABA emphasis

when

> > Allie

> > > was 20 mos old. She started 2 hrs/wk of OT when she was 23 mos

> and

> > it

> > > had an ABA emphasis, as well. This went on until age 3, when

she

> > > started an autism demo class at a public preschool for disabled

> > > students for 16.5 hrs/wk with ABA emphasis in the classroom,

> along

> > > with sensory diet. One day a week she got ABA all day. At age

4

> she

> > > had 32hr/wk autism demo class with one day a week being all

ABA.

> > > Within 2 mos of the 4 yr class they felt she was too advanced,

> but

> > we

> > > decided to keep her there the rest of the year because she

LOVED

> > that

> > > school and we did, too. This past year she was in a pre-k

class

> > with

> > > some sped students and some typical and spent some of the time

> in

> > the

> > > k classroom and it did not go well. The people who ran that

> program

> > > feel Allie needs to be in a a restrictive setting and people

who

> > run

> > > restrictive settings feel Allie needs inclusion. I'm beginning

> to

> > feel

> > > the gened professionals I have delt with are a bunch of lazy

> people

> > > who don't wanna have to do any more than the bare minimum.

They

> set

> > > goals for Allie that I had her meeting in Nov, they didn't

show

> > her as

> > > mastered until April. Within one week I had her mastering

goals

> > they

> > > said she couldn't do in a year. Nothing difficult, just

telling

> you

> > > her sisters' names, parents' names, and address. One week it

> took,

> > > actually 2 days!

> > >

> > > All during her 2 yr old year I focused on biological

treatments

> as

> > > well. We began super nu-thera, gfcf, and salicylate-free. The

> diet

> > > seemed to help her the most, and she also did well with

dietary

> > supps.

> > > 6 mos after the diet we put her on paxil with *significant*

> > progress.

> > > We decided to try paxil because dietary supps, diet, and

> behavior

> > mods

> > > did not help her spiraling obsessional/anxious behavior.

Within

> 2

> > days

> > > of paxil she was a different child. We just switched her to

> zoloft

> > > this past spring, thinking she might be building a tolerance

to

> the

> > > paxil. Saw some improvements, but I think most of her

behaviors

> > have

> > > been a low immune system and not liking her program. with

Allie,

> if

> > > she isn't happy you might as well hang up trying to get her to

do

> > > anything.

> > >

> > > I'm really thinking of homeschooling. We're doing some RDI

with

> her

> > > and I really like that approach. She seems to pay much more

> > attention

> > > to us when we've done some of the activities. I feel like a

year

> > or so

> > > of homeschooling could make all the diff in her future. She is

so

> > > advanced academically and I refuse to allow her to be left

behind

> > > because they don't wanna have to deal with her behaviors

> > > needing the correct programming. She also loves being with me

> and

> > in

> > > so many ways I feel I missed out on her toddlerhood by being so

> > > obsessed with autism. Homeschooling might give me a chance to

> > recreate

> > > that connection I missed.

> > >

> > > Debi

> > >

> > > --- In Autism_in_Girls , aimee henkel

> > > >

> > > > ps do you have ABA therapy? What early interventions have

you

> > used?

> > > >

> > >

> > > Autism_in_Girls-subscribe

> > > ------------------------

> > > Autism_in_Girls-unsubscribe

> > >

> > > ---------------------------------

> > >

June 16, 2005

Kids always make the most progress when everyone in their lives is

involved, there's no denying that!

I am with ABC Inc in Sacramento, yes, they are Regional Center

vendored. There are ABC services in LA and Stockton, as well as

overseas too. I have only been working with them for a few months

now, before that I worked for Lovaas in Atlanta for many years, and

a few smaller, lessor known companies briefly.

Amnesty

> > > The people who thought it was wrong to ask probably had the

most

> > > ability to help if it's like my experience. I've heard of lots

> of

> > CA

> > > residents moving here to Knoxville. Don't know why, lol. Our

> cost

> > of

> > > living is MUCH less. You can get a 1200 sq ft rancher here for

> > about

> > > $120,000. Gas right now is $1.97/gal. Of course, we don't have

> > nearly

> > > the autism resources of CA.

> > >

> > > We started speech therapy with 4.5hrs/wk with ABA emphasis

when

> > Allie

> > > was 20 mos old. She started 2 hrs/wk of OT when she was 23 mos

> and

> > it

> > > had an ABA emphasis, as well. This went on until age 3, when

she

> > > started an autism demo class at a public preschool for disabled

> > > students for 16.5 hrs/wk with ABA emphasis in the classroom,

> along

> > > with sensory diet. One day a week she got ABA all day. At age

4

> she

> > > had 32hr/wk autism demo class with one day a week being all

ABA.

> > > Within 2 mos of the 4 yr class they felt she was too advanced,

> but

> > we

> > > decided to keep her there the rest of the year because she

LOVED

> > that

> > > school and we did, too. This past year she was in a pre-k

class

> > with

> > > some sped students and some typical and spent some of the time

> in

> > the

> > > k classroom and it did not go well. The people who ran that

> program

> > > feel Allie needs to be in a a restrictive setting and people

who

> > run

> > > restrictive settings feel Allie needs inclusion. I'm beginning

> to

> > feel

> > > the gened professionals I have delt with are a bunch of lazy

> people

> > > who don't wanna have to do any more than the bare minimum.

They

> set

> > > goals for Allie that I had her meeting in Nov, they didn't

show

> > her as

> > > mastered until April. Within one week I had her mastering

goals

> > they

> > > said she couldn't do in a year. Nothing difficult, just

telling

> you

> > > her sisters' names, parents' names, and address. One week it

> took,

> > > actually 2 days!

> > >

> > > All during her 2 yr old year I focused on biological

treatments

> as

> > > well. We began super nu-thera, gfcf, and salicylate-free. The

> diet

> > > seemed to help her the most, and she also did well with

dietary

> > supps.

> > > 6 mos after the diet we put her on paxil with *significant*

> > progress.

> > > We decided to try paxil because dietary supps, diet, and

> behavior

> > mods

> > > did not help her spiraling obsessional/anxious behavior.

Within

> 2

> > days

> > > of paxil she was a different child. We just switched her to

> zoloft

> > > this past spring, thinking she might be building a tolerance

to

> the

> > > paxil. Saw some improvements, but I think most of her

behaviors

> > have

> > > been a low immune system and not liking her program. with

Allie,

> if

> > > she isn't happy you might as well hang up trying to get her to

do

> > > anything.

> > >

> > > I'm really thinking of homeschooling. We're doing some RDI

with

> her

> > > and I really like that approach. She seems to pay much more

> > attention

> > > to us when we've done some of the activities. I feel like a

year

> > or so

> > > of homeschooling could make all the diff in her future. She is

so

> > > advanced academically and I refuse to allow her to be left

behind

> > > because they don't wanna have to deal with her behaviors

> > > needing the correct programming. She also loves being with me

> and

> > in

> > > so many ways I feel I missed out on her toddlerhood by being so

> > > obsessed with autism. Homeschooling might give me a chance to

> > recreate

> > > that connection I missed.

> > >

> > > Debi

> > >

> > > --- In Autism_in_Girls , aimee henkel

> > > >

> > > > ps do you have ABA therapy? What early interventions have

you

> > used?

> > > >

> > >

> > > Autism_in_Girls-subscribe

> > > ------------------------

> > > Autism_in_Girls-unsubscribe

> > >

> > > ---------------------------------

> > >

June 16, 2005

Kids always make the most progress when everyone in their lives is

involved, there's no denying that!

I am with ABC Inc in Sacramento, yes, they are Regional Center

vendored. There are ABC services in LA and Stockton, as well as

overseas too. I have only been working with them for a few months

now, before that I worked for Lovaas in Atlanta for many years, and

a few smaller, lessor known companies briefly.

Amnesty

> > > The people who thought it was wrong to ask probably had the

most

> > > ability to help if it's like my experience. I've heard of lots

> of

> > CA

> > > residents moving here to Knoxville. Don't know why, lol. Our

> cost

> > of

> > > living is MUCH less. You can get a 1200 sq ft rancher here for

> > about

> > > $120,000. Gas right now is $1.97/gal. Of course, we don't have

> > nearly

> > > the autism resources of CA.

> > >

> > > We started speech therapy with 4.5hrs/wk with ABA emphasis

when

> > Allie

> > > was 20 mos old. She started 2 hrs/wk of OT when she was 23 mos

> and

> > it

> > > had an ABA emphasis, as well. This went on until age 3, when

she

> > > started an autism demo class at a public preschool for disabled

> > > students for 16.5 hrs/wk with ABA emphasis in the classroom,

> along

> > > with sensory diet. One day a week she got ABA all day. At age

4

> she

> > > had 32hr/wk autism demo class with one day a week being all

ABA.

> > > Within 2 mos of the 4 yr class they felt she was too advanced,

> but

> > we

> > > decided to keep her there the rest of the year because she

LOVED

> > that

> > > school and we did, too. This past year she was in a pre-k

class

> > with

> > > some sped students and some typical and spent some of the time

> in

> > the

> > > k classroom and it did not go well. The people who ran that

> program

> > > feel Allie needs to be in a a restrictive setting and people

who

> > run

> > > restrictive settings feel Allie needs inclusion. I'm beginning

> to

> > feel

> > > the gened professionals I have delt with are a bunch of lazy

> people

> > > who don't wanna have to do any more than the bare minimum.

They

> set

> > > goals for Allie that I had her meeting in Nov, they didn't

show

> > her as

> > > mastered until April. Within one week I had her mastering

goals

> > they

> > > said she couldn't do in a year. Nothing difficult, just

telling

> you

> > > her sisters' names, parents' names, and address. One week it

> took,

> > > actually 2 days!

> > >

> > > All during her 2 yr old year I focused on biological

treatments

> as

> > > well. We began super nu-thera, gfcf, and salicylate-free. The

> diet

> > > seemed to help her the most, and she also did well with

dietary

> > supps.

> > > 6 mos after the diet we put her on paxil with *significant*

> > progress.

> > > We decided to try paxil because dietary supps, diet, and

> behavior

> > mods

> > > did not help her spiraling obsessional/anxious behavior.

Within

> 2

> > days

> > > of paxil she was a different child. We just switched her to

> zoloft

> > > this past spring, thinking she might be building a tolerance

to

> the

> > > paxil. Saw some improvements, but I think most of her

behaviors

> > have

> > > been a low immune system and not liking her program. with

Allie,

> if

> > > she isn't happy you might as well hang up trying to get her to

do

> > > anything.

> > >

> > > I'm really thinking of homeschooling. We're doing some RDI

with

> her

> > > and I really like that approach. She seems to pay much more

> > attention

> > > to us when we've done some of the activities. I feel like a

year

> > or so

> > > of homeschooling could make all the diff in her future. She is

so

> > > advanced academically and I refuse to allow her to be left

behind

> > > because they don't wanna have to deal with her behaviors

> > > needing the correct programming. She also loves being with me

> and

> > in

> > > so many ways I feel I missed out on her toddlerhood by being so

> > > obsessed with autism. Homeschooling might give me a chance to

> > recreate

> > > that connection I missed.

> > >

> > > Debi

> > >

> > > --- In Autism_in_Girls , aimee henkel

> > > >

> > > > ps do you have ABA therapy? What early interventions have

you

> > used?

> > > >

> > >

> > > Autism_in_Girls-subscribe

> > > ------------------------

> > > Autism_in_Girls-unsubscribe

> > >

> > > ---------------------------------

> > >

June 16, 2005

Aimee, I would suggest you try digestive enzymes first, since she's so

food adversent (is that a word, lol?) www.houstonni.com has a product

called peptizyde that many can use in place of the diet. I wish I had

tried this first. We began giving them to Allie 2 yrs ago. Devin

Houston, the chemist, visited Knoxville last weekend. He's willing to

help anyone, all you have to do is email the company and he will

personally correspond with you for free. He also said if someone wants

to try a small sample he'd be happy to mail some to anyone. Allie has

been back on " real " food for 2 yrs now with seemingly no adverse

response from the food. I'm so glad I did the diet, but Allie got to

the point she ate *nothing* but potato chips and french fries for over

6 mos!!!

Many people think it's only a matter of us offering more or forcing

them. I can't tell you how sick I am of hearing " when they get hungry

enough they'll eat... " No, they won't. There are plenty of people with

anorexia who do not eat in spite of being extremely hungry. We are

talking about serious eating problems that's not just about mom

working harder to get them to eat. I know someone whose doc said to

force her to take a bite or two. Guess what, the girl went from eating

a handful of foods to only eating one, the forcing only made her worse.

Allie did have a 2 hr EEG with no abnormal responses, but I saw some

odd facial movements the last few days that really bother me. Can

someone be conscious while having a seizure? Her face makes these

movements like several muscles are spasming at once. She is moving the

rest of her body typically but her face seems to be locked in these

movements for several seconds.

Debi

> Debi,

> I guess everyone was responding the same way in your family, its

always the people with the most that give the least.

>

> Does Allie stim alot? i really want to do the gfcf diet, but ella

doesnt eat very much as it is and she also cant have soy, egg or

dairy. Ella eats this...and onl this, gfcf waffels from tjs (one of

the goodies i tried and she ate...), peanutbutter and jelly, and

oatmeal! Thats it! of course she will eat ant cookie or sweet treat

and almost any type of cracker, but no meat, no pasta, no potatos! Not

to mention the diet is very costly and time consuming.

>

> Can you help me with some good tips on food or resources online to

shop? I feel i have to at least try...i am just scared she wont eat

any of it.How strict are you with the diet? Ive heard no playdough to

play with, special shampoo, laundry det. and more.

>

> Ellas nreo dr. wants to put her on anti epileptic medication for

abnormal brain waves...has allie ever had an eeg?

>

> Aimee

>

June 16, 2005